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LLL Collective

@lllcollective.org.uk
131 followers 126 following 449 posts

A La Leche League breastfeeding charity in Great Britain. More on lllcollective.org.uk A Scottish Charitable Incorporated Organisation SC053899

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LLL Collective @lllcollective.org.uk · 30/06/2026
The room is booked by others so the meeting has been brought to an abrupt end. Presentations will be share with the mailing list. Please contact @jessbrownfullermp.bsky.social's office to get on the mailing list for future meetings. See you next time! #APPGIFI
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LLL Collective @lllcollective.org.uk · 30/06/2026
Discussion about what additional questions could be included in next Infant Feeding Survey. Point made about suggestions during consultation for 2024 survey not being included. Question about disappointment government didn't release a statement about the IFS - they can submit a written question
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Regulatory Recommendations cont. Recommendation 7 continued: This should include better regular regulating of commercial milk formula marketing, which undermines safe and appropriate infant and young child feeding practices
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Regulatory Recommendations cont. 7. DHSC should ensure a coordinated government response to protect families during infant formula supply disruptions and price shocks....
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Regulatory Recommendations 6. FSA, DHSC & Office Product Safety & Standards should strengthen oversight of infant formula safety and preparation risks #APPGIFI
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Policy recommendations (non-regulatory ones) cont. 4. Dept for Environment, Food & Rural Affairs & DHSC should recognise IF as a critical component of UK food security 5. Scientific Advisory Committee on Nutrition should review IF recommendations in light of formula supply risks
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Policy recommendations (non-regulatory ones) cont. 3. DHSC, FSA & Office of Product Safety & Standards should review current NHS guidance on formula preparation & associated risks #APPGIFI
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Policy recommendations (non-regulatory ones) cont. 2. DHSC & Food Standards Agency should urgently improve public messaging during infant formula crises, with a clearer focus on safe and appropriate infant feeding
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: Policy recommendations (non-regulatory ones) 1. UK Health Security Agency of Department of Health & Social Care should strengthen safeguards for infant health by improving surveillance & evidence on foodborne risks to infant formula
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LLL Collective @lllcollective.org.uk · 30/06/2026
Vicky Sibson: babies were poisoned by contaminated formula, not reported for some time Infant formula poisonings expose weaknesses in UK checks and regulation, report findshttps://www.bmj.com/content/393/bmj-2026-879495 Prices went up! Price rises are disgraceful in a recall
bmj.com
Infant formula poisonings expose weaknesses in UK checks and regulation, report finds
After dozens of babies in the UK fell ill after a tainted formula scare, campaigners are demanding tighter checks on products. Emma Wilkinson reports A recall of several brands of infant formula over...
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LLL Collective @lllcollective.org.uk · 30/06/2026
We are hearing now from Vicky Sibson from @1stepsnutrition.bsky.social about Infant food security and formula safety in the UK and recent formula recalls This too is an emergency preparedness issue! #APPGIFI
Title slide from Vicky Sibson's presentation on infant food security and formula safety in the UK
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LLL Collective @lllcollective.org.uk · 30/06/2026
protecting infants in emergency planning cont. - establish protocols for wet nursing & milk banking #APPGIF
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LLL Collective @lllcollective.org.uk · 30/06/2026
protecting infants in emergency planning cont. - avoid untargeted distribution of formula samples & reject donations of infant formula, bottles & teats - ensure water provided is safe to use for making up formula - include infant feeding in household emergency plans...
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LLL Collective @lllcollective.org.uk · 30/06/2026
protecting infants in emergency planning cont. - include infant feeding specialists in emergency personnel - emergency staff should know how to signpost to specialist infant feeding support - priority access to food & water for bf mothers - include supplies for babies fed formula in emergency equip
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LLL Collective @lllcollective.org.uk · 30/06/2026
Protection infants within emergency planning - involve infant feeding experts - include private spaces for mothers & babies -> keep babies and mothers together! - access to equipment for infant milk prepartion & sterilising - ensure emergency staff have basic infant feeding training...
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LLL Collective @lllcollective.org.uk · 30/06/2026
What have BFN done? - info for families on website www.breastfeedingnetwork.org.uk/breastfeedin... - checklist for families - social media guidance - training for staff & volunteers - training for those working within the emergency preparedness space - sharing their findings
breastfeedingnetwork.org.uk
Feeding Your Baby in an Emergency Situation - The Breastfeeding Network
It is important that everyone thinks about what they might need to help keep their family safe if there was an emergency. Emergencies can happen at any time, and for a range of reasons: severe weather...
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LLL Collective @lllcollective.org.uk · 30/06/2026
Key interventions & strategies - address key barriers such as stress displacement and resource challenges - supportive environments - establish baby-friendly settings w trained infant feeding professionals - integrated planning - embed all feeding methods into emergency response strategies
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LLL Collective @lllcollective.org.uk · 30/06/2026
National resilience has been raised with the Minister and the Minister for water for emergency preparedness and new mothers should be included on emergency register. Discussion on GDPR & information sharing issues around generating such a register of young children, but minister listening
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LLL Collective @lllcollective.org.uk · 30/06/2026
"Leave privilege out of it" BF can be effective despite disruption. It's vital to protect babies
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LLL Collective @lllcollective.org.uk · 30/06/2026
Findings - safe formula feeding protocols - assess individual infant needs & centralise distribution - reject insolicited donations & follow the WHO Code - provide education on safe preparation, ensure acess to clean water, fuel and equipment
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LLL Collective @lllcollective.org.uk · 30/06/2026
Findings: best practices for safe infant feeding during UK emergencies Hiearchy of feeding options 1. continued breastfeeding/relactation 2. cross nursing 3. donor human milk 4. infant formula
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LLL Collective @lllcollective.org.uk · 30/06/2026
Review with Stirling University & Welsh Government - multi-method synthesis - finding drawn from literature review, discussion groups & survey Findings: factors influencing behaviour - barriers - facilitators - physical opportunity - social opportunity
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LLL Collective @lllcollective.org.uk · 30/06/2026
Inequalities in emergencies - those facing poverty and inequality are disproportionately vulnarable - existing work to tackle inequalities is undermined - increase in gender- based violence - unequal access to services - increassed vulnerability to marketing
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LLL Collective @lllcollective.org.uk · 30/06/2026
Establishing need: safe infant feeding is VITAL, emergencies threaten infant feeding. There is a critical gap in UK preparedness. In the 2024 @wbtiuk.bsky.social report the UK scored an abysmal 0 on indicator 9 on IYCFE - no coordinated strategy, planning or preparedness, no polices
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LLL Collective @lllcollective.org.uk · 30/06/2026
We are now hearing from Eleanor @bfn-uk.bsky.social about Infant Feeding and in Emergencies, preparing from emergency situations. (We often see the term Infant and Young Child Feeding in Emergencies in this field - IYCFe) #APPGIFI
The title slide from the BfN presentation on Infant Feeding in Emergencies
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy: we need a way of speaking to people about their experiences to make it easier for them to share their experiences. Someone/org already trusted might be best placed, not just those who are able to share their voices We know people feel let down
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy in response to question: don't think they asked about food pouches Baby snacks need to be reframed as unncessary and not healthy Families in most deprived communities most likely to have had support from the volunteer sector More support received in hospital, drops slightly after #APPGIFI
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: what's next cont. Investment and data needed for Wales Benefit from more data about mixed feeding Need to support all parents to get the information they need
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: What's next? Improvements have been made. Seen good indication in data BF challenges are common but more women are getting support. Many voices are missing in survey who didn't receive support. Shows importance of investing in support & roles for charities & volunteers
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: there has been a notable delay in starting solids (67% around 6 months or older) Use of shop bought baby foods has dropped dramatically Use of shop bought snacks has INCREASED
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: which formula milks are being used <6 months 1% are receiving follow on or toddler milks (vs 10% in 2010) At phase 3 21% on follow on or toddlers milks (vs 56% in 2010)
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: more women seem to be aware of their rights around breastfeeding in public
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: Not many had returned to work, majority who had did not feel it had an impact on how they fed their baby (data was not stratified) There's been an increase and shift with more employers providing facilities to pump and store their milk, but work still to be done
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: Across the survey mothers from most deprived communities were more likely to get community peer support, so funding appears to be working Role of support from charities and community is highlighted. Everyone wants more support, felt it would have made a difference
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: Great to see a question and data on donor milk. Good to have data on formula preparation machines as there are concerns, so useful to have.
Slide from Amy Brown's presentation showing mothers who had breastfed otlder babies and children, expressing milk rates are high, donor milk and tongue tie rates
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: Great that people are breastfeeding past one year, this is an increase. Probably higher than the average population data but really positive
Slide from Amy Brown's presentation comparing initiation rates, 1 week, 6 week and 6 month feeding data between the 2010 and 2024 surveys
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown: Due to changes in meth. & profile of mothers, results are not directly comparable w 2010 IFS Be aware of voices that re missing Be cognisant that black women are receiving the lowest level of care Those who are traumatised by their bf experience may not be taking part in the survey
Slide from Amy Brown's presentation showing the key findings that 86% of mothers initiating breastfeeding compared with 83% in 2010. 26% exclusively breastfeeding at 6 months compared with 1% in 2010
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LLL Collective @lllcollective.org.uk · 30/06/2026
We are happy to report that @sharonhodgsonmp.bsky.social, Parliamentary Under-Secretary for Public Health and Prevention has now joined the meeting #APPGIFI
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LLL Collective @lllcollective.org.uk · 30/06/2026
Amy Brown is speaking now about the English Infant Feeding survey and about who might not be represented in the responses. Not everyone has taken part in the survey, may not have felt it was inclusive of their infant feeding.
Cover slide from Professor Amy Brown's presentation titled Reflections on the 2024 Infant feeding survey featuring cartoon women breastfeeding their babies, one with a father looking down
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LLL Collective @lllcollective.org.uk · 30/06/2026
Chair @jessbrownfullermp.bsky.social has spoken about how BFN may be taking over the secretariat of the APPG, and how the group wants to focus on engaging with the government because there is a risk of meetings being an echo chamber of people who are like minded about infant feeding
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LLL Collective @lllcollective.org.uk · 30/06/2026
Hello from the APPG on Infant Feeding & Equalities, w @jessbrownfullermp.bsky.social. We'll be hearing from Amy Brown of Swansea U about the result of the 2024 English Infant Feeding Survey, @bfn-uk.bsky.social about IYCFe, & @1stepsnutrition.bsky.social about infant formula recall #APPGIFI
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LLL Collective @lllcollective.org.uk · 04/03/2026
Carolyn Wilson, ScotGov Unit Head for Maternal and Infant Wellbeing, is back to wrap up with thank yous! What a great day, thanks everyone!
Carolyn Wilson stands in front of a thank you screen
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LLL Collective @lllcollective.org.uk · 04/03/2026
We agree that equity is fundamental! We have a series called Equity in Breastfeeding which elevates the voices of those often left out of the conversation. Check out a subscription on our website. Less than a coffee a month, watchable over a lunch break
LA LECHE LEAGUE COLLECTIVE
SCIO SC053899
EQUITY IN BREASTFEEDING
WEBINAR SERIES

Further your inclusive support practice with bitesized sessions.
Who will you hear from next? Sign up today!
Experiences of Breastfeeding as a Black Woman

ADHD & Breastfeeding: my experiences

Who Gets to Breastfeed? How Breastfeeding Intersects with Social Class

Exploring... Breastfeeding Infants among Gypsies and Travellers in Wales

Providing Equity for Breastfeeding British Sign Language Users

Beyond Biology: Breastfeeding, Bonding and LGBTQ+ Inclusion

My Breastfeeding Journey as an Unpaid Carer

Towards Equity in Infant Sleep: Information, Understanding and Practice

Experiences of Breastfeeding Neurodivergent Children
How to Improve Feeding Support for the South Asian Community

IlIcollective.org.uk/webinar
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LLL Collective @lllcollective.org.uk · 04/03/2026
Nigel Rollins wraps up today’s conference, noting breastfeeding is a way of showing love and that the conference’s passion is that love, that there’s a serious commitment to breastfeeding in Scotland, and that there is significant momentum. The theme of equity is fundamental
Nigel Rollins speaking at the podium with a breastfeeding logo on the screen behind him
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LLL Collective @lllcollective.org.uk · 04/03/2026
Dorothy-Ann Timoney and Michelle Cook, both with the NHS, showing the audience what ‘My Breastfeeding Plan’ sounds like
Dorothy-Ann and Michelle role playing the My Plan for Breastfeeding shown on the slide behind them
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LLL Collective @lllcollective.org.uk · 04/03/2026
Jocelyn Smith from Breast Buddies discusses the survey they did with women with long term health conditions and disabilities about their feeding experiences
Slide that says

Background
There are a limited number of studies that consider the impact of a long-term health condition (LTHC) or disabilities on breastfeeding (BF).
The results indicated disparities in care leading to lower initiation rates and earlier cessation of BF among this group of women.
Aim:
• Conduct a survey across Scottish boards with the aim of better understanding the breastfeeding experiences of women with LTHC or Disability in Scotland.
• Use the findings to influence practice and improve the breastfeeding outcomes and experiences of this group of women.Jocelyn Smith from Breast Buddies and Lesleyann Currie from the Scottish Breastfeeding Collaboratice
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LLL Collective @lllcollective.org.uk · 04/03/2026
Tracy notes the benefits from their changes were massive for their families
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LLL Collective @lllcollective.org.uk · 04/03/2026
Tracy McGillivray is a strategic programme manager at NHS Lothian. She discussed the impact of the cost of formula milk for families experiencing financial hardship. NHS Lothian was spending the cost of an infant feeding advisor on formula. They did an impact assessment
NHS Lothian
Formula milk rationalisation
Name: Tracy McGillivray, Strategic Programme Manager slideTracy McGillvray at the podium
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LLL Collective @lllcollective.org.uk · 04/03/2026
Ali Robb and Marianne White from Scottish Breastfeeding Collaborative speaking about how infant feeding is missing from much UK emergency information
Marianne White and Ali Robb speaking at a podium The Global Challenge: Emergency Preparedness for
Infant Feeding UK is unprepared to protect infants duning crises
• WBTi review: UK scored 0/10 on emergency infant feeding preparedness
• only 4 countries wordwide have adequate natonal strategies
Global gaps include:
• No national IYCF-E policies or ensis response plans
• No funding or trained personnel 
• Mothers and infants excluded from emergency guidanceA slide noting that emergency notice about what supply saying use bottled water but bottled water can’t be used for infants
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LLL Collective @lllcollective.org.uk · 04/03/2026
Gillian MacMillan from NHS Tayside used the Action 4 Breastfeeding toolkit to increase breastfeeding rates in Arbroath sites.dundee.ac.uk/action-4-bre...
sites.dundee.ac.uk
Action4Breastfeeding
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