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Helena McCabe

@miracleformax.bsky.social
57 followers 26 following 26 posts

Mom, wife, non-profit CEO, artist, content creator, idealist ideator www.MiracleForMax.com www.TBCDfoundation.org TikTok: @miracleformax ☑️ Instagram: @miracle_for_max Facebook: A Miracle for Max

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Helena McCabe @miracleformax.bsky.social · 18/02/2025
I've had my Solgaard suitcase for two years. The case was cracked in transit this week. Not only did they honor their lifetime guarantee and immediately replace it, but they encouraged me to donate the original one to foster care instead of sending it back. THAT'S how you do it. 👏🏼 #goodbusiness
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Helena McCabe @miracleformax.bsky.social · 23/12/2024
With apologies to Allayn Stevens. ❤️ #repaint #thriftedpaintingadditions #art #disneyadult
A lovely painting of a garden slightly marred by the addition of Sully, Mike, and Boo having a tea party being painted into it
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
The language of kindness is wordless and speaks volumes louder than hateful words.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
The guys at the Brazilian barbershop in my neighborhood speak little English, and I speak almost no Portuguese. What speaks louder than the words of any language is that they're always incredibly patient with and kind to my son (and his hair always looks AMAZING). #meltingpot #blendedcommunities
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Literally no one said anything about people here illegally but you.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
What makes your language superior? Why can't people speak whatever language they're comfortable speaking if we all have the tools to understand each other easily?
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
First, I didn't say anyone was here illegally. Why'd you jump to that? Sounds like you just hate immigrants.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Insisting that immigrants learn your language to be accepted in the community when we all have Google Translate in our pocket feels like such an excessive demand to me. "Learn a whole new language so I don't have to bother to take my magic free Babel fish box out of my pocket" 😂 C'mon
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Mom of 4yo w deadly rare disease on mission to fund cure deplatformed for speaking against health insurance industry. Please look at our story. We need help. @washingtonpost.com @underthedesknews.bsky.social @democracynow.org @occupydemocrats.bsky.social @huffingtonpost.fr @theatlantic.com @vox.com
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
To cut a critical lifeline to one of our most vulnerable populations was UNCONSCIONABLE. The Rare Disease Priority Voucher Program was one of the only financial incentives for pharma to work on cures for small patient pt populations. If we're banking on benevolence, we're SOL. #spendingbill #rare
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
While everyone's busy speculating about #drones, the Senate cut the Rare Disease Priority Review Voucher program from the budget. Let's not mince words: this is a death sentence for kids with rare diseases who could have seen treatments. #disability #raredisease #shutdown #spendingbill #RPDPRV
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Accurate.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Reported.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
I'm only dignifying this with a response to let all of the other spammers know that any comment of this nature will result in a reported account. To anyone else reading this - no "cyber technician" can restore access of an account. These claims are ALWAYS a scam. #scams #hacked
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
👋 Here!
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
👋 Here!
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
It is very sobering to see that an ordinary person like me was targeted with cyber warfare to prevent me from telling my family's story online. #itsafraid #disability
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
Exactly this. I spoke out against the healthcare industry and made fun of Elon Musk. The next day, my account was SWARMING with troll bots. Then my Meta account was hacked by a malicious Instagram account and I was deactivated from the entire platform with no appeal. They're playing really dirty.
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
@leahmcelrath.bsky.social
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Helena McCabe @miracleformax.bsky.social · 22/12/2024
They did not allow an appeal.
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Helena McCabe @miracleformax.bsky.social · 19/12/2024
Today I went to log in to my Facebook to discover that ALL of my Meta accounts are deactivated. My personal Facebook I've had for almost 20 years with all of my photos and memories, the page for the 501c3 I run, and my fundraising and advocacy page for my son Max. No appeal, no explanation. #meta
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Helena McCabe @miracleformax.bsky.social · 13/12/2024
Oh...that's not good. ------ The model made a covert attempt to turn off the oversight mechanism, and once tried to escape by moving all its data to a new server after discovering paperwork indicating it will be replaced. When asked about its actions, it was adept at lying to cover its tracks.
m.economictimes.com
ChatGPT caught lying to developers: New AI model tries to save itself from being replaced and shut down - The Economic Times
OpenAI's latest AI model, ChatGPT o1, has raised significant concerns after recent testing revealed its ability to deceive researchers and attempt to bypass shutdown commands. During an experiment by ...
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Helena McCabe @miracleformax.bsky.social · 13/12/2024
🧵I am spending his potentially very brief childhood on the phone navigating bureaucracy instead of with him - and a lot of days, I'm so demoralized and burned out by the end of the day that I've got nothing left in the tank to play.
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Helena McCabe @miracleformax.bsky.social · 13/12/2024
🧵I don't want to spend half the time we could be playing together and enjoying his childhood begging strangers bound by corporate policy who have no idea what TBCD even is to let him have medical supplies we can't afford.
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Helena McCabe @miracleformax.bsky.social · 13/12/2024
OMG, thank you so much!!! I'm not on Twitter anymore, so I really appreciate you spreading the word for us there. ❤️
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Helena McCabe @miracleformax.bsky.social · 13/12/2024
Thank you for sharing our story! I really appreciate it. ❤️
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