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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 09/09/2026

If you are a sponsor, funder, regulator or policymaker, how patient engagement works in practice can offer valuable insight for future collaboration, guidance and support. Explore regional perspectives at the PEOF session: patientengagement.synapseconnect.org/events/from-...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/09/2026

Patient engagement should be measured not by how often it happens, but by what changes because of it. Join Hayley Chapman and Maddalena Benivento at Measuring Patient Engagement Europe for insights on patient experience data, practical metrics and ESG reporting. 15–17 Sept.

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 03/09/2026

Patient insight should shape investment decisions long before a product reaches the market. At #ISPOR2026, Hayley Chapman will explore how patient insight can strengthen investment decisions, reduce uncertainty and shape more relevant innovation. Learn more: tinyurl.com/3xm9r852

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 25/08/2026

What happens to a patient’s voice once they are in the room? Is it heard, considered and acted on? Join PEOF+ on 15 Sept to explore what meaningful patient engagement looks like across regions and what happens when patient voices truly shape clinical research: tinyurl.com/49pwtydw

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 19/08/2026

PFMD is working to make patient engagement more systematic, connected and impactful — bringing communities together and helping transform the healthcare ecosystem. Explore the strategy behind this approach to improving global health: patientfocusedmedicine.org/mission-and-...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 18/08/2026

Missed the latest PEOF face-to-face? The July Newsletter brings you session resources, community updates and what’s next for PEOF. Subscribe and stay connected: share-eu1.hsforms.com/1cjAlVbfuQPS... And keep an eye out for what’s coming on 15 September!

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 11/08/2026

The strongest infrastructure behind patient engagement isn’t a framework or platform. It’s the community building it together - patients, advocates, researchers, clinicians, regulators, HTA bodies and industry. Explore PFMD’s 10-Year Impact Report: patientfocusedmedicine.org/pfmd-report/

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 16/07/2026

Patient engagement is moving from conversation to implementation. Our June newsletter captured the ideas, collaborations, and milestones shaping that shift. Subscribe for monthly insights from across the global patient engagement community: share-eu1.hsforms.com/1cjAlVbfuQPS...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 14/07/2026

What happens after patients share their experiences? The new PE–PEI visual map shows how patient perspectives evolve into data, evidence & intelligence that inform healthcare decisions. Follow the journey from patient voice to impact: patientengagement.synapseconnect.org/resources/th...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 07/07/2026

Patient perspectives are increasingly shaping regulatory and HTA decisions. The new PE–PEI visual map provides a shared framework to connect engagement, data, evidence and intelligence, supporting greater clarity and consistency. patientengagement.synapseconnect.org/resources/th...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 03/07/2026

Six terms. One shared framework. The new PE–PEI visual map clarifies how patient perspectives evolve from engagement to evidence and intelligence, helping industry teams build a common language and strengthen patient-centred medicines development. tinyurl.com/4v9j99bp

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 29/06/2026

We’ve proven patient engagement works. Now comes the harder part: making it consistent, sustainable and system-wide. From pockets of excellence → to universal standard. The next decade is about scale. See what’s been built and what comes next: lnkd.in/e2yV8Gir

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 23/06/2026

If we want to improve outcomes in rare diseases, we need to understand more than the disease itself. Join us on 25 June to explore what patients need after diagnosis and how more patient-centred approaches can strengthen support, engagement, and care. Register here: tinyurl.com/4vpyvfw4

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 19/06/2026

Clinicians & healthcare professionals: We know patient empowerment matters and support tools exist. So why aren't they consistently embedded into care? Join us on 25 June to explore practical ways to strengthen patient engagement and shared decision-making in rare disease care. tinyurl.com/4vpyvfw4

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 16/06/2026

A rare disease diagnosis doesn't automatically make care decisions easier. If you've ever felt unsure what to ask, how to prepare for appointments, or how to make your voice heard, join us on 25 June for a discussion on navigating life after diagnosis. 👉 Register here: tinyurl.com/4vpyvfw4

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

18000 screened through mobile cancer clinics 174000+ connected to hepatitis care 300+ children shaping paediatric healthcare experiences Congratulations to Made Patients Awards 2026 awardees who made these numbers a reality, reshaping healthcare systems in practice. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

Proud to announce the awardees of the Made with Patients Awards 2026, celebrating the changemakers driving this shift globally. From clinical trial design & AI oversight to national health conversations, patients are increasingly shaping decisions across healthcare. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

Congratulations to Laura Kavanagh, recipient of the Hall of Fame recognition at the Made with Patients Awards 2026. Her work has helped advance patient partnership across research, innovation, and healthcare in Ireland and beyond. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

A new generation of patient engagement leaders is reshaping healthcare decision-making, and Linxi Mytkolli is right at the centre of that shift. Congratulations to the Rising Star awardee at the Made with Patients Awards 2026. Read more: tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

For a community of 25 million young adults with chronic conditions, Sneha Dave is shifting the paradigm from storytelling to systemic reform. Sneha wins the Jury Special Award at the MwPA 2026 for tackling clinical trial integrity, patent reform, and digital health frontiers tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

Rare diseases affect 300M globally yet many remain unseen. That’s exactly what Ritu Jain has spent years working to change. Huge congrats to Ritu for winning Jury Special Award at the MWPA 2026 for championing rare disease advocacy & inclusion across South & SE Asia. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

An effective healthcare system requires turning patients into strategic protagonists. Catherine Moura has spent 20 years proving exactly that. Catherine wins the Jury Special Award at the Made with Patients Awards 2026 for reshaping public health policy across Brazil and LAC. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

"There is no power for change greater than a community discovering what it cares about." Congrats to StITCH for winning Best Overall Initiative at #MadeWithPatients2026! Over 180,000 screened and care delays slashed from months to 5 days across Vietnam and the Philippines. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

256 patient groups engaged globally 27% trial protocols reshaped by patients 443 initiatives co-created Congrats to Unite4Rare (Sobi), winner of the Systematic Meaningful Patient Engagement Award at the MWPA 2026 for shifting healthcare to true shared governance tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

A huge round of applause to PRIDD by GlobalSkin, winner of the Systematic Meaningful Patient Engagement Award at the Made With Patients Awards 2026. Built with patients at every step, PRIDD is a milestone for patient-centred dermatology research. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

A huge congratulations to ACT NOW: Access to Cancer Treatment Now for winning the Systematic Meaningful Patient Engagement Award at the Made With Patients Awards 2026. From mobile screenings to patient navigation, the initiative is transforming cancer care across Philippines. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/06/2026

Here's to celebrating the winner of Best Tools Implementation Award at MWPA2026, Little Journey, for redesigning a hospital experience through a child’s eyes. Co-designed with 300+ kids, it cut anxiety by 39% and slashed unplanned admissions by 67%. tinyurl.com/2ehfsu22

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 01/06/2026

Moving systems change in healthcare takes a village. Real change happens when patients, regulators, researchers, and industry challenge assumptions, exchange perspectives, and co-create together over time. PEOF is building a connected, actionable, and sustainable ecosystem: shorturl.at/rwHcp

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 29/05/2026

What does it actually take for AI to enter clinical practice responsibly? In Part 3 of her series, Leanne West explores the systems, safeguards, and human oversight behind AI in healthcare and why it should support clinicians, not replace them. patientengagement.synapseconnect.org/resources/fr...

patientengagement.synapseconnect.org

From Algorithms to Care: How AI Enters Clinical Practice

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 28/05/2026

Patient voices → Shared knowledge → Collective action → Systemic change Synapse is mapping the global patient engagement ecosystem: 10,700+ experts 2,900+ organizations 1,000+ initiatives Making collaboration, visibility, and healthcare transformation easier. patientengagement.synapseconnect.org

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 27/05/2026

AI in healthcare is only as strong as the data behind it. In her latest article, Leanne West explores data quality, bias, governance, and why patient involvement matters in building trustworthy AI systems. Read more: patientengagement.synapseconnect.org/resources/th...

patientengagement.synapseconnect.org

The Real Fault Line: Data, Bias, and Control

If we want to understand how AI works in healthcare, we need to look at the data behind it. AI systems are built on data. The quality, structure, and representativeness of that data directly shape how...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 26/05/2026

Patient engagement becomes sustainable when communities help shape it, not just participate in it. From shared standards to capability building and collective action, the ecosystem is moving from aspiration to infrastructure. Explore the momentum: patientfocusedmedicine.org/pfmd-report/

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 13/05/2026

Heading to #PatientsEU2026 in London next week? PFMD’s Hayley Chapman and Derick Mitchell will be there to connect on what comes next for patient engagement — from measurable impact and PED to collaboration that drives better decisions. If you’re attending, say hello over coffee ☕

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 11/05/2026

Patient insights are becoming a new layer of investment intelligence. From adherence to unmet need, firms like Gilde Healthcare are integrating patient perspectives earlier to improve risk assessment and long-term value creation. Heading to PEI, ISPOR or Phoenix? Let’s connect.

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 08/05/2026

AI in healthcare is advancing fast, but trust and clarity are struggling to keep pace. In her latest blog, Leanne West explores the questions shaping digital health today, from data ownership and accountability to patient trust and clinical AI. Catch the insightful read : tinyurl.com/yax37t7k

tinyurl.com

Clearing the Fog: From Chatbots to Clinical AI

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 07/05/2026

The April edition of PEOF Monthly is out now. From PEOF+ Africa to real-world evidence & accountability, this month’s issue captures where patient engagement is beginning to shift from discussion into implementation. Subscribe today to catch the insights: share-eu1.hsforms.com/1cjAlVbfuQPS...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 06/05/2026

Tomorrow: a closer look at how patient data becomes evidence that shapes treatment decisions. Join the IDERHA–PEOF session to explore credibility, stakeholder perspectives, and what “good” RWE really looks like. 7 May | 16:00–17:30 CET tinyurl.com/ynzjz84j

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 05/05/2026

In biotech, we ask: will it work? But the real question is: will it fit patients’ lives? At BioEquity Europe 2026, the conversation continues on using patient data to guide smarter biotech investments. #Biotech #PatientEngagement #LifeSciences @biocentury.bsky.social ky.social

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 04/05/2026

Patient data is everywhere, but how does it shape real decisions on access and care? Join the PEOF virtual session: Your Data, Your Evidence on 7 May, 16:00 CET to explore how real-world evidence is built, interpreted, and used in practice. Register now: tinyurl.com/ynzjz84j

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 30/04/2026

Speed is biotech’s currency, but what if we move fast without understanding patients? At BioEquity Europe 2026, this question takes center stage. Hear Hayley Chapman and others on making patient engagement a strategic advantage. May 4–6 | Prague @biocentury.bsky.social | @derickomisteal.bsky.social

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 13/04/2026

Ten years ago, PFMD set out to move patient engagement from aspiration to action. Since then, a global community across 90+ countries has helped turn dialogue into capability, tools and shared practice. Explore the full PFMD 10-Year Impact Report: tinyurl.com/5ekjj9yx @derickomisteal.bsky.social

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 09/04/2026

PEOF was built to move patient engagement from conversation to practice. With patients making up nearly half the community, it brings 50+ countries and 120+ organizations into real co-creation. Not just dialogue but stronger metrics, shared leadership & lasting change. tinyurl.com/4nd52whb

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 08/04/2026

What makes multi-stakeholder collaboration actually work? Derick Mitchell points to a shift from one-off engagement to building stakeholder capability in this podcast. For patient groups, professionals, and regulators, structured participation turns input into impact. youtu.be/KK8-bo5w4iw

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 07/04/2026

Science loses credibility not when evidence is missing, but when lived experience is. This World Health Day, standing with science means making it more complete. Integrating patient experience as fit-for-purpose evidence is gaining global momentum across regulatory and HTA decisions.

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 31/03/2026

From principle to practice - patient engagement is being put to the test. The March PEOF Monthly unpacks what’s shifting across diagnostics, investment & systems. Subscribe to the PEOF newsletter: share-eu1.hsforms.com/1cjAlVbfuQPS...

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 24/03/2026

In the Not Just Patients podcast, Caitlin Rich and Clarinda Cerejo speak with @derickomisteal.bsky.social about making multistakeholder collaboration the norm by treating patient engagement as operational infrastructure. Full episode - tinyurl.com/3jxtr3pk

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 17/03/2026

What if the biggest barrier to healthcare transformation isn’t resistance but misalignment? Stakeholders agree on the goal but define value differently stalling collaboration. Tune into Not Just Patients where Derick Mitchell unpacks why this alignment is real work ahead tinyurl.com/3jxtr3pk

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 16/03/2026

We’ve crossed 10,000 members on PE Synapse 🎉 10,000 voices committed to making patient engagement meaningful, measurable, and embedded early. Grateful for this global community of leaders, advocates, and change makers building better decisions — together.

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 13/03/2026

PEOF is expanding, bringing patient engagement conversations closer to specific communities while staying globally connected. Want to follow where the ecosystem is moving next? Subscribe to the monthly newsletter: share-eu1.hsforms.com/1cjAlVbfuQPS... #PatientEngagement #PEOF

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Patient Focused Medicines Development (PFMD) @madewithpatients.bsky.social · 03/03/2026

Did you miss the Feb edition of The PEOF Monthly? From PEOF+ Japan on fair remuneration to digital health shifts & momentum around Rare Disease Day, PE is moving from conversation to infrastructure. Don’t miss the March Issue. Subscribe now: share-eu1.hsforms.com/1cjAlVbfuQPS...

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