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The Lily Foundation @lilyfoundation.bsky.social · 13/09/2026

Tomorrow marks the start of World Mitochondrial Disease Awareness Week! 💚🌍 Together, we can make more people aware of mito. Together, we can put mito on the map. Get involved - ow.ly/Bxos50ZyVUS #MitoAware #MitoOnTheMap #MitochondrialDisease

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The Lily Foundation @lilyfoundation.bsky.social · 09/09/2026

Take A Stand!🤩 Our FREE awareness packs contain everything you need to get started, including leaflets, wristbands, stickers, bunting, balloons, badges, a fundraising pack, poster, collection box and a Lily t-shirt. ow.ly/oRM850Zy8RB

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The Lily Foundation @lilyfoundation.bsky.social · 08/09/2026

‘𝐓𝐊𝟐𝐝 𝐚𝐜𝐫𝐨𝐬𝐬 𝐜𝐨𝐮𝐧𝐭𝐫𝐢𝐞𝐬: 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬, 𝐦𝐮𝐥𝐭𝐢𝐝𝐢𝐬𝐜𝐢𝐩𝐥𝐢𝐧𝐚𝐫𝐲 𝐜𝐚𝐫𝐞 𝐚𝐧𝐝 𝐭𝐡𝐞𝐫𝐚𝐩𝐞𝐮𝐭𝐢𝐜 𝐩𝐚𝐭𝐡𝐰𝐚𝐲𝐬’. 📍Online 📆 September 9th 2026 (tomorrow) at 2pm UK time ℹ️ More info and registration here: ow.ly/AzPZ50Zw4qQ

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The Lily Foundation @lilyfoundation.bsky.social · 07/09/2026

Just ONE WEEK to go until World Mitochondrial Disease Awareness Week! 🦋 World Mitochondrial Disease Awareness Week is a time to shine a light on mitochondrial disease. Together, we can raise awareness, spark conversations around mitochondrial disease.

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The Lily Foundation @lilyfoundation.bsky.social · 01/09/2026

World Mitochondrial Disease Awareness Week is just around the corner! We’re asking our amazing community to help us put mito on the map by changing your Twibbon! Change your Twibbon today - www.twibbonize.com/wmdw2026

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The Lily Foundation @lilyfoundation.bsky.social · 01/09/2026

World Mitochondrial Disease Awareness Week is fast approaching!🌍 ⬇️ Click the link below to use our quick email template and invite your local landmarks to join the cause: ow.ly/bTwt50Zy3BQ #LightUpForMito #MitochondrialDisease

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The Lily Foundation @lilyfoundation.bsky.social · 29/08/2026

Take A Stand!🤩 Setting up a Lily Foundation awareness stand is a simple but powerful way to raise awareness of mitochondrial disease in your local community. Our FREE awareness packs contain everything you need to get started! ow.ly/bONx50Zy8QP

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The Lily Foundation @lilyfoundation.bsky.social · 14/08/2026

Just one month to go until World Mitochondrial Disease Awareness Week! 💚🌍 This year's theme is 'Putting Mito on the Map' - save the date, join the conversation and help us put mito on the map. 💚🦋 ow.ly/7gRc50Zyq8x #WorldMITOWeek2026 #PuttingMitoOnTheMap

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The Lily Foundation @lilyfoundation.bsky.social · 12/08/2026

📣 Registration is now open for the webinar ‘𝐓𝐊𝟐𝐝 𝐚𝐜𝐫𝐨𝐬𝐬 𝐜𝐨𝐮𝐧𝐭𝐫𝐢𝐞𝐬: 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬, 𝐦𝐮𝐥𝐭𝐢𝐝𝐢𝐬𝐜𝐢𝐩𝐥𝐢𝐧𝐚𝐫𝐲 𝐜𝐚𝐫𝐞 𝐚𝐧𝐝 𝐭𝐡𝐞𝐫𝐚𝐩𝐞𝐮𝐭𝐢𝐜 𝐩𝐚𝐭𝐡𝐰𝐚𝐲𝐬’. ℹ️ More info and registration here: ow.ly/yaFn50Zw4qR

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The Lily Foundation @lilyfoundation.bsky.social · 07/08/2026

⏳ 2 weeks left to apply! The Lily Foundation are launching the UK Mitochondrial Disease Research Institute. We're recruiting UK-based Theme Leads & Associate Theme Leads (Senior & Early Career Researchers) to drive life-changing science. Apply by Aug 21: ow.ly/QOLy50Zxmp0

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The Lily Foundation @lilyfoundation.bsky.social · 05/08/2026

The Lily Foundation are celebrating a MAJOR milestone in mitochondrial research.🚨 As a named partner, Lily are proud to be investing directly in FIVE PhD studentships. To read more click here - www.thelilyfoundation.org.uk/news/l…

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The Lily Foundation @lilyfoundation.bsky.social · 30/07/2026

Happy National Friendship Day! 🩷 Today, we're celebrating the incredible friendships that have grown through The Lily Foundation. Learn more about our Family Support Weekend ⬇️🩷 www.thelilyfoundation.org.uk/affect…

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The Lily Foundation @lilyfoundation.bsky.social · 29/07/2026

🚨 HUGE NEWS! Peter Kay has just announced 9 NEW tour dates – and profits will be split equally between 3 charities, including The Lily Foundation! 💙🎟️ Tickets go on sale this Friday 31st July at 10:00 AM. Thank you, Peter! 🙌 ow.ly/1qJC50Zu5yR #PeterKay #MitoAware

lnk.to

PETER KAY LIVE 2026

ALL PROFITS FOR CANCER CHARITIES. VISIT PETERKAY.CO.UK/CHARITIES FOR DETAILS

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The Lily Foundation @lilyfoundation.bsky.social · 22/07/2026

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️✨ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. ow.ly/YoNG50Z79jE

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The Lily Foundation @lilyfoundation.bsky.social · 17/07/2026

🚨 1 in 17 people will be affected by a rare disease, but only 5% have an approved treatment Please take our short survey and help shape Lily’s response on the future of mitochondrial disease treatments ow.ly/RqR350ZoPji #MitochondrialDisease #RareDisease #Research #PatientVoice

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The Lily Foundation @lilyfoundation.bsky.social · 16/07/2026

🧠 How can 'mini brains' help unlock the mysteries of mitochondrial disease? Read more about this fascinating research via the link ⬇️ www.thelilyfoundation.org.uk/affect…

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The Lily Foundation @lilyfoundation.bsky.social · 15/07/2026

Join Cure EB's Butterfly Run and make every step count! 🦋🩷 Sign up today, rally your team, and help us bring hope to those living with mitochondrial disease. 🤩 www.thelilyfoundation.org.uk/charit…

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The Lily Foundation @lilyfoundation.bsky.social · 11/07/2026

Tee off for a great cause at the Lily Golf Day 2026! ⛳ Gather your team and join us for a fantastic day of golf, fundraising and friendly competition at the beautiful Croham Hurst Golf Course in Surrey, proudly sponsored by Skyform. ow.ly/apNz50ZhxZ7

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The Lily Foundation @lilyfoundation.bsky.social · 10/07/2026

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The Lily Foundation @lilyfoundation.bsky.social · 09/07/2026

We're delighted to welcome Arantxa to The Lily Foundation as our new Public and Patient Involvement and Engagement (PPIE) Manager! Please join us in giving Arantxa a warm welcome! 🩷 To read more about Arantxa click here ⬇️ ow.ly/xgf650Zl00v

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The Lily Foundation @lilyfoundation.bsky.social · 08/07/2026

A very special celebration for the beautiful Bethany! 🩷 We couldn't let this wonderful milestone pass without celebrating the incredible Bethany, who recently attended her school prom – and doesn't she look absolutely stunning! ✨

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The Lily Foundation @lilyfoundation.bsky.social · 05/07/2026

We want to say a huge thank you to Skyform for sponsoring our wonderful Croham Hurst Golf Day! ⛳ Interested in getting involved with this fantastic event? Click the link below to learn more about our sponsorship opportunities. Join us - ow.ly/W1ha50ZghVK

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The Lily Foundation @lilyfoundation.bsky.social · 04/07/2026

We are always so grateful to the clinical teams who give their time so generously to support our Lily Family Weekend. 🩺 Your time and kindness make a real difference. #mitochondrialdisease #mito

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The Lily Foundation @lilyfoundation.bsky.social · 26/06/2026

One leap. One decision. One brave moment!!☁️✈️ This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives. Ready for the ultimate adrenaline rush? Sign up today - ow.ly/bCwn50Z78uy

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The Lily Foundation @lilyfoundation.bsky.social · 24/06/2026

Run the 10th anniversary London Landmarks Half Marathon with Team Lily in 2027!🏃‍♀️ Join Team Lily for an unforgettable 13.1-mile journey through the heart of London and help support children and families affected by mitochondrial disease. Sign up today! ow.ly/9JF350Z4Lzj

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The Lily Foundation @lilyfoundation.bsky.social · 23/06/2026

Science, smiles and special connections at our Lily Family Weekend. 💗🔬 It was wonderful to bring families, clinicians, researchers and early career scientists together to share knowledge, ask questions and explore the science behind mitochondrial disease. #science #raredisease

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The Lily Foundation @lilyfoundation.bsky.social · 22/06/2026

The Lily Foundation Family Weekend 2026!🩷 Our Family Weekend is always a special event in the Lily calendar. It’s a chance for families to connect with others who can understand living with mitochondrial disease. To find out more visit - www.thelilyfoundation.org.uk

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The Lily Foundation @lilyfoundation.bsky.social · 19/06/2026

Run the Bath Half for The Lily Foundation 🏃‍♀️ This year, places must be secured through general admission, so you’ll need to be FAST to grab your spot! Sign up today and run for something bigger than the finish line.🩷 ow.ly/y8kf50Z29la

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The Lily Foundation @lilyfoundation.bsky.social · 17/06/2026

We were honoured to attend Euromit 2026. We feel incredibly fortunate to have been part of such an inspiring event, working alongside researchers, clinicians, advocates and families who are all committed in their fight against mito. ow.ly/2Yj150ZcEP9

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The Lily Foundation @lilyfoundation.bsky.social · 16/06/2026

Run the Manchester Marathon 2027 with Team Lily! 🏃 Sign up today through our partner, Run for Charity, and once you’re registered, we’ll support you every step of the way! 🩷 - ow.ly/e0p250Z4Ii0

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The Lily Foundation @lilyfoundation.bsky.social · 13/06/2026

One leap. One decision. One brave moment!!☁️✈️ This summer, challenge yourself and take the leap for The Lily Foundation, tick it off your bucket list and help change lives. Sign up today and be part of something incredible. ow.ly/1eNv50YRFxu

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The Lily Foundation @lilyfoundation.bsky.social · 12/06/2026

Huge congratulations to Matt and Team Matilda for completing the Yorkshire Three Peaks Challenge and raising an incredible £1,905 for The Lily Foundation!⛰️ Feeling inspired? Why not take on a challenge of your own? ⬇️ ow.ly/uNk050Z8IN6

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The Lily Foundation @lilyfoundation.bsky.social · 10/06/2026

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The Lily Foundation @lilyfoundation.bsky.social · 06/06/2026

Join us for Parallel Windsor 2026! It's the most accessible, sensory-friendly, and inclusive event! With no cut-off times, it’s not about speed – it’s about inclusion, community and achieving your personal goal. Who’s joining us?! 🤩 ow.ly/vAf050YIMRN

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The Lily Foundation @lilyfoundation.bsky.social · 05/06/2026

Run the Bath Half for The Lily Foundation 🏃‍♀️ Places for this year’s event are available through general entry, so you’ll need to be quick to secure your spot! Sign up today and run for something bigger than the finish line.🩷 ow.ly/aiEW50Z2bJh

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The Lily Foundation @lilyfoundation.bsky.social · 04/06/2026

Euromit 2029 is coming to Newcastle! Following a successful bid led by Prof Laura Greaves & UK colleagues, Newcastle Mitochondrial Research Group will host Europe’s leading mitochondrial meeting. The Lily Foundation is proud to support the organising committee & help shape the patient programme.

Conference panel discussion on stage with a large screen showing Euromit 2029 in Newcastle upon Tyne at sunset.

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The Lily Foundation @lilyfoundation.bsky.social · 04/06/2026

Our CEO Liz Curtis spoke to xtalks.com recently about The Lily Foundation’s strategy to transform mitochondrial disease research and our long-term vision for the UK Mitochondrial Disease Research Institute. Read the full interview 👇 ow.ly/Wz1G50Z7vEw

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The Lily Foundation’s Strategy to Transform Mitochondrial Disease Research

Learn how The Lily Foundation is driving progress in mitochondrial disease research through patient registries and more.

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The Lily Foundation @lilyfoundation.bsky.social · 03/06/2026

📅 Mark your calendars – 16 June 2026 Join us for the next webinar in our series: an informal yet informative session exploring the journey to diagnosing mitochondrial disease. To find out more - ow.ly/wC8L50Z4Jiq

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The Lily Foundation @lilyfoundation.bsky.social · 03/06/2026

Lily Golf Day 2026! ⛳☀️ Wow, what an amazing day, and the weather to match! We had an absolute blast and are so grateful to everyone who attended and helped make the day such a success.💚⛳ Find a Lily Event today - www.thelilyfoundation.org.uk/charit…

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The Lily Foundation @lilyfoundation.bsky.social · 02/06/2026

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The Lily Foundation @lilyfoundation.bsky.social · 28/05/2026

The Lily Skydive Weekend!!☁️✈️ 📍 Join us at one of five UK locations: Durham | Nottingham | Old Sarum (Salisbury) | Peterborough | Whitchurch Ready for the ultimate adrenaline rush? Sign up today and be part of something incredible. ow.ly/BqsZ50YRFql

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The Lily Foundation @lilyfoundation.bsky.social · 27/05/2026

Trying to understand how cells work used to be a bit like making a smoothie 🍓🥭🍌 To read more about this insightful research click here ow.ly/2z3t50Z14hQ

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The Lily Foundation @lilyfoundation.bsky.social · 27/05/2026

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The Lily Foundation @lilyfoundation.bsky.social · 26/05/2026

We’re pleased to share some photos from our recent Team Development Day. It was a valuable opportunity to come together, strengthen our teamwork, and develop new ideas as we continue working towards our shared goals at The Lily Foundation. Fighting mito. Finding hope. 🩷

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The Lily Foundation @lilyfoundation.bsky.social · 22/05/2026

Our vision is for a world without mitochondrial disease. That’s why we’ve launched the UK Mitochondrial Disease Research Institute. Great to catch up with other mito charities today to share that vision. Sign up to our newsletters to stay in the loop 👇 www.thelilyfoundation.org.uk/contact

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The Lily Foundation @lilyfoundation.bsky.social · 22/05/2026

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The Lily Foundation @lilyfoundation.bsky.social · 21/05/2026

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The Lily Foundation @lilyfoundation.bsky.social · 20/05/2026

Today is International Clinical Trials Day!🧑‍🔬 To read more about our Lily-Funded research , click here: www.thelilyfoundation.org.uk/news/p…

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The Lily Foundation @lilyfoundation.bsky.social · 20/05/2026

With summer right around the corner, why not get your hands on some of our fabulous Lily merch? ☀️🩷 Show your support and represent the Lily Foundation in style with our fabulous merch collection⬇️ ow.ly/xQ9F50YXwEp

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