iiinova — where your digital self keeps evolving

The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 20/09/2026

Today is Batman Day. Like Batman, Mark stood up for what was right & used his human strengths and gifts to make the world a better place. Sudden Unexpected Death in Epilepsy (SUDEP) takes one life every 3 hours. The Mark Shaparin Foundation is committed to #EndTheSUDEPSecret #markshouldstillbehere

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 09/09/2026

It’s Mark’s 13th birthday! 🩵🎉 Even though Mark is not with us physically, he’s with us every day in the way we view the world, reminding us to live with compassion, kindness, and patience. We couldn’t be more proud of the person Mark will always be. We love and miss you more than words can describe.

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 08/09/2026

The best thing about being Mark’s parents is seeing everything he loved about life & all the things that made him smile because Mark truly found joy in so much. He continues to inspire us everyday. Thank you for your generosity & support. (secure.givelively.org/donate/the-mark-shaparin-foundation)

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 05/09/2026

This week is bittersweet as we get ready to celebrate Mark’s 13th birthday next Wednesday. Every year, we looked forward to making it as special as he made everyone around him feel. Whether it was his fave bday cake or riding in a helicopter, the greatest gift was seeing the happiness on his face.

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 02/09/2026

To celebrate Mark's birthday on Sept 9th, we invite you to join us by making a gift in his honor. Your support helps us raise awareness of epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP) and educate families & healthcare professionals. secure.givelively.org/donate/the-mark-shaparin-foundation

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 01/09/2026

Join us for a special evening to celebrate Mark 🎶 Mark’s Music Night 📅 Sun 10/18/26 🕰️ 730-9pm  📍 Carnegie Hall ⭐ Tamar Kurdadze with Guests (carnegiehall.org/calendar/2026/10/18/tamar-kurdadze-piano-0730pm) Proceeds toward raising awareness about epilepsy & Sudden Unexpected Death in Epilepsy(SUDEP)

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 04/07/2026

Pictured: Mark in 2022 at the house of Betsy Ross, designer of the first American Flag Wishing everyone a safe, relaxing, and joyful holiday with friends and family, time spent outdoors, and delicious food. We hope your 4th of July is filled with wonderful moments and cherished memories. ❤️

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 26/06/2026

A few days left in the Ramen Challenge!  🍜Enjoy a bowl of ramen #SlurpforSeizureSafety 📸Snap a photo/video & post on social media ➡️tag @markshaparinfdn 💜Share a fact or why epilepsy matters to you 🔁Tag/invite friends to participate 🎗️Consider making a small donation Take the challenge before 6/30!

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 18/06/2026

Shelly accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 17/06/2026

Moorice accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 15/06/2026

We’d like to invite you to The Joanna Sophia Foundation’s Fun Run/Walk this Saturday, June 20th in Queens. Join The Mark Shaparin Foundation team and us help spread awareness about epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP) at runsignup.com/Race/Registe...

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 12/06/2026

Mark liked soccer, but he loved a good spectacle. He loved the crowd, the energy, doing the wave & cheering when his team scored. He would want the newest jersey. He should still be here begging us to go to a World Cup game & staying up late watching the our play. Go USA! markshaparinfoundation.org

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 06/06/2026

June 5th is National Donut Day. Although Mark is eating a winter holiday themed donut in the picture, his favorite donut was vanilla frosted with sprinkles. On a day like today, Mark would be asking us get donuts the moment he woke up. Learn more about Mark at www.markshaparinfoundation.org

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 03/06/2026

2026 NJ Academy of Family Physicians Annual Meeting-TECHNOLOGY IN MEDICINE. Talked about video-assisted & wearable seizure detection devices and monitoring vital signs after a seizure. MORTEMUS study showed that CPR within 3-mins of post-seizure apnea (the cessation of breathing) was life saving.

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 03/06/2026

There are only a few tickets left, so be sure to save your seat! Use links to go to www.markshaparinfoundation.org/underthelights We would like to thank UCB for their generous support as the Lead Sponsor of this event.

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 03/06/2026

Only a few tickets left! Use links to go to www.markshaparinfoundation.org/underthelights We would like to thank UCB for their generous support as the Lead Sponsor of this event as well as our community supporters Paul’s Purple Warriors, Milo&Me, Joanna Sophia Foundation & Epilepsy Services of NJ

markshaparinfoundation.org

Under the Lights — The Mark Shaparin Foundation

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 31/05/2026

May 31st is #NationalSmileDay Mark was always smiling. It was really hard to pick from the almost 100k pics we have. Here is Mark being Mark and happily smiling after just waking up in his crib at 1 and half years old. Learn about Mark and see more pics at www.markshaparinfoundation.org

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 31/05/2026

Alysia accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy(SUDEP) Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness @markshaparinfdn

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 30/05/2026

May 30 is #NationalCreativityDay Today we celebrate imagination. Mark was always trying new things & being silly. Unfortunately,we don’t know what Mark was doing in this picture but we know he was using his imagination, being creative & having fun. #markshouldstillbehere #EndTheSUDEPSecret #SUDEP

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 29/05/2026

75% of seats sold! Get your tickets now. Movie Night in NYC featuring “Under the Lights” (6/7/26) Films: “Informed Silence” by Spencer Choice and “Under the Lights” by Miles Levin. Sip and snacks provided (Wine, Beer, Light Food) UCB - Lead Sponsor www.markshaparinfoundation.org/underthelights

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 28/05/2026

At the inaugural Epilepsy Awareness Day in DisneyWorld. Btw 1/3-1/2 of conference goers had heard about SUDEP before. Most learned about it from social media or other nonprofis; not from their doctor. The primary source of all medical information patients receive should come from their doctor!

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 23/05/2026

We tabled at the Profound Autism Summit in Boston. 20%-40% of patients with autism have epilepsy & up to 60% of patients with autism have an irregular EEG, even if they’re not having seizures. Most people & most healthcare providers, do not know about SUDEP or the link between epilepsy & autism

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 22/05/2026

Secure your spot today! Going fast: 2/3 of tickets are sold. Movie Night in NYC featuring “Under the Lights” on June 7th, 2026 Short-film “Informed Silence” by Director Spencer Choice. Feature film “Under the Lights” by Director Miles Levin www.markshaparinfoundation.org/underthelights

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 15/05/2026

More than 50% gone in less than a week! Grab your spot before it’s too late. The Mark Shaparin Foundation presents: Movie Night in NYC featuring “Under the Lights” Tickets are on sale now for this special event in NYC on Sunday, June 7th 2026. www.markshaparinfoundation.org/underthelights

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 12/05/2026

Teresa accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness @markshaparinfdn

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 11/05/2026

Paul accepted The 2026 Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness @markshaparinfdn.bsky.social

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 08/05/2026

The American Academy of Neurology is updating their Sudden Unexpected Death in Epilepsy (SUDEP) Practice Guidelines. Join us in commenting until May 12, 2026. www.aan.com/practice/gui... committed to #EndTheSUDEPsecret & ensure that all neurologists/epileptologists #TalkAboutSUDEPeveryVisit

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 07/05/2026

Please join us on June 7th as The Mark Shaparin Foundation presents: Movie Night in NYC featuring “Under the Lights” Tickets are now on sale for this advance screening with Filmmaker Miles Levin in Person! We would like to thank UCB for their generous support as the Lead Sponsor of this event.

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 05/05/2026

Dr. Will Welch accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 05/05/2026

Dr. John Gaitanis accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 03/05/2026

Mark accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP) Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness @markshaparinfdn

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 03/05/2026

Laura accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the ramen challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 14/04/2026

Healthcare Heros at Phelps Hospital accepted the Ramen Challenge to increase awareness about Epilepsy & Sudden Unexpected Death in Epilepsy (SUDEP). Who is next? www.markshaparinfoundation.org #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 11/04/2026

Donna, Diana, Dan and Raven accepted The Mark Shaparin Foundation Ramen Challenge to increase awareness about Epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP). Who is next to accept the challenge? #slurpforseizuresafety #ramenchallenge #EndTheSUDEPSecret #SUDEPAwareness #epilepsyawareness

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 11/04/2026

EpiWatch supports the Ramen Challenge. Code MarksRamen for discounted rate. 2% of revenues will be donated to the foundation. EpiWatch is the first clinically validated & FDA-cleared seizure detection app for Apple Watch, cleared for tonic clonic seizure detection for ages 5 & up. www.epiwatch.com

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The Mark Shaparin Foundation @markshaparinfdn.bsky.social · 11/04/2026

Special thank you to News12 Connecticut for helping us spread the word about The 2026 Ramen Challenge by encouraging its viewers to “get your slurp on for a good cause!” Who is next to accept the #ramenchallenge? #slurpforseizuresafety #endthesudepsecret #sudepawareness #epilepsyawareness

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