iiinova — where your digital self keeps evolving

Lipodystrophy United @lipodystrophyunite.bsky.social · 29/09/2026

There’s still time to make your voice heard. We have 11 more days to submit comments following our EL-PFDD Meeting. If there was something you didn’t get the chance to say during the meeting, please share it with us. Visit lipodystrophyunited.org/submit-a-com...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 22/09/2026

If you left the meeting thinking, “I wish I had said one more thing,” please share it now. Your comments can help inform our Voice of the Patient Report. The deadline has been extended to October 11! Comment: lipodystrophyunited.org/submit-a-com... Survey: lipodystrophyunited.org/el-pfdd-pre-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 22/09/2026

Join Give an Hour on September 23 at 6 PM CST for a community debrief following our EL-PFDD. We hope you’ll join us: us06web.zoom.us/meeting/regi...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 10/09/2026

We’re honored that Lipodystrophy United’s Voices of LU has been nominated for the inaugural 2026 Prix Galien Patient First Award in Honor of Michael J. Fox! 💙 This recognition belongs to our entire community. #LipodystrophyUnited #PrixGalien

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Lipodystrophy United @lipodystrophyunite.bsky.social · 09/09/2026

A big thank you to Julie and Ashley from Give an Hour! Julie reminds us to think ahead about what brings us comfort; Knowing what helps you feel grounded can make it easier to reach for support when you need it. Zoom registration: us06web.zoom.us/webinar/regi...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 07/09/2026

25 Stories for $25K | Story 24: Meaghan Meaningful improvement means feeling safe enough to leave home, walk her dog, or go to the park without fear. Donate to help patients attend the EL-PFDD and check if your employer will match your gift. Donate: lipodystrophyunited.org/form/25-for-...

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Meaghan wearing sunglasses and a gray tank top with medical monitoring electrodes visible on her chest. Her quote describes wanting just one good day a week when she can walk her dog, go to the park alone, or leave home without fear of passing out or having another medical emergency. The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 05/09/2026

Your experience matters! Take the EL-PFDD Pre-Survey to help us ensure the meeting reflects the real priorities, challenges, and experiences of people living with lipodystrophy and their caregivers, whether you attend virtually or in person. Survey: lipodystrophyunited.org/el-pfdd-pre-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 04/09/2026

25 Stories for $25K | Story 23: Dena Dena’s story is a reminder of how quickly hope can be replaced by uncertainty when treatment options stop working. Help us MATCH $25,000 to bring more voices to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #ELPFDD #Lipodystrophy

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Dena smiling in a white lace dress. Her quote explains that just as her life began to feel like it was improving, she learned she was at risk for serious health complications and that the only approved medication was no longer effective. The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 03/09/2026

Mallory has a question… will YOU go to prom with us? September 12, 2026! Whether you dress up, keep it casual, or wear whatever makes you feel most like yourself, we can’t wait to celebrate our community together. Register for our EL-PFDD and symposium: lipodystrophyunited.org/register-el-...

Mallory poses outdoors in front of blooming white hydrangeas wearing a dark green formal dress and tiara. Colorful cutout-style text across the image reads, “Mallory has a question…”

Mallory stands outdoors in front of blooming white hydrangeas wearing a dark green formal dress and tiara while holding a bright pink handmade sign that reads, “Will you go to prom with me?”

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Lipodystrophy United @lipodystrophyunite.bsky.social · 02/09/2026

Story 22: Kyleigh Living with CGL means also carrying the uncertainty of whether others will know how to help if something goes wrong. Donate to help patients attend the EL-PFDD and check if your employer will match your gift to double your impact. Donate: lipodystrophyunited.org/form/25-for-...

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Kyleigh seated and smiling. Her quote reads: “I want to be independent. I don’t want CGL to define me. But there is always that question in the back of my mind: If something happens, will anyone else know what to do?” The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 31/08/2026

For Shannon, the burden of FPLD is not one symptom or one diagnosis, it is the accumulation of many challenges, day after day, over decades. Help us MATCH $25,000 to bring more patient and caregiver voices to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Shannon, a woman with shoulder-length gray-brown hair wearing a denim jacket. Her quote explains that the burden of FPLD is cumulative, including cardiomyopathy, metabolic disease, pain, fatigue, brain fog, sleep problems, autonomic dysfunction, reproductive complications, and loss of mobility—all affecting the same person every day. The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 28/08/2026

Sonia’s story is one of survival, resilience, and the lasting impact of lipodystrophy. Even after life-saving transplants, the disease still shapes her daily life. Donate to help patients attend the EL-PFDD—and check if your employer will match your gift lipodystrophyunited.org/form/25-for-...

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Sonia, a woman with dark hair wearing a light-colored blazer. Her quote reads: “I have now needed three transplanted organs to stay alive. I consider myself incredibly fortunate to be here. But a transplant does not erase lipodystrophy or its impact on my life.” The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 26/08/2026

25 Stories for $25K | Story 18: Sydney Understanding her diagnosis has helped Sydney better manage her health, advocate for herself, and navigate questions with confidence. Help us MATCH $25K and check if your employer will match your gift Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 26/08/2026

25 Stories for $25K | Kara Rare disease patients shouldn’t have to become experts in appeals and denials just to access care. Help us MATCH $25K to bring more patient and caregiver voices to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #LipodystrophyUnited

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring a smiling woman with dark wavy hair wearing a black blazer. A quote attributed to Kara reads: “Patients with rare diseases shouldn't have to become experts in appeals and denials just to access care.” The graphic encourages donations to help send patients to the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 22/08/2026

Only 3 days left to register for our hotel block and travel stipend! Register through our website and receive the hotel and stipend link! If cost has been holding you back, please apply; we don’t want anyone to miss this incredible weekend! Register: lipodystrophyunited.org/register-el-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 21/08/2026

After a heart transplant, Ashley manages an intense daily treatment routine and never expected lipodystrophy to threaten her transplanted heart, too. Help us MATCH $25K. Check if your employer will match your gift to double your impact. Donate: lipodystrophyunited.org/form/25-for-...

Lipodystrophy United “25 Stories for $25K” campaign graphic featuring a photo of two smiling women embracing. A quote attributed to Ashley describes taking around 25 pills a day, several injections, wearing a mask because of immunosuppression, and her concern about lipodystrophy depositing fat on her transplanted heart. The graphic encourages donations to help patients attend the EL-PFDD.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 19/08/2026

For Rhonda, research is personal; a way to better understand herself and build a better future for her son and others. Help us MATCH $25K to bring more voices to the EL-PFDD. Your employer may match your gift, doubling your impact. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K

Campaign graphic for Lipodystrophy United’s “25 Stories for $25K” featuring a smiling photo of Rhonda. Her quote explains that she has participated in every available study since 2007, first to understand her own condition and later to ensure her son has the knowledge he needs and to advance understanding of their rare disease. The graphic asks supporters to help send patients to the EL-PFDD through donations.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 17/08/2026

Story 15: Sharon is sharing her story so future therapies can keep pace with the progressive nature of lipodystrophy. Help us match $25K to bring more patient voices to the EL-PFDD. Check if your employer matches donations to double your impact! Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 15/08/2026

Every story shared at the EL-PFDD becomes part of the Voice of the Patient Report, a resource that helps the FDA, researchers, and drug developers better understand life with lipodystrophy. 📅 September 11–13 Register: lipodystrophyunited.org/register-el-... #EL-PFDD #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 14/08/2026

Story 14: Rebekah 💙 Rebekah shouldn't have to prove her disease exists—and neither should you. Help us match $25K. Check if your employer matches donations to double your impact! Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #Lipodystrophy

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Lipodystrophy United @lipodystrophyunite.bsky.social · 12/08/2026

Story 13: Crystal 💙 Crystal knows the fear of being told she's "too healthy" to qualify for treatment—and of losing access to a therapy that works. Help us match $25K to bring more voices to the EL-PFDD. Check if your employer matches donations! #25StoriesFor25K #ELPFDD

A Lipodystrophy United “25 Stories for $25K” campaign graphic featuring Crystal. On the right, Crystal is smiling at the camera, wearing glasses and a sleeveless black top. On the left, her quote reads: “I have experienced the uncertainty of trying medications, losing access, or their sudden loss of efficacy. I hope that I continue to get access to this medication, but if I do not, I am willing to take any risk necessary to try to access a treatment one day that I will always have access to.” At the bottom, the graphic reads: “It takes just one story. One donation. One life changing meeting. Help send patients to the EL-PFDD.”

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Lipodystrophy United @lipodystrophyunite.bsky.social · 08/08/2026

What will we discuss at the EL-PFDD? We'll focus on two key topics: the burden of living with lipodystrophy and the burden of treatment. Join us September 12–13 for community activities, research updates, and our gala! Registration: lipodystrophyunited.org/register-el-... #ELPFDD #Lipodystrophy

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Lipodystrophy United @lipodystrophyunite.bsky.social · 07/08/2026

25 Stories for $25K | Story 11: Becky Living with a rare disease often means living with uncertainty. Becky reminds us why more research and patient voices are important. Help us MATCH $25,000 for the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #Lipodystrophy

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Lipodystrophy United @lipodystrophyunite.bsky.social · 06/08/2026

Zainab is a nutritionist and Lipodystrophy United community member living withAGL. Did you know there are four levels of processed foods? Stay tuned as Zainab explains each level and shares how they differ in our upcoming videos! #Lipodystrophy #AGL #Nutrition #ProcessedFoods #RareDisease

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Lipodystrophy United @lipodystrophyunite.bsky.social · 05/08/2026

25 Stories for $25K | Story 10: Christine After 43 years, Christine had to give up the life she loved because of lipodystrophy. Help us raise $25K to bring more patients to the EL-PFDD. 💙 Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD

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Lipodystrophy United @lipodystrophyunite.bsky.social · 03/08/2026

25 Stories for $25K | Story 9: Briana We're sharing stories like Briana's to ensure those everyday experiences help shape the future of treatment. Help us match $25,000 to bring more patients and families to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD

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Lipodystrophy United @lipodystrophyunite.bsky.social · 01/08/2026

Why does your voice matter? Because no one understands life with lipodystrophy better than the people living it every day. Join us for the EL-PFDD, September 11–13, and help make sure every voice is heard. Registration: lipodystrophyunited.org/register-el-... #ELPFDD #Lipodystrophy

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Lipodystrophy United @lipodystrophyunite.bsky.social · 31/07/2026

25 Stories for $25K | Story 8: Jennifer Success isn't just better lab results, it's having the energy to enjoy everyday life. Help us send patients to the EL-PFDD and ensure voices are heard. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 30/07/2026

Zainab is a nutritionist and Lipodystrophy United community member living with AGL. In this video, she explains how balanced meals, fiber, and lean protein can support blood sugar management and why reducing processed foods is important. #Lipodystrophy #Nutrition #BloodSugar #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 29/07/2026

25 Stories for $25K | Story 7: Kenzo Doing everything "right" doesn't mean the burden disappears. Help us raise $25,000 for the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 28/07/2026

Thank you to the Chronic Liver Disease Foundation and Dr. Brown for creating and sharing this educational resource. Learn how adipose tissue deficiency affects people living with lipodystrophy and why understanding leptin is so important to understanding the disease.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 27/07/2026

25 Stories for $25K | Story 6: Gretchen Lipodystrophy has impacted Gretchen and her family, fueling her to fight for early diagnosis, awareness, treatments, and to help ensure no family faces this disease alone. Help us raise $25,000 for the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 25/07/2026

There are many ways to participate in the EL-PFDD! Attend in person, join virtually, share your story, participate in the audience, or submit written comments. Every voice helps shape the future of lipodystrophy care. 📅 September 11–13, 2026 🔗 Register: lipodystrophyunited.org/register-el-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 24/07/2026

25 Stories for $25K | Story 4: Mallory Pain isn't just one symptom, it can take many forms and affect every part of life. We're sharing stories like Mallory's to ensure our pains are seen. Help us raise $25,000 for the EL-PFDD Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 21/07/2026

25 Stories for $25K | Story 4: Carminho This is our chance to share what we need from future therapies designed for our bodies. Help us raise $25,000 to bring more patients and families to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-... #25StoriesFor25K #ELPFDD #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 20/07/2026

25 Stories for $25K | Story 3: Julian As we count down to our EL-PFDD meeting, stories like Julian's highlight why earlier diagnosis, better treatments, and patient voices matter. Help us raise $25,000 to bring more patients to the EL-PFDD. Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 18/07/2026

Who should attend the EL-PFDD? Whether you're living with lipodystrophy, a caregiver, a family member, a friend, a healthcare professional, a researcher, or just want to better understand, your presence matters. Join us lipodystrophyunited.org/register-el-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 17/07/2026

25 Stories for $25K | Story 2: Serj Every patient deserves the chance to live a full life. As we count down to our EL-PFDD meeting, we're sharing stories like Serj's to highlight why patient voices matter. Help us raise $25,000! Donate: lipodystrophyunited.org/form/25-for-...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 15/07/2026

25 Stories for $25K | Story 1: Maryanna As we count down to our EL-PFDD meeting, we're sharing 25 stories to raise $25,000 and help more patients and families attend in person. Every story matters. Every donation makes a difference. Link coming soon! #25StoriesFor25K #ELPFDD #LipodystrophyUnited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 09/07/2026

We're so excited to introduce some of the newest members of the Lipodystrophy United community who generously volunteered to share their stories through our latest photoshoot! Thank you for helping us build a more visible, connected, and hopeful future for everyone affected by lipodystrophy.

Three members of the Lipodystrophy United community smile together during a studio photo shoot. Karen stands on the left wearing a white sleeveless blouse and denim shorts, Julian sits in the center wearing a gray T-shirt and black shorts, and Maryanna stands on the right in a black athletic outfit. Karen and Maryanna each rest a hand on Julian's shoulder as they smile warmly at one another.

Portrait of Serj smiling in front of a large window with green trees visible outside. Serj has long dark hair, wears a black graphic T-shirt, and stands with one hand resting on a forearm crutch. The image is labeled "Meet Serj."

The Felton family poses together outdoors in a park. Two parents stand behind their two sons, all smiling at the camera. The family is surrounded by green grass and leafy trees, and the image is labeled "Meet The Felton Family."

Portrait of Jemmie standing outdoors in a park with hands on hips and smiling at the camera. She has long dark hair and is wearing a black sleeveless top. Trees and greenery create a softly blurred background. The image is labeled "Meet Jemmie."

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Lipodystrophy United @lipodystrophyunite.bsky.social · 07/07/2026

Receiving a rare disease diagnosis can change every part of your life, even how you see yourself. Read Bethany Oeming's powerful story about navigating lipodystrophy as a physician, a woman, and a mother, and how her diagnosis reshaped her perspective. Read here: www.cbc.ca/news/canada/...

Graphic from Lipodystrophy United featuring a photo of Bethany Oeming wearing surgical scrubs, a surgical cap, glasses, and an ID badge, standing with her arms crossed. Large text quotes her saying, “Learning I had a rare genetic condition changed how I saw myself as a physician, woman and mom.” Additional text invites viewers to read more about Bethany's journey with lipodystrophy, with a banner at the top that reads “Link Below!”

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Lipodystrophy United @lipodystrophyunite.bsky.social · 01/07/2026

Zainab is a nutritionist and Lipodystrophy United community member living with Acquired Generalized Lipodystrophy. In this video, she shares nutrition tips through both lived experience and professional knowledge. #Lipodystrophy #RareDisease #Nutrition #AGL #lipodystroohyunited

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Lipodystrophy United @lipodystrophyunite.bsky.social · 30/06/2026

Register NOW for the EL-PFDD and weekend symposium! Whether you attend in person, join virtually, or submit written comments, your experience matters. 🗓️ September 11, 12, & 13, 2026 📍 Alexandria, Virginia Register here: lipodystrophyunited.org/el-pfdd-exte...

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Lipodystrophy United @lipodystrophyunite.bsky.social · 27/06/2026

🏠 Welcome home! We're excited to introduce the new Lipodystrophy United website, a place where patients, caregivers, researchers, clinicians, and advocates can find trusted resources, the latest research, community events, and ways to get involved. Explore our new home: lipodystrophyunited.org

Promotional graphic from Lipodystrophy United announcing the launch of its new website. The image features a laptop and smartphone displaying the redesigned website homepage with the slogan "Science Driven, Community Powered" and "Every voice matters. Every story counts." Text welcomes visitors to "a new and improved interactive website" and describes it as a home for the lipodystrophy community where newly diagnosed patients, caregivers, researchers, and advocates can find information, support, and connection. A red banner at the bottom reads "Link Below!"

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Lipodystrophy United @lipodystrophyunite.bsky.social · 23/06/2026

Julie Wells discusses the connection between pancreatitis and mental health, shares strategies for supporting emotional well-being, and provides three free toolkits to help you build resilience, track emotions, and strengthen your support system. Check out the link: mission-cure.org/pancreatitis...

Graphic from Lipodystrophy United promoting a resource titled “Pancreatitis & Mental Health: What You Should Know – Part 1.” The image includes an illustration of a person holding their abdomen in pain. Text explains that Julie Wells discusses the connection between pancreatitis and mental health and offers guidance on caring for emotional well-being on a day-to-day basis. A banner at the top reads “Link Below!”

Graphic from Lipodystrophy United highlighting three free mental health toolkits included with the pancreatitis and mental health resource. The image displays examples of toolkit worksheets titled “My Support System,” “Emotions Tracker,” and “Self-Regulation.” A red starburst graphic reads “Includes three free toolkits!” The materials focus on emotional wellness, support networks, resilience, and self-regulation strategies.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 18/06/2026

👀 Something new is coming... We've been working behind the scenes on something designed to better serve the lipodystrophy community. We can't wait to share it with you. Stay tuned! #LipodystrophyUnited #Lipodystrophy #RareDisease #ComingSoon

Promotional teaser graphic from Lipodystrophy United featuring a blurred background image from the organization's website. Large white and red text reads, “Something New is Coming.” A red outlined button at the bottom says “Stay Tuned” alongside a notification bell icon. The graphic is designed to build anticipation for an upcoming announcement or launch from Lipodystrophy United.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 15/06/2026

Have nutrition questions? We're excited to welcome Zainab Alzoubi for an upcoming nutrition Q&A! Zainab holds a master's degree in Nutrition and Dietetics from the University of Illinois. Drop your nutrition questions in the comments below, and they may be featured during her presentation!

Promotional graphic from Lipodystrophy United inviting community members to participate in a nutrition Q&A with Zainab Alzoubi. The graphic features the text “Curious about nutrition? Q & A with Zainab Alzoubi” and encourages viewers to comment nutrition-related questions for an upcoming presentation. A photo of Zainab Alzoubi appears on the right side of the image. Additional text notes that she holds a Master of Science in Nutrition and Dietetics from the University of Illinois. The presentation date is listed as “TBD.” Zainab has completed both her bachelor's and master's degrees in Nutrition and Dietetics, completed a dietetic internship, and worked as a research assistant in community nutrition.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 14/06/2026

Have you watched CNBC Cures: Defying Rare Disease? This powerful documentary is an inspiring look at the impact of patient communities and the power of coming together to create change. Watch here: www.cnbc.com/video/2026/0...

Graphic from Lipodystrophy United promoting the documentary CNBC Cures: Defying Rare Disease. The image features a photograph of CNBC journalist Becky Quick smiling alongside her daughter. Text explains that Becky Quick highlights how rare disease families are driving research, advocacy, and drug development when traditional systems move too slowly, while also exploring the emotional, financial, and scientific challenges they face. A red banner at the bottom reads “Link Below!” indicating where viewers can access the documentary.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 10/06/2026

New Lipodystrophy Study Opportunity! Lipodystrophy United is sharing a paid research opportunity for people living with generalized lipodystrophy or partial lipodystrophy, as well as caregivers who usually administer injections to the patient.

Flyer from Lipodystrophy United announcing a paid research opportunity for people living with generalized or partial lipodystrophy, as well as caregivers who typically administer injections. The study is evaluating a new medical device designed to support lipodystrophy drug injections and gather feedback on how clear, comfortable, and easy the injection process is. The flyer explains that interested participants should contact Lipodystrophy United, after which the study team will conduct a phone screening and schedule eligible participants. Contact information is provided, along with instructions to include a name, phone number, and preferred callback time.

Flyer from Lipodystrophy United providing details about a paid lipodystrophy research study. The study involves a single session lasting up to 90 minutes with a study moderator. Participants will review study materials, provide consent, practice a simulated injection using a training pad or skin-like model, and answer questions about the device and instructions. The flyer emphasizes that participants will not inject themselves or another person and that no active medication is used. Compensation is listed as $250 for patients and $225 for caregivers. Sessions are available in the Chicago area or at a meeting location arranged near the participant's home. Contact information for Lipodystrophy United is included at the bottom.

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Lipodystrophy United @lipodystrophyunite.bsky.social · 06/06/2026

Lipodystrophy United is heading to BIO 2026 in San Diego! We’re excited to connect with researchers, biotech leaders, patient advocacy organizations, and partners working to advance rare disease innovation. Attending BIO 2026? We’d love to connect. #BIO2026 #Lipodystrophy #RareDisease

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