iiinova — where your digital self keeps evolving

Reposted by Marci Kay Livingston

Marci Kay Livingston @marcikayrn.bsky.social · 26/09/2026

📢 The GUIDE-COS survey is open! How can we better include lived experience perspectives when developing the initial long-list of outcomes for Core Outcome Sets? I'm inviting people to share their opinions. ⏱️ 10–15 mins | Open NOW 🔗 a-qr.co/000621VR8 Please share with your networks!

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Marci Kay Livingston @marcikayrn.bsky.social · 26/09/2026

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Marci Kay Livingston @marcikayrn.bsky.social · 11/09/2026

𝗚𝗨𝗜𝗗𝗘-𝗖𝗢𝗦 𝗶𝘀 𝗟𝗜𝗩𝗘! 🎉 My international survey on incorporating people with lived experience into the long-list stage of Core Outcome Set development is now open. 10–15 mins. Your views will help shape the final guidance. Please share with relevant colleagues/networks! A-QR.CO/000621VR8

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Marci Kay Livingston @marcikayrn.bsky.social · 11/09/2026

𝗚𝗨𝗜𝗗𝗘-𝗖𝗢𝗦 𝗶𝘀 𝗟𝗜𝗩𝗘! 🎉 My international survey on incorporating people with lived experience into the long-list stage of Core Outcome Set development is now open. 10–15 mins. One-time survey. Your views will help shape the final guidance. Please share with relevant colleagues/networks!

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Reposted by Marci Kay Livingston

Global Health Otherwise @gh-otherwise.bsky.social · 02/07/2026

𝗧𝗵𝗶𝘀 𝘀𝗰𝗼𝗽𝗶𝗻𝗴 𝗿𝗲𝘃𝗶𝗲𝘄 𝗼𝗳 𝟰𝟱 𝘀𝘁𝘂𝗱𝗶𝗲𝘀 𝗺𝗮𝗽𝘀 𝗵𝗼𝘄 𝘁𝗼 𝗶𝗻𝗰𝗹𝘂𝗱𝗲 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗽𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲𝘀 𝗲𝗮𝗿𝗹𝘆 𝗶𝗻 𝗯𝘂𝗶𝗹𝗱𝗶𝗻𝗴 𝗰𝗼𝗿𝗲 𝗼𝘂𝘁𝗰𝗼𝗺𝗲 𝘀𝗲𝘁𝘀, 𝗿𝗲𝗰𝗼𝗺𝗺𝗲𝗻𝗱𝗶𝗻𝗴 𝗽𝘂𝗿𝗽𝗼𝘀𝗲𝗳𝘂𝗹 𝗽𝗹𝗮𝗻𝗻𝗶𝗻𝗴, 𝘁𝗿𝗮𝗻𝘀𝗽𝗮𝗿𝗲𝗻𝘁 𝗱𝗼𝗰𝘂𝗺𝗲𝗻𝘁𝗮𝘁𝗶𝗼𝗻, 𝗮𝗻𝗱 𝗮𝘂𝘁𝗵𝗲𝗻𝘁𝗶𝗰 𝗿𝗲𝗽𝗿𝗲𝘀𝗲𝗻𝘁𝗮𝘁𝗶𝗼𝗻 𝘁𝗵𝗿𝗼𝘂𝗴𝗵𝗼𝘂𝘁 𝘁𝗿𝗶𝗮𝗹 𝗼𝘂𝘁𝗰𝗼𝗺𝗲 𝗱𝗲𝘃𝗲𝗹𝗼𝗽𝗺𝗲𝗻𝘁. Link: link.springer.com/article/10.1...

link.springer.com

Methodological guidance for incorporating lived experience in the early stages of core outcome set development: a scoping review - Trials

Background Core Outcome Sets (COS) provide a systematic approach to ensuring that outcomes measured in health research matter to the individuals most affected by the research. While methodological gui...

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Marci Kay Livingston @marcikayrn.bsky.social · 17/11/2025

Happy to have attended and presented at the @hrb-tmrn.bsky.social Symposium in Cork this week. As a PhD student, I am always grateful for the opportunity to share my work! Thank you to the TMRN for being so supportive and providing opportunities to network and grow as a researcher.

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Reposted by Marci Kay Livingston

Join the Mass Infection Resistance @spiritsofland.bsky.social · 17/10/2025

ENT Specialist appointment yesterday: Dr: so why are you here? Me (in an n95): I’ve had tinnitus since a Covid infection last summer Dr: oh, yeah, I see lots of post covid tinnitus these days. So why are you wearing the mask? 🤦🏾‍♀️ #MaskUp #StillCoviding #CovidIsntOver #LongCovid

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Marci Kay Livingston @marcikayrn.bsky.social · 07/10/2025

Still seeking participants for this study. Please share across your networks. Thanks!

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Reposted by Marci Kay Livingston

Rare Disease Clinical Trial Network @rarediseasectn.bsky.social · 17/09/2025

Our PPI Liaison Officer and a RDCTN PPI Partner were delighted to attend the HSE Patient & Public Partnership conference today. They presented a poster reflecting on the 'many hats' that PPI Partners wear, and how this enriches involvement and encourages an inclusive approach.

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Marci Kay Livingston @marcikayrn.bsky.social · 28/08/2025

Have you been involved in developing a Core Outcome Set? Researchers, clinicians, patients, or carers—we want to hear from you! Help us explore how those with lived experience are included in the COS development process. #CoreOutcomeSets #PPI #ClinicalTrials Contact: 📧 Livingston.Marci@ul.ie

Recruitment flyer for a PhD study at the University of Limerick on Core Outcome Set (COS) development. The flyer headline reads “Study Recruitment! Core Outcome Set Development.” It asks:

Have you been involved in developing a COS as a researcher, clinician, patient, carer, family member, or otherwise?

The study aims to understand how people with lived experience are included in the early stages of COS development.

Participants will be invited to take part in a one-on-one interview.

Contact: Livingston.Marci@ul.ie
.
Logos: University of Limerick, Education and Health Sciences.
Approval: EHSREC (Ref No: 2025_05_10_EHS).
Design elements include abstract shapes and an illustration of a person sitting at a desk with a laptop and coffee.

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Marci Kay Livingston @marcikayrn.bsky.social · 13/08/2025

preparing to do quali interviews with experts in my PhD research area feeling like: youtu.be/w8NzWsA5188?...

youtu.be

When Russell Met Carl | Up | Freeform

YouTube video by Freeform

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Reposted by Marci Kay Livingston

The BMJ @bmj.com · 04/06/2025

One million excess deaths were linked to deprivation between 2009 and 2020, Michael Marmot told a Royal College of Physicians conference. Marmot calculated 148 000 can be directly linked to austerity measures introduced by the coalition government in 2010 www.bmj.com/content/389/...

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