Louise Kinross @louisekinross.bsky.social · 26/08/2025A former patient told me about their "favourite nurse." I knew I had to interview her. ❤️hollandbloorview.caHelping patients 'get a bit of their sparkle back''I try to understand their interests outside the hospital. Doing something fun takes away from the medicalization of being in the hospital.' 010
Louise Kinross @louisekinross.bsky.social · 19/08/2025My kids attended Spiral Garden when they were little. In this story, a mom talks about how it meets the needs of both her twin boys. hollandbloorview.ca/stories-news...hollandbloorview.caInclusive, artist-run camp 'welcomes both my boys'Twins Aarav and Ishaan Ghosh go to different schools. In the summer, they spend their days together at Spiral Garden at Holland Bloorview. 011
Louise Kinross @louisekinross.bsky.social · 13/08/2025A competitive swimmer who suffered a brain injury found friends didn’t understand her new disability. 'They just didn’t act the same. It was like I was a new person in their eyes.'hollandbloorview.caRecovery and new friendships after brain injury'My friends didn't treat me the same... It was like I was a new person in their eyes.' 000
Louise Kinross @louisekinross.bsky.social · 30/06/2025When 'it came to raising a disabled child, we didn’t know anyone in our circle who had gone through anything similar. So, I started building what we didn’t have.' ❤️hollandbloorview.caHow I found and built disability communityWhen 'it came to raising a disabled child, we didn’t know anyone in our circle who had gone through anything similar. So, I started building what we didn’t have.' 021
Louise Kinross @louisekinross.bsky.social · 27/06/2025Reede Parisi is a popular sight when she appears at Holland Bloorview with a guitar strapped to her back and a cart full of shakers and drums. The music therapy student's connection with the hospital began when she was hospitalized here as a baby.hollandbloorview.caA former patient's return brings the joy of music'I felt I could connect with kids on a deeper level because of my own experiences.' 010
Louise Kinross @louisekinross.bsky.social · 11/06/2025This mom was told her daughter, then 3, had one year to live due to a brain tumour. The daughter is now 23. The mom has written a book about the strategies she used to maintain hope and advocacy in the darkest times.hollandbloorview.caHow one parent keeps hope alive'Nurturing hope is no small feat. Especially when we feel helpless to make things better for our loved one. Here are some of the strategies that I used frequently.' 000
Louise Kinross @louisekinross.bsky.social · 04/06/2025She came to the hospital as a 2-year-old for therapy. Now she's training here to be a clinician. hollandbloorview.ca/stories-news...hollandbloorview.caFormer patient returns to train as a therapist'I’ve lived the experience of being a client and working with clinicians. So far kids have had a very positive response to me.' 001
Louise Kinross @louisekinross.bsky.social · 02/06/2025'As caring costs increase for families, barriers to paid work as a route out of poverty remain unchanged, including a lack of suitable childcare.'hollandbloorview.caU.K. families with disabled kids are drowning in debtOver half have skipped meals to ensure their child can eat, one in three can’t keep their home warm, and 80 per cent can’t replace items like a fridge when they break. 001
Louise Kinross @louisekinross.bsky.social · 28/05/2025'But we must remember that for all the medical information, the decisions people make about having a disabled child or being a disabled parent are shaped by fear and stigma. We need to talk about that a whole lot more.'theguardian.comEllie Simmonds: Should I Have Children? review – fails to properly tackle the stigma around disabled babiesThe Paralympian’s thoughtful documentary about whether to become a parent is a compelling watch. But it doesn’t go far enough to address social prejudices around disability 010
Louise Kinross @louisekinross.bsky.social · 20/05/2025👇cbc.caAdvocates call absence of disability ministry in PM's new cabinet 'a real slap in the face' | CBC NewsWhen Prime Minister Mark Carney unveiled his new cabinet this week, one notable position was omitted from the roster: the minister of diversity, inclusion and persons with disabilities. 001
Louise Kinross @louisekinross.bsky.social · 16/05/2025May be of interest to anyone who works with children with disabilities and their parents.hollandbloorview.caWorkshop explores tensions between clinicians and parents'They said they were trained to be hyper-positive, but sometimes the parent isn’t in that space. Often there is a big, gaping hole of despair that no one wants to look at.' 011
Louise Kinross @louisekinross.bsky.social · 16/05/2025Interesting! www.npr.org/2025/05/15/n...npr.orgOne woman's fight to remove barriers for aspiring doctors with disabilitiesAfter her dreams of becoming a doctor were denied, one California woman is working to make the profession more accessible to those with disabilities. 010
Louise Kinross @louisekinross.bsky.social · 14/05/2025'Sometimes my two hours in Leticia's room were the only two hours I felt safe in a whole week. She's the only person I tell the hardest parts of my life to.' hollandbloorview.ca/stories-news...hollandbloorview.caWhen a child is in crisis, parents need a 'safe space''Sometimes the best thing I can do is really be there with them and hold a difficult feeling with them. It might not be psychotherapy the way you learn about it in school, but it's very therapeutic.' 010
Louise Kinross @louisekinross.bsky.social · 02/05/2025Must-listen on autism.cbc.ca© CBC/Radio-Canada 2025. All rights reserved. 010
Louise Kinross @louisekinross.bsky.social · 04/02/2025theglobeandmail.comHow a teen living with muscular dystrophy helps raise funds for Holland BloorviewSponsor Content 020
Louise Kinross @louisekinross.bsky.social · 30/01/2025'The latest report from Jennifer Charlesworth’s office says up to 83,000 young people with disabilities are not receiving adequate services in the province + while spending has increased 190 per cent in the 18 years her office has been in place, most went to salaries + a narrow set of programs.'vancouversun.comStaggering number of families struggle in B.C.’s system for disabled kids: advocateThe latest report from her office says up to 83,000 young people with disabilities are not receiving adequate services in the province 030
Louise Kinross @louisekinross.bsky.social · 29/01/2025'In clinic, we have a lot of hard conversations. We talk about losing the ability to walk. We talk about losing the ability to feed yourself. So I try to identify moments of connection, happiness and joy...'hollandbloorview.caPediatrician looks for 'moments of connection, happiness and joy''I frequently ask parents to brag about their child, so I can understand the child in their natural environment.' 030
Louise Kinross @louisekinross.bsky.social · 29/01/2025In a qualitative study of 43 Black American caregivers of #Black #autistic youth published last month in Autism, 77 per cent had significant concerns about the safety of their child around police.hollandbloorview.caFor Black autistic youth, police interactions can be dangerousAutistic behaviours become an 'additive risk factor to their Blackness in the context of police interactions.' 131
Louise Kinross @louisekinross.bsky.social · 26/01/2025Another fabulous #WhoCares podcast covers the role of young #caregivers caring for siblings, parents or partners.open.spotify.comWho CaresPodcast · Snack Labs · From the Canadian Centre for Caregiving Excellence and Snack Labs, welcome to Who Cares.Who Cares explores the world of caregiving and how Canada can become the best place in th... 010
Louise Kinross @louisekinross.bsky.social · 23/01/2025Starvation? In Canada? A woman w #DownSyndrome starves to death in a homeshare funded + overseen by the #BC government.hollandbloorview.caFlorence died of starvation in B.C. government careFlorence Girard was a 54-year-old woman with Down syndrome. She starved to death in 2018 in a homeshare overseen by a B.C. agency and Crown corporation. 010
Louise Kinross @louisekinross.bsky.social · 20/01/2025globalnews.caThis Canadian is his school’s first medical student in a wheelchair. He’s thinking big | Globalnews.caAt Dalhousie University in Halifax, a determined student from B.C. is making breakthroughs in the medical field and inspiring a new generation of health-care professionals. 020
Louise Kinross @louisekinross.bsky.social · 15/01/2025An agency had no idea how to manage a #disabled woman's anxiety related to doctor's visits, so she was allowed to starve to death instead? 👇vancouversun.comWoman’s meltdown prevented doctor visit in B.C. starvation death inquest: caretakerThe coroner’s inquest is looking into the death of Florence Girard, who died while being cared for under a program overseen by Kinsight Community Society 010
Louise Kinross @louisekinross.bsky.social · 13/01/2025The connection between Terrence and Torrance Ho was built on shared passions. It was strained by their family’s unwillingness to talk about Torrance’s degenerative disease.hollandbloorview.caFamily silence around disability complicates brothers' bond'Everything was bottled up in our family and I modelled that. Everyone had masks on, to protect their emotions.' 030
Louise Kinross @louisekinross.bsky.social · 13/01/2025'How does a person in government care starve to death when there are supposedly safeguards in place, and checks and policies, and all kinds of people, that are supposed to be monitoring individuals who are living in home shares'cbc.caFlorence Girard starved to death in a B.C. home-share. Her sister wants change | CBC NewsThe sister of a British Columbia woman with Down syndrome who starved to death in a Port Coquitlam home in 2018 says she believes more people will die if systemic changes aren't made to how people wit... 000
Louise Kinross @louisekinross.bsky.social · 03/01/2025An oldie but a goodie.hollandbloorview.caWhat I wish I knew about disability'Acceptance of, and pride in, being different needs to be a stronger theme in children's rehabilitation.' 011
Louise Kinross @louisekinross.bsky.social · 02/01/2025'The existence of the review was revealed in reports about the death of Errol Graham, who starved to death in June 2018 after the DWP wrongly stopped his out-of-work #disability benefits, leaving him without any income.'theguardian.comDWP spent £50,000 trying to stop release of review into disabled man’s deathPrevious government spent almost £1m trying to prevent release of documents in 56 legal cases 052
Louise Kinross @louisekinross.bsky.social · 29/12/2024'Duncan founded Autcraft after realizing that his son—and many other children on the #autism spectrum—were experiencing bullying in online gaming communities.' 😍mymodernmet.comDevoted Dad Quit His Job to Run the First Minecraft Server for Children With Autism“We just let them know that they’re not alone. We're here for each other and will support each other for as long as need be." 010
Louise Kinross @louisekinross.bsky.social · 29/12/2024'Running a restaurant in 2024 meant taking no salary while working a full-time hospitality job elsewhere in order to afford private health insurance. This is the cruel math of owning a small business + being #disabled in America.'nytimes.comOpinion | My Restaurant Was Named One of New York City’s Best. Here’s Why It Closed.My story is one small part of an ongoing struggle for restaurant workers and culinary culture. 040
Louise Kinross @louisekinross.bsky.social · 20/12/2024Autistic kids 'who are lonely at age 10 are three times more likely to have depressive symptoms when they're 14.'hollandbloorview.caLoneliness in autistic children can predict later depression'Kids who are lonely at age 10 are three times more likely to have depressive symptoms when they're 14.' 066
Louise Kinross @louisekinross.bsky.social · 16/12/2024'There's so much unmet need: people who could use AAC and don't have access. We don't have enough AAC clinics in Ontario. Depending on where you live, there may not be a clinic. And there are very few adult clinic'hollandbloorview.caFor kids who use tech as their voice, Tracy's team delivers'We serve 27 augmentative and alternative communication clinics across the province.' 014
Louise Kinross @louisekinross.bsky.social · 16/12/2024'She told me that if I couldn’t manage him, I needed to take him to CAS and surrender him in the morning. I would never in a million years believe that a professional crisis nurse would tell me that.'thestar.comHospital staff suggested ‘surrendering’ a child. Another was taken by nurses to CAS in a taxi. What happens when the system can’t copeThe stories of an Oshawa-area family and another case investigated by the Patient Ombudsman suggest pressures put on parents by health-care staff. 000
Louise Kinross @louisekinross.bsky.social · 11/12/2024'Parents were accused of poor parenting; their concerns were not believed; or they were accused of neglect or Fabricated and Induced Illness (FII)—when a parent exaggerates or deliberately causes symptoms of a child's illness.'hollandbloorview.caParents seeking help met with blame, study findsA British survey found 86 per cent of 685 parents had been blamed by professionals when they sought help for a child with possible autism. 020
Louise Kinross @louisekinross.bsky.social · 11/12/2024'Studies show that youth like to have clinicians who have a #disability and may be more willing to open up to them.'hollandbloorview.caMathias draws on his disability experience to empower others'One joy of my work is when youth and families say they appreciate my lived experience.' 021
Louise Kinross @louisekinross.bsky.social · 11/12/2024Yes! 'Most of the problems that #disabled activists have described as problems of #disability apply to sickness too. People w chronic illnesses often find they are put under great pressure to deny the effects of their condition.' 020
Louise Kinross @louisekinross.bsky.social · 10/12/2024How on earth is this 'care?' Sounds like torture. '...Declan had begun "bouncing off the walls", which resulted in a catastrophic brain injury...These injuries were sustained while Declan was being monitored by 8 CCTV cameras + under 24-hour observation'bbc.com'Our son was naked and in crisis on CCTV'A family whose autistic son died after being taken to a mental health unit raise concerns. 120
Louise Kinross @louisekinross.bsky.social · 05/12/2024No accountability for woman with Down syndrome who starved to death while in care in BC.vancouversun.comCoroner's inquest to be held for woman who starved to death under care in B.C. homePolice said 54-year-old Florence Marie Girard, who had Down syndrome, died in October 2018 while receiving care in a Port Coquitlam home. 010
Louise Kinross @louisekinross.bsky.social · 05/12/2024In the last year, 62% of British parents of kids w #disabilities have given up paid work or reduced hours, on average losing £21,174. 43% of families have gone w/o heating. 32% of parent carers have gone w/o food. contact.org.uk/wp-content/u... 121
Louise Kinross @louisekinross.bsky.social · 05/12/2024People w intellectual disabilities are losing years of their lives hospitalized because no supports exist in the community. A problem in Canada, the US and Europe.northern-times.co.ukEight people with learning disabilities in hospital for more than six yearsThe figures show 57 people are in ‘inappropriately out of area placements’. 040
Louise Kinross @louisekinross.bsky.social · 04/12/202411 disability groups across Canada will work together to improve care and inclusion thanks to a $30 M donation from The Slaight Family Foundation. 😍hollandbloorview.caA $30 million gift spurs Canadian collaboration in disability careEleven disability groups across Canada will work together to improve care and inclusion. 060
Louise Kinross @louisekinross.bsky.social · 04/12/2024'...not until I became a physician did I encounter such extensive #racism. It ranged from having some patients refuse to let me touch them, to being more harshly critiqued than my white peers, to being told by a gynecologic oncology attending to “go back to Africa.”' pulsevoices.org/stories/surv...pulsevoices.orgSurviving Blackness in Medicine – Pulse 141
Louise Kinross @louisekinross.bsky.social · 03/12/2024In Canada, 'From 2013-2022 the poverty rate for people with disabilities was on average 2 x as high as the poverty rate for people without disabilities.' www.disabilitywithoutpoverty.ca/wp-content/u...disabilitywithoutpoverty.ca 010
Louise Kinross @louisekinross.bsky.social · 03/12/2024Woo hoo!😍hollandbloorview.caA landmark gift to support disability care and inclusionThe Slaight Family Foundation’s $30 million investment is the largest philanthropic investment in disability in Canadian history. 020