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National Association of Councils on Developmental Disabilities

@nacdd.bsky.social
608 followers 26 following 321 posts

Governors in every state and territory of the US appoint a Council on Developmental Disabilities. NACDD serves as the national voice of those Developmental Disability Councils. Website: www.nacdd.org

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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 06/10/2026
Ask your lawmaker or their staff to meet for a quick coffee talk. Share your story and start building a relationship: nacdd.org/were-here-th... #DDAM2026 #WereHere
Build relationships, build community. Relationships are built over time. Now, here's what you can do next. Meet your lawmakers and leaders! Introduce yourself and start to connect with key people that impact your everyday life. Connect with them on the NACDD portal today!
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 02/10/2026
New NACDD blog just published! Click below to read the full article from our Public Policy Director Erin Prangley on five ways states can protect and advance community living through laws, coordinated services, legal remedies, and oversight. nacdd.org/beyond-feder... #CommunityLiving #Disability
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 01/10/2026
2) Take action today! Use this link: nacdd.quorum.us/campaign/vef... 1. Contact your U.S. Representative about why H.Res. 1586 matters. 2. Contact your U.S. Senators and ask them to introduce a matching resolution in the Senate. #DisabilityRights #CommunityLiving #Olmstead
nacdd.quorum.us
National Association Of Councils On Developmental Disabilities
National Association Of Councils On Developmental Disabilities
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 01/10/2026
1) Disabled people belong in our communities, not in institutions. The Defend Community Integration Coalition supports H.Res. 1586, a bipartisan resolution affirming the civil right of disabled people to live at home. Learn more: nacdd.org/dcic-applaud...
DCIC applauds introduction of bipartisan house resolution supporting community living. The Defend Community Integration Coalition (DCIC) members release statement on introduction of bipartisan House Resolution 1586.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 29/09/2026
2) Where you live should not determine whether you can receive the support you need. Community-based supports benefits everyone! Learn more on our Home Sweet Home page here: nacdd.org/home-sweet-h... #HCBS #MedicaidCuts #CommunityLiving #CommunitySupports #HomeHealthCare
nacdd.org
Home Sweet Home
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 29/09/2026
1) Rural communities often face additional challenges accessing services. Community-based supports help people remain in their communities. - Families stay together. - Local schools retain students. - Small businesses keep customers and employees. - Rural communities stay vibrant and connected.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 24/09/2026
Community-based services create local jobs -- DSPs, nurses, therapists, transportation providers, home health workers, and more! These jobs: - Support local businesses - Keep people working - Boost the healthcare workforce - Create economic activity nacdd.org/home-sweet-h...
Community-based services create jobs in every community. Direct support professionals, nurses, therapists, transportation providers, home health workers, and other professionals make it possible for people to live independently.
These jobs: Support local businesses, Keep people employed, Strengthen the healthcare workforce, Generate economic activity in communities large and small. Investing in community services is also an investment in local economies.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 22/09/2026
Invite your lawmaker to see a day in your life! Show them your job, school, or community space. Start by emailing them here: nacdd.org/were-here-th... #DDAM2026 #WereHere
Build relationships. Build community. Relationsjips are built over time. Now, here's what you can do next. Meet your lawmakers and leaders! Introduce yourself and start to connect with key people that impact your every day life. Connect with them on the NACDD portal today!
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 21/09/2026
When community supports are weakened, more people may be locked up unnecessarily, and that can increase costs for states and taxpayers and place additional strain on families, caregivers, healthcare systems, and local communities. Home health care services benefit everyone!
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 21/09/2026
Home health care services help caregivers by providing support that allows them to: - Stay employed. - Care for their families. - Reduce stress and burnout. - Maintain their own health. - Balance caregiving with everyday life.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 21/09/2026
Did you know? More than 63 million Americans provide unpaid care to a family member or loved one. That's almost 20% of the U.S. population! Learn more: nacdd.org/home-sweet-h... #HCBS #MedicaidWaiver #HomeHealthCare #CommunitySupports #MedicaidCuts
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 17/09/2026
Many people think disability services only affect people with disabilities. In fact, community supports help everyone, from aging adults to local businesses. Strong community supports create stronger communities and stronger local economies. Learn more: nacdd.org/home-sweet-h...
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 16/09/2026
What can you buy with an ABLE savings account? Rent, food, medicine, rides, and school costs. Find an ABLE program here: nacdd.org/able-accounts/ #ABLEaccounts #DisabilitySavings
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 15/09/2026
Community-based services also support family caregivers, strengthen local workforces, and can reduce reliance on more expensive institutional care. Community living benefits everyone! Learn more about protecting these valuable supports and services here: nacdd.org/home-sweet-h...
nacdd.org
Home Sweet Home
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 15/09/2026
Let’s talk about what community living really means and who it benefits. People who receive services in their communities often have greater opportunities to: - Build relationships. - Work or volunteer. - Attend school. - Participate in community activities. - Stay connected to family.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 11/09/2026
Did you know NACDD has a webinar on getting home care services faster? Learn about provisional care plans that help people while they wait for full approvals: nacdd.org/nacdd-commun... #NACDD #HCBS #disabilities #disabled #HR1 #Medicaid
NACDD Community Webinars Library: States' Management of Medicaid Home Care Spending Ahead of H.R. 1 Effects. NACDD's Community Webinar series brings together the DD community and subject matter experts on issues that matter. Our Community Webinars Library includes the recordings and presentations from each webinar.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 10/09/2026
Policy/Legal Language: - Institutional settings - Segregated settings - Congregate settings - Facility-based settings - Residential institutions - Institutional care - Long-term care institutions - Restrictive settings - Non-community settings /3
nacdd.org
Home Sweet Home
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 10/09/2026
Plain Language: - Large facilities - Residential facilities - Care facilities - Facility-based care - Group facilities - Congregate care settings - Separate care settings - Places that separate people from their communities /2
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 10/09/2026
May people use the word institutions to describe segregated settings. Here are other words that can mean the same thing in common language and policy language. Learn more and find out how you can help preserve home and community based services here: nacdd.org/home-sweet-h... /1
May people use the word institutions to describe segregated settings. Here are other words that can mean the same thing in common language and policy language.

Plain Language:
- Large facilities
- Residential facilities
- Care facilities
- Facility-based care
- Group facilities
- Congregate care settings
- Separate care settings
- Places that separate people from their communities

Policy/Legal Language:
- Institutional settings
- Segregated settings
- Congregate settings
- Facility-based settings
- Residential institutions
- Institutional care
- Long-term care institutions
- Restrictive settings
- Non-community settings
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 09/09/2026
Lawmakers are leaders elected to make rules for our communities. Use our easy online tool to email your lawmaker and introduce yourself: nacdd.org/were-here-th... #DDAM2026 #WereHere
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 07/09/2026
Some states have one waiver and some have several. Because every state is different, it's important to check with your state's DD Council or Medicaid agency to learn which waiver programs are available. Visit Centers for Medicare and Medicaid to find your state agency: www.cms.gov/training-edu...
cms.gov
State Resources Map | CMS
Additional community resources can be found via the Eldercare Locator.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 07/09/2026
What is the #Medicaid home care waiver in your state? There is no single national name for waivers. Examples: -Comprehensive Waiver -Supports Waiver -Community Living Waiver -Individual and Family Supports Waiver -Intellectual Disabilities Waiver -DD Waiver -Family Supports Waiver -HCBS Waiver
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 04/09/2026
A #Medicaid waiver helps people with #disabilities get services in their home & communities instead of institutions or nursing homes. Each state has different qualifications, services & programs. People also use different words to talk about #waivers. Learn more here: nacdd.org/home-sweet-h...
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 01/09/2026
Swipe to learn the benefits of receiving home health care services! The DOJ says federal #disability laws don't make states help people live at home. Use our Relationship Builder to tell lawmakers why community living matters to you! Visit nacdd.org/home-sweet-h... to get started!
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 01/09/2026
Swipe to learn the benefits of receiving home health care services! The DOJ says federal #disability laws don't make states help people live at home. Use our Relationship Builder to tell lawmakers why community living matters to you! Visit nacdd.org/home-sweet-h... to get started!
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 30/08/2026
Last call! Submit by August 31st! Help us show the many faces of the disability community. Upload a photo and share your short story with NACDD today. Submit your picture here: bit.ly/WereHereThen... #DDAM2026 #WereHere
Share your "then, now, always". People with developmental disabilities have always been here. We’ve always been part of our neighborhoods, schools, workplaces, faith communities, and families. NACDD invites people with developmental disabilities, family members, advocates, and community members to share a portrait and a short story.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 28/08/2026
HCBS (Home and Community-based Services) really means #Medicaid home care. It lets people live, work, play, worship, engage, and contribute to their community. The DOJ #Olmstead opinion says federal disability laws may not require states to provide #HCBS. Learn more here: nacdd.org/home-sweet-h...
Home and Community Based Services (HCBS) is Medicaid Home Care.
Medicaid IS the primary source of coverage for Home care. Medicare and private insurance do not pay for HOME CARE services and COMMUNITY supports.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 27/08/2026
Disability rights have come a long way. Share your past experiences and your hopes for the future with NACDD. Submit your story and picture here: bit.ly/WereHereThen... #DDAM2026 #WereHere
Share your "then, now, always". People with developmental disabilities have always been here. We’ve always been part of our neighborhoods, schools, workplaces, faith communities, and families. NACDD invites people with developmental disabilities, family members, advocates, and community members to share a portrait and a short story.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 26/08/2026
Did you know NACDD has a free webinar library? Watch recorded online classes on home care, government budgets, and #disability support. Explore the library here: nacdd.org/nacdd-commun... #NACDD #DisabilityResources
NACDD new resource: Community webinars library
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 25/08/2026
Council Highlight: Iowa DD Council Iowa DD Council's Public Policy Manager Carlyn Crowe was recently quoted in an NPR article about the challenges of Medicaid income limits. Read the full NPR story here: www.npr.org/2026/08/10/n...
Iowa DD Council: DD Council Impact. People with disabilities say Medicaid income limits can stifle career advancement. In the article, Public Policy Manager Carlyn Crowe of the Iowa Developmental Disabilities Council said the limits can prevent Iowans with developmental disabilities from reaching their goals. "Work full-time and be able to buy a house, live in the community, buy a car," she said. "Those limits placed on what they can earn and save are keeping them from doing that."
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 25/08/2026
Tell us: What does home health care look like for you? Home Sweet Home: Your Community. Your Choice. is a new public information campaign to help everyone advocate and build relationships where it matters most - in their hometown. Learn more on our website here: nacdd.org/home-sweet-h... 2/
nacdd.org
Home Sweet Home
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 25/08/2026
You may have heard #HCBS, #Olmstead, #CommunityLiving, #Waivers, and so much more. Those words mean a lot of different things in each state. But here’s the big one: home healthcare. What does home healthcare look like? - Help to eat, bathe, take medicine - Rides to doctor appointments 1/
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 24/08/2026
Lawmakers need to hear from you! Use our online portal to send a message to your elected officials and introduce yourself today: nacdd.org/were-here-th... #DDAM2026 #WereHere #DisabilityAdvocacy
Share your "Then, Now, Always." Build Relationships. Share Your Story. Build relationships with lawmakers and leaders. Advocate for a future where community living is protected, expected, and funded – and not viewed as a program, but as part of a whole life.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 21/08/2026
What does community belonging look like in your life today? Tell NACDD about your work, relationships, and everyday activities. Share your story and photo here: bit.ly/WereHereThen... #DDAM2026 #WereHere
Share your "then, now, always". People with developmental disabilities have always been here. We’ve always been part of our neighborhoods, schools, workplaces, faith communities, and families. NACDD invites people with developmental disabilities, family members, advocates, and community members to share a portrait and a short story.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 19/08/2026
An ABLE account lets people with #disabilities save money without losing benefits like #Medicaid or #SSI. Learn how to open an account and compare state plans: nacdd.org/able-accounts/ #ABLEaccounts #DisabilitySavings
ABLE Accounts
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 17/08/2026
People with developmental disabilities have always been here. Share your "Then, Now, Always" story and photo with NACDD to help us show the strength of our community. Submit here: bit.ly/WereHereThen... #DDAM2026 #WereHere
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 14/08/2026
The best time to connect with lawmakers is now! Building relationships with key decision-makers locally, statewide, & federally is a great way to share your story & make sure your voice is heard. For #DDAM2026 we made a simple form to introduce yourself to your lawmakers. nacdd.quorum.us/DDAM2026/
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 12/08/2026
Together, these portraits & stories will help show the many faces, experiences, and dreams of the developmental disabilities community across the country. Because people with developmental disabilities were here then, are here now, and will always be here. We’re Here. Then, Now, Always. #DDAM2026
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 12/08/2026
As we continue our year-long celebration of #DDAM2026, NACDD invites people with developmental disabilities, family members, advocates, and community members to share a portrait and a short story -- your "Then, Now, Always". Submit your story and photo here: bit.ly/WereHereThen...
bit.ly
Microsoft Forms
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 12/08/2026
NACDD invites you to share your story -- your "Then, Now, Always" People with developmental disabilities have always been here and are an important part of: - neighborhoods - schools - workplaces - faith communities - families #DDAM2026
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 10/08/2026
Don't miss this ABLE account webinar on Wednesday the 12th! #AbleAccounts #Able
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 07/08/2026
Together, these portraits and stories will help show the many faces, experiences, and dreams of the developmental disabilities community across the country. Because people with developmental disabilities were here then, are here now, and will always be here. We’re Here. Then, Now, Always.
bit.ly
Microsoft Forms
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 07/08/2026
Action Alert! NACDD wants you to share your Then, Now, Always. NACDD invites people with developmental disabilities, family members, advocates, and community members to share a portrait and a short story. Submit your story and photo here: bit.ly/WereHereThen... #DDAM2026
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 03/08/2026
For advocates, child welfare professionals, policymakers, educators, families who want to help youth with disabilities succeed. Host: Kansas Council on Developmental Disabilities (KCDD) with KS Department for Children and Families, KS State Treasurer's Office, and KS Council on Economic Education.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 03/08/2026
Join to learn how Kansas: - Brings disability, foster care and financial programs together to support youth. - Helps protect SSI and Medicaid while encouraging financial independence. - Uses ABLE accounts to help young people save for the future. - Created a model that other states can copy and use.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 03/08/2026
Upcoming webinar: Building Brighter Futures: Financial Empowerment for Foster Youth with Disabilities through ABLE Accounts — Replicating the Kansas Model When/Where: August 12th at 1 PM CDT - webinar Registration link: us02web.zoom.us/webinar/regi...
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 28/07/2026
As we continue to celebrate #DDAM2026 all year, we've got a relationship-building portal for you! Now the DD community can connect with key decision-makers locally, statewide, & federally. Your voice matters. Your story matters. Introduce yourself to lawmakers here: nacdd.quorum.us/DDAM2026/
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 15/07/2026
Save the date! The Partners for Youth with Disabilities (PYD) Disability Mentoring Hall of Fame is Tuesday, July 21 at 6PM EST. NACDD is proud to share that our Operations Director, Mary Willard, is one of this year's inductees! Come join us for this virtual celebration! RSVP: bit.ly/2026-hof
NACDD's Mary Willard is a 2026 inductee into the PYD Disability Mentoring Hall of Fame.
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 13/07/2026
- Describe current trends & challenges related to accessible transportation. - Identify strategies & solutions to address transportation barriers. - Apply resources & tools to support accessible transportation options. Register here: us06web.zoom.us/webinar/regi...
us06web.zoom.us
Welcome! You are invited to join a webinar: Driving Independence: Integrating Transportation Supports Into Workforce Development. After registering, you will receive a confirmation email about joinin...
Throughout America's history, transportation has been a hallmark of progress by connecting people to opportunity, strengthening communities, and expanding pathways to independence. As we commemorate b...
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National Association of Councils on Developmental Disabilities @nacdd.bsky.social · 13/07/2026
AoD DETAC Transportation Webinar is Tuesday, July 14th! Navigating transportation barriers is crucial for inclusive employment. Join the AoD Disability Employment Technical Assistance Center (DETAC) upcoming session with experts from Easterseals and Catalight to learn how to:
Flyer for upcoming DETAC webinar on transportation supports and workforce development.
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