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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 8h

On Oct. 4, the Lobular Breast Cancer Awareness Tour stopped at Ohio State University (OSU) for a lab tour with LBCA SAB member Dr. Daniel Stover, offering a closer look at ILC research underway at OSU. Next, we connected with #ILC advocates at a group meet-up and dinner. Stay tuned for what's next!

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 20h

On October 3, the Lobular Breast Cancer Awareness Tour continued through Illinois, at the Oakbrook Center in Oakbrook and the Lynn Sage Breast Cancer Symposium in Chicago. We're headed to Ohio October 4th - 7th with stops in 5 cities! lobularbreastcancer.org/awareness-day/

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 03/10/2026

While in Nebraska, the Awareness Tour met the legendary group The Temptations! We shared ILC information and “It’s Time to Talk About Lobular Breast Cancer” t-shirts and were invited to their concert that evening. From planned stops to unexpected encounters, every conversation raises awareness!

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 02/10/2026

On 10/1, the Lobular Breast Cancer Awareness tour bus visited Nebraska Hematology-Oncology and Wellity, bringing conversations about ILC into cancer care and the local community. Thank you to everyone who welcomed us and helped raise awareness! Follow along: lobularbreastcancer.org/awareness-day/

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 01/10/2026

On Tuesday, Lobular Breast Cancer Awareness Tour bus traveled through CO! We connected with the community at CU Anschutz, toured the Sikora Lab to learn about ILC research, and wrapped up the day with yoga at Chautauqua Park in Boulder. Learn more: lobularbreastcancer.org/awareness-day/

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Reposted by Lobular Breast Cancer Alliance (LBCA)

Conquer Cancer, the ASCO Foundation @conquercancer.bsky.social · 28/09/2026

The @lobularbca.bsky.social has awarded two $500,000 clinical research grants to Steffi Oesterreich, PhD and Rita Mukhtar, MD. More details in the full release: bit.ly/4hiVyu9 This grant is administered by Conquer Cancer's EveryGrant.

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 30/09/2026

World Dense Breast Day is observed to raise awareness about breast density and share educational resources. LBCA is proud to support World Dense Breast Day and help connect our community with trusted information about breast density and screening: densebreast-info.org/about-us/wor...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 28/09/2026

The Lobular Breast Cancer Awareness Tour launched from San Francisco, CA on Saturday and is headed across the US stopping in over 15 cities. Meet us at a stop on the road! Check out the full itinerary: lobularbreastcancer.org/awareness-day/ #ILCAwarenessTour #LobularBreastCancer #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 27/09/2026

Lobular Breast Cancer survivor Gladys Bettis, or “Mama Bus” mother of NFL Hall of Famer “The Bus” Jerome Bettis agrees it's Time To Talk About Lobular Breast Cancer! Learn more lobularbreastcancer.org/awareness-day/ #lobularbreastcancer #invasivelobularcarcinoma #ILC #ilcawarenesstour

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 27/09/2026

LBCA ED Laurie Hutcheson and SAB Member Dr. Manisha Bahl were featured on AuntMinnie's Women's Imaging MinnieCast to talk about the Lobular Breast Cancer Awareness Tour that launched today from San Francisco and why ILC is challenging to find and treat. www.auntminnie.com/clinical-new...

auntminnie.com

Women's Imaging MinnieCast, Episode 18: On the road with the LBCA

The Lobular Breast Cancer Alliance (LBCA) is embarking on a nationwide bus tour to raise disease awareness.

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 25/09/2026

LBCA welcomes its newest Local Advocacy Team, the Wisconsin Alliance for Lobular Awareness! Led by Erica Gonzalez and Mindy Dwinell, the team will connect people affected by lobular breast cancer and raise awareness of ILC across Wisconsin: lobularbreastcancer.org/local-advoca...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 24/09/2026

LBCA spoke with Dr. Curtis of Stanford University and #ILC research advocate Deborah Romer about research exploring what drives ILC recurrence and metastasis. Watch the interview: tinyurl.com/What-Drives-...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 23/09/2026

Dr. Stephen Purdy of the University of Pittsburgh has received an AACR/LBCA Fellowship Award for research that will contribute to a deeper understanding of the unique biology of ILC. Learn more about LBCA’s #ILC research grants: lobularbreastcancer.org/our-ilc-rese...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 22/09/2026

The 2026 LBCA Lobular Breast Cancer Awareness Tour hits the road Sept. 26th. Check out the updated itinerary and event details for each stop across more than 15 cities:https://lobularbreastcancer.org/awareness-day/ #ilcawarenesstour #ILC #lobularbreastcancer #invasivelobularcarcinoma

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Reposted by Lobular Breast Cancer Alliance (LBCA)

Dana-Farber’s Breast Oncology Center @dfcibreastonc.bsky.social · 18/09/2026

📣 Join us October 15 at Dana-Farber, in collaboration with the @lobularbca.bsky.social, for an event bringing together patients, advocates, researchers, and clinicians to raise awareness and highlight advances in #LobularBreastCancer research and care. Register today docs.google.com/forms/d/e/1F...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 19/09/2026

LBCA PAAB member Kristen Elsby joined Pamela Kinnon and Becky Collins of the Lobular Breast Cancer Australia & New Zealand Facebook group for a Q&A with University of Queensland researchers Dr. Pete Simpson, Dr. Ros Francis and Dr. Amy McCart Reed. Watch the recording: youtu.be/KdjtZWn4Vtc

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 17/09/2026

Catch up on the latest ILC research, education, advocacy, and LBCA updates, all in one place by subscribing to our newsletter. Not subscribed? Sign up here: lobularbreastcancer.org/contact-us/s...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 13/09/2026

LBCA has earned a Four-Star Charity designation from Charity Navigator! ⭐ ⭐ ⭐ ⭐ This recognition reflects our commitment to accountability, transparency, and making every donation count in advancing #ILC research, education, and advocacy. Learn more: www.charitynavigator.org/ein/862260246

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 11/09/2026

Five-year survivor Famke shares her experience with lobular breast cancer and why it’s time to talk about ILC. Soon, LBCA will take that message on the road with our cross-country Awareness Tour, helping more people learn about ILC along the way. Learn more: bit.ly/ILC-Awarenes...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 09/09/2026

LBCA Executive Director Laurie Hutcheson joined State Rep. Michelle Badger on Monday Night Talk with Kevin Tocci to discuss ILC awareness, early detection, Lobular Breast Cancer Awareness Day and LBCA’s upcoming cross-country awareness raising bus tour: www.podbean.com/ew/pb-x5g25-...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 07/09/2026

LBCA recently launched a newly reorganized website! Informed by community feedback, the updated site makes it easier to navigate and find trusted, ILC-specific information and resources. Explore the website: lobularbreastcancer.org #LobularBreastCancer #InvasiveLobularCarcinoma #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 06/09/2026

LBCA’s #ILC Training for Advocates is now available on demand! Developed with ILC researchers and clinicians, the curriculum covers ILC biology, treatment, imaging and surveillance. Explore the curriculum and watch the videos: lobularbreastcancer.org/ilc-training...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 04/09/2026

LBCA is pleased to welcome Cynthia Blevins Doll, Lisa Pellegrino, and Jane Rozina to our Board! They bring a range of professional expertise, leadership experience, and perspectives, along with a shared commitment to LBCA’s mission and the ILC community: lobularbreastcancer.org/lbca-welcome...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 02/09/2026

After being diagnosed with ILC, Betsy underwent chemotherapy, a bilateral mastectomy, and radiation. In her story, she reflects on her experience, discovering LBCA, and why she wishes she had known more about ILC when she was first diagnosed: lobularbreastcancer.org/my-ilc-story...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 31/08/2026

The countdown is on! In just a few weeks, LBCA's Lobular Breast Cancer Awareness Tour begins its cross-country journey to raise awareness of #ILC. Follow along, join us at a tour stop, or help spread the word: bit.ly/ILC-Awarenes... #BreastCancerAwareness #AwarenessTour

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 29/08/2026

Lobular Breast Cancer FAQ: How can artifical intelligence (AI) be used to help diagnose Lobular Breast Cancer? Read more FAQs on our website: lobularbreastcancer.org/faq/ #LobularBreastCancer #InvasiveLobularCarcinoma #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 26/08/2026

Congratulations to Dr. Kate Beecher Matthews, recipient of the 2026 LBCA Early Investigator ILC Research Grant! Through this $50,000, one-year grant, LBCA is investing in the next generation of ILC researchers. Her work will explore the role of SCUBE2 in ILC biology: www.conquer.org/about/news/L...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 24/08/2026

Missed the live session? Watch Session 3 of LBCA’s Liquid Biopsy webinar series on demand to learn about what a liquid biopsy is and how it is being used in the management and monitoring of metastatic invasive lobular carcinoma (mILC): youtu.be/0ndqfNBtzuo?...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 19/08/2026

Fran Visco, President of the National Breast Cancer Coalition and a 30+ year breast cancer survivor living with metastatic breast cancer, recently wrote an Op-Ed urging Congress to pass the Metastatic Breast Cancer Access to Care Act. Contact your representatives to support this bill: Congress.gov.

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 18/08/2026

LBCA is launching a nationwide Lobular Breast Cancer Awareness Tour to raise awareness of invasive lobular carcinoma (ILC) and our resources for ILC patients. From Sept. 26th through Oct. 15th (Lobular Breast Cancer Awareness Day), we’ll travel cross country. Learn more: bit.ly/ILC-Awarenes...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 17/08/2026

LBCA advocates are raising awareness of #ILC in communities across the country. Through local events and health fairs, advocates are sharing resources and stories to help more people understand what makes ILC different from other breast cancers. Get involved: LATadmin@lbca.org

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 12/08/2026

The University of Colorado Anschutz Cancer Center has launched the Lobular Breast Cancer Initiative, led by LBCA Scientific Advisory Board member Dr. Matthew Sikora, to advance #ILC research and improve patient care: lobularbreastcancer.org/new-ilc-focu...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 10/08/2026

The Lobular American Research Consortium (LARC), the first investigator-led U.S. research consortium dedicated exclusively to invasive lobular carcinoma (ILC), has officially launched. Learn more about how LARC will accelerate collaboration and advance research: bit.ly/4yWXRtR #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 08/08/2026

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 06/08/2026

LBCA Scientific Advisory Board member Dr. George Sflomos recently shared insights into his research on LOX inhibition and its role in disrupting pathways involved in the progression of metastatic ILC tumors, as well as what this work may mean for the future research. Learn more: bit.ly/4pFqAPw

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 05/08/2026

Diagnosed with invasive lobular carcinoma (ILC) in her late 30s, Famke shares her journey from diagnosis to survivorship and the importance of self-advocacy, research, and reliable information about lobular breast cancer. Read more: bit.ly/3TabchY#Inva... #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 31/07/2026

LBCA and SNMMI are accepting applications for a $100,000 Invasive Lobular Carcinoma Imaging Research Grant to support innovative #ILC imaging research. Applications are due August 14. Apply here: lnkd.in/e6rhZan3

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 31/07/2026

We're excited to welcome Mary Pat Landry to the LBCA Board of Directors! After her 2022 invasive lobular carcinoma (ILC) diagnosis, Mary Pat found support through LBCA and is now helping advance our mission. Learn more about our Board of Directors: lobularbreastcancer.org/board-of-dir...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 28/07/2026

A new clinical trial testing efficacy of a drug to treat metastatic ILC is now enrolling. Led by LBCA Scientific Advisory Board Chair Dr. Jason Mouabbi, the IvoLoC Trial will advance knowledge of options for personalized treatment approaches for people living with metastatic ILC. 🔗 bit.ly/4fk9XoY

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 24/07/2026

Join LBCA on Wednesday, July 29 at 3:00 p.m. ET for our third Liquid Biopsy webinar. Hear from leading experts on the latest research and what's next. Register: us02web.zoom.us/webinar/regi... #lobularbreastcancer #invasivelobularcarcinoma #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 23/07/2026

This month we show our gratitude to LBCA Board of Directors member, Irene Jamieson, for her generous donation of this year’s volunteer appreciation gift. Irene has been a valuable, longtime supporter of LBCA with both her time and gifts and we are so thankful for her continued generosity!

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 21/07/2026

Two LBCA SAB Members made the news, Dr. Ulaner was elected President of SNMMI and Dr. Kruse was interviewed in on clinical trials. lobularbreastcancer.org/sab-members-...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 16/07/2026

LBCA’s fourth Local Advocacy Team (LAT) has launched in Michigan! It will be run by LAT Ambassadors Valerie Frasier and Ciara Mohan Gustafson. Learn more and about how you can get involved: lobularbreastcancer.org/michigan_LAT/ #lobularbreastcancer #invasivelobularcarcinoma #ILC #LBCALAT

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 15/07/2026

LBCA Patient Advocate Advisory Board member Jade Moran helped put lobular breast cancer front and center at the 2026 SNMMI Annual Meeting: lobularbreastcancer.org/advocacy-in-...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 13/07/2026

LBCA patient advocate, Jade Moran interviewed SNMMI Mars Shot Awardee Dr. Sutcliffe about her research into new imaging technologies that could improve ILC detection and treatment. lobularbreastcancer.org/new-imaging-...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 10/07/2026

LBCA is offering a limited number of travel grant scholarships for patient advocates to attend the 2026 San Antonio Breast Cancer Symposium (SABCS26), Dec. 8–11th in TX. Learn more and apply by July 19th: lobularbreastcancer.org/lbca-travel-... #lobularbreastcancer #invasivelobularcarcinoma #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 10/07/2026

ASCO26 was a historic event for ILC with the first ever session focused on lobular breast cancer seeing standing-room only attendance. Read LBCA ED Laurie Hutcheson's experience: lobularbreastcancer.org/lbca-ed-laur... #lobularbreastcancer #ILC

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 02/07/2026

LBCA Local Advocacy Team (LAT) members Julie Ray and Kathie Nejberger will be patient panelists on an Atrium Health webinar about lobular breast cancer on July 17th. Register here: atriumhealth.org/events/under...

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Lobular Breast Cancer Alliance (LBCA) @lobularbca.bsky.social · 02/07/2026

Let us know how we're doing in our feedback survey! Each year LBCA seeks input from our subscribers and followers to help us continue to improve as we seek to eradicate lobular breast cancer. The survey takes 5-10 minutes and closes July 17th: www.surveymonkey.com/r/constituen...

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