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Miguel Allamani | More Than MS

@morethanms.bsky.social
77 followers 170 following 250 posts

Artist & writer. I write about disability, fatherhood, identity, aging, culture, and life as it actually feels. Creator of More Than MS. More at miguelallamani.com

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Miguel Allamani | More Than MS @morethanms.bsky.social · 22h
Happy Canadian Thanksgiving weekend! 🇨🇦🍁 Crazy times, yo! We’ve got a U.S. president who can say the dumbest things at a rally and still get applause. But I’m thankful for my amazing family. They keep me moving, kick my butt when needed, and know when I just need a hug. ❤️ #Thanksgiving #MoreThanMS
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Miguel Allamani | More Than MS @morethanms.bsky.social · 11/10/2026
The MRI was over. The fear wasn’t. Two new essays: A Sliver of Outside miguelallamani.com/notes/a-sliv... Fear of the Final Fall miguelallamani.com/notes/fear-o... #MultipleSclerosis #Disability
miguelallamani.com
A SLIVER OF OUTSIDE - Notes from a Changed Life
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Miguel Allamani | More Than MS @morethanms.bsky.social · 10/10/2026
A little Saturday reading. One MRI. Two essays. And a fear that didn’t end when the machine stopped. A Sliver of Outside: miguelallamani.com/notes/a-sliv... Fear of the Final Fall: miguelallamani.com/notes/fear-o... #MultipleSclerosis
miguelallamani.com
A SLIVER OF OUTSIDE - Notes from a Changed Life
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Miguel Allamani | More Than MS @morethanms.bsky.social · 09/10/2026
I knew I was safe inside the MRI. My body disagreed. I got through it. The anxiety didn’t end there. Two new essays: A Sliver of Outside and Fear of the Final Fall. Both live: miguelallamani.com/notes #MultipleSclerosis #Disability
miguelallamani.com
Notes from a Changed Life
Essays about disability, family, identity, adaptation, and the strange business of being alive.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 09/10/2026
I thought getting through the MRI would be the whole story. Nope. The fear didn’t end when they pulled me out. I ended up writing two connected essays about the experience. Both go up tomorrow in Notes from a Changed Life. #MultipleSclerosis #Disability #Writing
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Miguel Allamani | More Than MS @morethanms.bsky.social · 07/10/2026
Even after all these years with MS, I still forget the cost of “just an appointment.” My MS clinic is 80 km away in downtown Toronto. Rush-hour drive, MRI, long drive home. Then I wake up hurting and wonder why. Duh. #MultipleSclerosis #MSLife #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 06/10/2026
Survived the MRI. Only one panic attack, so honestly, that’s pretty good. LOL. Got through it. Technicians were great. I’m home now and completely wrung out. I’m going to sleep for approximately the rest of the week. See you tomorrow. miguelallamani.com #MultipleSclerosis #MRI
miguelallamani.com
Miguel Allamani | Welcome to My Work
I write, draw, and make things about disability, family, identity, adaptation, and the strange business of being alive.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 05/10/2026
Couldn’t sleep last night. MRI tomorrow. Love those things. Nothing better than being shoved inside a giant tin can while it bangs around your head like a nightclub at 3 a.m. Except now you’re sober. And trapped. miguelallamani.com #MultipleSclerosis #MRI
miguelallamani.com
Miguel Allamani | Welcome to My Work
I write, draw, and make things about disability, family, identity, adaptation, and the strange business of being alive.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 05/10/2026
Perfect night for some light reading. And by “light,” I mean MS, disability, rebuilding your life, a vault of old essays, and a couple chapters of a book. LOL. New stuff is up. Old stuff is back. The site is alive. miguelallamani.com
miguelallamani.com
Miguel Allamani | Welcome to My Work
I write, draw, and make things about disability, family, identity, adaptation, and the strange business of being alive.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 04/10/2026
What makes my ramblings of a madman so important? I don’t know. There are millions of people living with disability and chronic illness. My life isn’t automatically profound because I have MS. But the ordinary life still matters. New essay: miguelallamani.com/notes/what-i...
miguelallamani.com
WHAT IF I HAVE NOTHING TO SAY? - Notes from a Changed Life
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Miguel Allamani | More Than MS @morethanms.bsky.social · 03/10/2026
My first new essay in a month. I spent six weeks rebuilding my website so I could get back to writing. Then I finished it and thought: Fuck. What if I have nothing left to say? Turns out that was the essay. miguelallamani.com/notes/what-i...
miguelallamani.com
WHAT IF I HAVE NOTHING TO SAY? - Notes from a Changed Life
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Miguel Allamani | More Than MS @morethanms.bsky.social · 03/10/2026
Website update night. 🚀 Freshened up the design, added more pieces from the vault to Notes from a Changed Life, and Chapter 2 of The Tuesday Playbook — “Stacking” — is now live. New old stuff. New new stuff. miguelallamani.com #MultipleSclerosis #DisabilityWriting
miguelallamani.com
Miguel Allamani | Welcome to My Work
I write, draw, and make things about disability, family, identity, adaptation, and the strange business of being alive.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 15/09/2026
It’s been a quiet couple of days. Building my website, helping my daughter with school, and apparently destroying my back sitting on uncomfortable bar stools hanging out with family over the weekend. That’s a full enough life for me. LOL. #SimpleLife #MultipleSclerosis #MSLife
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Miguel Allamani | More Than MS @morethanms.bsky.social · 12/09/2026
Great first week rebuilding my website. Damn, it’s challenging. But this is the kind of challenge I love. Figuring shit out and putting in the work. Lots to do. Long way to go. But I’m gonna get there. See you in a couple weeks. #WebsiteDesign #CreativeProcess #Building
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Miguel Allamani | More Than MS @morethanms.bsky.social · 11/09/2026
“That’s a lot of work for you” isn’t always a reason not to do it. Sometimes I know it’ll cost me. I do it anyway because I like it. I’m trying to live here, man. Not slowly give up everything that makes life mine. #MultipleSclerosis #Disability #MoreThanMS
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Miguel Allamani | More Than MS @morethanms.bsky.social · 09/09/2026
Today’s profound observation about life with MS: I got nothing, man. Working on my website. Thinking about tattoos. Watching the world. Living my life. Sometimes MS is the lens. Sometimes life is just life. #MultipleSclerosis #MSLife #Disability #LifeWithMS #NotesFromAChangedLife
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Miguel Allamani | More Than MS @morethanms.bsky.social · 07/09/2026
Sometimes I get too caught up worrying about people who make me feel forgotten. Then I look around: teaching my daughter to drive, planning my girls’ futures, coming home to my wife. The people who really matter are already here. Life can distract you from your wins. #MSLife
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Miguel Allamani | More Than MS @morethanms.bsky.social · 05/09/2026
Time is running out. Budget consultations close Sept. 8. If you want Ottawa to do more for disabled Canadians, now is the time to speak up. 1.4% isn’t asking much. I’ve put the ask, who to contact + what to write here: notes.miguelallamani.com#onepointfour #OnePointFour #CDNPoli
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Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 04/09/2026
$1,000 more a month for low-income disabled Canadians on the CDB would cost roughly 1.4% of federal revenue. That’s a budget choice. Budget consultations close Sept. 8. Time is running out. Who to email + what to write: notes.miguelallamani.com#onepointfour
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 03/09/2026
1.4% of federal revenue could change roughly 600,000 disabled lives. Don’t just like this. Use the sample email. Send it to federal contacts. Email your own MP. Copy. Paste. Send. notes.miguelallamani.com#whatcaniactu... #Budget2026 #DisabilityRights #Canada
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 02/09/2026
Alberta is showing what happens when disabled people are treated like costs instead of citizens. Do something today. Email your MP. Share the 1.4% Campaign. Push for a real increase to the Canada Disability Benefit. Silence helps nobody. notes.miguelallamani.com#whatcaniactu...
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Miguel Allamani | More Than MS @morethanms.bsky.social · 01/09/2026
Public healthcare and education are pillars of Canada. Alberta’s move toward two-tier care is an attack on that promise. When money buys faster access, poor and disabled people get pushed back. That’s not choice. That’s erosion. #CDNPoli #Healthcare
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Miguel Allamani | More Than MS @morethanms.bsky.social · 01/09/2026
Ontario emailed me bragging about a 1.9% ODSP increase. 1.9%. Disabled people are still living in poverty. That’s why the 1.4% Campaign matters: 1.4% of federal revenue could mean an extra $1,000/month for 600,000 disabled Canadians. It isn’t impossible. It’s a budget choice. #ODSP #cdnpoli
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Miguel Allamani | More Than MS @morethanms.bsky.social · 01/09/2026
I think I’ve reached the point where the same people are seeing my 1.4% posts over and over. So here’s the ask: If you already agree, take it somewhere I’m not. Another social network. A family chat. A disability group. Your MP’s inbox. notes.miguelallamani.com#whatcaniactu...
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Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 01/09/2026
If you’ve been watching me post about 1.4% all week, this is the part that matters. Don’t just like it. Email someone. I put the message and the priority federal contacts in one place. Copy. Paste. Send. notes.miguelallamani.com#whatcaniactu... #Budget2026 #DisabilityRights #Canada
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 31/08/2026
Budget 2026 consultation closes Sept. 8. If you support the 1.4% Campaign, don’t just like this. Use the sample email. Send it to the priority federal contacts. Email your own MP too. Copy. Paste. Send. notes.miguelallamani.com#whatcaniactu... #Budget2026 #DisabilityRights #Canada
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 30/08/2026
Disability poverty isn’t an unsolvable problem. It’s a choice. 1.4%. $1,000/month. Roughly 600,000 Canadians. Take this link outside this network. Share it wherever you have a voice. notes.miguelallamani.com#whatcaniactu... #DisabilityRights #CDB #Canada
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 30/08/2026
1.4% of federal revenue could mean $1,000 more a month for roughly 600,000 low-income disabled Canadians. I built the email. I found the contacts. Now I need voices. Copy. Paste. Send. Share. notes.miguelallamani.com#whatcaniactu... #Disability #Canada #Budget2026
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 30/08/2026
1.4%. That’s all it could take to change roughly 600,000 lives. Grab the link. Share it. Post it elsewhere. Then use the email template and contact list. Copy. Paste. Send. Help move this beyond my corner of the internet. notes.miguelallamani.com#whatcaniactu...
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 29/08/2026
$1,000 a month is not luxury. It’s groceries. Rent. Medication. Transportation. Internet. Participating in life. Grab this link. Post it on your other socials. Send it to people you know. Help move 1.4% beyond this network. notes.miguelallamani.com#whatcaniactu...
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 29/08/2026
I asked myself: what can I actually do? So I built a simple 1.4% Campaign action page. The message. The email. The people to contact. All in one place. Copy. Paste. Send. Share. Help me move this beyond my little corner of the internet. notes.miguelallamani.com#whatcaniactu...
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 29/08/2026
11 days until Canada’s Budget 2026 consultation closes. 600,000 low-income disabled Canadians need more than sympathy. They need action. Share this. Repost it. Share the essay. Help get the 1.4% message beyond my little corner of the internet. notes.miguelallamani.com#onepointfour
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 28/08/2026
11 days until Canada’s Budget 2026 consultation closes. 1.4% of federal revenue could fund an extra $1,000/month for roughly 600,000 low-income disabled Canadians. It isn’t impossible. It’s a budget choice. notes.miguelallamani.com#onepointfour #1Point4PercentCampaign
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 28/08/2026
Tomorrow’s note is about one number: 1.4%. That’s roughly what it could take, as a share of federal revenue, to put an extra $1,000 a month into the hands of 600,000 low-income disabled Canadians. It isn’t impossible. It’s a budget choice. #14PercentCampaign
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Miguel Allamani | More Than MS @morethanms.bsky.social · 27/08/2026
Budget 2026 is coming this fall. Disabled Canadians cannot be an afterthought again. Roughly 600,000 low-income disabled Canadians could receive an extra $1,000/month for about 1.4% of annual federal revenue. That isn’t impossible. It’s a budget choice. #14PercentCampaign
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Miguel Allamani | More Than MS @morethanms.bsky.social · 26/08/2026
What does $1,000 more a month actually mean? Food. Rent. Medication. Transportation. Internet to book appointments and talk to doctors. Mobility costs. A little room to participate in life instead of just surviving it. That’s what 1.4% buys. #1Point4 #Disability #Canada
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Miguel Allamani | More Than MS @morethanms.bsky.social · 26/08/2026
About 1.4% of annual federal revenue could put an extra $1,000 a month into the hands of roughly 600,000 low-income disabled Canadians. $12,000 a year for food, rent, care, mobility, internet, medication and basic life. Is 1.4% really too much? #Disability #Canada #CDB
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Miguel Allamani | More Than MS @morethanms.bsky.social · 26/08/2026
I’m starting a campaign for increased disability benefits. Governments are finding billions for tariff relief while disabled Canadians fall further behind. We need $1,000 more a month. I’m taking this to elected officials and the media. More to come. #Disability #Canada #ODSP #CDB
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Miguel Allamani | More Than MS @morethanms.bsky.social · 25/08/2026
One underrated cost of chronic illness: attention. Pain takes some. Fatigue takes some. Managing your body takes some. Then regular life shows up wanting the rest. Some days there just isn’t much left over. #MultipleSclerosis #MSLife
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Miguel Allamani | More Than MS @morethanms.bsky.social · 25/08/2026
Some days living with MS is appointments, symptoms and big decisions. Other days it’s just figuring out how much I can get done before my body starts sending invoices. Today feels like an invoice day. #MultipleSclerosis #MSLife #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 23/08/2026
Brain fog is heavy today. So the work gets smaller: make one thing, answer one person, stay connected. MS has taught me that participation doesn’t have to be huge to matter. Some days, showing up in whatever way your body allows is enough. #MultipleSclerosis #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 22/08/2026
There’s a lot of fluff and pageantry around wellness that I don’t buy. Stretching, though? Absolutely. Every morning I spend 10–15 minutes getting my stiff MS body moving. Hamstrings, thighs, back, arms, neck. It helps. notes.miguelallamani.com #MultipleSclerosis #MSLife
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Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 22/08/2026
Disabled life, exhibit 8,417: my right hand is shot by night, so I need a fat razor handle I can safely grip. Found an adaptive one that fits my blades. $50 US. By the time it gets to Canada: $96 CAD. Apparently accessibility needs tariffs & customs clearance too. #DisabledLife #MultipleSclerosis
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Miguel Allamani | More Than MS @morethanms.bsky.social · 21/08/2026
New essay is up. Family Fun Day got competitive. Races, potato sacks, Olympic-level family pride. Me? Hells to the no. 😂 My event was forearm curls with a drink in my hand. notes.miguelallamani.com#one-of-the-p... #MultipleSclerosis #MSLife #Tequila
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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Miguel Allamani | More Than MS @morethanms.bsky.social · 20/08/2026
This one I designed myself. The spiral is my MS journey. The points are power. The rooted legs are strength. Inspired by West African Adinkra symbolism—an ode to my ancestry, who understood struggle. More Than MS. #MultipleSclerosis #MSLife #Tattoo
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Miguel Allamani | More Than MS @morethanms.bsky.social · 20/08/2026
Most people don’t realize MS can be a painful disease. Pain was one of my first symptoms. That’s part of why I love tattooing. There’s something weirdly liberating about choosing when the pain happens. New piece today. This one’s an ode to my heritage. #MultipleSclerosis #MSLife #Tattoo #Heritage
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Miguel Allamani | More Than MS @morethanms.bsky.social · 19/08/2026
This week I’m writing about Family Fun Day. Good food, barbecue in the park, music, family—and of course, the annual feats of strength. One of those rare moments where having MS really comes through for me My workout? Forearm curls with a drink in my hand. 😂 #MultipleSclerosis #MSLife #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 16/08/2026
Full week. Lots of fun. Backyard, garage, and bedroom refresh: complete success. Finished it off with an awesome day with Natalie’s family. Now I’m shifting gears. This week, I finally start digging into my website redesign. #MSLife #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 15/08/2026
Family Fun Day today. Cookout in the park, a little music, a couple drinks, good people, and Natalie’s family doing what they do. My main contribution will be sitting under a tree while everyone passes me by. #MultipleSclerosis #MSLife #Disability
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Miguel Allamani | More Than MS @morethanms.bsky.social · 14/08/2026
It’s my wife Natalie’s birthday today. She knows when to kick my ass and when to give me a hug. After 16 years of MS, that kind of love matters more than I can explain. So I wrote about it. KNOWING THE DIFFERENCE notes.miguelallamani.com#knowing-the-... #MultipleSclerosis #MSLife
notes.miguelallamani.com
Notes from a Changed Life | Miguel Allamani
Reflections from Miguel Allamani on Multiple Sclerosis, identity, fatherhood, creativity, grief, dignity, and rebuilding life after the old version of yourself no longer fits.
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