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How do patients feel about their information being used to advance scientific research? It’s an important question, and one which you can explore further in this easy-to-read summary from our Translational Science Summit, by Readable Research: www.readableresearch.com/lifearc/da…

readableresearch.com

Patient and Public Perceptions of Data Research

Our summary of the opportunities that gene therapy could bring for patients, as discussed at the LifeArc Translational Science Summit 2026

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LifeArc @lifearc.bsky.social · 08/10/2026

For any workshop, the most important work often happens before the meeting starts. Preparation creates a common foundation of understanding and helps drive engagement in the meeting itself. We're sharing 7 lessons from our childhood cancer workshops. Read now: t.ly/oMPZi

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LifeArc @lifearc.bsky.social · 07/10/2026

Why choose a career in cystic fibrosis research? 4 researchers from across the CF Lung Health Network share what inspires them in their work every day. #CysticFibrosis #ResearchCareer

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LifeArc @lifearc.bsky.social · 02/10/2026

Last week, experts in drug-resistant infections gathered in Lisbon for #GAMRIC2026. Our takeaways: • Innovation must be shaped by real-world needs • Access must be considered from the start • We need a robust ecosystem with sustained investment and strong collaborations See you at #GAMRIC2027!

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LifeArc @lifearc.bsky.social · 02/10/2026

Discussions about treatments need diverse perspectives. Bringing together clinicians, researchers, and people with lived experience can uncover challenges and inform better decisions. We're sharing 7 lessons from our childhood cancer workshops. Read them all: t.ly/oMPZi

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LifeArc @lifearc.bsky.social · 01/10/2026

Could an existing antibiotic help treat a rare liver disease? We're supporting a Phase 2b/3 trial to investigate whether oral vancomycin could help treat people living with primary sclerosing cholangitis (PSC) and inflammatory bowel disease (IBD). Learn more: t.ly/RgwT_

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LifeArc @lifearc.bsky.social · 30/09/2026

We're proud to partner with the Academy of Medical Sciences to launch a new fellowship programme focused on rare diseases. Supporting clinician scientists with the skills, networks and experience to translate research into patient impact. Learn more and apply: t.ly/12yhw

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LifeArc @lifearc.bsky.social · 29/09/2026

What could the next generation of genetic medicines mean for people with rare diseases? Experts at our Translational Science Summit earlier this year explored the opportunities and challenges shaping the field. Catch up with the accessible summaries: bit.ly/3UY0Fr4

bit.ly

Using Gene Therapy to Treat Rare Diseases

Our summary of the opportunities that gene therapy could bring for patients, as discussed at the LifeArc Translational Science Summit 2026

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LifeArc @lifearc.bsky.social · 25/09/2026

A good discussion is one thing, but turning conversation into action is another. Our workshops showed the value of a clear decision-making framework to propel actionable outputs. We're sharing 7 lessons from our childhood cancer workshops. Read them all: t.ly/oMPZi

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Reposted by LifeArc

ESCMID @escmid.bsky.social · 23/09/2026

Bringing together all aspects of the #AMR research lifecycle is a key benefit of #GAMRIC2026. In the current session, we hear from the different perspectives throughout the lifecycle including IPC, clinical, innovators and trial-design. CARB-X LifeArc Global Antibiotic R&D Partnership (GARDP)

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Reposted by LifeArc

ESCMID @escmid.bsky.social · 23/09/2026

Day 2 of #GAMRIC2026 starts off with discussions on addressing the gaps and unmet needs in #AMR particularly how to accelerate impact in paediatric AMR and in LMICs. Talks by Marcela Ramirez, Nina Putri, Tanu Singhal CARB-X LifeArc Global Antibiotic R&D Partnership (GARDP)

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Reposted by LifeArc

ESCMID @escmid.bsky.social · 22/09/2026

Day 1 wrap-up of #GAMRIC2026 is now live on our LinkedIn (lnkd.in/p/e89DW9N3) CARB-X LifeArc Global Antibiotic R&D Partnership (GARDP)

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LifeArc @lifearc.bsky.social · 17/09/2026

To improve treatment approaches, we need to first understand the unmet need. Engaging the community early can help define the challenge and uncover the barriers holding progress back. We're sharing 7 lessons from our childhood cancer workshops. Read them all: t.ly/oMPZi

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LifeArc @lifearc.bsky.social · 16/09/2026

Why choose a career in cystic fibrosis research? 4 researchers from across the CF Lung Health Network share what motivates them and the difference they hope to make for people living with CF. #CysticFibrosis #ResearchCareer

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LifeArc @lifearc.bsky.social · 11/09/2026

The Future For Rare Summit brought together over 100 people from across the UK, including those affected by rare conditions, support organisations, clinicians, researchers and policymakers, to agree the priorities for a new UK-wide rare disease policy.

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LifeArc @lifearc.bsky.social · 09/09/2026

What should the future look like for people living with rare conditions? With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.

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LifeArc @lifearc.bsky.social · 08/09/2026

"The next three years will be pivotal." In @healthcaretoday.bsky.social's latest interview, our CEO Sam Barrell discusses the changes needed to accelerate rare disease research in the UK and deliver greater patient impact. healthcaretoday.com/article/life...

healthcaretoday.com

LifeArc’s Sam Barrell: Real promise in rare diseases

The chief executive officer of LifeArc explains what we need to do to turn discovery science into patient benefit and why the UK has the potential to position itself as a market leader for rare diseas...

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LifeArc @lifearc.bsky.social · 08/09/2026

Well-designed workshops can help communities move from shared concern to shared action. This Childhood Cancer Awareness Month, we're sharing 7 lessons from our Paediatric Therapeutic Development Workshop series. Read now: www.lifearc.org/2026/7-lessons-from…

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LifeArc @lifearc.bsky.social · 02/09/2026

Only 8 bespoke childhood cancer medicines have been approved in the last 20 years. This #ChildhoodCancerAwarenessMonth, learn why a child-first approach to drug development is urgently needed. 🎥 Watch now: bit.ly/4x0hteg

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LifeArc @lifearc.bsky.social · 01/09/2026

Are you searching for support, information or connections in the rare disease community? Raremap helps you find charities, patient organisations and more: raremap.co.uk/

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LifeArc @lifearc.bsky.social · 25/08/2026

Osteosarcoma remains a major unmet need in young people. We’ve identified new targets to support the development of more targeted, less toxic treatments. 🔗Read more in British Journal of Cancer: www.nature.com/articles/s41416-026-…

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LifeArc @lifearc.bsky.social · 24/08/2026

Kath Bainbridge reflects on five years of progress through England’s Rare Diseases Action Plans and what comes next to continue driving change for the rare disease community. Watch this #LATSS2026 session and 30+ more on our YouTube channel: t.ly/COXC_

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LifeArc @lifearc.bsky.social · 20/08/2026

How do you build a great biotech company? Few people are better placed to answer that question than Christoph Lengauer, co-founder/CSO of Curie.Bio, and a man who has contributed to 11 FDA-approved medicines. Watch his session from our Translational Science Summit: t.ly/Kqqbx

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LifeArc @lifearc.bsky.social · 18/08/2026

We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/

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LifeArc @lifearc.bsky.social · 17/08/2026

Reasons to invest in rare disease research are not rare. Rare diseases are often described as too small, too complex or too expensive. But Alexion has proved that they can offer both the opportunity to change lives and generate financial returns. 🎥Watch the full video:

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LifeArc @lifearc.bsky.social · 14/08/2026

Bio-Hermes-002 has now completed enrolment, with 28% of participants coming from traditionally understudied populations. We're proud to be part of the Bio-Hermes-002 study, which is testing whether a finger-prick blood test could help diagnose Alzheimer's disease.

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LifeArc @lifearc.bsky.social · 12/08/2026

#GAMRIC2026 is fast approaching! Valeria Gigante (WHO) tells us why this conference is so important for tackling drug-resistant infections, together. Register now: gamric.org #Global Health #AMR

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LifeArc @lifearc.bsky.social · 10/08/2026

What if patients with Hunter syndrome could become their own bone marrow donors? Professor Wynn shares how gene correction is transforming treatment, with dramatic results from clinical trials. Watch this #LATSS2026 session and 30+ more on our YouTube channel: t.ly/jLQmp

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LifeArc @lifearc.bsky.social · 06/08/2026

#GAMRIC2026 is next month! If you haven't registered yet, get inspired by what our Chair of Global Health, Kelly Chibale, had to say about last year's edition. Register now: gamric.org #GlobalHealth #AMR

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LifeArc @lifearc.bsky.social · 05/08/2026

Looking for collaboration, funding and support opportunities for your rare disease research? Explore Raremap to find the connections you need: raremap.co.uk/

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LifeArc @lifearc.bsky.social · 03/08/2026

Why should investors pay more attention to rare diseases? During his panel, Chris Molloy shares why the sector offers both patient impact and commercial value. Watch the recording from #LATSS2026, plus 30+ other sessions, on our YouTube channel: youtu.be/ZbrD0yq0idg?...

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LifeArc @lifearc.bsky.social · 31/07/2026

This week, @telegraph.co.uk explored how ASPIRE, a programme we support through our partnership with @reactgroup.bsky.social, is strengthening antimicrobial stewardship across Zambia and Kenya. Read now: www.telegraph.co.uk/global-healt...

telegraph.co.uk

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LifeArc @lifearc.bsky.social · 31/07/2026

Imaging is one of the most powerful tools for drug discovery, allowing us to see biology in action. Here, Becca from our imaging team shows us how we quality-check neurons generated from our in-house induced pluripotent stem cell capability.

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LifeArc @lifearc.bsky.social · 30/07/2026

Drug-resistant infections are a global challenge. GAMRIC brings together the people developing the solutions. Join the #AMR community in Lisbon this September for three days of discussion, collaboration and new ideas. Register today 👉 gamric.org

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LifeArc @lifearc.bsky.social · 28/07/2026

In a letter published today in the @financialtimes.com, our CEO Sam Barrell welcomes increased investment in rare diseases while arguing that much more needs to be done to bring new treatments to patients. www.ft.com/content/d365...

ft.com

Letter: UK can lead way on rare disease treatments

From Sam Barrell, CEO of LifeArc, London WC1H, UK

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LifeArc @lifearc.bsky.social · 28/07/2026

Is your organisation on Raremap yet? Join the living resource that makes the UK rare disease landscape easier to navigate. Visit Raremap now and request to be added: raremap.co.uk/join/

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LifeArc @lifearc.bsky.social · 27/07/2026

A decade after her daughter Mila received the first medicine designed for a single individual, Julia Vitarello explains what’s needed to make individualised medicines accessible to all. Watch this #LATSS2026 session and 30+ more on our YouTube channel: bit.ly/3TkAuKb

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LifeArc @lifearc.bsky.social · 24/07/2026

Drug-resistant infections pose a huge global health challenge. This week, we were in Zambia at the ReAct Africa Annual AMR Conference and to meet the ASPIRE programme team, working for better-informed antibiotic prescription decisions. Find out more: t.ly/LcRUQ

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LifeArc @lifearc.bsky.social · 24/07/2026

We brought together clinicians, researchers and patient advocates to prioritise new treatment approaches for medulloblastoma. For high-risk disease, we focused on tumour ‘drivers’; for lower-risk subtypes, on opportunities for kinder, antibody-based treatments. 🔗https://t.ly/dE8h-

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LifeArc @lifearc.bsky.social · 23/07/2026

It's brilliant to have so many organisations joining Raremap. If you work in rare diseases and are not part of the directory yet, apply to be added now.

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LifeArc @lifearc.bsky.social · 21/07/2026

What would it take to make cancer non-lethal within our lifetime? Reed Jobs, Founder of Yosemite, explores how his venture capital firm is helping accelerate the next generation of cancer breakthroughs. Watch 30+ #LATSS2026 sessions on our YouTube channel: www.youtube.com/watch?v=aLRS...

youtube.com

(Opening Plenary) A new model for oncology innovation: how Yosemite funds what matters | LATSS 2026

YouTube video by LifeArc

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LifeArc @lifearc.bsky.social · 17/07/2026

The UK has been at the forefront of many scientific and medical breakthroughs over the past century. So we're proud to be featured in Monarchy and Democracy: A History of Leadership, which showcases organisations that have contributed to leadership and progress in the UK.

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LifeArc @lifearc.bsky.social · 16/07/2026

Rare disease affects millions of people worldwide, but making progress can be hindered by small numbers. That's where Our Future Health comes in. Read more about how this rich dataset is helping change the outlook for people with rare diseases: t.ly/TdkjX

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LifeArc @lifearc.bsky.social · 15/07/2026

The rare disease landscape can be complex to navigate – that's why we've collaborated with @rdrukhub.bsky.social to launch Raremap. It's a searchable directory of rare disease organisations so you can find out who does what and how to connect. Visit Raremap now: t.ly/nY3Rz

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LifeArc @lifearc.bsky.social · 14/07/2026

12 childhood cancers. 12 workshops. 24 months. We've just hosted the final Paediatric Therapeutic Development Workshop – a major milestone towards new treatment options for childhood cancers with the greatest unmet need. Read more: t.ly/SO81e

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LifeArc @lifearc.bsky.social · 13/07/2026

"A hospital admission can be a major setback for someone with dementia. If we can spot problems earlier and help people stay safely at home, that has the potential to change lives, not just ease pressure on health services," says our CEO Sam Barrell in today's @express.co.uk

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LifeArc @lifearc.bsky.social · 13/07/2026

We're pleased to announce that over 30 recordings from #LATSS2026 are now available. If you weren't able to attend, or would like to revisit any of the sessions, you can explore them at your leisure on our YouTube channel: t.ly/OygJ3

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