LongCovidPharmD @longcovidpharmd.bsky.social · 21/01/2025Wow, when I surveyed rapamycin 2 yrs ago, hardly anyone had tried it, but now quite a few people are trying it, I'm guessing due to the upcoming rapamycin trial. How much improvement have you experienced with it & what dose? I was thinking of trying it myself but I don't have a dr who will Rx it. 220
LongCovidPharmD @longcovidpharmd.bsky.social · 21/01/2025It's great your health & QoL have improved, even though there's still a long way to go. I know what you mean about condition worsening with even the slightest change. It's so frustrating! My health declined a lot since moving in summer 2023, but I think I figured out what I need to do to get better. 010
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Happy to see you, too! How have you been feeling these days? Any progress? 110
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Great to see you, too! Any updates on your end? 120
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Soon I'll post another spreadsheet showing individual treatment effects on specific symptoms (~30 different symptoms). A few example charts from preliminary data are shown here w/ alt text. 2407
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025“Adjusted p-values” in columns T and AC under 0.05 mean the results show a statistically significant difference compared to the reference agent (oral vitamin C). “NA” means the data isn’t available due to a sample size under 20. 1170
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Treatments are organized by a broad category (column A) followed by smaller treatment groups (B) & individual treatments (D). Column E shows adjusted p-values vs the rest of the members within a given treatment group. 1100
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025I see many people asking, "Has anyone tried XYZ for LC (or ME/CFS)? You can view patient-reported treatment outcomes for ME/CFS & Long COVID in this spreadsheet. Scroll to the right to see treatment results for ME/CFS (Columns S - AA) or Long COVID (Columns AB - AJ). docs.google.com/spreadsheets...docs.google.comPatient-Reported Treatment Outcomes in ME/CFS and Long COVID: ST2 Treatment Responses 3114762
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Oh never mind, I figured out how to post. Duh...haha. 220
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Thank you! I just mass followed everyone in that starter pack. Very helpful! Now I just need to figure out how to post on here (other than replying to other posts). Is that the "Chat" function? 240
LongCovidPharmD @longcovidpharmd.bsky.social · 20/01/2025Hi!! I remember you, too; great to see you here! I'm trying to figure this place out... 220