iiinova — where your digital self keeps evolving

Lesley Smith @lesleysmith.bsky.social · 07/10/2026

Fantastic to see @royalmarsden.org study day on GI consequences of cancer treatment is on again in Nov with usual superb faculty. So important for bowel & upper GI dysfunction after cancer treatment to be managed as well as possible, to improve #CancerQualityOfLife www.royalmarsden.nhs.uk/giant

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Lesley Smith @lesleysmith.bsky.social · 25/09/2026

And a peek at my old place of work which used to be part of Queen Mary’s Hospital at Roehampton. What a privilege to have worked in such a wonderful building en.wikipedia.org/wiki/Roehamp...

Roehampton House, a stately home used by the NHS in the 20th century

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Lesley Smith @lesleysmith.bsky.social · 25/09/2026

Gorgeous day today in Richmond Park. An abundance of robins. The deer gathering for the rutting season. The magnificent oak trees. Squirrels scarpering around for acorns. Bike riders, horse riders, hikers, dog walkers, runners, wedding photography groups 📸 all enjoying the Autumn sun

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Lesley Smith @lesleysmith.bsky.social · 29/08/2026

Am now retired from @england.nhs.uk through voluntary redundancy but it will not dim my passion for #LivingWithAndBeyondCancer. I remain as a trustee for @prda.org.uk a small but mighty charity working to improve quality of life for people with difficult chronic problems after pelvic radiotherapy 💙

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Lesley Smith @lesleysmith.bsky.social · 21/08/2026

Fantastic to read about #LivingWithAndBeyondCancer achievements by @cmcanceralliance.bsky.social ⭐️⭐️⭐️⭐️⭐️ Amazing level of savings from Personalised Stratified Follow Up, which also translates into considerable savings in patient & carer time, travel costs and stress, not to mention CO2 👏👏

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Lesley Smith @lesleysmith.bsky.social · 22/06/2026

Delighted to be at @britsocgastro.bsky.social #BSGLIVE26 annual conference in #Liverpool to raise awareness of #PelvicRadiationDisease and how @prda.org.uk can help gastroenterology patients with issues such as Radiation-induced enteropathy, proctitis and difficulties with nutrition

Pelvic Radiation disease association charity display stand

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Lesley Smith @lesleysmith.bsky.social · 16/11/2025

Gorgeous tiny little fungi 🍄‍🟫in Richmond Park 🦌 Anyone know what kind they are?

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Lesley Smith @lesleysmith.bsky.social · 07/11/2025

This sounds hopeful from Jim Mackey in HSJ re shifting funding to community based services that prevent admissions. If achieved, this will help efforts to reduce the impact of cancer & its treatment, through preventative & proactive care that improves QoL & reduces crises & use of hospital beds

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Lesley Smith @lesleysmith.bsky.social · 16/10/2025

Very much looking forward to today’s Pan London Cancer Alliances’ AHP and Psychological Therapies conference - brilliant packed programme and loads of great stuff happening on #LivingWithAndBeyondCancer 😀👏 #SuppOnc

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Lesley Smith @lesleysmith.bsky.social · 10/10/2025

I really enjoyed the talk by Jane Ireson (Christie) about goals of care for older people with cancer - true personalised care #UKASCC25

Older people’s preferences re quality and quantity of life

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Lesley Smith @lesleysmith.bsky.social · 10/10/2025

@felicitydewhurst.bsky.social spoke on behalf of Jenny Welford & colleagues (Newcastle) about their AHP-led Palliative Care service, showing great results in terms of reduced admissions and length of stay #UKASCC25

Model of care for lung cancer palliative care

Impact of the AHP-led service model admission avoidance and reduced length of stay

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Lesley Smith @lesleysmith.bsky.social · 10/10/2025

@fabiogomes-go.bsky.social (Christie) described the risks of undertreatment & overtreatment in cancer care for older people. Christie has Senior Adult Oncology service but other service models possible. Strong evidence that Comprehensive Geriatric Assessment is effective at ⬇️ toxicity #UKASCC25

Risk of under treatment and over treatment in cancer treatment for older people

Evidence in favour of Comprehensive Geriatric Assessment

Different service models for Senior Adult Oncology

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Lesley Smith @lesleysmith.bsky.social · 10/10/2025

Dr Towhid Imam (Croydon) talked about his work with @nhsengland.bsky.social to do more on clinical frailty (frailty-attuned care) to help preserve independence, reduce admissions and improve QoL #UKASCC25

Specialised Clinical Frailty Network at NHS England

Theory of Change on developing frailty attuned care

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Lesley Smith @lesleysmith.bsky.social · 09/10/2025

Following this, my favourite subject 😀, #LateEffects of cancer treatment. Brilliant talks from Diane Sellstrom on H&N, Cath Holborn on self management & Emma Hallam on the exciting results with PhotoBioModulation therapy for Radiation Induced Fibrosis. See pics attached and following posts #UKASCC

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Lesley Smith @lesleysmith.bsky.social · 09/10/2025

Great talk from Helen McNamara on managing insomnia. So many health benefits can arise by improving people’s sleep, including those with obstructive sleep apnoea #SupportiveOncology #LivingWithAndBeyondCancer #UKASCC25

Take away messages from talk about sleep and cancer

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Lesley Smith @lesleysmith.bsky.social · 09/10/2025

Enjoying the day 2 morning session at #UKASCC25 which started with powerful insights in inequalities in cancer care for prisoners from Prof Jo Armes and then followed by Prof Peter Johnson who shared news on the emerging themes for the upcoming England Cancer Plan

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Lesley Smith @lesleysmith.bsky.social · 08/10/2025

Always great to hear from Dr Ollie Minton about ePROMs in cancer in Sussex using My Clinical Outcomes to monitor people longitudinally, improving quality of life and reducing urgent hospital admissions #UKASCC #cansky

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Lesley Smith @lesleysmith.bsky.social · 08/10/2025

Very interesting at #UKASCC from Prof Susanne Cruickshank from @royalmarsden.org re Fear of Cancer Recurrence (FCR) and a ‘MiniAfterC’ CBT intervention that nurses can deliver #cansky

20 features of fear of cancer recurrence

Stepped model of supporting fear of cancer recurrence

Discussion points about fear of cancer recurrence

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Lesley Smith @lesleysmith.bsky.social · 08/10/2025

Great early morning session at #UKASCC conference. Particularly liked the description of a Supportive Oncology service in USA (Declan Walsh) but also how much effort (including fundraising) has to be made to keep services running - lessons to be learned for UK in trying to improve care

How dept of supportive oncology is arranged

8 clinical sections supportive oncology dept

Services that are part of supportive oncology in USA cancer centre

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Lesley Smith @lesleysmith.bsky.social · 08/10/2025

Fantastic programme - thank you to the organisers for such a breadth and depth of topics👏👏 (I hope a few people stay to the end on Friday for the ultimate highlight 😉😆)

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Lesley Smith @lesleysmith.bsky.social · 08/10/2025

Great to be representing @prda.org.uk at the UKASCC ukascc.org conference 2025. Already had some lovely conversations with professionals who care for people whose #QualityOfLife is affected by cancer and its consequences

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Lesley Smith @lesleysmith.bsky.social · 07/10/2025

On 🚂 to Manchester for the UK Assoctn of Supportive Care in Cancer’s 2025 conference ukascc.org Looking fwd to learning loads & meeting new and familiar faces in the world of #LivingWithAndBeyondCancer Plus the bonus of talking about @prda.org.uk #PelvicRadiationDisease to anyone that’ll listen!

List of parts of the body affected by pelvic radiation disease

Quote from a GP on the importance of holistic care for people affected by PRD

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Lesley Smith @lesleysmith.bsky.social · 03/10/2025

Many congratulations to the winner, runner up & finalists in the Cancer Experience of Care category 👏👏 So much work behind all these projects & so many more across the country, and as we can see from the Cancer Patient Experience Survey results, people affected by cancer are feeling the benefits 😀

Winner: Royal Devon University Healthcare NHS foundation trust.
Runner Up: Northumbria Healthcare NHS foundation trust.

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Lesley Smith @lesleysmith.bsky.social · 16/09/2025

Great to hear from Rachel Brown, clinical lead for Cancer Prehabilitation and Rehabilitation in @surreyandsussexca.bsky.social about the local work including the PRIME trial and the resources via @cancercaremap.bsky.social. Exciting news about Alliance Cancer Academy training on physical activity 👏

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Lesley Smith @lesleysmith.bsky.social · 16/09/2025

Delighted to be in Sussex today for the @surreyandsussexca.bsky.social annual event on Personalised Care in Cancer and Why It Matters. Brilliant that the Alliance is able to bring folks together to celebrate the progress on #LivingWithAndBeyondCancer as well as inspire further improvements 🙌👏

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Lesley Smith @lesleysmith.bsky.social · 12/09/2025

Superb programme. The Patient Voices Panel was an incredible and humbling start. One had been dealing with #PelvicRadiationDisease for many years and had seen many professionals but said “Everyone’s clueless and it makes you feel awful”

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Lesley Smith @lesleysmith.bsky.social · 16/07/2025

Honoured to be speaking about #LivingWithAndBeyondCancer at Oral Oncology QoL meeting #IAOO2025 Amazing programme - am learning loads! #CancerQualityOfLife

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Lesley Smith @lesleysmith.bsky.social · 11/07/2025

Delighted to be helping at @prda.org.uk Community of Practice event today - what a fantastic programme 👏👏 I know we’re going to be learning & sharing a huge amount, which will benefit people affected by the under-recognised symptoms of #PelvicRadiationDisease Thanks to 3D Matrix for sponsorship 👍

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Lesley Smith @lesleysmith.bsky.social · 25/06/2025

My final day at #BSGLIVE25 @britsocgastro.bsky.social - excellent conference as always, and have had many valuable conversations about #PelvicRadiationDisease 👍 Thank you Glasgow and thank you to all @prda.org.uk colleagues and supporters 🙏

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Lesley Smith @lesleysmith.bsky.social · 22/06/2025

Ready to depart…. for my annual trip to the @britsocgastro.bsky.social conference #BSGLIVE25 to represent @prda.org.uk on their stand. Hoping to chat to lots of #gastroenterology professionals who will agree to make the #PRDPledge www.prda.org.uk/the-prd-pled...

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Lesley Smith @lesleysmith.bsky.social · 11/05/2025

Was very honoured indeed to meet King Charles at the reception at Buckingham Palace on 30th April 2025 to celebrate the work of organisations that support people affected by cancer. www.royal.uk/news-and-act...

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Lesley Smith @lesleysmith.bsky.social · 28/03/2025

Tube challenge for @prda.org.uk complete! 😎🕺🚇 Any final donations very welcome! www.justgiving.com/page/lesley-...

Collage of pictures showing me at 22 tube stations whose initials spell out Pelvic Radiation Disease

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Lesley Smith @lesleysmith.bsky.social · 26/03/2025

Nearly time for the off! Raising funds for @prda.org.uk 27th March - due for a very early start - in my Elvis the Pelvis costume 🥴 All support gratefully received 🫶 www.justgiving.com/page/lesley-...

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

A privilege to hear from Richard Berman and Helen Hyndman about the the development of Supportive Oncology #SuppOnc services in England 🙌👏 and how patient outcomes are significantly improving as well as better use of NHS resource

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Clare Doney @yclared.bsky.social adds the Northern Cancer Alliance approach on fatigue

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Clare Doney @yclared.bsky.social adds the Northern Cancer Alliance approach and next steps

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Chloe McMurray (dietitian) and Hannah Whittle (physio) giving a really informative talk about supporting patients to self-manage cancer-related fatigue #LivingWithAndBeyondCancer

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Superb and inspirational talk from @greenfieldd.bsky.social about the late effects services in Sheffield. Really strong clinical networking, education and research as well as amazing late effects services and future expansion plans 🙌

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Powerful talk from Yvonne Anderson about the NE project on pelvic radiotherapy late effects with patient coproduction and crediting @prda.org.uk 🫶. Huge increase in awareness of #PelvicRadiationDisease through the work of the project but ambitious to achieve a lot more 👏

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Clare Doney follows up with what Northern Cancer Alliance want to do on frailty 👏

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Great talk from Jen Steel about cancer and frailty. We need comprehensive geriatric assessments as the norm. People with frailty are more likely to have cancer complications and poorer outcomes per Handforth et al paper www.annalsofoncology.org/article/S092... #QoLShare&Learn

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

Clare Doney, Northern CA #QoLShare&Learn talking about the use of the national #CancerQualityOfLife survey data to guide improvements in psychosocial support, sleep, fatigue and menopause 🙌

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Lesley Smith @lesleysmith.bsky.social · 14/02/2025

About to get underway at the Northern Cancer Alliance #CancerQualityOfLife event, with an excellent programme 👍👏 Have got 2 talks to do, with my 2 hats 🎩 🧢 (day job with NHS England and as trustee of @prda.org.uk)

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Lesley Smith @lesleysmith.bsky.social · 06/02/2025

📣 Please respond to the Govt call for evidence for the new England national cancer plan, especially on #LivingWithAndBeyondCancer (my favourite subject 😀). You get 500 words on LWBC, so please use them! Deadline 29 April 2025 www.gov.uk/government/c...

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Lesley Smith @lesleysmith.bsky.social · 31/01/2025

Brilliant to see another new #radiotherapy #LateEffects service open. Very many thanks to Macmillan & all involved. This will be a huge help to people affected by #PelvicRadiationDisease and other long term side effects of radiotherapy 😀👏 #LivingWithAndBeyondCancer www.ouh.nhs.uk/news/article...

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