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Louise Kinross

@louisekinross.bsky.social
467 followers 1.7K following 55 posts

Editor of BLOOM, a blog on parenting children with disabilities. Mom to 4, Grandma to 1. Works at Holland Bloorview Kids Rehabilitation Hospital. Opinions my own. Visit hollandbloorview.ca/bloom

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Louise Kinross @louisekinross.bsky.social · 04/09/2025
Check out the new BLOOM: conta.cc/4mHg481
Collage of newsletter stories and images.
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Louise Kinross @louisekinross.bsky.social · 26/08/2025
A former patient told me about their "favourite nurse." I knew I had to interview her. ❤️
hollandbloorview.ca
Helping patients 'get a bit of their sparkle back'
'I try to understand their interests outside the hospital. Doing something fun takes away from the medicalization of being in the hospital.'
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Louise Kinross @louisekinross.bsky.social · 19/08/2025
My kids attended Spiral Garden when they were little. In this story, a mom talks about how it meets the needs of both her twin boys. hollandbloorview.ca/stories-news...
hollandbloorview.ca
Inclusive, artist-run camp 'welcomes both my boys'
Twins Aarav and Ishaan Ghosh go to different schools. In the summer, they spend their days together at Spiral Garden at Holland Bloorview.
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Louise Kinross @louisekinross.bsky.social · 13/08/2025
A competitive swimmer who suffered a brain injury found friends didn’t understand her new disability. 'They just didn’t act the same. It was like I was a new person in their eyes.'
hollandbloorview.ca
Recovery and new friendships after brain injury
'My friends didn't treat me the same... It was like I was a new person in their eyes.'
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Louise Kinross @louisekinross.bsky.social · 11/08/2025
Check out the new BLOOM: conta.cc/3URd7p3
Collage of newsletter images and stories.
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Louise Kinross @louisekinross.bsky.social · 01/08/2025
Great read.
nytimes.com
Noah Is Still Here
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Louise Kinross @louisekinross.bsky.social · 30/06/2025
When 'it came to raising a disabled child, we didn’t know anyone in our circle who had gone through anything similar. So, I started building what we didn’t have.' ❤️
hollandbloorview.ca
How I found and built disability community
When 'it came to raising a disabled child, we didn’t know anyone in our circle who had gone through anything similar. So, I started building what we didn’t have.'
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Louise Kinross @louisekinross.bsky.social · 27/06/2025
Reede Parisi is a popular sight when she appears at Holland Bloorview with a guitar strapped to her back and a cart full of shakers and drums. The music therapy student's connection with the hospital began when she was hospitalized here as a baby.
hollandbloorview.ca
A former patient's return brings the joy of music
'I felt I could connect with kids on a deeper level because of my own experiences.'
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Louise Kinross @louisekinross.bsky.social · 18/06/2025
Check out the new BLOOM! conta.cc/4nb3te4
Collage of newsletter images and stories
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Louise Kinross @louisekinross.bsky.social · 11/06/2025
This mom was told her daughter, then 3, had one year to live due to a brain tumour. The daughter is now 23. The mom has written a book about the strategies she used to maintain hope and advocacy in the darkest times.
hollandbloorview.ca
How one parent keeps hope alive
'Nurturing hope is no small feat. Especially when we feel helpless to make things better for our loved one. Here are some of the strategies that I used frequently.'
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Louise Kinross @louisekinross.bsky.social · 04/06/2025
She came to the hospital as a 2-year-old for therapy. Now she's training here to be a clinician. hollandbloorview.ca/stories-news...
hollandbloorview.ca
Former patient returns to train as a therapist
'I’ve lived the experience of being a client and working with clinicians. So far kids have had a very positive response to me.'
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Louise Kinross @louisekinross.bsky.social · 02/06/2025
'As caring costs increase for families, barriers to paid work as a route out of poverty remain unchanged, including a lack of suitable childcare.'
hollandbloorview.ca
U.K. families with disabled kids are drowning in debt
Over half have skipped meals to ensure their child can eat, one in three can’t keep their home warm, and 80 per cent can’t replace items like a fridge when they break.
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Louise Kinross @louisekinross.bsky.social · 28/05/2025
'But we must remember that for all the medical information, the decisions people make about having a disabled child or being a disabled parent are shaped by fear and stigma. We need to talk about that a whole lot more.'
theguardian.com
Ellie Simmonds: Should I Have Children? review – fails to properly tackle the stigma around disabled babies
The Paralympian’s thoughtful documentary about whether to become a parent is a compelling watch. But it doesn’t go far enough to address social prejudices around disability
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Louise Kinross @louisekinross.bsky.social · 23/05/2025
Check out the new BLOOM! conta.cc/4k6rEIo
Collage of newsletter images and stories
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Louise Kinross @louisekinross.bsky.social · 20/05/2025
👇
cbc.ca
Advocates call absence of disability ministry in PM's new cabinet 'a real slap in the face' | CBC News
When Prime Minister Mark Carney unveiled his new cabinet this week, one notable position was omitted from the roster: the minister of diversity, inclusion and persons with disabilities.
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Louise Kinross @louisekinross.bsky.social · 16/05/2025
May be of interest to anyone who works with children with disabilities and their parents.
hollandbloorview.ca
Workshop explores tensions between clinicians and parents
'They said they were trained to be hyper-positive, but sometimes the parent isn’t in that space. Often there is a big, gaping hole of despair that no one wants to look at.'
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Louise Kinross @louisekinross.bsky.social · 16/05/2025
Interesting! www.npr.org/2025/05/15/n...
npr.org
One woman's fight to remove barriers for aspiring doctors with disabilities
After her dreams of becoming a doctor were denied, one California woman is working to make the profession more accessible to those with disabilities.
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Louise Kinross @louisekinross.bsky.social · 14/05/2025
'Sometimes my two hours in Leticia's room were the only two hours I felt safe in a whole week. She's the only person I tell the hardest parts of my life to.' hollandbloorview.ca/stories-news...
hollandbloorview.ca
When a child is in crisis, parents need a 'safe space'
'Sometimes the best thing I can do is really be there with them and hold a difficult feeling with them. It might not be psychotherapy the way you learn about it in school, but it's very therapeutic.'
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Louise Kinross @louisekinross.bsky.social · 02/05/2025
Check out the new BLOOM: conta.cc/3GwVJlK
Collage of newsletter images and stories
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Louise Kinross @louisekinross.bsky.social · 02/05/2025
Must-listen on autism.
cbc.ca
© CBC/Radio-Canada 2025. All rights reserved.
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Louise Kinross @louisekinross.bsky.social · 04/02/2025
theglobeandmail.com
How a teen living with muscular dystrophy helps raise funds for Holland Bloorview
Sponsor Content
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Louise Kinross @louisekinross.bsky.social · 30/01/2025
'The latest report from Jennifer Charlesworth’s office says up to 83,000 young people with disabilities are not receiving adequate services in the province + while spending has increased 190 per cent in the 18 years her office has been in place, most went to salaries + a narrow set of programs.'
vancouversun.com
Staggering number of families struggle in B.C.’s system for disabled kids: advocate
The latest report from her office says up to 83,000 young people with disabilities are not receiving adequate services in the province
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Louise Kinross @louisekinross.bsky.social · 29/01/2025
'In clinic, we have a lot of hard conversations. We talk about losing the ability to walk. We talk about losing the ability to feed yourself. So I try to identify moments of connection, happiness and joy...'
hollandbloorview.ca
Pediatrician looks for 'moments of connection, happiness and joy'
'I frequently ask parents to brag about their child, so I can understand the child in their natural environment.'
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Louise Kinross @louisekinross.bsky.social · 29/01/2025
In a qualitative study of 43 Black American caregivers of #Black #autistic youth published last month in Autism, 77 per cent had significant concerns about the safety of their child around police.
hollandbloorview.ca
For Black autistic youth, police interactions can be dangerous
Autistic behaviours become an 'additive risk factor to their Blackness in the context of police interactions.'
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Louise Kinross @louisekinross.bsky.social · 26/01/2025
Another fabulous #WhoCares podcast covers the role of young #caregivers caring for siblings, parents or partners.
open.spotify.com
Who Cares
Podcast · Snack Labs · From the Canadian Centre for Caregiving Excellence and Snack Labs, welcome to Who Cares.Who Cares explores the world of caregiving and how Canada can become the best place in th...
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Louise Kinross @louisekinross.bsky.social · 23/01/2025
Starvation? In Canada? A woman w #DownSyndrome starves to death in a homeshare funded + overseen by the #BC government.
hollandbloorview.ca
Florence died of starvation in B.C. government care
Florence Girard was a 54-year-old woman with Down syndrome. She starved to death in 2018 in a homeshare overseen by a B.C. agency and Crown corporation.
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Louise Kinross @louisekinross.bsky.social · 20/01/2025
globalnews.ca
This Canadian is his school’s first medical student in a wheelchair. He’s thinking big | Globalnews.ca
At Dalhousie University in Halifax, a determined student from B.C. is making breakthroughs in the medical field and inspiring a new generation of health-care professionals.
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Louise Kinross @louisekinross.bsky.social · 15/01/2025
An agency had no idea how to manage a #disabled woman's anxiety related to doctor's visits, so she was allowed to starve to death instead? 👇
vancouversun.com
Woman’s meltdown prevented doctor visit in B.C. starvation death inquest: caretaker
The coroner’s inquest is looking into the death of Florence Girard, who died while being cared for under a program overseen by Kinsight Community Society
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Louise Kinross @louisekinross.bsky.social · 14/01/2025
Check out the new BLOOM: conta.cc/3Wd86It
Collage of newsletter images and stories
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Louise Kinross @louisekinross.bsky.social · 13/01/2025
The connection between Terrence and Torrance Ho was built on shared passions. It was strained by their family’s unwillingness to talk about Torrance’s degenerative disease.
hollandbloorview.ca
Family silence around disability complicates brothers' bond
'Everything was bottled up in our family and I modelled that. Everyone had masks on, to protect their emotions.'
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Louise Kinross @louisekinross.bsky.social · 13/01/2025
'How does a person in government care starve to death when there are supposedly safeguards in place, and checks and policies, and all kinds of people, that are supposed to be monitoring individuals who are living in home shares'
cbc.ca
Florence Girard starved to death in a B.C. home-share. Her sister wants change | CBC News
The sister of a British Columbia woman with Down syndrome who starved to death in a Port Coquitlam home in 2018 says she believes more people will die if systemic changes aren't made to how people wit...
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Louise Kinross @louisekinross.bsky.social · 03/01/2025
An oldie but a goodie.
hollandbloorview.ca
What I wish I knew about disability
'Acceptance of, and pride in, being different needs to be a stronger theme in children's rehabilitation.'
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Louise Kinross @louisekinross.bsky.social · 02/01/2025
'The existence of the review was revealed in reports about the death of Errol Graham, who starved to death in June 2018 after the DWP wrongly stopped his out-of-work #disability benefits, leaving him without any income.'
theguardian.com
DWP spent £50,000 trying to stop release of review into disabled man’s death
Previous government spent almost £1m trying to prevent release of documents in 56 legal cases
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Louise Kinross @louisekinross.bsky.social · 29/12/2024
'Duncan founded Autcraft after realizing that his son—and many other children on the #autism spectrum—were experiencing bullying in online gaming communities.' 😍
mymodernmet.com
Devoted Dad Quit His Job to Run the First Minecraft Server for Children With Autism
“We just let them know that they’re not alone. We're here for each other and will support each other for as long as need be."
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Louise Kinross @louisekinross.bsky.social · 29/12/2024
'Running a restaurant in 2024 meant taking no salary while working a full-time hospitality job elsewhere in order to afford private health insurance. This is the cruel math of owning a small business + being #disabled in America.'
nytimes.com
Opinion | My Restaurant Was Named One of New York City’s Best. Here’s Why It Closed.
My story is one small part of an ongoing struggle for restaurant workers and culinary culture.
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Louise Kinross @louisekinross.bsky.social · 20/12/2024
Autistic kids 'who are lonely at age 10 are three times more likely to have depressive symptoms when they're 14.'
hollandbloorview.ca
Loneliness in autistic children can predict later depression
'Kids who are lonely at age 10 are three times more likely to have depressive symptoms when they're 14.'
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Louise Kinross @louisekinross.bsky.social · 16/12/2024
'There's so much unmet need: people who could use AAC and don't have access. We don't have enough AAC clinics in Ontario. Depending on where you live, there may not be a clinic. And there are very few adult clinic'
hollandbloorview.ca
For kids who use tech as their voice, Tracy's team delivers
'We serve 27 augmentative and alternative communication clinics across the province.'
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Louise Kinross @louisekinross.bsky.social · 16/12/2024
'She told me that if I couldn’t manage him, I needed to take him to CAS and surrender him in the morning. I would never in a million years believe that a professional crisis nurse would tell me that.'
thestar.com
Hospital staff suggested ‘surrendering’ a child. Another was taken by nurses to CAS in a taxi. What happens when the system can’t cope
The stories of an Oshawa-area family and another case investigated by the Patient Ombudsman suggest pressures put on parents by health-care staff.
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Louise Kinross @louisekinross.bsky.social · 11/12/2024
'Parents were accused of poor parenting; their concerns were not believed; or they were accused of neglect or Fabricated and Induced Illness (FII)—when a parent exaggerates or deliberately causes symptoms of a child's illness.'
hollandbloorview.ca
Parents seeking help met with blame, study finds
A British survey found 86 per cent of 685 parents had been blamed by professionals when they sought help for a child with possible autism.
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Louise Kinross @louisekinross.bsky.social · 11/12/2024
'Studies show that youth like to have clinicians who have a #disability and may be more willing to open up to them.'
hollandbloorview.ca
Mathias draws on his disability experience to empower others
'One joy of my work is when youth and families say they appreciate my lived experience.'
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Louise Kinross @louisekinross.bsky.social · 11/12/2024
Yes! 'Most of the problems that #disabled activists have described as problems of #disability apply to sickness too. People w chronic illnesses often find they are put under great pressure to deny the effects of their condition.'
Book cover of Being Ill: On Sickness, Care and Abandonment
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Louise Kinross @louisekinross.bsky.social · 10/12/2024
👇
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Louise Kinross @louisekinross.bsky.social · 10/12/2024
How on earth is this 'care?' Sounds like torture. '...Declan had begun "bouncing off the walls", which resulted in a catastrophic brain injury...These injuries were sustained while Declan was being monitored by 8 CCTV cameras + under 24-hour observation'
bbc.com
'Our son was naked and in crisis on CCTV'
A family whose autistic son died after being taken to a mental health unit raise concerns.
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Louise Kinross @louisekinross.bsky.social · 05/12/2024
No accountability for woman with Down syndrome who starved to death while in care in BC.
vancouversun.com
Coroner's inquest to be held for woman who starved to death under care in B.C. home
Police said 54-year-old Florence Marie Girard, who had Down syndrome, died in October 2018 while receiving care in a Port Coquitlam home.
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Louise Kinross @louisekinross.bsky.social · 05/12/2024
In the last year, 62% of British parents of kids w #disabilities have given up paid work or reduced hours, on average losing £21,174. 43% of families have gone w/o heating. 32% of parent carers have gone w/o food. contact.org.uk/wp-content/u...
Preschool kids play on mats with toys with staff support.
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Louise Kinross @louisekinross.bsky.social · 05/12/2024
People w intellectual disabilities are losing years of their lives hospitalized because no supports exist in the community. A problem in Canada, the US and Europe.
northern-times.co.uk
Eight people with learning disabilities in hospital for more than six years
The figures show 57 people are in ‘inappropriately out of area placements’.
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Louise Kinross @louisekinross.bsky.social · 04/12/2024
11 disability groups across Canada will work together to improve care and inclusion thanks to a $30 M donation from The Slaight Family Foundation. 😍
hollandbloorview.ca
A $30 million gift spurs Canadian collaboration in disability care
Eleven disability groups across Canada will work together to improve care and inclusion.
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Louise Kinross @louisekinross.bsky.social · 04/12/2024
'...not until I became a physician did I encounter such extensive #racism. It ranged from having some patients refuse to let me touch them, to being more harshly critiqued than my white peers, to being told by a gynecologic oncology attending to “go back to Africa.”' pulsevoices.org/stories/surv...
pulsevoices.org
Surviving Blackness in Medicine – Pulse
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Louise Kinross @louisekinross.bsky.social · 03/12/2024
In Canada, 'From 2013-2022 the poverty rate for people with disabilities was on average 2 x as high as the poverty rate for people without disabilities.' www.disabilitywithoutpoverty.ca/wp-content/u...
disabilitywithoutpoverty.ca
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Louise Kinross @louisekinross.bsky.social · 03/12/2024
Woo hoo!😍
hollandbloorview.ca
A landmark gift to support disability care and inclusion
The Slaight Family Foundation’s $30 million investment is the largest philanthropic investment in disability in Canadian history.
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