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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 01/10/2026

The Kids First Program and INCLUDE bring together data from 2,800+ participants with Down syndrome into a single resource, helping researchers study connections to leukemia and heart defects. Explore: sbrew.link/vNp2TebM #DownSyndromeAwarenessMonth #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 30/09/2026

Across these strands, shared cancer studies reveal genetic links, possible treatment targets, and new paths for rare cancer research. Each discovery moves the field toward better answers for kids. Keep discovery moving: monkeylink.co/c440f7 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 29/09/2026

What happens when shared data continues to inform long after the original study ends? A new NIH analysis shows how Kids First DRC-supported research continues to fuel new questions, discoveries, and connections to patient care. Read the story: sbrew.link/AEAgcEOz

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 28/09/2026

At #ASHG2026, collaboration takes the main stage. Join us in Montréal for The Art of Collaboration, a poster session and reception bringing the research community together around data-driven science for children and families. Attend or submit a poster: monkeylink.co/81e9a7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 24/09/2026

Could your existing pediatric cohort reveal more? The Gabriella Miller Kids First Pediatric Research Program’s X01 award offers access to advanced data-generation resources. Apply beginning Dec. 11: monkeylink.co/66a677

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 22/09/2026

Dr. Katherine Janeway and the Ewing sarcoma research community are using shared family data to uncover inherited risk, including findings in DNA repair genes. Explore this rare-cancer strand: monkeylink.co/aa3de7 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 22/09/2026

Shared family data are helping Dr. Katherine Janeway and the Ewing sarcoma research community uncover patterns in DNA repair genes that may explain inherited risk and guide future research. Explore: monkeylink.co/aa3de7 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 21/09/2026

When science takes center stage, collaboration becomes the art form. Join us at #ASHG2026 for scientific exchange, conversation, and connection, exploring how shared data can advance research for children and families. Oct. 21 at 6:30 p.m. in Montréal. Register: monkeylink.co/81e9a7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 18/09/2026

With Dr. John Prensner helping advance the work, CBTN data has supported research identifying a feature in high-grade brain tumors that may offer a future immunotherapy target. See research in action: monkeylink.co/ba8713 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 16/09/2026

Stuck mid-project? Come to MasterClass — our free, monthly live Q&A for deeper dives and real solutions. 🗓️ Third Thursday @ 2 p.m. ET 🔗 monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 16/09/2026

Today, the strands come together. See how a research need became public #CAVATICA tools, join a live walkthrough with Q&A, and hear directly from #NIH thought leaders behind Kids First. Join the Kids First Fall Public Webinar: monkeylink.co/b397cb #KidsFirstDRC #PediatricResearch

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 15/09/2026

Using the Kids First T-cell leukemia dataset, Dr. David Teachey’s team studies why treatment works differently and why cancer returns, helping identify relapse drivers and future therapy targets. See where this strand leads: monkeylink.co/aa5d3c #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 11/09/2026

Why does neuroblastoma affect children so differently? Dr. Sharon Diskin’s work with this Kids First dataset is uncovering inherited changes linked to survival and more tailored care. Follow this discovery: monkeylink.co/ee2a9b #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 09/09/2026

The Kids First/INCLUDE dataset led by Dr. Philip Lupo found distinct genetic features in B-ALL among children with Down syndrome, pointing to more targeted therapies. See what this strand reveals: monkeylink.co/947663 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 08/09/2026

The Weaving Innovation NIH Panel brings Kids First Working Group co-chairs together to discuss the ideas, technologies, and priorities shaping Kids First’s future. Hear from thought leaders guiding the program forward. Register: monkeylink.co/b397cb #KidsFirstDRC #PediatricResearch

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 07/09/2026

New to Kids First? We’ve got your back. Join our free monthly SupportU session—a guided intro to the ecosystem, data access, and tools to get you started. 🗓️ First Tuesday @ 10 a.m. ET 🔗 monkeylink.co/e37791 #KidsFirstData #ResearchSupport #PediatricResearch #OpenScience

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 07/09/2026

Your discoveries deserve a place in the conversation at #ASHG2026. Share your work at The Art of Collaboration, a Kids First DRC scientific poster session and reception. Submit by Sept. 21, then join us Oct. 21 at 6:30 p.m. in Montréal. Register: monkeylink.co/81e9a7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 04/09/2026

The Kids First DRC portal brings cancer studies together so researchers can compare findings, build on prior work, and ask questions beyond any one project. Across datasets, each strand expands what researchers learn. See how: rebrand.ly/5bdm7x6 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 03/09/2026

Shared genes across cancer and congenital disorders, new clues about which children face greater risk, and more precise paths for treatment research: a new #AJHG paper shows what researchers are discovering with Kids First data. monkeylink.co/f197bf American Society of Human Genetics (ASHG)

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 02/09/2026

This #ChildhoodCancerAwarenessMonth, Kids First DRC highlights strands of discovery across cancer studies. Follow how shared resources uncover connections and move research toward better treatments for kids: monkeylink.co/804659 #KidsFirstDRC #ChildhoodCancerAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 01/09/2026

Every discovery begins with a thread: a question, dataset, or perspective that helps researchers see differently. On Sept. 17, see Kids First researchers build and share #CAVATICA tools, then hear from #NIH leaders guiding the program. monkeylink.co/b397cb #KidsFirstDRC #PediatricResearch

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 27/08/2026

Collaboration is its own kind of discovery. At #ASHG2026 in Montréal, join Kids First DRC and INCLUDE DCC for The Art of Collaboration, a poster session and reception celebrating the people and partnerships advancing research. Register or submit a poster: monkeylink.co/81e9a7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 25/08/2026

A shared tool becomes part of the larger picture when researchers know how to put it to work. Dr. David Higgins, Kids First DRC Informatics Program Manager, joins Dr. Tychele Turner for a live #CAVATICA walkthrough and Q&A on Sept. 17. Register: monkeylink.co/b397cb #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 24/08/2026

Kids First does not work alone. As part of the #NIH #CommonFundDataEcosystem, Kids First connects pediatric data with a broader network of Common Fund resources so researchers can find, use, and analyze data across these critical programs. Learn more: monkeylink.co/c440f7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 19/08/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 18/08/2026

Tychele Turner, PhD at #WashUMedicine, shares how her team developed genomic analysis tools in #CAVATICA and made them available to others. Sept. 17: monkeylink.co/b397cb #KidsFirstDRC #Genomics

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 17/08/2026

The next phase of pediatric research depends on connection. Kids First brings together data from 38,000 patient and family participants across 37 projects, helping researchers study childhood cancer and congenital disorders in new ways. Learn more: monkeylink.co/7d900b

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 10/08/2026

Start with a research question. Leave with a clearer path to analysis. The Kids First Portal helps researchers search harmonized pediatric data, explore clinical details, identify cohorts, and send authorized files to CAVATICA. Explore the portal: monkeylink.co/d3c6ee

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 03/08/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 03/08/2026

Kids First supports the infrastructure researchers need to move pediatric research from idea to analysis, with connected data, shared tools, and cloud-based resources that help teams work across institutions. Learn more: monkeylink.co/5605fc

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 30/07/2026

Over the past decade, #NIH and #CDC institutes invested $240M in research using Kids First data, advancing new studies, tools, and insights across childhood cancer and congenital conditions. #KidsFirstData #TranslationalResearch

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 27/07/2026

Want to stay connected to pediatric research powered by shared data? Sign up for Kids First updates to hear about upcoming webinars, new resources, publications, funding opportunities, and tools that help researchers move discovery forward. Join the community: monkeylink.co/5fda8c

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 23/07/2026

When Dana Maier searched for answers about her son’s rare condition, #KidsFirst data helped her see a fuller picture and advocate with greater confidence. Read how one parent turned connected data into support for an entire community: monkeylink.co/985f0d #SitusFoundation

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 22/07/2026

Explore the Children's Brain Tumor Network study in the #KidsFirstData Resource Portal. With genomic data from ~8,000 patients, this dataset helps researchers study childhood brain tumors and accelerate data-driven discovery. #WorldBrainDay View the study: monkeylink.co/1252cb

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 15/07/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 13/07/2026

Rare pediatric conditions are harder to understand with only part of the picture. Through the Kids First Data Resource Portal, researchers can connect data across childhood cancer and congenital disorders, uncover patterns, and move closer to answers. Explore the portal: monkeylink.co/d3c6ee

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 09/07/2026

Across Kids First awardee publications, 90% connected to real-world care questions, from diagnosis and genetics to risk and treatment. Many addressed multiple areas, showing how Kids First-supported research helps build clearer answers for children. #KidsFirstData

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 06/07/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 01/07/2026

Kids First supports research across pediatric cancer and congenital conditions, including studies that help researchers better understand the genetic origins of conditions affecting the head, face, and development. #CleftCraniofacialAwarenessMonth #NCCAPM

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 25/06/2026

The Kids First ecosystem keeps moving all summer. New datasets, publications, and discoveries across pediatric cancer and rare disease research. Stay current: monkeylink.co/5fda8c #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 18/06/2026

Survival is not the finish line. Research using Kids First data is examining the long-term effects of childhood cancer treatment, so the next generation of survivors lives better, not just longer. See the work that's been happening: monkeylink.co/ace4f0 #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 17/06/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 07/06/2026

Today we honor every child who made it through, and the families, researchers, and clinicians who refused to stop until more of them could. #CancerSurvivorsDay #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 04/06/2026

Scoliosis affects 3% of adolescents and is mostly inherited, yet its genetic causes remain largely unknown. #KidsFirst whole genome sequencing data is helping researchers find answers. Explore: monkeylink.co/d3c6ee #ScoliosisAwarenessMonth

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 02/06/2026

The faster you can analyze data, the faster discovery follows. New tools from The Turner Lab, led by tycheleturner at #WashU, are on #CAVATICA. Streamline how researchers analyze #KidsFirstData and help them turn discovery into insight faster. Explore how: monkeylink.co/7b09d7

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 01/06/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 26/05/2026

New datasets, findings, and collaborations are moving through the Kids First ecosystem this month. Stay current with the research. Subscribe: monkeylink.co/5fda8c #KidsFirstDRC

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 21/05/2026

Missed the live session? You can still catch the momentum. Watch how Kids First data accelerates discovery and brings us closer to answers for children and families. Catch the insightful webinar recording: monkeylink.co/dcc0a3

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 20/05/2026

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Gabriella Miller Kids First Data Resource Center @kidsfirstdrc.bsky.social · 19/05/2026

Using #KidsFirstData, Children's Hospital of Philadelphia researchers are expanding a study that already uncovered 250+ new gene discoveries to 1,000+ pediatric cancer cases. Learn about the project: monkeylink.co/054d97 #KidsFirstDRC #PediatricCancer

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