iiinova — where your digital self keeps evolving

msatrust.bsky.social @msatrust.bsky.social · 14h

This week, we're honoured to share the story of Siân, from the United Kingdom (UK), who has experienced the sad loss of a loved one to MSA. Read Sian's story here - www.msatrust.org.uk/your-stories/li… #ConnectingTheGlobalMSACommunity #WorldMSADay

001

msatrust.bsky.social @msatrust.bsky.social · 28/09/2026

Our office will all be closed tomorrow for organisation wide staff training, It will re-open at 9am on Wednesday the 30th September. In the meantime please check out our website which contains extensive information about MSA - msatrust.org.uk.

000

msatrust.bsky.social @msatrust.bsky.social · 27/09/2026

There's only a month to go until the next MSA News Magazine! Until then, look back at some of our past editions - www.msatrust.org.uk/support/support… If there are any topics you would like us to feature in future articles let us know at Support@msatrust.org.uk

000

msatrust.bsky.social @msatrust.bsky.social · 26/09/2026

Create an MSA Tribute Page to honour your loved one, share messages and raise funds for MSA Trust. Free to create and yours to keep, it offers a lasting place to remember while supporting the MSA community. msatrust.muchloved.org

000

msatrust.bsky.social @msatrust.bsky.social · 24/09/2026

At checkout, you can choose to cover the card processing fee by adding a small amount to your donation. This allows the MSA Trust to receive 100% of your donation, with the extra amount covering the payment provider’s charges. This is optional and can be removed.

000

msatrust.bsky.social @msatrust.bsky.social · 24/09/2026

In the lead-up to World MSA Day on 3rd of October, MSA Trust, Mission MSA and Combat MSA are sharing stories from across the global MSA community. This week, we're sharing the story of Kate, who cares for their Dad, Martin, who is living with MSA in the UK. #WorldMSADay

000

msatrust.bsky.social @msatrust.bsky.social · 20/09/2026

Whether you’re taking on a personal challenge, organising a community event, or fundraising with friends and colleagues, we have downloadable resources to aid your fundraising journey every step of the way- www.msatrust.org.uk/get-involved/fu…

000

msatrust.bsky.social @msatrust.bsky.social · 19/09/2026

Miles celebrated his 60th birthday by asking for donations to the MSA Trust instead of presents, raising an incredible £1,450. His wife was diagnosed with MSA in January this year. Happy 60th Birthday, Miles! A huge thank you for raising both funds and awareness for MSA.

000

msatrust.bsky.social @msatrust.bsky.social · 18/09/2026

This week we're sharing Gill’s story from the UK. While every MSA journey is unique, many challenges are shared across countries and communities. Together with Mission MSA and Combat MSA, we're proud to share stories that connect our global MSA community. #WorldMSADay

000

msatrust.bsky.social @msatrust.bsky.social · 16/09/2026

We have notecards, diaries and magnetic list pads for sale in our online shop, generously donated by Stephen. Using his professional print production expertise, Stephen created these special items in memory of his wife, Alison, who had MSA. shop.msatrust.org.uk/collections/fe…

000

msatrust.bsky.social @msatrust.bsky.social · 14/09/2026

World MSA Day is on 3rd of October and the MSA Trust, Mission MSA and Combat MSA are coming together to share stories from across the UK, US and Australia. We'll hear from people living with MSA, carers and bereaved families, highlighting the impact of MSA.

000

msatrust.bsky.social @msatrust.bsky.social · 12/09/2026

Two members of the fundraising team are heading to the Great North Run tomorrow, ready to cheer on our incredible Team MSAT runners as they take on this fantastic challenge. Good luck to everyone taking part tomorrow, and thank you for your amazing support.

000

msatrust.bsky.social @msatrust.bsky.social · 10/09/2026

Regular giving is an effective way to support the MSA Trust. Your ongoing support helps us plan for the future while continuing to provide essential services, develop our research, and be there for people affected by MSA. www.msatrust.org.uk/get-involved/do…

000

msatrust.bsky.social @msatrust.bsky.social · 07/09/2026

There are many easy and creative ways to support the MSA Trust, from donating handmade items and selling goods on eBay, to fundraising in lieu of gifts. Visit this page to discover the wide range of ways you can make a difference- www.msatrust.org.uk/get-involved/do…

001

msatrust.bsky.social @msatrust.bsky.social · 05/09/2026

Today marks the International Day of Charity. Did you know that the MSA Trust relies entirely on charitable donations to fund our support services and vital research into finding the cause and cure for MSA. www.msatrust.org.uk/get-involved/do…

000

msatrust.bsky.social @msatrust.bsky.social · 04/09/2026

Thank you to Annabella, for completing the Beverley Half Marathon. Stepping in at the last minute for Gary, who was unable to take part due to an injury. "I've been enjoying my longer runs, enjoying the scenery and reflecting on how far my running has come".

000

msatrust.bsky.social @msatrust.bsky.social · 03/09/2026

The magazine archive on our website contains all the editions of MSA News since 2002. Take a look back at some of the older editions that have some really useful information especially on support for carers and symptom management guidance www.msatrust.org.uk/support-for-you…

000

msatrust.bsky.social @msatrust.bsky.social · 02/09/2026

Did you know our Board of Trustees are all volunteers, giving their skills and advice to guide the Trust? We are looking for new volunteer trustees who have a diagnosis of MSA. More information can be found in the latest edition of MSA News - ow.ly/otAo50ZIcRM

000

msatrust.bsky.social @msatrust.bsky.social · 01/09/2026

Our office will re-open at 9am. Please call us on 0333 323 4591 or email support@msatrust.org.uk and we will be happy to support you. You can also visit our website to view the services we offer and find answers to questions you may have about MSA – msatrust.org.uk

000

msatrust.bsky.social @msatrust.bsky.social · 31/08/2026

Join us at Sarah's Wood for our annual Tree Planting Day on Saturday 28 November 2026. To take part, please complete the form on our website- www.msatrust.org.uk/get-involved/ev…

000

msatrust.bsky.social @msatrust.bsky.social · 29/08/2026

Thank you to Jean and her family, for taking on a zip line in memory of David. "David was always up for a challenge, and the zip line was something he had planned to do to raise money for MSA. Sadly, David lost his battle, so we are taking on this challenge in his memory"

000

msatrust.bsky.social @msatrust.bsky.social · 28/08/2026

Our office will close at 5pm today for the Bank Holiday weekend. We will re-open at 9am on the 1st of September. In the meantime please look at our website for information and answers to a lot of questions about MSA - www.msatrust.org.uk

000

msatrust.bsky.social @msatrust.bsky.social · 27/08/2026

There is still time to submit a design for a limited edition tote bag, to mark the MSA Trust's 30th birthday in 2027. Visit our website, download our logo and brand colours and submit your design using our handy form- ow.ly/Gmj150ZFF6r

000

msatrust.bsky.social @msatrust.bsky.social · 25/08/2026

Can you bring your enthusiasm and energy to cheer on our runners at the Great North Run? We’re looking for some Cheerpoint Volunteers to join us on 13th of September in Gateshead. If you want get involved, fill out out volunteer application form here- ow.ly/Hvtl50ZFeLE

000

msatrust.bsky.social @msatrust.bsky.social · 23/08/2026

Ready for your next running challenge? With charity places available at events throughout the UK and Ireland, there's never been a better time to join Team MSAT. Sign up today and help us move closer to a future free from MSA. runforcharity.com/charity-eventhub/…

000

msatrust.bsky.social @msatrust.bsky.social · 21/08/2026

A huge thank you to long term friends, Sue, Sue and Emma for organising a fundraising event in support of Sue's sister, who is living with MSA. They brought their community together and raised an incredible £1,750. Thank you for your generosity and support.

000

msatrust.bsky.social @msatrust.bsky.social · 19/08/2026

MSA is a life-limiting condition that impacts not only the person living with it, but also their family. #BrightSideChallenge Every day, find something orange, take a photo and share it on social media and help shine a light on multiple system atrophy. ow.ly/ZAsN50ZBwRx

020

msatrust.bsky.social @msatrust.bsky.social · 19/08/2026

In May, MSA Trust in collaboration were delighted to host MSA Symposium 2026. We welcomed researchers and pharma companies, who attended in person and online to share the latest advances in MSA research, clinical care and therapeutic development. ow.ly/fOh750ZBntg

000

msatrust.bsky.social @msatrust.bsky.social · 17/08/2026

Huge congratulations and thanks to Carrie and friends for their 6K charity fun run on 18 July, raising an amazing £1,119 to split between Prostate Cancer UK and the MSA Trust. Your support will make a real difference to people affected by MSA.

000

msatrust.bsky.social @msatrust.bsky.social · 16/08/2026

Our HealthUnlocked community has over 300 active members and is a fantastic resource that allows people affected by MSA to share their thoughts, tips and experiences. Join our supportive community and sign up for free here - healthunlocked.com/msa-trust

000

msatrust.bsky.social @msatrust.bsky.social · 15/08/2026

Every conversation about MSA helps increase awareness, understanding and support. #BrightSideChallenge

A vibrant peacock butterfly resting on purple aster flowers in a sunlit garden.

000

msatrust.bsky.social @msatrust.bsky.social · 13/08/2026

The Givestar Adventure for Good Grant has a £250,000 pot to help cover travel, equipment, permits and logistics for adventurous fundraising. Applications close midnight 31 Aug 2026. Read the T&Cs before applying. info.givestar.io/grants

000

msatrust.bsky.social @msatrust.bsky.social · 11/08/2026

Regular Giving helps the MSA Trust plan with confidence, allowing us to support people affected by MSA while funding research into better diagnosis, symptom management, and moving us closer to new treatments. Find out more: www.msatrust.org.uk/get-involved/do…

000

msatrust.bsky.social @msatrust.bsky.social · 09/08/2026

Thank you so much to Lorraine and Gill for organising a car boot sale, with all proceeds going to the MSA Trust. It was a huge success, and they raised £226.19, which will make a real difference to the lives of people affected by Multiple System Atrophy (MSA).

000

msatrust.bsky.social @msatrust.bsky.social · 08/08/2026

Many people have never heard of MSA until it affects someone they know. Together we can change that. #BrightSideChallenge

A vibrant sunset with fiery orange and red hues over a silhouetted landscape.

Close-up of vibrant orange tulips blooming in a lush green garden during spring.

A vibrant glass of orange juice with a fresh orange slice for a healthy refreshment.

010

msatrust.bsky.social @msatrust.bsky.social · 07/08/2026

Create a tribute page to remember your loved one while supporting the MSA Trust. Family and friends can leave dedications, make donations or light virtual candles, creating a lasting online remembrance space that's free to keep. Open a tribute page: msatrust.muchloved.org

000

msatrust.bsky.social @msatrust.bsky.social · 06/08/2026

"In memory of my dad, I held a Charity Dance-a-thon to raise awareness of MSA and support the charities that helped my family. Thanks to our community, we raised £1,530 for the MSA Trust, St Michael’s Hospice and Phoenix Bereavement." Thank you Sophie for her great fundraising!

000

msatrust.bsky.social @msatrust.bsky.social · 05/08/2026

MSA can make speech become softer and seem slurred. Some people may wish to use a communication aid to support their speech. That's why we partner with two companies, SpeakUnique and ElevenLabs to offer voice banking to those with MSA. For more information visit our website:

100

msatrust.bsky.social @msatrust.bsky.social · 04/08/2026

Do you have a birthday coming up? Create a Facebook fundraiser for the MSA Trust and help raise funds to continue our vital support services. Instead of gifts, ask your friends to donate directly to through your fundraiser- www.facebook.com/MSATrust1/fundrais…

000

msatrust.bsky.social @msatrust.bsky.social · 03/08/2026

Thank you so much to Anne-Marie, who recently completed a skydive and we cannot thank her enough for her continued support. "The skydive went well. I am still waiting for some donations to come in, but so far I have raised £965, bringing my total fundraising amount to £2,821".

000

msatrust.bsky.social @msatrust.bsky.social · 01/08/2026

We're delighted to share the first entry in our Tote Bag Competition! We hope this fantastic design inspires you to create your own. Anyone can enter, so why not get your children or grandchildren involved too. Find out more and enter on our website- ow.ly/pE6z50Zv7SG

000

msatrust.bsky.social @msatrust.bsky.social · 30/07/2026

Join the #BrightSideChallenge and help shine a light on MSA. Every day, find something orange, take a photo and share it on social media. Here are some of the wonderful photos already shared by our community: www.justgiving.com/campaign/msat-br…

000

msatrust.bsky.social @msatrust.bsky.social · 25/07/2026

Join us at Sarah's Wood on Saturday 28 November 2026 to plant a tree for the MSA community. If you're unable to attend, we can plant a tree on your behalf and send you a certificate. Please complete the form on our website- www.msatrust.org.uk/get-involved/ev…

000

msatrust.bsky.social @msatrust.bsky.social · 23/07/2026

We’re delighted to see increasing momentum in MSA research, with new studies exploring the potential of biomarkers to improve diagnosis, monitoring and future treatments. ow.ly/IBV050ZrZz3 Wishing the UCL research team every success with this important programme.

ow.ly

UCL and MANX MSA Trust Strengthen Partnership with New Research Programme into Biomarker Discovery

A new research programme at UCL Queen Square Institute of Neurology will investigate novel biomarkers for Multiple System Atrophy (MSA)

010

msatrust.bsky.social @msatrust.bsky.social · 17/07/2026

Run the London Marathon (24–25 April 2027) for the MSA Trust. With just 4 charity places available and applications closing 27 July, don’t miss your chance- apply today or email fundraising@msatrust.org.uk if you already have a place. ow.ly/Qqit50ZonTj

000

msatrust.bsky.social @msatrust.bsky.social · 15/07/2026

To mark the MSA Trust's 30th birthday in 2027, we're inviting our MSA community to submit a design for a limited edition tote bag and logo. The winning design will be chosen by MSA staff and volunteers and produced as an official commemorative item- ow.ly/3lgq50ZnIPV

ow.ly

Design a Tote Bag for Our 30th Birthday - Multiple System Atrophy Trust

To celebrate our 30th birthday, we are inviting submissions for a limited edition tote bag design and a 30th Birthday version of our logo.

000

msatrust.bsky.social @msatrust.bsky.social · 15/07/2026

"Well it's finally over, many months of training and preparing for this epic challenge for a dear friend and former work colleague and The MSA Trust. I am truly overwhelmed by the generosity of people who have supported us along the way" Thank you to Andrew for raising £3,632.

000

msatrust.bsky.social @msatrust.bsky.social · 14/07/2026

We’re thrilled to announce that MSA Trust has passed the Association of Medical Research Charities Expert Review Audit! This review confirms that we use robust and rigorous research funding processes, helping us to fund the best research, and driving better outcomes for the MSA community.

010