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LymeDisease.org

@lymenews.bsky.social

1.7K followers 152 following 417 posts

The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth

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LymeDisease.org @lymenews.bsky.social · 30/12/2025

Looking for a meaningful gift that truly makes a difference? Give someone you care about the gift of membership with LymeDisease.org. Your donation supports essential advocacy, education, and research. www.lymedisease.org/donate-2/

LymeDisease.org @lymenews.bsky.social · 27/12/2025

LymeDisease.org represents you—the Lyme patient and your loved ones. Your support powers everything we do for patients and families. Support the organization that supports you. DONATE before December 31st to be tax-deductible this year. www.lymedisease.org/donate-2/

LymeDisease.org @lymenews.bsky.social · 20/12/2025

💚Honor Someone You Love This Holiday Season💚 This time of year reminds us how deeply our loved ones shape our lives—those who walk beside us and those we carry in our hearts. 🎁 Make a tribute gift today: www.lymedisease.org/donate-honor/

LymeDisease.org @lymenews.bsky.social · 20/12/2025

Growing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory of previous infections. READ MORE www.lymedisease.org/infections-m...

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PATHOBIOME PERSPECTIVES: Past infections may rewire the brain and shape Alzheimer’s risk | LymeDisease.org

By Ali Moresco Growing evidence suggests that Alzheimer’s disease may be shaped not only by age and genetics, but by the immune system’s long-term memory

LymeDisease.org @lymenews.bsky.social · 20/12/2025

If you want to watch a replay of the HHS Lyme Roundtable meeting, read a summary, or browse the transcript, we've got you covered. READ MORE: www.lymedisease.org/summary-tran...

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Video, written summary, and transcript of HHS Lyme Roundtable session | LymeDisease.org

Click here to watch the replay of the meeting on YouTube. The following summary and transcript were generated by a machine transcription service and may

LymeDisease.org @lymenews.bsky.social · 20/12/2025

HHS Secretary RFK Jr. shared a reality this community has long known: research has been underfunded and misunderstood for decades, leaving families without answers. "Patients wait day after day, year after year." READ MORE www.lymedisease.org/lyme-roundta...

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HHS Lyme Disease Roundtable brings cautious hope | LymeDisease.org

By Ali Moresco This week, I attended the HHS Lyme Disease Roundtable hosted by HHS Secretary Robert F. Kennedy Jr. Walking into the room, I’ll be honest:

LymeDisease.org @lymenews.bsky.social · 20/12/2025

HHS Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together patients, clinicians, and researchers in Washington, D.C., while a national (and international) audience tuned in live via YouTube. READ MORE www.lymedisease.org/hhs-roundtab...

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Does HHS Lyme roundtable signal a new era for patients? | LymeDisease.org

On December 15, Health and Human Services Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together

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LymeDisease.org @lymenews.bsky.social · 13/12/2025

A New Hampshire family’s battle with tick‑borne illness inspired this young woman to use her platform to spotlight prevention and education. READ MORE www.lymedisease.org/sophia-sarge...

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Miss New Hampshire Volunteer 2026 shares her family’s fight against Lyme | LymeDisease.org

By Sophia Sargent My family’s journey with Lyme and other tick-borne diseases has been anything but straightforward. We faced crisis after crisis,

LymeDisease.org @lymenews.bsky.social · 13/12/2025

For decades, patients with neurological Lyme symptoms have been told their struggles were “stress” or “anxiety.” Now, groundbreaking research reveals how Bartonella can infiltrate the brain’s own immune cells. This disrupts hundreds of genes. READ MORE www.lymedisease.org/bartonella-b...

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PATHOBIOME PERSPECTIVES: How Bartonella hijacks the brain’s immune system | LymeDisease.org

By Ali Moresco For decades, patients with persistent neurological symptoms have been told their illness is “stress,” “anxiety,” or “unexplained.” Now,

LymeDisease.org @lymenews.bsky.social · 13/12/2025

An amendment from New Jersey Congressman Chris Smith has cleared the House as part of the Fiscal Year 2026 defense bill. It directs the US GAO to investigate whether Cold War‑era military bioweapons programs used ticks to spread Lyme disease. READ MORE www.lymedisease.org/lyme-bioweap...

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Lyme bioweapon amendment by Chris Smith passes House | LymeDisease.org

An amendment authored by New Jersey Congressman Chris Smith to investigate whether the U.S. military weaponized ticks with Lyme disease has been included

LymeDisease.org @lymenews.bsky.social · 13/12/2025

A session entitled Invisible Illness — Leading the Way with Lyme Disease will discuss federal priorities for Lyme disease and related chronic conditions. You can watch it live on YouTube via HHS Gov READ MORE www.lymedisease.org/hhs-lyme-rou...

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RFK Jr. to lead Lyme disease roundtable on December 15 | LymeDisease.org

The U.S. Department of Health and Human Services (HHS) has announced a roundtable discussion titled Invisible Illness — Leading the Way with Lyme Disease,

LymeDisease.org @lymenews.bsky.social · 06/12/2025

Many Lyme patients complete rigorous treatment yet remain unable to heal. In this podcast, naturopath and author Dr. Melanie Stein explains why this can happen--and what to do about it. READ MORE www.lymedisease.org/why-lyme-rec...

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PODCAST: Why Lyme recovery stalls — and how healing can restart | LymeDisease.org

By Fred Diamond Many Lyme survivors have told me about their journey to discover the root cause of their inability to heal from chronic Lyme disease. Most

LymeDisease.org @lymenews.bsky.social · 06/12/2025

Cognitive decline, mood changes, memory loss. Nicole Bell’s powerful story reveals how hidden infections and toxic exposures can shape devastating neurological conditions. READ MORE www.lymedisease.org/pathobiome-h...

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PATHOBIOME PERSPECTIVES: Borrelia, Bartonella & Babesia in the Brain | LymeDisease.org

By Ali Moresco For years, people living with Lyme disease and other infection-associated chronic illnesses have reported cognitive decline, mood changes,

LymeDisease.org @lymenews.bsky.social · 06/12/2025

A team from Georgia used CRISPR technology to design new ways to detect and treat Lyme. Their breakthrough earned honors at an international competition and a spotlight on 60 Minutes. READ MORE www.lymedisease.org/georgia-teen...

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Georgia high schoolers are using CRISPR to tackle Lyme disease | LymeDisease.org

Although Lyme disease is the most common vector‑borne illness in the United States, it remains one of the hardest to diagnose and treat. That’s why I was

LymeDisease.org @lymenews.bsky.social · 29/11/2025

Brain fog isn’t just frustrating. It may hold clues... In this interview, Dr. Sean Miller discusses how infections like COVID‑19 and Lyme disease can accelerate Alzheimer’s‑like damage, and how the retina could provide a window into early detection. READ MORE www.lymedisease.org/do-eyes-hold...

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PATHOBIOME PERSPECTIVES: Do your eyes hold the key to brain fog? | LymeDisease.org

Pathobiome Perspectives is an interview series exploring the role of infections in chronic neurological and psychiatric conditions—including Alzheimer’s,

LymeDisease.org @lymenews.bsky.social · 29/11/2025

This year, we’re rallying support for MyLymeData, one of the largest patient-driven Lyme research projects in the world. If MyLymeData has helped you—or if you believe in the power of patient-centered research—please consider supporting us on #GivingTuesday DONATE: www.lymedisease.org/donate-2/

LymeDisease.org @lymenews.bsky.social · 29/11/2025

On Thanksgiving we pause with gratitude for the incredible strength, resilience, and compassion within the Lyme community. Whether you are a patient, caregiver, advocate, researcher, or supporter, you are the heart of this movement. 💚

LymeDisease.org @lymenews.bsky.social · 22/11/2025

The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE www.lymedisease.org/mylymedata-2...

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2025 Research Chart Book Released | LymeDisease.org

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...

LymeDisease.org @lymenews.bsky.social · 22/11/2025

The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE www.lymedisease.org/mylymedata-2...

lymedisease.org

2025 Research Chart Book Released | LymeDisease.org

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...

LymeDisease.org @lymenews.bsky.social · 22/11/2025

What does chronic Lyme really feel like? For many, it’s confusion, disbelief, and a level of illness that defies explanation. That’s why Lyme survivor and advocate Jesse Ruben wrote “Monster”—a raw anthem born in the middle of his own crisis. READ MORE www.lymedisease.org/podcast-does...

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PODCAST: “Doesn’t It Kill You?” — the Lyme lyric that stops a room cold | LymeDisease.org

By Fred Diamond If you’ve ever struggled to explain what chronic Lyme disease really feels like with the confusion, the disappearing health, the disbelief

LymeDisease.org @lymenews.bsky.social · 22/11/2025

In this interview, Dr. Brian Balin discusses how microbes like Lyme, Bartonella, and Chlamydia pneumoniae have been found in Alzheimer’s brain tissue—and what this means for millions living with chronic illness. READ MORE www.lymedisease.org/lyme-may-tri...

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PATHOBIOME PERSPECTIVES: How microbes like Lyme may trigger Alzheimer’s | LymeDisease.org

Pathobiome Perspectives is an interview series exploring the role of infections in chronic neurological and psychiatric conditions—including Alzheimer’s,

LymeDisease.org @lymenews.bsky.social · 22/11/2025

After 41 years of caring for patients, Dr. Richard Horowitz is closing his clinical practice. More than 22 advocacy groups across the U.S. recently came together to honor Dr. Horowitz with a Lifetime Achievement Award. READ MORE: www.lymedisease.org/advocates-ho...

LymeDisease.org @lymenews.bsky.social · 22/11/2025

A tick bite when she was six set off a chain of symptoms that went misunderstood for years. This eventually led to neurological and psychiatric struggles that nearly cost her everything. In her book Revival, she talks about the long road to recovery. READ MORE www.lymedisease.org/kaitlyn-olei...

LymeDisease.org @lymenews.bsky.social · 15/11/2025

A new study found that 92% of youth diagnosed with bipolar disorder in a Lyme-endemic area showed signs of tick-borne infections. These findings raise urgent questions about how we diagnose and treat psychiatric symptoms. READ MORE www.lymedisease.org/child-psychi...

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Could an infection be driving your child’s psychiatric symptoms? | LymeDisease.org

In the Lyme world, these stories surface again and again. A child who was thriving suddenly shifts—mood swings, anxiety, trouble focusing, even

LymeDisease.org @lymenews.bsky.social · 15/11/2025

Dr. Melanie Stein’s journey from sudden paralysis to lasting recovery led her to uncover a deeper root cause of chronic illness—and a new path to healing. Here she shares the approach that helped her reclaim her health when nothing else worked. READ MORE www.lymedisease.org/morning-i-co...

LymeDisease.org @lymenews.bsky.social · 09/11/2025

PATHOBIOME PERSPECTIVES: New interview series, hosted by patient advocate Ali Moresco, premiers Tuesday, Nov. 11. LEARN MORE: www.lymedisease.org/pathobiome-p...

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PATHOBIOME PERSPECTIVES: New interview series premiers Nov. 11 | LymeDisease.org

The AlzPI and PCOM Symposium is an annual interdisciplinary event focused on exploring the role of infections and the microbiome in chronic neurological

LymeDisease.org @lymenews.bsky.social · 08/11/2025

Want to stay in the loop on Lyme? Our FREE weekly newsletter brings you fresh stories, expert insights, and the latest news—all in one easy read. Get the November 8 edition here: conta.cc/3LxFh73

LymeDisease.org @lymenews.bsky.social · 08/11/2025

The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences. This milestone report distills 10 years of patient-led research into powerful visuals and key findings. LEARN MORE: www.lymedisease.org/mylymedata-2...

lymedisease.org

2025 Research Chart Book Released | LymeDisease.org

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...

LymeDisease.org @lymenews.bsky.social · 08/11/2025

For Isabel Rose, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare. Read her account of how a tick bite at age 8 led to decades of misdiagnosis and chronic illness. READ MORE www.lymedisease.org/a-mothers-st...

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A mother's story: the nightmare in the leaf pile | LymeDisease.org

When many people see a big, beautiful pile of colorful autumn leaves, it feels like an open invitation to dive in. The scene evokes joy, nostalgia, and

LymeDisease.org @lymenews.bsky.social · 02/11/2025

Looking for connection, understanding, or just someone who gets it? Our online patient support group is a welcoming space where Lyme patients can share experiences, ask questions, and find encouragement from others who truly understand the journey. READ MORE www.lymedisease.org/lyme-disease...

LymeDisease.org @lymenews.bsky.social · 01/11/2025

Only 31 days until #GivingTuesday 💚 Learn more about who we are, and what we do for the Lyme & tick-borne disease community: www.lymedisease.org/about-lymedi...

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LymeDisease.org @lymenews.bsky.social · 01/11/2025

The Center for Lyme Action and the National Alliance for PANS/PANDAS Action are joining forces. Together, they’re pushing for increased federal funding for conditions like Lyme disease, Bartonella, PANS, and PANDAS. READ MORE www.lymedisease.org/infection-tr...

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New coalition pushes for federal action on infection-triggered brain disorders | LymeDisease.org

From the Center for Lyme Action Center for Lyme Action (CLA) and the National Alliance for PANS/PANDAS Action (NAPPA) are pleased to announce a

LymeDisease.org @lymenews.bsky.social · 01/11/2025

On Feb. 18, join fellow Lyme advocates on Zoom to speak directly with congressional offices & push for increased federal funding for Lyme & other tick-borne diseases. New to advocacy? Nov. 12 info session will walk you through everything you need to know. www.lymedisease.org/advocacy-day...

LymeDisease.org @lymenews.bsky.social · 01/11/2025

The 2025 MyLymeData Research Chartbook is a powerful testament to what happens when patients lead the way. More than 19,000 Lyme patients stepped up to share their experiences, kickstarting a decade of groundbreaking research, and progress. DOWNLOAD YOUR COPY: www.lymedisease.org/mylymedata-2...

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2025 Research Chart Book Released | LymeDisease.org

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of ground...

LymeDisease.org @lymenews.bsky.social · 29/10/2025

This year marks a major milestone for the MyLymeData patient registry—our 10th anniversary. To celebrate, we’re publishing the MyLymeData 2025 Research Chartbook—a visual summary of a decade of groundbreaking research, collaboration, and progress. READ MORE: www.lymedisease.org/mylymedata-2...

LymeDisease.org @lymenews.bsky.social · 29/10/2025

The MyLymeData 2025 Research Chartbook is a celebration of what we’ve accomplished together—and a springboard for what comes next. READ MORE: www.lymedisease.org/mylymedata-2...

LymeDisease.org @lymenews.bsky.social · 26/10/2025

Twin brothers from Colorado have launched Brothers Tick Kits—an easy way to help families safely remove ticks and prevent illness. READ MORE www.lymedisease.org/brothers-tic... via @livlyme.bsky.social

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Twin brothers launch "simple, portable" tick safety kits | LymeDisease.org

Twin brothers Jack and Will Goodreau of Colorado have launched Brothers Tick Kits—a simple, portable solution to help families safely remove ticks and

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LymeDisease.org @lymenews.bsky.social · 26/10/2025

Too many Lyme patients hear this: “You can’t have Lyme disease—we don’t have it here.” However, a medical geographer at Virginia Tech has spent nearly two decades mapping the spread of Lyme disease. Her research reveals that Lyme is expanding... READ MORE www.lymedisease.org/geography-of...

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PODCAST: The geography of denialism and the "no Lyme here" myth | LymeDisease.org

By Fred Diamond Unfortunately, people suffering from the mysterious, lingering symptoms of Lyme disease have probably heard a familiar refrain from their

LymeDisease.org @lymenews.bsky.social · 25/10/2025

Living with Lyme disease can make it impossible to work full-time. But getting approved for long-term disability (LTD) benefits can be an uphill battle. This attorney breaks down what you need to know about filing an LTD claim. READ MORE www.lymedisease.org/navigating-d...

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Navigating disability insurance for Lyme disease | LymeDisease.org

By Edward Dabdoub Lyme disease can cause serious and lasting impairments that make it impossible to work full-time. Yet, because symptoms of Lyme disease

LymeDisease.org @lymenews.bsky.social · 23/10/2025

Lyme disease gets most of the spotlight when we talk about chronic tick-borne illness—but it’s not the only infection that can linger. Babesia, a malaria-like parasite that infects red blood cells, can also persist in the body. READ MORE www.lymedisease.org/new-hope-for...

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New hope for chronic babesiosis as malaria drug tafenoquine heads to trial | LymeDisease.org

Lyme disease gets most of the spotlight when we talk about chronic tick-borne illness—but it’s not the only infection that can linger. Babesia, a

LymeDisease.org @lymenews.bsky.social · 23/10/2025

What began as one family’s fight for answers has grown into a lifeline for countless others. Northeast Lyme and Associated Diseases Resource Foundation provides education, advocacy and critical financial support for Lyme patients. READ MORE www.lymedisease.org/dibartonella...

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The ‘DiBartonella’ family offers a bridge to hope for those battling tick-borne illness | LymeDisease.org

By Mary Lorusso-DiBara No one could have imagined thirteen years ago that our family would start Northeast Lyme and Associated Diseases Resource

LymeDisease.org @lymenews.bsky.social · 23/10/2025

Meghan Bradshaw took the ILADEF stage not just as a Lyme advocate. She stood as living proof of what resilience, clarity, and purpose can look like in the face of unimaginable challenges. READ HER INSPIRING WORDS www.lymedisease.org/titanium-and...

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Titanium and tenacity: one woman’s fight for Lyme patients everywhere | LymeDisease.org

Meghan Bradshaw gave the following speech at a recent fundraising dinner held by the International Lyme and Associated Diseases Educational Foundation.

LymeDisease.org @lymenews.bsky.social · 23/10/2025

ILADS 2025 brought together medical professionals, researchers, and advocates from around the world. They were united by a commitment to improving care for those affected by Lyme and other tick-borne diseases. READ MORE www.lymedisease.org/science-stor...

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Science, stories, and solidarity: reflections from the ILADS annual conference | LymeDisease.org

I recently returned from the International Lyme and Associated Diseases Society’s Annual Scientific Conference, held this year in San Antonio, Texas. The

LymeDisease.org @lymenews.bsky.social · 12/10/2025

Once defined by athletic precision & high-altitude adrenaline, this skier's life took a dramatic turn when she contracted Lyme disease. It forced her to confront not only chronic illness but also the loss & rediscovery, of identity, purpose & hope. READ MORE: www.lymedisease.org/skier-bounce...

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PODCAST: How a professional skier bounced back after Lyme disease | LymeDisease.org

By Fred Diamond In this week’s episode of the Love, Hope, Lyme podcast, Athena Brownson, a former professional skier turned Denver real estate agent and

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LymeDisease.org @lymenews.bsky.social · 12/10/2025

When antibiotics and antivirals fall short, patients and practitioners start looking at other possibilities. Maria Marian, ND, has written a two-part series about a cutting-edge therapy that’s stirring hope, and controversy... Part Two www.lymedisease.org/sot-for-lyme...

lymedisease.org

Targeting Lyme at the genetic level: SOT’s emerging role | LymeDisease.org

This is Part Two of a series on Supportive Oligonucleotide Therapy (SOT), a form of antisense oligonucleotide therapy. SOT is a personalized,

LymeDisease.org @lymenews.bsky.social · 12/10/2025

When antibiotics and antivirals fall short, patients and practitioners start looking at other possibilities. Maria Marian, ND, has written a two-part series about a cutting-edge therapy that’s stirring hope—and controversy... Part One www.lymedisease.org/sot-lyme-tre...

lymedisease.org

SOT therapy for Lyme is experimental, expensive—and full of potential. | LymeDisease.org

Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes

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LymeDisease.org @lymenews.bsky.social · 12/10/2025

Chris Williamson, host of the Modern Wisdom podcast, has revealed that he’s been battling Lyme disease, mold toxicity, and other chronic infections that have deeply affected his physical and mental health. READ MORE www.lymedisease.org/podcaster-sh...

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“It’s time to talk about my health” — podcaster shares his Lyme story | LymeDisease.org

Chris Williamson, host of the Modern Wisdom podcast, has revealed that he’s been battling Lyme disease, mold toxicity, and other chronic infections that

LymeDisease.org @lymenews.bsky.social · 04/10/2025

“There’s something wrong here, doctor, and I don’t know what it is… But there’s a monster in my body and it’s living in my limbs…" Listen to @jesseruben's new song HERE. www.lymedisease.org/jesse-rubens...

LymeDisease.org @lymenews.bsky.social · 04/10/2025

A British journalist chronicles his young daughter’s long, painful descent into what turned out to be Lyme disease--and the medical system’s failure to recognize what was happening to her. READ MORE www.lymedisease.org/how-did-we-m...

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"How did we miss it?" A journalist’s search for his daughter’s diagnosis | LymeDisease.org

Patrick Barkham, a respected British journalist and nature writer, has written a deeply personal and powerful piece in The Guardian about his daughter

LymeDisease.org @lymenews.bsky.social · 04/10/2025

When antibiotics and antivirals fall short, patients and practitioners start asking: what else is out there? Maria Marian, ND, gives details about a cutting-edge therapy that’s stirring hope—and controversy—in the world of chronic Lyme. READ MORE www.lymedisease.org/sot-lyme-tre...

lymedisease.org

SOT therapy for Lyme is experimental, expensive—and full of potential. | LymeDisease.org

Part One of a two-part series. By Maria Marian, ND, MSE For many people facing chronic infections such as Lyme disease, Epstein–Barr virus (EBV), herpes