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If #lupus is affecting your working life, you don’t have to work out your options alone. #LupusAwarenessMonth #MoreThanADiagnosis #LupusUK #LupusSupport

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If you’re unsure what support may apply to your situation, our Support and Information Line (SaIL) can help you talk through your circumstances and provide information and signposting. 📞Call 01708 731 251 and leave a message ✉️Email support@lupusuk.org.uk We'll get back to you as soon as we can.

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However, support is not one-size-fits-all. What may be available can depend on your individual circumstances, the type of work you do, your workplace and other factors.

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Depending on your circumstances, there may be different ways your work could be adapted to help you manage your #lupus, from reasonable adjustments to flexible working hours.

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What support might be available at #work if you’re living with #lupus? 💼

Lupus UK @lupusuk.bsky.social · 06/10/2026

Everyone’s experience of #lupus is different, so what works for one person may not work for another. #LupusAwarenessMonth #MoreThanADiagnosis #LupusSupport #KnowLupus

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Lupus UK @lupusuk.bsky.social · 06/10/2026

It’s also important to ask for help when you need it and speak to your healthcare team if your condition changes or isn’t well controlled. 🗨️

Lupus UK @lupusuk.bsky.social · 06/10/2026

Working with #lupus can mean finding ways to manage your energy, symptoms and rest alongside your work day. From pacing yourself and taking short, regular breaks to planning your energy, recognising your limits and making time for rest, small changes can help make the working day more manageable.

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Lupus UK @lupusuk.bsky.social · 05/10/2026

These are some of the everyday challenges that people with #lupus may experience at #work - and things that colleagues and employers may not always see. #LupusAwarenessMonth #MoreThanADiagnosis

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Lupus UK @lupusuk.bsky.social · 05/10/2026

Because #lupus is often an #InvisibleIllness, someone can look completely fine while using a huge amount of energy just to get through the day.

Lupus UK @lupusuk.bsky.social · 05/10/2026

Working with #lupus can involve much more than simply getting through the working day. 💼 Behind the scenes, there can be medical appointments to organise, brain fog to navigate, changing symptoms and a constant list of things to track, from medication + treatment to energy levels and appointments.

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Lupus UK @lupusuk.bsky.social · 03/10/2026

Every donation to Lupus UK helps fund research, provide support, and bring hope to thousands of families. 💜 We are grateful for your support! 🫶

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Lupus UK @lupusuk.bsky.social · 03/10/2026

#Lupus is an unpredictable condition that can turn everyday life into a challenge, but together, we can make sure nobody faces it alone. Please consider giving what you can this #LupusAwarenessMonth and donate to our JustGiving page: bit.ly/4iTNtxe 💜

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Lupus UK @lupusuk.bsky.social · 01/10/2026

These are conversations that matter. By listening to lived experiences and understanding the challenges people face, we can help build greater awareness, encourage meaningful change and work towards better support for everyone living with #lupus. 💜

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Lupus UK @lupusuk.bsky.social · 01/10/2026

Throughout October, we’ll be exploring four key areas: 💼Work 📚Education 🪙 Finance 🌱Wellbeing We’ll be sharing information, real experiences, practical support and opportunities for our community to share their own stories over on our Facebook (@LupusUK) and Instagram (@Lupus_UK)

Lupus UK @lupusuk.bsky.social · 01/10/2026

October is #LupusAwarenessMonth, a time to raise awareness, deepen understanding and shine a light on the realities of living with #lupus. 💜 This year, our theme is ‘More Than a Diagnosis.’ Lupus can affect so much more than physical health and everyone’s experience of this can look different.

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Lupus UK @lupusuk.bsky.social · 22/09/2026

Are you living with #lupus or an associated condition, or supporting a loved one in the South West Region of England? Come along to the Lupus UK Devon & Cornwall Online Community Virtual Meet, taking place tomorrow (23rd September) from 12pm-1pm. 🗓️ 📧 Sign up by contacting Infoday@lupusuk.org.uk

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✉️ Please get in touch with Georgia@LupusUK.org.uk by Monday 28 September to find out more. #LupusAwarenessMonth #LupusSupport #LupusCommunity

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We’re particularly interested to hear about experiences relating to work, education, finances and well-being. If you’d be interested in sharing your experience with us and helping us raise awareness of the realities of living with #lupus, we’d love to hear from you.

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We want to hear from you! 🗨️ As part of our Lupus Awareness Month campaign, we’re looking for people from the #lupus community who would be willing to share their experiences of how lupus has impacted different areas of their lives.

Your story could help others living with lupus discover the support available to them! ✉️ If you’d be interested in sharing your experience with us, please get in touch with Georgia@LupusUK.org.uk by Monday 28th September to find out more. 📅

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Whether it’s advice, information, support or simply knowing that someone was there to help, we’d love to hear about your experience and how Lupus UK has made a difference to you. 🗨️

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We’re particularly interested to hear about how our services have helped you in areas such as work, education, finances and well-being.

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Has Lupus UK helped you? As part of our Lupus Awareness Month campaign, we’re looking for people from the #lupus community who would be willing to share their experiences of how Lupus UK has supported them.

Share your experiences and ideas about what young people in #Scotland need, and the support, services and opportunities that Lupus UK or partner organisations could provide! #YouthSupport #PatientVoice

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📢Aged 18-25 and living with #lupus or a lupus-like condition in Scotland? Come along to our focus group in #Edinburgh We'd love to hear your thoughts and help ensure young people's voices are at the heart of future support! 🔗Sign up: forms.cloud.microsoft/e/KyUCy8ktMA

Your experiences, ideas and priorities can help shape the support and services that young people in Scotland would like to see from Lupus UK.

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Lupus UK @lupusuk.bsky.social · 16/09/2026

📢 Aged 11-30 and living in #Scotland with #lupus or a similar condition? Complete our short survey and help shape the future of support for young people! 🔗https://forms.cloud.microsoft/e/YLxjqjRXN0 #YouthSupport #PatientVoice

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✉️ If you have any questions or would like to sign up, contact Infoday@lupusuk.org.uk #NorthernIreland #NISupport #NICommunity #Autoimmune

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Lupus UK @lupusuk.bsky.social · 16/09/2026

Are you living with #lupus or supporting a loved one, awaiting a diagnosis, or live with an associated condition? Come along to our Lupus Support Group in Newry, Northern Ireland. 🗓️ Sat 26th September 🕧 11am-1pm 📍 The Sugar House, Newry, 7A Sugar House Quay BT35 6HZ Newry, (behind the Court House)

Lupus UK @lupusuk.bsky.social · 16/09/2026

Living with #lupus or supporting a loved one, awaiting a diagnosis, or live with an associated condition? Come along to the Lupus UK Devon & Cornwall Online Community Virtual Meet! 🗓️Wednesday 23rd September 🕧 12pm-1pm 💻📱Online 👉 Sign up: Infoday@lupusuk.org.uk #Devon #Cornwall #LupusSupport

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Lupus UK @lupusuk.bsky.social · 14/09/2026

Gifts in wills allow Lupus UK to provide support, information and resources to the #lupus community and allow us to help fund #research. 💜 We’ve partnered with expert estate planners, Octopus Legacy, to offer you the chance to write or update your will for FREE today.

Lupus UK @lupusuk.bsky.social · 09/09/2026

For more information and details on signing up or staying informed about future support groups, email Support@LupusUK.org.uk💜 #LupusSupport #SupportGroup #LupusCommunity

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Lupus UK @lupusuk.bsky.social · 09/09/2026

Come along to our upcoming Virtual Support Groups in September and October. Our groups offer a safe space for individuals to learn more about #lupus and connect with others who are going through similar experiences.

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Lupus UK @lupusuk.bsky.social · 07/09/2026

You can do this online, over the phone or in person with a will writing expert or solicitor. 👉 Claim your free will online today: bit.ly/466jvP1 or call 020 4525 3605 and quote “Lupus UK” to book a phone or in-person appointment. #ChangeStartsWithAWill

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Online Will | Will Writing Service UK - Octopus Legacy

Write an online will in 15 minutes. Save time and money, so you can focus on what's important. All online wills are checked by experts.

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Lupus UK @lupusuk.bsky.social · 07/09/2026

Now it’s easier than ever. We’ve partnered with expert estate planners, Octopus Legacy to offer you the chance to write or update your will for FREE today. We’re covering the costs of wills up to £150 so you can write a simple will for free, or get a discounted will with trust.

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Lupus UK @lupusuk.bsky.social · 07/09/2026

Change starts with a will. And with one simple step, it can start with yours. By giving a gift to Lupus UK your will could leave a lasting legacy of hope, care and research. 💜

Lupus UK @lupusuk.bsky.social · 04/09/2026

Though our office has moved, our commitment to supporting everyone affected by #lupus remains the same. Contact Support@LupusUK.org.uk or call us on 01708 731 251 and leave a message. We'll get back to you as soon as we can.💜 ✉️ Questions about the move? Contact HeadOffice@LupusUK.org.uk

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Lupus UK @lupusuk.bsky.social · 04/09/2026

Recently we shared that we are moving to Farringdon! 🏢 📍We are pleased to share with you our new address: Lupus UK The Finsbury Business Centre, 40 Bowling Green Lane, Clerkenwell, London, EC1R 0NE If you plan to write to us, please send mail only to the address above, not our Romford address.

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Lupus UK @lupusuk.bsky.social · 19/08/2026

#Lunch4Lupus is a simple yet effective way to bring together loved ones, raise funds and make a real difference to people living with #lupus. 🍽️💜 For more information and advice on how to organise your event, visit lupusuk.org.uk/lunch4lupus or contact fundraising@lupusuk.org.uk ☕

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Lupus UK @lupusuk.bsky.social · 13/08/2026

You can contact us via: 📨 Email: support@lupusuk.org.uk 📞 Phone: 01708 731251 (please leave a message) 🌐 Web: lupusuk.org.uk/contact-us 🔗For more information, visit lupusuk.org.uk/need-to-talk #LupusSupport #LupusDiagnosis

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Lupus UK @lupusuk.bsky.social · 13/08/2026

Awaiting a #lupus or related #diagnosis and not feeling listened to? We can support you to navigate the health service, share tools on how to best communicate with healthcare professionals, and provide information on how to document accountability for decisions made about your care. 💬🗨️

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Lupus UK @lupusuk.bsky.social · 11/08/2026

Preparing for a specialist appointment? 🩺 @lupuseurope.bsky.social have created FREE Lupus Consultation Cards to help people with #lupus prepare for consultations by identifying symptoms and preparing questions for their #healthcare team. 🔗Learn more: bit.ly/3Sn75yV #LupusPatientSupport

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Lupus UK @lupusuk.bsky.social · 10/08/2026

Join our email community! ✨ Sign up to our email newsletter to receive monthly updates on latest news and advancements in #lupus, events, research, volunteering, and community stories. 📩 Sign up today to stay in the loop: lupusuk.org.uk/newsletter-sign-up

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Lupus UK @lupusuk.bsky.social · 06/08/2026

We must ensure that innovative and potentially life-changing treatments are available for everyone with lupus who they may be effective for. We need to harness the hope that emerging treatments provide, and build on it.

Lupus UK @lupusuk.bsky.social · 06/08/2026

We are so excited by the potential of new therapies to improve the lives of people living with #lupus, but it is vital that industry, the NHS, and government agencies work together to modernise assessment, payment, and delivery pathways.