iiinova — where your digital self keeps evolving

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 02/10/2026

Discover what makes #SDH-deficient GIST different and learn about new research and treatment approaches. Register: bit.ly/Understandin... #SDH #GIST #GISTEducation

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 28/09/2026

Meet Alisha, our September Patient of the Month! Her story highlights the strength, resilience, and hope that can come with navigating #GIST. Read Alisha’s story: bit.ly/POMSept2026 #PatientOfTheMonth #PatientStory #ThrivingTogether

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 17/09/2026

Stay informed on the latest treatment & research updates, clinical trials, events, patient stories, expert webinars & other resources for those living with #GIST. Subscribe: bit.ly/LRG-Newsletter #ThrivingTogether #TheMoreYouKnow #GISTEducation

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 16/09/2026

What's the difference between an interventional study & an observational study? Learn more about these current #ClinicalTrials for #GIST. Questions? Contact Simran at ssingh@liferaftgroup.org #ClinicalTrialsWednesday #GISTResearch #ThrivingTogether

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 15/09/2026

Triage Cancer is hosting a webinar on *September 22* about open enrollment, key deadlines, and tips for choosing the right health insurance coverage. Register now: bit.ly/Triage-OpenE... #TriageCancer #OpenEnrollment #HealthInsurance #CancerSupport

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 13/09/2026

Learn more about GIST & how to navigate your journey at a fall #GISTDayofLearning. #Minnesota - September: bit.ly/GDOLMinnesot... #SanDiego - October: bit.ly/GDOLSanDiego... #GDOL #GISTEducation #FindYourCommunity

001

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 10/09/2026

Our special Life Fest & GIST Awareness Day Newsletter is out now! Catch up on highlights, stories, community moments, and more. Read it today: bit.ly/NL-LFGAD-2026 #GISTeducation #LifeFest2026 #GAD #GISTnews

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 08/09/2026

September is #DesmoidTumorAwarenessMonth. Receiving both a GIST and Desmoid Tumor diagnosis can be daunting. The Life Raft Group is here to help patients navigate both diagnoses with confidence and support.

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 08/09/2026

Don’t miss your chance to join our #PokerFundraiser ! Play for a cause, support the #GISTcommunity , and make a difference. Register: bit.ly/LRGPoker2026 #OaklandNJEvents #DealMeIn #NJEvents

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 31/08/2026

Our August Patient of the Month, Betty, shares her #GISTory and the experiences that have shaped her journey with #GIST. Read Betty’s story: bit.ly/POMAug2026 #PatientOfTheMonth #PatientStory #ThrivingTogether #YouAreNotAlone

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 29/08/2026

Let’s meet the #GISTcommunity in San Diego! 💙 Register for GIST Day of Learning: bit.ly/GDOLSanDiego... #GIST #GDOL #SanDiego

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 27/08/2026

Explore The Life Raft Group’s YouTube channel for #GIST stories, expert insights, and helpful resources. Check it out! bit.ly/YouTubeLRG #Sarcoma #RareDisease #GISTCommunity

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 26/08/2026

Clinical trials can open the door to new treatment options & hope. Learn more about #clinicaltrials by contacting Simran - ssingh@liferaftgroup.org. #GISTeducation #GIST #ExpandedAccessProgram #PEMIGIST #KQB198

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 21/08/2026

Make a difference this summer! Donate to the Champion for a Cure Campaign and help support the GIST community. bit.ly/SummerCampai... #ChampionForACure #ThrivingTogether #GIST #Fundraiser

001

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 20/08/2026

Ready to go all in for a great cause? Join us for a Texas Hold’em #PokerFundraiser . Register: bit.ly/LRGPoker2026 #GIST #PokerForACure #GISTResearch #RareDisease #Fundraiser

001

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 19/08/2026

Due to unforeseen circumstances, this webinar is postponed. We apologize for the change and any inconvenience it may cause. If you've already registered, your registration will automatically carry over. We'll announce a new date soon!

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 16/08/2026

Join us for #GDOL San Diego on October 24, 2026! Connect with the #GISTcommunity, learn from experts, and get the latest information to help you navigate your #GIST journey. Register: bit.ly/GDOLSanDiego... #GISTDayOfLearning #GISTAwareness #Sarcoma #RareCancer

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 14/08/2026

Accessia Health is now accepting applications for financial assistance to eligible GIST patients. Patients can receive help with medical bills, tests, and medical-related travel. To learn more & apply: accessiahealth.org/patient-prog... #FinancialAid #CancerResources

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 14/08/2026

Your experience can help drive the next breakthrough in #GISTresearch. Join us to learn how the NEW LRG Patient Registry is turning patient data into knowledge that can make a difference. Register: bit.ly/PRWebinar2026 #GIST #PatientRegistry #RareDisease

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 13/08/2026

Looking to connect with others who understand the #GIST journey? Join #GISTChat, our secure online community for patients and caregivers to share, ask questions, and find support. Contact us at liferaft@liferaftgroup.org. #GISTCommunity #RareDisease #PatientSupport

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 11/08/2026

Learn about the new LRG Patient Registry from the LRG team! Register: bit.ly/PRWebinar2026 #PatientRegistry #RareDisease #GISTResearch

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 10/08/2026

You are not alone. Connect w/ other GISTers to share experiences & find support. Email liferaft@liferaftgroup.org to learn more about our patient & caregiver support groups. #PatientSupport #CaregiverSupport #FindHope

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 07/08/2026

Discover the NEW LRG Patient Registry and learn how its enhanced features are improving the patient experience while supporting the future of #GISTresearch. Register: bit.ly/PRWebinar202... #PatientRegistry #RareDisease #CancerResearch

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 06/08/2026

Join #TriageCancer for "Ready to Return: Understand Your Rights When Going Back to Work" on August 26 at 1 PM ET. Learn about your workplace rights, accommodations, and returning to work after cancer. Register: bit.ly/Triage-BackT... #CancerSupport #ReturningToWork #PatientAdvocacy #KnowYourRights

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 04/08/2026

Learn, Connect, Find Hope. Join us at a fall GDOL & hear expert-led discussions on topics that matter to the #GISTcommunity. Register: bit.ly/GDOLMinnesot... bit.ly/GDOLSanDiego... #GISTDayOfLearning #GISTEducation #FindYourCommunity #SanDiego #Minnesota

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 30/07/2026

You are not alone on your GIST journey. Whether you're looking for one-on-one support, expert education, or a community that understands, The Life Raft Group is here for you every step of the way! Share your story: bit.ly/GAD-Kudo2026 #SarcomaAwarenessMonth #YouAreNotAlone #GISTawareness

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 29/07/2026

The KQB198 clinical trial is currently enrolling. For more information on trial locations & eligibility criteria, visit clinicaltrials.gov/study/NCT074.... If you have questions or need help navigating a #ClinicalTrial, contact: Simran, ssingh@liferaftgroup.org #KQ198

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 25/07/2026

SDH-Deficient GIST is a rare subtype of #GIST with unique features. Understanding your subtype can help guide care and treatment. Learn more: bit.ly/GAD-Kudo2026 #SarcomaAwarenessMonth #YouAreNotAlone #GISTawareness

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 23/07/2026

Knowing your GIST mutation can help guide treatment decisions and improve conversations with your care team. Share your story today: bit.ly/GAD-Kudo2026 #SarcomaAwarenessMonth #YouAreNotAlone #GISTAwareness

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 22/07/2026

Join us tonight to support Rob Taylor as he shares his journey with rare cancer and his mission to ensure every GIST patient gets quality care. Don't miss it! Register: bit.ly/3SVG9pV

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 19/07/2026

Knowledge is power. Don't be afraid to ask questions and advocate for your care. Share your story: bit.ly/GAD-Kudo2026 #SarcomaAwarenessMonth #YouAreNotAlone #GISTAwareness

001

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 16/07/2026

Seeing a #GIST specialist can make a meaningful difference in your care. Their expertise can help you explore the best treatment options . Share your story: bit.ly/GAD-Kudo2026 #SarcomaAwarenessMonth #YouAreNotAlone #GISTAwareness

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 15/07/2026

GIST Mentor, LRG Board Member & Health Equity Council Advocate, Rob Taylor, discusses his journey with a rare cancer in partnership with Black Health Matters. Join this virtual conversation on how patients & caregivers can navigate sarcoma cancer. #SarcomaAwarenessMonth bit.ly/3SVG9pV

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 14/07/2026

Each #GIST case is unique, that's why testing matters. It's an important part of determining an effective treatment for YOUR GIST. Email liferaft@liferaftgroup.org for info on testing. Share your story: bit.ly/GAD-Kudo2026 #MutationTesting #SarcomaAwarenessMonth #YouAreNotAlone

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 07/07/2026

Newly diagnosed with GIST? Every journey starts with a first step. This #GISTAwarenessDay, learn the basics, get informed, and remember you don't have to face GIST alone. Share your story: bit.ly/GAD-Kudo2026 #GISTAwarenessDay #July13 #FindYourCommunity #RareDisease

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 02/07/2026

GISTs are mainly discovered incidentally rather than being diagnosed by symptoms. What's your story? How long did it take to get to a GIST diagnosis? Share your story this #GISTAwarenessDay : bit.ly/GAD-Kudo2026 #July13 #FindYourCommunity #RareDisease

010

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 30/06/2026

Get involved this month for GAD by sharing stories, wearing yellow, and helping spread awareness for the #GIST community. bit.ly/GAD-Kudo2026 #GISTAwarenessDay #SarcomaAwarenessMonth #LearnAdvocateConnect #ThrivingTogether

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 29/06/2026

For #SarcomaAwarenessMonth we raise awareness for #GIST, a rare cancer that often goes undetected and needs greater visibility to improve outcomes and support. Share your story today: bit.ly/GAD-Kudo2026 #GISTAwarenessDay #SarcomaAwarenessMonth #LearnAdvocateConnect #ThrivingTogether

100

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 29/06/2026

Our Patient of the month, Jodi, shares her journey from a Stage IV #GISTdiagnosis to a life-saving second opinion and ongoing hope through resilience and faith. Read more: bit.ly/POMJune2026 #GIST #PatientOfTheMonth #PatientStory #ThrivingTogether

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 26/06/2026

Thank you to all who attended the Water of Life Fundraiser this week, especially our host Dr. Matthew J. Lurin! #GISTResearch #fundraisers #whiskytasting #NYCevents

010

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 18/06/2026

Missed it live? Catch up on the latest #GISTResearch highlights & takeaways from #ASCO26 w/this recording. Watch now: bit.ly/ASCOUpdatesREC #CancerResearch #YouAreNotAlone #GISTcancer

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 10/06/2026

Get the latest GIST research updates from #ASCO26 with Dr. Hirotaka Miyashita. Don't miss this opportunity to learn about emerging findings impacting the #GISTcommunity. Register: bit.ly/UpdatesASCO2... #GIST #GISTeducation #CancerResearch #PatientAdvocacy

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 09/06/2026

There’s real excitement about the momentum in #GISTresearch w/encouraging evidence pointing to promising treatments & better outcomes as reported at #ASCO26. The PEAK study is one to watch. More ASCO updated to come. #GISTcancer #SarcomaResearch #GISTHope #bezuclastinib

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 04/06/2026

Life Fest attendees, keep the momentum going by joining the Walk for Hope! Every step helps support the GIST community through education, advocacy, and research. Register today: bit.ly/WalkForHopeLF #LifeFest #ThrivingTogether #GISTEducation

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 03/06/2026

Recording Available! Hear expert insights on #nutrition, physical activity, and wellness strategies for #sarcoma patients from Dr. Loren Yavelberg and Dr. Harleen Kaur of the University of Miami. Watch now: bit.ly/NutritionExe... #CancerCare #ExerciseOncology #CancerSupport

010

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 02/06/2026

Stay up to date on the latest #GISTresearch presented at ASCO 2026! Join Dr. Hirotaka Miyashita of UC San Diego Health on June 17 as he reviews key abstracts and presentations relevant to the #GISTcommunity. Register today: bit.ly/UpdatesASCO2... #GIST #ASCO26 #CancerResearch

010

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 28/05/2026

Recording available! Dr. Rashmi Chugh explains how #ClinicalTrials work and what to expect, alongside GIST advocate Dirk Niggemeyer sharing his patient journey. bit.ly/ClinicalTria... #GIST #PatientVoice #GISTeducation

000

The Life Raft Group - GIST Support @liferaftgroup.bsky.social · 27/05/2026

See the impact we made together in 2025. The LRG Annual Report is here — highlighting a year of research, advocacy, and community support. bit.ly/LRG-AR2025  #ThrivingTogether #AnnualReport #GIST

000