iiinova — where your digital self keeps evolving

More Sleep Please @moresleepplease.bsky.social · 08/07/2026

It's National Allergy day, which is a coincidence seeing as I'm sat here with my friends Welts, Rashes and Hives. It's not been an easy journey for me or my allergen cohorts because for years, they were denied. Apparently, it's not possible to have an allergic reaction for no reason. Except it is.

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More Sleep Please @moresleepplease.bsky.social · 22/06/2026

...while winter feels like a blade is see-sawing through my bones, summer brings swelling & inflammation and believe me, looking like the Pilsbury Doughboy is not a look I wish to cultivate. awomanontheedge8.wordpress.com/2026/06/22/a...

awomanontheedge8.wordpress.com

A Mid-Summer’s Night Rant

The British weather continues to show it’s disdain for all things humankind by reminding us that as Homo Sapiens, we don’t need THAT much air to breathe, and if the Nine-banded Armadill…

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More Sleep Please @moresleepplease.bsky.social · 09/06/2026

It's been an eventful period since I last posted & in that time my body has continued to let me know how much it hates me by bestowing the gifts of Hashimoto's, Chronic spontaneous urticaria (CSU) & angioedema (try saying that with a mouthful of marbles) & the ultimate prezzie, Lymphoma. YEAH ME!

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More Sleep Please @moresleepplease.bsky.social · 05/07/2025

Days 5 of being in indescribable pain, which indescribably, is hard to decribe because of it's indescribablity. Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died. #indescribablepain #pain #morepain #andyetmorepain #surgery #openwound

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More Sleep Please @moresleepplease.bsky.social · 04/07/2025

Me about every pain I've ever experienced - "Surely it can't get any worse than this!" Throat surgery - "Hold my beer..." It seriously feels as though my throat has been hacked with a serrated blade that's been held over the burning flames of Hades before being dipped in acid. #surgery #pain

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More Sleep Please @moresleepplease.bsky.social · 04/04/2025

I am so unbelievably bored with this life.

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More Sleep Please @moresleepplease.bsky.social · 02/04/2025

I can't say that I'm depressed but there's an overwhelming feeling of sadness that won't go away. I don't feel like I'm under a dark cloud. There's no feeling as though there's a vapid hole in my chest. No 'Big Black Dog' nestling down beside me. Just a deep deep sadness. #chronicillness #sadness

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More Sleep Please @moresleepplease.bsky.social · 01/04/2025

I felt quite offended when my bloods came back as "unremarkable." Not that I want it to be remarkable in a "you've got an incurable disease," way. But maybe they could have typed it as, "although unremarkable, her haemoglobins were very pleasant." #chronicillness #spooniesky #nicebloodyougotthere

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More Sleep Please @moresleepplease.bsky.social · 01/04/2025

Friends, I have borne witness to a miraculous event! Like a rainbow coloured Unicorn frolicking amidst the joy of playful fairies, like dragons taking to a sunburnt sky & like Kim Kardashian being fully clothed, I never thought such a thing existed. #chronicillness #mcas #spooniesky #allergies

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More Sleep Please @moresleepplease.bsky.social · 31/03/2025

Why do some people insist on working with members of the public when they have no people skills whatever? Trying to explain my symptoms and could this nurse look anymore bored? Biatch actually yawned half way through and then looked away like I was inconveniencing her by being ill!

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More Sleep Please @moresleepplease.bsky.social · 26/03/2025

MRI on Saturday but I can't help feeling what's the point? Whether they find something or not doesn't take away from the fact that my life is still 50 Shades of shit. A new diagnosis isn't going to eradicate the old conditions and the old conditions aren't going anywhere. So again, what's the point?

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More Sleep Please @moresleepplease.bsky.social · 24/03/2025

Yay! I've finally been discharged from the head & neck cancer pathway! But there's still lymphoid tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky

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More Sleep Please @moresleepplease.bsky.social · 13/03/2025

'Issue 5' of my mock Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness #fibromyalgia #chronicillness #spooniesky #nocureforstupid

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More Sleep Please @moresleepplease.bsky.social · 13/03/2025

"By now I was hunched over like a wizened old crone, the pain no longer allowing me to stand upright." *Originally titled "Adventures in Laundering." #chronicfatigue #chronicpain #spooniesky themighty.com/topic/chroni...

themighty.com

Doing the Laundry When You Have Chronic Fatigue

"Will this tiredness never cease?"

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More Sleep Please @moresleepplease.bsky.social · 13/03/2025

Oh the life of an invalid. It's 1:30 am & I'm literally stuck in bed. Left leg is on strike so I can't walk & my shoulders/neck/back have decided that they will not be used for their intended purposes. So here I lie, heat pad wrapped around neck contemplating my existence #chronicillness #spooniesky

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More Sleep Please @moresleepplease.bsky.social · 12/03/2025

Continuing my Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness. #chronicillness #spooniesky #ohthehorror

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More Sleep Please @moresleepplease.bsky.social · 12/03/2025

Starmer says targeting #disabilitybenefits is about fairnes but what's fair about forcing those with long-term health conditions into further poverty? PIP fraud was 0.2% compared to the estimated £60 million in underpayments caused by DWP and yet we, the chronically disabled, are being penalised.

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More Sleep Please @moresleepplease.bsky.social · 11/03/2025

So Temu Tory Keir Starmer, wants to cut #DisabilityBenefits for those who can't work. That's 'CAN'T' work, not 'won't' work. Cutting off people's only means of financial help, is not going to suddenly cure them of their long-term/life-long disabilities. As if life isn't hard or scary enough as it is

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Reposted by More Sleep Please

A Chronic Voice @achronicvoice.com · 11/03/2025

“I find myself incredibly #disabled & yet limited to only #FreshFood that can be prepared & eaten right away. It’s exhausting. Many days it’s impossible & I either don’t eat or have to rely on someone else to prepare my food for me": buff.ly/3XZoRHj by @Broadwaybabyto.bsky.social #MCAS #NEisVoid

buff.ly

When You're Allergic to Everything and Nothing... That's MCAS

An intro guide to Mast Cell Activation Syndrome and how it has fundamentally changed my life. Living under the constant threat of anaphylaxis is hard - but there are ways to make it easier.

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Reposted by More Sleep Please

A Chronic Voice @achronicvoice.com · 08/03/2025

"You don’t want to feed them, But they’re waiting to feed you. Don’t you understand? They won’t let you die; Who will starve for you then? It’s just one of those nights.": buff.ly/3S76zCP #ChronicPain #MentalHealth #steroids #painsomnia #poem

(Poetry On Steroids) It's Just One Of Those Nights. (Photo of a scared looking girl with her fists closed tightly against her chin, looking up at some neon lights.)

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More Sleep Please @moresleepplease.bsky.social · 07/03/2025

Dr investigating recent seizures - "And how long have you had mental health problems?" Me - "Always." Dr - "Well it could be..." Me giving the 'I dare you to say it's all in your head', death stare. Dr looking scared - "er...um...let's refer you back to neurology." Me - "yeah, let's. #chronicillness

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More Sleep Please @moresleepplease.bsky.social · 06/03/2025

Proof how our symptoms are dismissed and downplayed. I called 111, who in turn called the emergency services about my seizures. And this is what was sent to my doctor, who by the way, retired almost 2 years ago. #chronicillness #spooniesky #medicalgaslighting

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More Sleep Please @moresleepplease.bsky.social · 06/03/2025

Day 2 of tempers, tantrums & tremors. Told the EMT they were pissing me off because they kept talking over me & not TO me. Told the doctor to "not go there," when she tried to blame my pre-existing conditions & finally told them all to fuck off because they weren't being of any use. #chronicillness

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More Sleep Please @moresleepplease.bsky.social · 05/03/2025

Issue 3 of ridiculously misguided real-life quotes, and useless advice, on chronic pain and illness.

Mock horror book cover, of a woman in shadow, with what looks like a veil covering her head. Over the shadowed image, the title reads, "YOU DON'T LOOK SICK."

"It might seem like everything's going to plan, but you never know what twat is around the corner, waiting to give you some unsolicited advice. One misstep and-who knows where you are now? Someone that looks familiar but with an air of malice, will ask you if you have tried yoga. Trust no one; you can only rely on yourself to get out of this one."

Reviews read, "the greatest writer of horror strikes again with this one." My Mum.

"I simply could not put this down." Ben Dover

"An Intricately crafted journey from start to finish." Need to go to specsavers. Print too small.

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More Sleep Please @moresleepplease.bsky.social · 05/03/2025

And so, there I lay, semi-clad as the blanket pooled around my waist, writhing under the gaze of the 2 men stood before me...okay, the 2 men where paramedics and I was alternating between Tonic and Myoclonic seizures. But still, imagine the possibilities...😜 #chronicillness #seizures #spooniesky

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More Sleep Please @moresleepplease.bsky.social · 04/03/2025

The second installment of my mock horror posters/book covers, showcasing ridiculously misguided real-life quotes on chronic pain and illness. Oh and some useful advice, like this next one. #chronicillness #chronicpain #fibromyalgia #nocureforstupid

"When you don't do the things you are meant to be doing, it causes unconscious stress which translates as pain. You ever see productive people complaining about their fibromyalgia? Nope? So het shit done today and stop whining."

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More Sleep Please @moresleepplease.bsky.social · 04/03/2025

Man flu is among us, or the plague or ebola, as they call it. The Womb-fruit is currently "close to death" & might "not make it." Meanwhile, I've fed th cat, cooked lunch, tidied, mopped. swept, wiped down, loaded & unloaded, folded, put away and all whilst also being ill and in pain #chronicillness

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More Sleep Please @moresleepplease.bsky.social · 04/03/2025

Stoopid Brainfog: No876 Me counting how many hours since I last fed the furball- "Monday, Tuesday Wednes......no..wait...what? No that's not counting."

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More Sleep Please @moresleepplease.bsky.social · 03/03/2025

I'm flabbergasted by the terrible articles & comments I've read regarding the causes & potential cures for illness. Seriously, my flabber is truly gasted! So I've used these quotes via mock up of horror books/posters entitled, "TWISTED TALES." I know, how original. All quotes are real.

Twisted Tales. Myths from an oblivious mind. Issue 1. "Fibromylagia is a manifestation of suppressing emotions. Holding in emotions and not having the skills or the enviroment to express it in a healthy way, is the root cause."

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More Sleep Please @moresleepplease.bsky.social · 03/03/2025

As a child, I used to bash my head against the pillow repeatedly or turn my head from side to side in order to get to sleep.That all stopped when I became an adult & met my ex. He already found it weird that I would move my feet from side to side in a repetitive motion & rocking myself to sleep

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More Sleep Please @moresleepplease.bsky.social · 02/03/2025

Oh dear. It seems that the "Never Own A Disease" meme has offended some. A meme that's a parody of all those memes that give out unsolicited advice on how to cure chronic illnesses...posted on a page about chronic illness by a woman who is chronically ill with chronic illnessess.

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More Sleep Please @moresleepplease.bsky.social · 28/02/2025

This was a difficult one to write. "Nobody talks about the loss of everything that you’ve spent a huge portion of your life, pouring your heart into. Your hopes, your dreams, your plans for the future." moresleeppleaseblog.wordpress.com/2025/02/28/l...

moresleeppleaseblog.wordpress.com

Life Is Full Of Sudden Goodbyes

Daily writing promptDescribe a phase in life that was difficult to say goodbye to.View all responses From infancy to toddlerhood, throughout childhood and adolescence, each step is a route that wil…

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More Sleep Please @moresleepplease.bsky.social · 28/02/2025

That's right, ignore your illness, turn your back on your pain. Give your disabilities the middle finger. Send it to Coventry & never speak to it again, and soon, we will all be cured. Don't know why I didn't think of it before. #chronicillness/pain #disability #spooniesky

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More Sleep Please @moresleepplease.bsky.social · 27/02/2025

It's been an arduous battle. One fraught with defeat and disappointment. But finally, he has conquered his mountain. Who knows what the future may bring. Today, the top of the door. Tomorrow, THE WORLD! Not sure why this pic looks like it was taken in Hades.

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More Sleep Please @moresleepplease.bsky.social · 27/02/2025

"It isn’t just about cleaning, it’s about loss. Not being able to tidy is a daily reminder of yet one more thing that’s been taken away." themighty.com/topic/chroni...

themighty.com

When an Illness Makes Cleaning the House a Thing of the Past

"It isn’t just about cleaning, it’s about loss."

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More Sleep Please @moresleepplease.bsky.social · 27/02/2025

In 2024, a Conservative election candidate dismissed the social model of disability as “discredited” and “wokeness gone mad.” Now do those who used the term "woke," actually know what it means? Because I don't think it means what they think it means. moresleeppleaseblog.wordpress.com/2025/02/25/i...

moresleeppleaseblog.wordpress.com

I do not think it means what you think it means.

Daily writing promptIf you could permanently ban a word from general usage, which one would it be? Why?View all responses If I could permanently ban any word from the oral cavity of the human vocab…

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Reposted by More Sleep Please

Ann Foster @vulgarhistory.bsky.social · 21/11/2024

Women's health had long been ignored and misunderstood in western medicine. My latest Substack is about greensickness and hysteria, both of which were ways of pathologizing women and girls who didn't behave as men thought they should. open.substack.com/pub/vulgarhi...

open.substack.com

Hysteria, Greensickness, and other "Female Problems" that never really existed

Every time you call me crazy I get more crazy/ What about that?

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More Sleep Please @moresleepplease.bsky.social · 26/02/2025

Ah, to be this cat. (He's a git) Always striving to reach his goal & never giving up, or giving in to the obstacles that surrounds him. (My furniture) Always hopeful, tenacious & determined, he finally reaches the summit of life (the boiler) and is victorious in defeating his enemy. (Me)

Tuxedo cat sitting on top of the boiler.

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More Sleep Please @moresleepplease.bsky.social · 25/02/2025

It comes to something when even the postman is offering health advice. Had I tried exercising? (Holds hand to mouth & gasps in fake shock horror) Why no Mr Postman, I hadn't. But I get enough exercise when ducking and diving from unsolicited advice. It really is an exhausting workout #chronicillness

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More Sleep Please @moresleepplease.bsky.social · 25/02/2025

Writing prompt. The question,"What bores you?" The answer, "Me." "I mourned myself, hated life but more then that, I hated the person that I had become. Who was she? I no longer knew." #chronicillness #spooniesky #Iusedtobeme moresleeppleaseblog.wordpress.com/2025/02/22/me/

moresleeppleaseblog.wordpress.com

Me.

Daily writing promptWhat bores you?View all responses What bores me? That’s like asking the million dollar question, “what is the meaning of life?” (The answer is 42) It’s a…

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