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Lepra UK

@leprauk.bsky.social
151 followers 210 following 381 posts

Health, inclusion and innovation for people affected by leprosy and lymphatic filariasis. Patron: His Majesty King Charles III www.lepra.org.uk

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Lepra UK @leprauk.bsky.social · 19h
We're giving a huge round of applause to Damian who smashed the 2026 Berlin Marathon 👏👏 Damian took on the iconic course to raise vital funds for Lepra. Thank you for helping us continue our work transforming the lives of people affected by leprosy and lymphatic filariasis. #BerlinMarathon #RunSky
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Lepra UK @leprauk.bsky.social · 21h
💙 Free Wills for UK residents 18+ No cost. No obligation. Peace of mind. Your Will protects the people and causes you care about. A gift to Lepra could change lives long into the future. lepra.org.uk/get-involved/our-free-will-writing-service #FreeWill #LegacyGiving #Lepra
lepra.org.uk
Free will writing service | LEPRA
If you haven’t yet made a will, or would like to update your existing one, Lepra offers a free will-writing service through the National Free Wills Network to anyone aged over 18, living in the UK.
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Lepra UK @leprauk.bsky.social · 01/10/2026
By choosing to tick the #GiftAid box, we can claim an extra 25% on every donation - that's 25p for every £1 donated! It means we can do so much more to help transform the lives of people affected by leprosy and lymphatic filariasis. ow.ly/YQN050ZQS5r 📷 Tom Bradley Photography #Donate
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Lepra UK @leprauk.bsky.social · 01/10/2026
🌟OPENS TODAY🌟 📆 1-31 October 2026 📍 Colchester Library @essexlibraries A New Face for Leprosy exhibition comes to Colchester Library for a free, month-long public event. ow.ly/PFjg50ZKBoL 📷 Tom Bradley Photography #IDSky #MedSky #HistSky
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A New Face for Leprosy at Colchester Library
This October, the 'New Face for Leprosy' exhibition comes to Colchester library for a free, month long public event.
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Lepra UK @leprauk.bsky.social · 30/09/2026
🌟TODAY🌟 From Principles to Practice: A Workshop on Ethical Operational Research 16:30–18:00 | 2026 NNN Conference Join us to explore six principles for ethical, equitable NTD research engagement. Bring questions, leave with practical tools. ow.ly/GIcO50ZKHKb 📷 Tom Bradley Photography
A group of women, men and children are gathered outdoors under a tree attending a community meeting.
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Lepra UK @leprauk.bsky.social · 29/09/2026
Every person affected by leprosy & lymphatic filariasis has a story that deserves to be heard. A story of resilience, a story of hope. We are proud to always focus on the person and not just the disease, which is why we want to tell their stories. www.lepra.org.uk/real-life-stories #IDSKy #MEDSky
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Lepra UK @leprauk.bsky.social · 29/09/2026
Look beyond the headlines. What do the latest WHO leprosy figures mean? Maria del Mar Marais, Head of Programme Management Lepra UK, breaks down what the 2025 data really tells us at the midpoint of the WHO Global Leprosy Strategy 2021–2030: ow.ly/T1Jr50ZS7Ri #IDSky #GlobalHealth #MedSky
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Beyond the headline: What the 2025 global leprosy data tells us
The 2025 World Health Organization (WHO) update gives a mixed picture at the midpoint of the Global Leprosy Strategy 2021–2030.
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Reposted by Lepra UK
Leprosy Review @leprosyreview.bsky.social · 28/09/2026
🆕 Just published in Leprosy Review Vol 97/3 Practical knowledge of nursing for leprosy sanatorium residents based on their historical background by Mari Ito leprosyreview.org/article/97/3/20-2… #Leprosy #Nursing #IDSky #MedSky
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Lepra UK @leprauk.bsky.social · 28/09/2026
🏊‍♂️ Dive in with Lepra at Swim Serpentine in Hyde Park's world-famous Serpentine lake. Register your interest for a place for Swim Serpentine 2027 in aid of Lepra 👇 www.lepra.org.uk/events/swim-serpentine #SwimSerpentine #Swim2027 #CharitySwim #OpenWaterSwimming #LondonSwimmers
lepra.org.uk
Dive in with Lepra at Swim Serpentine in Hyde Park's world-famous Serpentine lake
Register your interest in a place for Swim Serpentine in aid of Lepra
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Lepra UK @leprauk.bsky.social · 28/09/2026
This October, visit Colchester Library for A New Face for Leprosy photographic exhibition. Discover inspiring photography & rare archive artefacts challenging myths around this disease. 📆 1–31 Oct 2026 📍 Colchester Library ow.ly/PFjg50ZKBoL 📷 Tom Bradley Photography #IDSky #MedSky #HistSky
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A New Face for Leprosy at Colchester Library
This October, the 'New Face for Leprosy' exhibition comes to Colchester library for a free, month long public event.
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Lepra UK @leprauk.bsky.social · 24/09/2026
Leprosy is curable yet thousands of people face disability and stigma, every single day. Find out how we're working to change that by signing up to Lepra News: www.lepra.org.uk/forms/newsletter-signup 📷 Tom Bradley Photography #SignUp #Newsletter #Impact #IDSky #MedSky
A mother holds her child towards a window, the light highlights their faces against a dark background. They're both smiling and laughing as the mother gazes towards her child.
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Lepra UK @leprauk.bsky.social · 23/09/2026
🌟Discover Maria’s Island this October Half Term🌟 Join Lepra Historian, Irene Allen, for a free storytelling of Maria’s Island, written by best-selling author and Lepra Ambassador, Victoria Hislop ow.ly/8Lvs50ZPynu 📆 30 October 2026 ⏰ 12-12.30pm 📍 Colchester Library #IDStory #BookSky
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Discover Maria's Island
Join Lepra historian, Irene Allen, for a free storytelling session, bringing the story of Maria’s Island to life.
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Lepra UK @leprauk.bsky.social · 22/09/2026
Many people think leprosy is a disease of the past. Yet, every single day, hundreds of people around the world are diagnosed with the disease. Watch What is Leprosy? to find out more about the disease and how Lepra works to support people affected 👇 youtu.be/xh6iV1IRIpI?si=LVMLP_SlNGF…
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Lepra UK @leprauk.bsky.social · 22/09/2026
Combine sport and culture with the unique atmosphere of the Vienna City Marathon Run for Lepra and help transform the lives of people affected by leprosy and lymphatic filariasis. ow.ly/7WB050ZLcL5 #RunSky #Running #Vienna
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Lepra UK @leprauk.bsky.social · 21/09/2026
From Principles to Practice: A Workshop on Ethical Operational Research 30 Sept | 16:30–18:00 | 2026 NNN Conference Join us to explore six principles for ethical, equitable NTD research engagement. Bring questions, leave with practical tools. ow.ly/GIcO50ZKHKb 📷 Tom Bradley Photography
A group of women, men and children are gathered outdoors under a tree attending a community meeting.
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Lepra UK @leprauk.bsky.social · 18/09/2026
This October, visit Colchester Library for A New Face for Leprosy photographic exhibition. Discover inspiring photography & rare archive artefacts challenging myths around this disease. 📆 1–31 Oct 2026 📍 Colchester Library ow.ly/PFjg50ZKBoL 📷 Tom Bradley Photography #IDSky #MedSky #HistSky
ow.ly
A New Face for Leprosy at Colchester Library
This October, the 'New Face for Leprosy' exhibition comes to Colchester library for a free, month long public event.
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Lepra UK @leprauk.bsky.social · 17/09/2026
How can community groups better support people affected by leprosy and skin-NTDs? Watch the webinar from Strengthening Community-Based Groups for People Affected by Skin-NTDs: Lessons from the UPLIFT Project. 💻 ow.ly/wI8a50ZOHtR Effect Hope #Leprosy #Community #Care #IDSky
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Lepra UK @leprauk.bsky.social · 16/09/2026
🌟Run Rome The Marathon for Lepra🌟 Offering an unmatched route through history and taking in the sights of Rome, this unique marathon culminates at the world-famous Colosseum. Hurry, places will go fast! ow.ly/OoVy50ZLb56 #RunRome #RomeMarathon #Italy #Marathon #RunSky
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Run Rome the Marathon 2027
Take in the sights of Rome with a unique marathon
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Lepra UK @leprauk.bsky.social · 15/09/2026
Leprosy is curable, yet stigma and late diagnosis steal childhoods. By combining school screenings, early detection and treatment, customised protective footwear, and mental health support, we can prevent leprosy-related disability and keep children in school. www.lepra.org.uk/donate #IDSky #India
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Lepra UK @leprauk.bsky.social · 14/09/2026
🌟New Research🌟 Read Stigma and discrimination among children affected by leprosy: a systematic review of a skin-related neglected tropical disease www.lepra.org.uk/news/article/stigma-and-discrimination-among-children-affected-by-leprosy #IDSky #MedSky #Stigma #Leprosy #NTDs #Health #PublicHealth
lepra.org.uk
Stigma and discrimination among children affected by leprosy
A new research study by Lepra and our research partners, has found that misinformation and poor knowledge of the disease remain some of the main drivers behind the stigma and discrimination faced by children affected by leprosy.
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Lepra UK @leprauk.bsky.social · 14/09/2026
🌟 Save the Date🌟 Join author & historian Irene Allen for "BELRA to LEPRA: A century at the forefront of leprosy care." 📆 21 Oct 2026, 4pm 📍 Colchester Library Free & open to all. Part of the New Face for Leprosy exhibition. ow.ly/s9gI50ZL9jL #HistSky #IDSky 📷 Tom Bradley Photography
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Lepra UK @leprauk.bsky.social · 11/09/2026
With community support, Satya has overcome his lymphatic filariasis diagnosis and now works tirelessly to educate others on the symptoms. Read Satya's story: www.lepra.org.uk/real-life-stories/detail/satya Effect Hope #LymphaticFilariasis #India #GlobalHealth #IDsky #MedSky
lepra.org.uk
Living with leprosy - Satya's real-life story
With community support, Satya has overcome his lymphatic filariasis diagnosis and now works tirelessly to educate others on the symptoms.
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Lepra UK @leprauk.bsky.social · 10/09/2026
For over 100 years, Lepra has treated and cared for people affected by leprosy. Today, millions still face life-changing disabilities and stigma. For #RememberACharityWeek, help us reach those who need us by leaving a gift in your Will: ow.ly/11fv50ZLamY 📷 Tom Bradley #RememberACharity
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Lepra UK @leprauk.bsky.social · 09/09/2026
This October, visit Colchester Library for A New Face for Leprosy photographic exhibition. Discover inspiring photography & rare archive artefacts challenging myths around this disease. 📆 1–31 Oct 2026 📍 Colchester Library ow.ly/PFjg50ZKBoL 📷 Tom Bradley Photography #IDSky #MedSky #HistSky
ow.ly
A New Face for Leprosy at Colchester Library
This October, the 'New Face for Leprosy' exhibition comes to Colchester library for a free, month long public event.
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Lepra UK @leprauk.bsky.social · 09/09/2026
🌟Lepra News Autumn Appeal is out now! 🌟 In this edition, we focus on the recovery and rehabilitation from a leprosy diagnosis. Dr Vishal Pandey introduces the appeal and we hear from Khaleda as she tells us her story of recovery. www.lepra.org.uk/appeals #Donate #Health #IDSky #MedSky
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Lepra UK @leprauk.bsky.social · 08/09/2026
Lessons from the UPLIFT Project Join a global conversation on the future of Community-Based Groups & connect with researchers, organisations & advocates working to improve the lives of people affected by NTDs.  📆 9 September 2026 ⏰ 12pm 📍 Free webinar 🔗 ow.ly/t67T50ZFJzL Effect Hope #IDSky
ow.ly
Strengthening Community-Based Groups for People Affected by Skin-NTDs: Lessons from the UPLIFT Project
Community-Based Groups (CBGs) are a vital strategy for supporting people affected by leprosy and other skin-related NTDs. Yet, evidence on what makes them effective, impactful, and sustainable remains limited. The UPLIFT study addresses this gap by testing a community-based model combining self-care, psychosocial support and group leadership to improve well-being, reduce stigma, and strengthen social inclusion for people affected by leprosy and other skin-related NTDs.
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Lepra UK @leprauk.bsky.social · 08/09/2026
Dr Vishal Pandey, Consultant Physiotherapist at LEPRA Society’s Indira Gandhi Hospital Referral Centre, introduces our Lepra News Autumn Appeal. ow.ly/Z7mT50ZILyE He spoke to us about his work helping people to overcome the physical and emotional impact of leprosy. #Physiotherapy #IDSky
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Our Autumn Lepra News Appeal
Our Autumn Lepra News Appeal
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Reposted by Lepra UK
Leprosy Review @leprosyreview.bsky.social · 07/09/2026
🆕 In Leprosy Review Volume 97/3: Gaps in leprosy knowledge and hidden stigma in northwest Bangladesh: a community-based mixed-method survey among patients, contacts, communities and health workers by Abu Sufian Chowdhury et al leprosyreview.org/article/97/3/20-26020 #IDSky #MedSky #Bangladesh
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Lepra UK @leprauk.bsky.social · 07/09/2026
Weave through palm-lined avenues, alongside shimmering turquoise waters, and past the iconic landmarks as you take on the Lifetime Miami Marathon Every mile you pass and every sponsor you receive, will help transform the lives of people affected by leprosy & LF. ow.ly/tqvO50ZHBGL #RunSky
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Lifetime Miami Marathon
The Lifetime Miami Marathon is not just a race but an immersive experience!
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Lepra UK @leprauk.bsky.social · 05/09/2026
Over 100 years ago, Lepra was founded on the premise of evidence-led treatment, community care and compassion - breaking down centuries of stigma. On #InternationalDayofCharity, help us continue to reach those who still desperately need us. ow.ly/Y7VE50ZFvOo 📷 Tom Bradley Photography
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Lepra UK @leprauk.bsky.social · 04/09/2026
Make 2027 your year to run for Lepra.🎽 Every mile you pass and every sponsor you receive, will help transform the lives of people affected by leprosy and lymphatic filariasis. 🎫 Places available for Edinburgh, Manchester, Brighton, Rome and Miami 👉 ow.ly/h2SZ50ZIcLa #RunSky #UKRunners
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Lepra UK @leprauk.bsky.social · 03/09/2026
Back to school and back to lesson planning? Why not use Lepra's free school video. We'll explain what leprosy is and introduce you to Toufik, a 13 year old boy living in Bangladesh, who cares for his parents who are both affected by the disease. ow.ly/4OJY50ZFYi8 #EduSky #TeacherSky
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Schools Fundraising for Lepra
We are delighted to have your support and invite you to download our range of resources to help with your school fundraising. To get started why not take a look at our  school fundraising activities.
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Lepra UK @leprauk.bsky.social · 02/09/2026
Lessons from the UPLIFT Project Join a global conversation on the future of Community-Based Groups & connect with researchers, organisations & advocates working to improve the lives of people affected by NTDs.  📆 9 September 2026 ⏰ 12pm 📍 Free webinar 🔗 ow.ly/t67T50ZFJzL Effect Hope #IDSky
ow.ly
Strengthening Community-Based Groups for People Affected by Skin-NTDs: Lessons from the UPLIFT Project
Community-Based Groups (CBGs) are a vital strategy for supporting people affected by leprosy and other skin-related NTDs. Yet, evidence on what makes them effective, impactful, and sustainable remains limited. The UPLIFT study addresses this gap by testing a community-based model combining self-care, psychosocial support and group leadership to improve well-being, reduce stigma, and strengthen social inclusion for people affected by leprosy and other skin-related NTDs.
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Lepra UK @leprauk.bsky.social · 01/09/2026
Four years ago, Kusum’s leg became severely swollen from LF. The pain and discomfort made it difficult for her to work and support her family. Encouraged to attend a self-support group by LEPRA Society teams, Kusum now manages her symptoms and lives with renewed hope. ow.ly/bztN50ZELJ3
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Living with lymphatic filariasis - Kusum's real-life story
Attending a self-support group has been key to Kusum's recovery from lymphatic filariasis (LF)
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Reposted by Lepra UK
Leprosy Review @leprosyreview.bsky.social · 01/09/2026
🆕 Now available in Leprosy Review Volume 97/3 Lepromatous leprosy presenting as adult-onset Still's disease: a 5-year diagnostic challenge Authors: Liao Zhang, Qiujun Guo, Li Qiao leprosyreview.org/articles/97/3 #Leprosy #StillsDisease #Misdiagnosis #GlobalHealth #IDSky #MedSky #China
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Lepra UK @leprauk.bsky.social · 28/08/2026
From hosting a life-changing tea or quiz night to a barefoot walk or marathon, there are lots of brilliant ways to fundraise for Lepra! 🌟 Get in touch and we'd love to support you on your fundraising journey 🔗 www.lepra.org.uk/contact 📞01206 216700 #CharityTuesday #Fundraise #IDSky #India
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Reposted by Lepra UK
Leprosy Review @leprosyreview.bsky.social · 26/08/2026
New in Leprosy Review Vol 97/3 Isolated lower motor neuron facial nerve palsy as the initial presentation of borderline lepromatous Hansen’s disease: a diagnostic pitfall by Ankush Kumar Somvanshi et al ow.ly/s7HF50ZFvWB #Leprosy #BellsPalsy #IDSky #MedSky
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Lepra UK @leprauk.bsky.social · 25/08/2026
When Ram first noticed pale patches of skin on his arms he attended a local doctor but they failed to diagnose his condition. The skin lesions persisted and he became increasingly worried about the nature of the disease he might have contracted. Read Ram's story: ow.ly/zPio50Zu94t. #IDSky
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Lepra UK @leprauk.bsky.social · 25/08/2026
For our Autumn Lepra News appeal, Dr Vishal Pandey, Consultant Physiotherapist at LEPRA Society’s Indira Gandhi Hospital Referral Centre, spoke to us about his work and helping people to overcome the physical and emotional impact of leprosy. youtu.be/IcUxCG_Jndo #Physiotherapy #Donate
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Our Autumn Lepra News Appeal
Our Autumn Lepra News Appeal
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Lepra UK @leprauk.bsky.social · 24/08/2026
One-in-two people affected by leprosy experience significant emotional health difficulties. Read about Mind to Heart, Lepra's work breaking the cycle of poor mental health for people affected by leprosy: ow.ly/qHIm50Zu6vb 📷 Tom Bradley #IDSky #MentalHealth #Bangladesh
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Lepra UK @leprauk.bsky.social · 20/08/2026
What is lymphatic filariasis (LF)? LF is a neglected tropical disease. Usually acquired in childhood, infection occurs when filarial parasites are transmitted to humans through mosquitoes causing hidden damage to the lymphatic system. ow.ly/EWa350ZcF8G #LF #IDSky #Mosquitoes
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Lepra UK @leprauk.bsky.social · 18/08/2026
For people affected by leprosy, diagnosis and medication are just the first steps. Rebuilding mobility, mental wellbeing, and independence requires ongoing support. Read about Lepra's holistic approach to rehabilitation and recovery in our latest appeal: ow.ly/7Jgf50ZAxnC #IDsky #MedSky
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Lepra UK @leprauk.bsky.social · 18/08/2026
When Satish felt a loss of sensation in his limbs, he didn’t think the symptoms were serious. Over time the numbness worsened and he developed an ulcer on his foot that wouldn’t heal. In early 2026 he was eventually diagnosed with leprosy. ow.ly/Nr2p50ZugLG #IDSky #MedSky
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Living with leprosy - Satish's real-life story
Satish's leprosy symptoms impacted his income but with Lepra's support he has returned to his much-loved work
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Lepra UK @leprauk.bsky.social · 17/08/2026
Did you know that Lepra News has been documenting the journey to overcome leprosy for decades? We’ve digitised our archives, creating a virtual library of medical breakthroughs, field reports, and powerful first-hand stories. Take a look: issuu.com/lepra/stacks #IDSky #MedSky #History #ScienceSky
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Lepra UK @leprauk.bsky.social · 13/08/2026
Left untreated, leprosy causes progressive and permanent damage to the skin, nerves, and limbs. But it doesn't have to be this way. Leprosy is curable. An estimated 4 million people across the globe are living with undiagnosed leprosy. Can you help us reach them? www.lepra.org.uk/donate #IDSky
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Lepra UK @leprauk.bsky.social · 12/08/2026
Nine-year-old Kamal is the youngest of three siblings in a family that has endured repeated loss and hardship. In 2025, a growing patch on his back caused him to lose sensation in his foot, leading to injuries and social isolation. Read Kamal's full story: ow.ly/yh2250ZievI #IDSky #MedSky
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Living with leprosy: Kamal's real-life story
Nine-year-old Kamal's leprosy symptoms led him to miss out on school and playing with his friends but with treatment and support from Lepra, he is recovering well
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Lepra UK @leprauk.bsky.social · 11/08/2026
Join us for the Adidas Manchester Marathon, the UK's 2nd largest marathon. Every mile you pass and every sponsor you receive, will help transform the lives of people affected by leprosy & LF. www.lepra.org.uk/events/manchester-marathon #ManchesterMarathon #MarathonTraining #RunManchester #RunSky
Runner in black t-shirt and shorts leaps joyfully in the air as he nears the finish line  with cheering crowd in background.
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Lepra UK @leprauk.bsky.social · 10/08/2026
Leprosy is a mildly infectious bacterial disease affecting skin & nerves. Untreated, it causes life-changing disabilities. Every day 475 people are diagnosed, including 25 children. Help us improve early detection, provide treatment and support. www.lepra.org.uk 📷 Tom Bradley Photography #IDSky
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Lepra UK @leprauk.bsky.social · 06/08/2026
What is lymphatic filariasis (LF)? LF is a neglected tropical disease. Usually acquired in childhood, infection occurs when filarial parasites are transmitted to humans through mosquitoes causing hidden damage to the lymphatic system. ow.ly/EWa350ZcF8G #LF #IDSky #Mosquitoes
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Lepra UK @leprauk.bsky.social · 05/08/2026
Join Team Lepra for the Edinburgh Marathon. Every mile you pass and every sponsor you receive, will help transform the lives of people affected by leprosy and lymphatic filariasis. ow.ly/1fq250YZrnA #RunSky #RunForCharity #Edinburgh #Marathon #UKRunners #Running
Runners participating in the Edinburgh Marathon with the city skyline and Edinburgh Castle in the background on a clear day.
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