iiinova — where your digital self keeps evolving

Myeloma Patients Europe @myelomaeurope.bsky.social · 22/09/2026

The @myeloma-society.bsky.social Annual Meeting takes place in Glasgow this week. Dr. Faith Davies, from NYU Langone, is chairing the keynote plenary session on Friday. She spoke to us about what she is most looking forward to at #IMS2026 Read the full interview: www.mpeurope.org/prof-faith-d...

mpeurope.org

Dr. Faith Davies interview on IMS 2026

| Learn more about myeloma and AL amyloidosis at the website.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 03/09/2026

50,000 new cases of myeloma are diagnosed in Europe each year Despite this, myeloma remains little known because its symptoms are often mistaken for other conditions. Many of these patients face a long road to diagnosis More on EMD f.mtr.cool/39j5fczs5y #EuropeanMyelomaDay

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Myeloma Patients Europe @myelomaeurope.bsky.social · 01/09/2026

This month is #BCAM and #EuropeanMyelomaDay! Join us in the lead-up to 27 September as we raise awareness of myeloma and encourage earlier diagnosis. Find out more and how you can get involved: f.mtr.cool/qcyh39aq6b #EuropeanMyelomaDay #BCAM #BloodCancerAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 15/07/2026

Talking with those closest to you can be a great source of support – and can stop you feeling isolated. Remember that your partner, family and friends may also feel anxious about your health and wellbeing. It does help to talk about everything. #WellnessWednesday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 07/07/2026

Louise Martinez, 2025 ADP Graduate Applications for next years Advocate Development Programme open in October 2026. Learn more about the ADP f.mtr.cool/xlsyoqdqrr

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Myeloma Patients Europe @myelomaeurope.bsky.social · 11/06/2026

“Patients shouldn’t be invited at the end to endorse decisions made without them.” Excellent presentation by Samantha Nier on #patientpreferences and how they can help patient informed decisions on medicines. #EHA26 #patientadvocacy

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Myeloma Patients Europe @myelomaeurope.bsky.social · 11/06/2026

Looking for more myeloma updates from #EHA2026? Join us on 30 June at 17:00 CET for a free webinar where Dr Johan Lund will take time to reflect before breaking down the key research and what it means for #myeloma patients. Register now: mpeurope.org/eha-webinar-... #Webinar

mpeurope.org

Join our EHA 2026 highlights webinar

| To digest the most important myeloma news from the European Hematology Association (EHA) 2026 Congress, MPE will host a webinar on Tuesday, 30 June at 17:00 CET.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 08/06/2026

Looking to travel this summer? Can you travel safely when living with myeloma? In this video, Dr Charlotte Pawlyn shares practical guidance for patients managing myeloma while travelling. f.mtr.cool/loxbrgyawf #MyelomaMonday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 08/06/2026

This week MPE is at #EHA2026. Please follow us for live updates and interviews with leading experts. Or, if you want myeloma news delivered straight to your inbox, sign up for the MPE monthly newsletter. Sign up here: f.mtr.cool/kwflisgnts #MyelomaMonday #EHACongress

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Myeloma Patients Europe @myelomaeurope.bsky.social · 25/05/2026

#MyelomaMonday Do you feel like your myeloma treatment is not working for you? Only you know your body. Advocating for yourself is one of the most important things you can do. Contact your team if something has changed.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 18/05/2026

#MyelomaMonday Smouldering myeloma is an early, asymptomatic form of myeloma that can progress to active myeloma? In most cases, it does not need treatment, but diagnosed patients will be monitored regularly. Learn more: f.mtr.cool/tkslzywygt

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Myeloma Patients Europe @myelomaeurope.bsky.social · 15/05/2026

We are excited to share that we've launched a new five-year Research Strategy — and you can read all about it in our newsletter, which landed today. f.mtr.cool/ghhinvrnmc Not yet subscribed? Sign up at f.mtr.cool/bsmyapsnrf

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Myeloma Patients Europe @myelomaeurope.bsky.social · 13/05/2026

This week is #MentalHealthAwarenessWeek and the theme this year is Take Action. A myeloma diagnosis affects how we feel, think and our relationships with those around us. Mental wellbeing is a vital part of living with myeloma. We're asking, 'What action can you take today?' #WellnessWednesday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 11/05/2026

#MyelomaMonday The Myeloma Access Atlas provides country-specific data on health systems and data on which medicines are available in each country across Europe. It's designed to help advocates identify and tackle inequalities in myeloma care. Visit atlas.mpeurope.org to find out more

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Myeloma Patients Europe @myelomaeurope.bsky.social · 26/04/2026

The #MPEMasterclass 2026 has concluded. Thank you to all speakers, members and participants who joined us in Lisbon this weekend. Happy 15th birthday to us!

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Myeloma Patients Europe @myelomaeurope.bsky.social · 22/04/2026

#WellnessWednesday Nutrition matters during myeloma treatment. Staying hydrated, eating well and checking with your team about supplements can all help. #MyelomaCare #MyelomaPatientsEurope

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Myeloma Patients Europe @myelomaeurope.bsky.social · 21/04/2026

What is minimal residual disease (MRD) testing in myeloma? MRD testing is becoming an important tool in myeloma care. Our short video explains what MRD testing is, what your results might mean and how it could affect treatment decisions f.mtr.cool/kfmfmanuwm #TreatmentTuesday

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Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 15/04/2026

#WellnessWednesday Sleep disruption is common for people living with myeloma, whether from pain, medication side effects, anxiety or fatigue. Top Tips for getting enough rest: - Form a regular sleep and wake routine - Limit screen use before bed - Exercise - If sleep problem persists, seek help

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Myeloma Patients Europe @myelomaeurope.bsky.social · 14/04/2026

#TreatmentTuesday: AL amy insights Dr. Paolo Milani provides an expert overview of the most important AL amyloidosis updates presented at ASH 2025, including the emerging role of CAR-T therapy and key challenges in improving treatment outcomes

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Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 13/04/2026

#MyelomaMonday Did you know? Myeloma is the 3rd most common blood cancer in Europe. During 2022, there were over 50,000 new diagnoses reported alone. #BloodCancer #MyelomaAwareness #EarlyDiagnosis #MyelomaPatientsEurope

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Myeloma Patients Europe @myelomaeurope.bsky.social · 01/04/2026

#WellnessWednesday As #MyelomaAwarenessMonth draws to a close, one message always stands out: myeloma is often diagnosed late because its key symptoms; bone pain, fatigue, frequent infections – can often look like other common conditions. f.mtr.cool/iaemssesmv

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Myeloma Patients Europe @myelomaeurope.bsky.social · 27/03/2026

"If I'm not in a good place, I'm no good to Mart. You have to take time out for yourself." Kayleigh, Myeloma patient carer, UK Hear more from Kayleigh as part of our #MyelomaAwarenessMonth campaign. f.mtr.cool/garaspxrvw

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Myeloma Patients Europe @myelomaeurope.bsky.social · 25/03/2026

Keeping connected can be important for emotional wellbeing and this is just as important as your physical health. Try to stay connected with family, friends, pets and support groups. What wellness practices help you? Share your tips in the comments. #WellnessWednesday #Myeloma

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Myeloma Patients Europe @myelomaeurope.bsky.social · 24/03/2026

#TreatmentTuesdays The IFM2021-01 trial demonstrates that an ""all-antibody-based"" doublet regimen of teclistamab and daratumumab is highly effective and well-tolerated in elderly newly diagnosed myeloma patients. Dr. Salomon Manier explains this trial. Watch now

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Myeloma Patients Europe @myelomaeurope.bsky.social · 23/03/2026

Every approved myeloma treatment started as a clinical trial. Clinical trials need diverse participants from across Europe to ensure treatments work for everyone. Discover our clinical trial navigator. f.mtr.cool/mtcrmjuonf #MyelomaMonday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 20/03/2026

"I wish I’d known about the incredible myeloma community sooner." Hear more from Zvika as part of our #MyelomaAwarenessMonth campaign, which shares insights from myeloma patients who are living well with myeloma. f.mtr.cool/fqdynkxcbd

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Myeloma Patients Europe @myelomaeurope.bsky.social · 18/03/2026

#WellnessWednesdays Whether you need access to support, information about myeloma or related conditions, the sense of community, or help navigating your healthcare system, our member organisations are here for you. Find your local organisation f.mtr.cool/wvsrwvvdcv

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Myeloma Patients Europe @myelomaeurope.bsky.social · 17/03/2026

#TreatmentTuesdays The NoMoreMGUS trial is one of the largest studies collecting data on MGUS, helping us better understand who is at risk of progression. Dr. Bruno Paiva shares insights from this landmark data collection effort. Watch now

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Myeloma Patients Europe @myelomaeurope.bsky.social · 16/03/2026

#MyelomaMonday MRD testing can detect a single cancer cell among one million — helping doctors see how well your treatment is working. Learn what MRD means for your care 👇 mpeurope.org/what-we-do/educational-resources/qas/minimal-residual-disease-mrd/

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Myeloma Patients Europe @myelomaeurope.bsky.social · 13/03/2026

#FacesOfMyeloma "Having someone take on updates to family and friends really helps." Maria, myeloma patient, Greece/UK. Read more: f.mtr.cool/mxdbuvfsox #MyelomaAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 11/03/2026

#WellnessWednesday 💙 Every myeloma patient's treatment journey is unique. From targeted therapies and immunotherapies to stem cell transplantation — your team will tailor a plan just for you. Learn more 👉 f.mtr.cool/ppydjnzyeq

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Myeloma Patients Europe @myelomaeurope.bsky.social · 10/03/2026

The COBRA trial compares two frontline treatments for newly diagnosed myeloma patients. Which combination showed superior outcomes? Dr. Dominik Dytfeld explains, from #ASH2025. 🎥 youtu.be/rdUSgLnwf3Q #TreatmentTuesday #MyelomaAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 09/03/2026

Yesterday was International Women's Day — today we recognise women living with myeloma and those caring for loved ones with the condition. To every woman in our myeloma community — thank you. 💙 #MyelomaMonday #MyelomaAwarenessMonth #InternationalWomensDay

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Myeloma Patients Europe @myelomaeurope.bsky.social · 06/03/2026

#FacesOfMyeloma "Life is even better now in some ways. You start appreciating every day, every breath." Sandra, myeloma patient, Serbia Read Sandra's story 👇 f.mtr.cool/hodqbdzsgq #MyelomaAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 04/03/2026

#WellnessWednesday A myeloma diagnosis changes your life, but it doesn't have to define it. Many patients go on to live full, active lives. You're not alone — MPE and our members are here to help. Discover our members 💙 mpeurope.org/about-mpe/our-members #MyelomaAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 03/03/2026

#TreatmentTuesdays The CAMMA-3 study shows that subcutaneous cevostamab demonstrates manageable safety and meaningful clinical activity in relapsed/refractory myeloma. Dr. Phoebe Joy Ho, speaking at #ASH2025 presents the results of this phase lb study.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 02/03/2026

#MyelomaMonday: Know the Symptoms Myeloma is hard to diagnose as its symptoms mimic other conditions. Common symptoms include: bone pain, fatigue, frequent infections & unexplained weight loss. Early diagnosis matters. Learn more: f.mtr.cool/oytmkcddlh #MyelomaAwarenessMonth

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Myeloma Patients Europe @myelomaeurope.bsky.social · 01/03/2026

March is #MyelomaAwarenessMonth We're dedicating this month to raising awareness and sharing patient experiences and insights. Join us each Friday as we share inspiring stories of people living well with myeloma. #MyelomaAwarenessMonth #BloodCancer #MyelomaPatientsEurope

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Myeloma Patients Europe @myelomaeurope.bsky.social · 28/02/2026

Today is #RareDiseaseDay A global campaign which aims to represent the under-represented. The campaign unites over 70 national partners across 100 countries to raise awareness and drive policy change for the 300 million people living with a rare disease. f.mtr.cool/oeunuuxyoc

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Myeloma Patients Europe @myelomaeurope.bsky.social · 26/02/2026

Can we define a cure for myeloma? Clinical experts met last weekend at the #MyelomaCureSummit to discuss this question, organised by the International Myeloma Society. Read MPE's highlight's from the cure summit f.mtr.cool/ddoajespbd

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Myeloma Patients Europe @myelomaeurope.bsky.social · 25/02/2026

Myeloma treatment can feel overwhelming; your breath can be an anchor. Try this: breathe in slowly for four counts, hold for four, breathe out for four, hold for four. Repeat five times! Simple breathing exercises can reduce anxiety and lower heart rate. #WellnessWednesday #Mindfulness #Relaxation

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Myeloma Patients Europe @myelomaeurope.bsky.social · 24/02/2026

#TreatmentTuesdays Personalised treatment based on fitness? Can we better tailor myeloma treatment according to a patient's level of fitness and frailty? Dr. Charlotte Pawlyn discusses the UK MRA FiTNESS trial. f.mtr.cool/beuzpfczod #myeloma

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Myeloma Patients Europe @myelomaeurope.bsky.social · 23/02/2026

#MyelomaMonday Searching for clinical trials doesn't have to be hard. Our short video walks you through how to use the Myeloma and AL Amyloidosis Clinical Trial Navigator step by step. f.mtr.cool/ntubforpmq In just a few minutes, you'll learn how to search for trials.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 20/02/2026

Congratulations to Claudia Bellofiore, Paolo Milani and all co-authors for their newly published paper in HemaSphere. This research shines a light on a critical issues for patients living with AL amyloidosis. Read the full article here 👉 f.mtr.cool/aqldyidrbe

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Myeloma Patients Europe @myelomaeurope.bsky.social · 18/02/2026

You don't have to face #myeloma or #ALamyloidosis alone. MPE's 52 member organisations across 33 countries offer local expertise, peer support and advocacy. Find information, community and help navigating your healthcare system: f.mtr.cool/qnokbybxhw #WellnessWednesday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 17/02/2026

#TreatmentTuesdays The LINKER-MM4 trial investigates linvoseltamab as a simplified monotherapy option for newly diagnosed myeloma patients Speaking at #ASH2025 Dr. Xavier Leleu explains the safety & efficacy findings from this new frontline approach

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Myeloma Patients Europe @myelomaeurope.bsky.social · 04/02/2026

Today is World Cancer Day. Let’s unite to raise awareness about the need for people-centred care. Every story matters, and together MPE and our members are working to make a difference across Europe! f.mtr.cool/fquiwejtcg #WorldCancerDay #UnitedByUnique @worldcancerday

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Myeloma Patients Europe @myelomaeurope.bsky.social · 03/02/2026

#TreatmentTuesdays The GEM-CESAR trial explores whether early rescue treatment with daratumumab, pomalidomide and dexamethasone can benefit people with high-risk smouldering myeloma before it progresses. Dr. Bruno Paiva discusses this at #ASH2025.

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Myeloma Patients Europe @myelomaeurope.bsky.social · 02/02/2026

#MyelomaMonday Acute kidney failure (known as myeloma kidney or cast nephropathy) is often an early symptom of myeloma. As well as causing back pain, it can also severely reduce the kidney’s functionality. Learn more f.mtr.cool/vkhvpjnfzc

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Myeloma Patients Europe @myelomaeurope.bsky.social · 28/01/2026

Are you getting the most out of your appointments? Keeping a simple diary can help you communicate what really matters. Note symptoms when they happen. Try keeping a notebook or notes app and at your next appointment, you'll have a great conversation. #WellnessWednesday

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