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Reposted by myEndometriosis

Sophie Denton @dentonsophie.bsky.social · 22/11/2024

Can you help us with our research? We'd like to understand more about the uncertainty that people can experience whilst going through fertility treatment (e.g. IVF, IUI) or fertility problems (e.g. PCOS, Endometriosis). More info below! ⬇️ nclpsych.eu.qualtrics.com/jfe/form/SV_...

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myEndometriosis @myendometriosis.bsky.social · 22/11/2024

Over the space of 8 years I’ve had 6 transvaginal ultrasounds, 5 showed nothing. But one showed deeply infiltrative #endometriosis. ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes. #Medsky #Medicine #Gynaecology #Health

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myEndometriosis @myendometriosis.bsky.social · 22/11/2024

“I feel like I’m being stabbed by a thousand tiny men” A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.

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myEndometriosis @myendometriosis.bsky.social · 22/11/2024

Fellow #Endometriosis sufferers, were you #diagnosed through invasive techniques (e.g., laparoscopy) or non-invasive methods (like transvaginal ultrasound or #MRI)?

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myEndometriosis @myendometriosis.bsky.social · 22/11/2024

General gynaes are treating endometriosis patients, we need more #specialists in the #NHS. Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.” She was later diagnosed with #endo & #PCOS

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myEndometriosis @myendometriosis.bsky.social · 21/11/2024

#UnwellWomen by #ElinorCleghorn is my night time read! A great #book which delves into the key topics of how medical research has historically prioritised the male body. With women’s health being profoundly under researched. #Disability #Medicine #Medsky

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myEndometriosis @myendometriosis.bsky.social · 20/11/2024

A #BBC article includes the lived experience of #endometriosis through Vicky’s story: "When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain." The popular press must continue to give a voice to those #struggling with endometriosis 🎗️

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myEndometriosis @myendometriosis.bsky.social · 20/11/2024

Reminder: endometriosis is not just a ‘bad period’ 🎗️

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myEndometriosis @myendometriosis.bsky.social · 20/11/2024

I have endometriosis, an #InvisibleIllness, today I feel: Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden. Does anyone else resonate with this?

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myEndometriosis @myendometriosis.bsky.social · 20/11/2024

Enlightening article by @bmj.com. Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.

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myEndometriosis @myendometriosis.bsky.social · 19/11/2024

This is one way to put it into perspective... "If all 760,000 #women waiting for #NHS #gynaecological appointments were to stand in a line, the queue would go from London to Exeter". We are being failed.

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myEndometriosis @myendometriosis.bsky.social · 19/11/2024

Something that i think more people need to hear, is that #endometriosis is a #disability ‼️

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myEndometriosis @myendometriosis.bsky.social · 19/11/2024

Updates to #NICE Guidelines on #Endometriosis Diagnosis & Management to cut the delays. So what’s happening? 1) access to early #ultrasound: recommending transvaginal ultrasound for ALL suspected cases, even if pelvic/abdominal exams appear normal.

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Reposted by myEndometriosis

Jenn Schropp @msendojenn.bsky.social · 18/11/2024

Where's all my #endometriosis and #MS warriors at? I want to follow you. 💛🧡 So many of you have come over to clearer skies & this makes me happy. I feel like this will be a good place to keep our awareness community going strong. #chronicillness #chronicpain #womenshealth

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myEndometriosis @myendometriosis.bsky.social · 19/11/2024

After 10 years, I got on the waitlist for my #endo surgery last week. I’m 1 of 630,000 people people (per the #BBC) waiting for #gynaecology treatment / care in the UK. These delays leave many without care, forcing patients to endure unbearable pain and uncertainty.

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