iiinova — where your digital self keeps evolving

Reposted by Karolina Kuberska

Des Fitzgerald @desfitzgerald.bsky.social · 09/06/2026

Surely the transaction is: I give you the paper for free; you handle all the administration associated with it; you get to commoditise the paper, package it, and keep the revenue associated with it. Why would I additionally have a duty ro provide free peer review labour?!

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SassyMetisChick @sassymetischick.bsky.social · 13/04/2026

I didn’t know this, did you? Amazing!

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Tanja Bueltmann @tanjabueltmann.net · 29/09/2025

When I was a teenager there was a bus direct from my hometown in Germany to London - we had a British army base, and this direct bus connection was one of the benefits of that. One summer I went on that bus to go volunteer in an old people's home in Southend-on-Sea. I had just turned 18 and was... 🧵

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Lisa Diedrich @lisadiedrich.bsky.social · 22/08/2025

Historian of tech @histoftech.bsky.social on how AI hype is a way of gaming the system by "reengineering society around the technology." The goal is to "create an environment—a labor environment, a regulatory environment, a user environment—that will bring that unlikely thing closer to reality."

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Caroline Mitchell @dclovesgp.bsky.social · 10/07/2025

#PrimaryCare #GeneralPractice #FamilyMedicine Fabulous collegiate scholarship in clinical education, research and policy at #SAPCCardiff25 international conference- mostly funded by #NIHR highlights: Oxford team delivering useful relevant PC research ready to implement in the #UK10yearHealthPlan -

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Sonja Drimmer @sonjadrimmer.bsky.social · 09/07/2025

This is a laundry list of rhetorical strategies to defend the adoption of a given technology for the purposes of advancing an ideology & economic regime: inevitability, unquestioning praise of “innovation,” buy-in from concerned stakeholders, assurances that partnership is not capitulation. 1/n

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Karolina Kuberska @kkuberska.bsky.social · 07/07/2025

Read our paper about what hospital respiratory clinicians think about offering rescue packs to patients discharged following #COPD exacerbation. Respiratory clinicians consider a variety of factors and prioritise more immediate risks over the more distant ones. www.tandfonline.com/doi/full/10....

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Ola Howell @olahowell.bsky.social · 03/07/2025

Very important work! We’ve been recommending COPD rescue packs for over a decade in the UK national guideline, but the first RCT assessing their efficacy has only started this year 🤯 This publication is part of the bigger research programme and lends an insight into clinicians’ perspective.

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Karolina Kuberska @kkuberska.bsky.social · 03/07/2025

What do respiratory clinicians think about offering “rescue packs” to patients discharged after #COPD exacerbation? It's not always simple to decide what would be best for each patient. Read our paper: www.tandfonline.com/doi/full/10.... Or a summary: www.thisinstitute.cam.ac.uk/research/out...

tandfonline.com

Respiratory Clinicians’ Views on Offering “Rescue Packs” to Patients Discharged After COPD Exacerbation: Qualitative Interview Study

“Rescue packs” for COPD exacerbations, consisting of a course of antibiotics and steroids, have become part of self-management strategies for many patients living with COPD. Currently, in the UK, r...

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Dr Alex Fitzpatrick @animalarchaeology.com · 02/07/2025

Feeling slightly thrown for a loop finding out about recent changes to the skilled worker visa late last night and not reall seeing much chatter about it elsewhere… But again, most British citizens do not care about immigrants, so shouldn’t be surprised 😮‍💨 www.ein.org.uk/news/major-c...

ein.org.uk

Major statement of changes to the Immigration Rules raises Skilled Worker thresholds and ends overseas recruitment of care workers

138-page statement of changes to the Immigration Rules begins White Paper's "complete reset" of the immigration system

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Dr Jay Watts @shrinkatlarge.bsky.social · 29/06/2025

NEW FROM ME - Britain is abandoning international medical consensus on disability. Every other developed nation recognizes cumulative impairment as genuine severity. We're about to become an anomaly—and the logic of 4+ suggests it was deliberate. tinyurl.com/mwwb5xv4

tinyurl.com

Who Will Count as Disabled Tomorrow?

The dangerous redefinition of welfare disguised as Labour's compassionate reform.

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Karolina Kuberska @kkuberska.bsky.social · 30/06/2025

📢New publication📢 Respiratory Clinicians’ Views on Offering “Rescue Packs” to Patients Discharged After COPD Exacerbation: Qualitative Interview Study doi.org/10.1080/1541... @instagraham.bsky.social @profhurst.bsky.social @monabafadhel.bsky.social

A diagram of clinicians’ considerations around offering rescue packs to patients discharged following COPD exacerbation
There are three nested ovals depicting different levels of considerations, with text inside.
The largest oval has the heading “Macro-level considerations” and includes three text boxes: antibiotic stewardship; preventing hospital admissions; and pressures in the NHS.
The middle oval has the heading “Meso-level considerations” and includes three text boxes: following national guidance and audit requirements; hospital clinicians’ access to patients’ primary care records; and local access to primary care.
The smallest oval has the heading “Micro-level considerations” and includes two text-boxes: patient’s self-management skills and empowering patients.

Screenshot of the paper's pdf.
Title: Respiratory Clinicians’ Views on Offering “Rescue Packs” to Patients Discharged After COPD Exacerbation: Qualitative Interview Study
Authors: Karolina Kuberska, Graham Martin, John R. Hurst, Mona Bafadhel
Abstract
“Rescue packs” for COPD exacerbations, consisting of a course of antibiotics and steroids, have become part of self-management strategies for many patients living with COPD. Currently, in the UK, rescue packs are guideline-recommended but not routinely offered on hospital discharge. They are, however, commonly prescribed by primary care teams. This study examined hospital-based respiratory clinicians’ views on offering patients rescue packs following hospitalisation for COPD exacerbations. We conducted 24 individual and joint semi-structured interviews via telephone or videocall with 30 clinicians (respiratory consultants, respiratory registrars and specialist nurses) in 20 UK hospitals to understand variation in practice around, and views on, offering rescue packs to discharged COPD patients. Interview data were analysed using the constant comparative method. Clinicians’ views on offering rescue packs were a mixture of concerns and recognition of potential benefits. Concerns included antimicrobial resistance, individual overuse of antibiotics, and potential side effects of steroids, especially in patients with poorer understanding of their own condition, with lower self-management skills, or who found it difficult to access primary care. Recognised benefits included the potential to prevent future exacerbations, empowering patients by supporting COPD self-management, and circumventing the difficulties of securing an urgent primary care appointment. There was a consensus that supporting patients in self-management of COPD was key to effective care. Given the increasing role of self-management for patients living with COPD, it is vital to ensure that patients are able to appropriately use rescue packs.

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Aberdeen Centre for Evaluation (formerly HSRU) @ace-aberdeen.bsky.social · 25/06/2025

Research participants needed📢 Do you have experience recruiting patients into clinical trials in the UK and Ireland? Do you think recruitment targets are motivating? Are they communicated well? Then we would love to hear from you as a participant in our focus group study.

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Reposted by Karolina Kuberska

the algorithms + miscarriage project @paul-ord.bsky.social · 16/06/2025

The Algorithms + Miscarriage Project is now seeking participants! Experiences with algorithms after miscarriage? Why not share your story? *Please share widely* #miscarriage #pregnancyloss #algorithm #socialmedia #onlinesafety

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Disability Rights UK @disrightsuk.bsky.social · 10/06/2025

🚨A welcome Government U-Turn on the winter fuel payment, which they have restored to 7.5 million pensioners. These cuts should never have been proposed in the first place - to save another embarrassment, the Government should reverse their disability benefit cut plans now too.

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Karolina Kuberska @kkuberska.bsky.social · 30/05/2025

This paper was a long time coming and I am so pleased to see it out! @instagraham.bsky.social and I argue that the use of visual identifiers for hospitalised people with dementia comes with many well-documented issues and that perhaps it's time to rethink what we can expect from such identifiers.

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Karolina Kuberska @kkuberska.bsky.social · 09/05/2025

📢New publication alert 📢 @instagraham.bsky.social and I wrote a paper! What Is an Identifier Good for? Issues in Using Visual Identifiers to Improve Care for People With Dementia in Hospital doi.org/10.1111/jan....

Screenshot of the journal header with the paper title and authors:
DISCURSIVE PAPER
Open Access
What Is an Identifier Good for? Issues in Using Visual Identifiers to Improve Care for People With Dementia in Hospital
Karolina Kuberska, Graham Martin
First published: 08 May 2025 https://doi.org/10.1111/jan.17039
'ejournals@cambridge - find full text'

Aims
To examine practical, ethical, and organisational implications of the use of a key technology deployed in the care of hospitalised people with dementia—visual identifiers—through a comparative analysis with parallel interventions in other spheres of healthcare and social activity.
Design
Discursive paper
Methods
We contrast visual identification systems used for hospitalised patients with dementia with other, ostensibly similar, systems to understand how they differ in key characteristics: what they disclose, to whom and with what intended consequence
Results
Certain distinctive features of the ways identifier systems are used to improve dementia care appear particularly consequential for their impact. Given how much is expected of such identifiers, they are likely to fail at least a proportion of patients.
Conclusion
We argue that it is important to critically evaluate the interests served by visual identifiers, identifying the dimensions of quality they can enhance and those that may be negatively impacted.
Implications for the Profession and/or Patient Care
Visual identifiers for people with dementia can contribute to the ‘taskification’ of nursing care, implying that achieving person-centred care is a matter of following defined protocols rather than an emergent, relational, time-consuming process. Staff may end up prioritising risk avoidance and hospital routines (tasks that are measurable and auditable) rather than embracing the unpredictability of developing relationships with patients
Impact
Visual identifiers are a part of well-established strategies to improve hospital care for those with cognitive impairment. While these identifiers aim to prompt healthcare professionals to deliver individually tailored care, research suggests that they are unable to consistently ensure the desirable quality of care. Understanding influences on how they are deployed can help reshape the expectations placed on such low-tech interventions and inform more reflective use

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Ruha Benjamin @ruha9.bsky.social · 01/05/2025

“There is a reason, after all, that some people wish to colonize the moon, and others dance before it as before an ancient friend.” —Baldwin’s words grounded my Tanner lectures at Harvard, “Imagining Beyond the Artificial Intelligentsia”🤖 Lecture 1, Who Owns the Future? youtu.be/ZseJigkUhuE?...

youtu.be

Tanner Lecture One with Ruha Benjamin

YouTube video by Mahindra Humanities Center

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Reposted by Karolina Kuberska

Jana Bacevic 🌲🌳✊🏴 @unsocialtheory.bsky.social · 01/05/2025

Today, on #InternationalWorkersDay, I've given two teachouts - on academic mobility, borders and the hostile environment, and on reading workload models, as part of our @ducu.bsky.social #NoToCuts strike week. A few thoughts: 👇

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Karolina Kuberska @kkuberska.bsky.social · 28/02/2025

What we need is a journal finder website where you can find a journal to submit a paper to by length of the manuscript, topic and method. Why is it always so difficult to find out the maximum length of accepted manuscripts? Who's with me?

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Karolina Kuberska @kkuberska.bsky.social · 26/02/2025

I craft weird postcards in which I put words into famous people's mouths and I am pretty happy with this one.

Photo of Francis Ford Coppola directing a scene in the Godfather, surrounded by crew, with a speech bubble that says "express your feelings, focus on rage"

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Hannah Murphy @hsmurphy.bsky.social · 12/11/2024

For those many, many of you newly here (very exciting, a little overwhelming!), I'd love to offer my project's blog on medicine, race-making, and slavery as teaching resource, research inspiration, and testament to an exciting community of new and established scholars #EarlyModern

mmor.co.uk

Blog — Medicine and the Making of Race, 1440-1720

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Karolina Kuberska @kkuberska.bsky.social · 24/02/2025

Not doing manual searches alongside a systematic review search on a social science topic can result in missing *key* publications (and in half-assed papers). doi.org/10.1016/j.sr... - Excellent letter to the editors of Sexual & Reproductive Healthcare from Susie Kilshaw #pregnancyloss #miscarriage

doi.org

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Karolina Kuberska @kkuberska.bsky.social · 12/02/2025

Out of office in comic sans is such a power move.

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Alliance for Choice @all4choice.bsky.social · 29/01/2025

Find out how you can support Justyna and the Abortion Dream Team here 👉 buff.ly/3PSk6eO @aborcyjnydream Donate to help open AboTak, the abortion clinic being opened in Warsaw buff.ly/4htsNIt #JakJustyna

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Julie Roberts @drjulieroberts.bsky.social · 24/01/2025

My latest paper with #QRDC team comparing in person and remote qualitative data collection focusing on data quality and inclusion #IJNS #researchmethods #qualitativeresearch journals.sagepub.com/doi/10.1177/...

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Karolina Kuberska @kkuberska.bsky.social · 06/01/2025

📢New publication!📢 Sarah Turner and I wrote a paper about how experiences of #pregnancyloss have been described in the UK press around the Baby Loss Awareness Week over the last decade. #BLAW #babyloss #miscarriage #stillbirth Open access: journals.sagepub.com/doi/10.1177/...

Screenshot of an abstact:
Title: ‘Heartbreak Gives Way to Hope After Grieving’: A Critical Analysis of Personal Stories of Pregnancy Loss in the UK Press
Authors: Karolina Kuberska & Sarah Turner
Abstract:
Pregnancy loss continues to occupy an uncomfortable space in public discourse. This article analyses articles in the UK press published between 2013 and 2023 referencing the Baby Loss Awareness Week (BLAW) that focus on narratives of personal experience of pregnancy loss. These narratives sit between the personal and the public, and constitute examples of public grieving that serve a range of purposes, from the expression of continuing bonds with the miscarried or stillborn baby, the desire to share one's experience of loss, and often to the wish to translate this experience into something positive. We draw on Finch's concept of ‘displaying families’, considering how they construct an identity for the baby who never lived and demonstrate continuing bonds with them. By analysing how this ‘identity work’ is made public, we explore how pregnancy loss is presented in public media as a transformative teleological experience for parents.

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Karolina Kuberska @kkuberska.bsky.social · 16/12/2024

This is the best slide I've ever made

Above the slide it says "next slide", below: Black slide with colourful "WOW!" in capital letters, rainbow strip at the bottom, below the slide the prompt reads "no notes".

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Karolina Kuberska @kkuberska.bsky.social · 20/11/2024

I was asked at a hospital appointment what my first language was and I stupidly said it was Polish and now my documents say that my preferred language is Polish and maybe I really can't speak English that well because I obviously missed something. Is my accent my biggest communication problem?

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Karolina Kuberska @kkuberska.bsky.social · 18/11/2024

It's extraordinary how the joy of a paper acceptance can be dampened by how the Open Access team sends their responses in forms of AI-generated riddles. I really want someone to tell me what to click, I shouldn't have to be a lawyer to publish stuff without being saddled by a huge scammy fee.

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Euan Lawson @euanlawson.social · 14/11/2024

Hi Ange. I understand why you say that - it seems obvious. But the reasons people miss appointments are complex and often related to poverty and multiple disadvantage. It would be complex/expensive to run and there would be a high risk it would worsen health inequalities. This is good on it:

nhsconfed.org

Would charging patients for missed appointments help fund the NHS?

Would charging £10 for missed appointments help or hinder the NHS and the people it's here to serve?

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Karolina Kuberska @kkuberska.bsky.social · 15/11/2024

This is an excellent paper by Jillian Schneidman about all the things I'm frustrated in the ethics of the governance of ethics. link.springer.com/article/10.1... There's something really ironic about the fact that the distress and frustration due to bureaucracy don't feature in the risk assessments!

link.springer.com

When Ethics Becomes Unethical: An Autoethnographic Account of Gaining Ethics Approval to Conduct Ethnography in a Healthcare Setting - Journal of Academic Ethics

Many ethnographic researchers have raised concerns over the potential impacts that the institutionalization of ethics review boards can have on social science research, especially within healthcare se...

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michael veale @michae.lv · 15/11/2024

In response to OpenAI’s recent ‘A Student’s Guide to Writing with ChatGPT’, Arthur Perret (maître de conferénces, Jean Moulin Lyon 3) writes a line-by-line rebuttal — A Student’s Guide to Not Writing with ChatGPT www.arthurperret.fr/blog/2024-11...

arthurperret.fr

A Student’s Guide to Not Writing with ChatGPT

Site web d’Arthur Perret, enseignant-chercheur en SIC.

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