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Keratoconus Group

@keratoconusgroup.org

73 followers 41 following 500 posts

A safe and supportive community for people living with keratoconus and the people who care for them. (Est. 2007) Send stories/photos to story@keratoconusgroup.org

Posts Replies Media

Keratoconus Group @keratoconusgroup.org · 16/09/2026

Ever wished you could hand your phone to someone and say, "THIS is what I actually see with #Keratoconus"? @keratomania.com is changing how we talk about corneal health with live camera simulators, games, guides, & community support. Read our review 👇 www.keratoconusgroup.org/2026/09/kera...

keratoconusgroup.org

How Keratomania Is Changing the Way We Explain Keratoconus

Struggling to explain what keratoconus looks like? Explore Keratomania.com's camera simulator, quick guides, and community resources.

Reposted by Keratoconus Group

Keratomania @keratomania.com · 07/08/2026

I made an interactive keratoconus crossword puzzle. Think you know keratoconus? Give it a try! keratomania.com/crossword-pu...

keratomania.com

Keratoconus & Eye Health Crossword Puzzle

Test your knowledge of keratoconus, corneal health, and vision care with our interactive crossword puzzle. Perfect for patients, students, and eye health advocates.

Keratoconus Group @keratoconusgroup.org · 12/08/2026

Discover answers to the top 20 questions about contact lenses for keratoconus, covering scleral lens fit, comfort, cost, insurance, and maintenance. www.keratoconusgroup.org/2026/08/kera...

keratoconusgroup.org

Keratoconus Contact Lenses: 20 Most Common Questions Answered

Discover answers to the top 20 questions about contact lenses for keratoconus, covering scleral lens fit, comfort, cost, insurance, and maintenance.

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Keratoconus Group @keratoconusgroup.org · 02/08/2026

Living with a long-term illness like keratoconus isn’t about winning a battle; it's about carrying a weight that becomes a part of you. This journey is unique and deeply personal, and while others can offer support, the true experience is yours alone. www.keratoconusgroup.org/2024/10/kera...

keratoconusgroup.org

Keratoconus Is a Journey, Not a Battle

Keratoconus is not a battle to be won, it's a weight to carry forever

Keratoconus Group @keratoconusgroup.org · 31/07/2026

We gave our blog a major upgrade! 🚀 From snappier load times and crisp new typography to improved screen-reader support, reading our articles just got a whole lot smoother. Check out what’s new under the hood on the blog today! www.keratoconusgroup.org/2026/07/rede...

keratoconusgroup.org

A Fresh Look & Faster Experience: Welcome to Our Redesigned Blog!

Check out our updated website design featuring snappier load times, quick keyboard navigation, automatic dark mode, and screen-reader optimizations.

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Keratoconus Group @keratoconusgroup.org · 30/07/2026

Seeing the world through vintage wavy glass is beautiful for a moment. Living behind it every day is something else entirely. A personal keratoconus memoir. www.keratoconusgroup.org/2026/07/the-...

keratoconusgroup.org

The Woman Behind the Wavy Glass: Living With Keratoconus

A personal story about living with keratoconus, the quiet grief of changing vision, and what it feels like to see the world through wavy glass.

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Keratoconus Group @keratoconusgroup.org · 29/07/2026

Explore the history of keratoconus, from its first descriptions in the 1700s to modern treatments like corneal cross-linking and 3D tomography. www.keratoconusgroup.org/2026/07/hist...

keratoconusgroup.org

From Leeches to Lasers: The Bizarre, Untold History of Keratoconus

Explore the history of keratoconus, from its first descriptions in the 1700s to modern treatments like corneal cross-linking and 3D tomography.

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Reposted by Keratoconus Group

Keratomania @keratomania.com · 16/07/2026

How Much Do You Know About #Keratoconus? Take Our Quiz! keratomania.com/keratoconus-...

keratomania.com

Keratoconus Quiz: Test Your Eye Health Knowledge

Are you or a loved one dealing with Keratoconus? Test your awareness of symptoms, diagnostics, and modern treatment options with our interactive quiz.

Reposted by Keratoconus Group

Keratomania @keratomania.com · 05/07/2026

Friendly reminder: Water + contact lenses = a recipe for serious eye infections. And no, it doesn’t matter what kind you wear. Hard, soft, daily disposables, extended wear, or even specialty scleral lenses, none of them are safe for water exposure. Take them out before you jump in!

Keratoconus Group @keratoconusgroup.org · 28/06/2026

To anyone recently diagnosed with Keratoconus who feels completely overwhelmed: look around. Our Reddit community just crossed 25k members. You have 25,000 people walking this exact same path right there with you. You aren't alone. 💙

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Reposted by Keratoconus Group

Keratomania @keratomania.com · 22/02/2026

It is so easy to scroll through Instagram and think everyone else is healthy, rich, and happy. But you're seeing their curated best moments. You aren't seeing their bad eye days, their anxiety, or their mess. Stay in your own lane. You're doing just fine.

Reposted by Keratoconus Group

Keratomania @keratomania.com · 29/12/2025

Keratomania: The Best Free App for Keratoconus Education www.youtube.com/watch?v=82C5...

Reposted by Keratoconus Group

Keratomania @keratomania.com · 24/12/2025

Ever tried to explain to your friends what "ghosting" actually looks like? 👀 It's hard to put into words, so we built a tool to show them instead. Introducing the Keratoconus Camera, a new app that simulates #keratoconus vision in real-time. keratomania.com/keratoconus-...

keratomania.com

Introducing the Keratoconus Camera PWA

Experience keratoconus vision with the new Keratoconus Camera PWA. A safe, private, and interactive tool to raise awareness and help friends understand your vision.

Reposted by Keratoconus Group

Keratomania @keratomania.com · 20/12/2025

Explaining your vision isn't always easy, so we've built a tool for the KC family to help. Our new web app includes a Keratoconus Camera, a Text Simulator tool, and a crossword puzzle to help educate your loved ones. Visit Keratomania.com try it out and tag us in your "KC Camera" photos and videos!

Reposted by Keratoconus Group

Keratoconus Group @keratoconusgroup.org · 11/12/2025

👀 Ever wondered what keratoconus looks like? Try @keratomania.com’s simulators today! www.keratoconusgroup.org/2025/12/kera...

keratoconusgroup.org

Keratomania Shows the World What Keratoconus Looks Like

Introducing the Keratoconus Vision Simulator Tools from Keratomania.com

Keratoconus Group @keratoconusgroup.org · 11/12/2025

👀 Ever wondered what keratoconus looks like? Try @keratomania.com’s simulators today! www.keratoconusgroup.org/2025/12/kera...

keratoconusgroup.org

Keratomania Shows the World What Keratoconus Looks Like

Introducing the Keratoconus Vision Simulator Tools from Keratomania.com

Reposted by Keratoconus Group

Keratomania @keratomania.com · 17/10/2025

Tired of explaining how keratoconus affects your sight? Our brand-new keratoconus simulator is live. Visit our website, play with the slider, and instantly demonstrate the visual effects of keratoconus. Share this tool with friends to help them understand your vision. keratomania.com/keratoconus-...

keratomania.com

Keratoconus Simulator

Reposted by Keratoconus Group

Keratomania @keratomania.com · 17/08/2025

Here's a look at the world through the eyes of someone living with keratoconus. www.instagram.com/keratomania/...

Keratomania on Instagram: "Here's a look at the world through the eyes of someone living with keratoconus. This is an edit of a powerful moment from the Brazil vs. Croatia match during the 2014 FIFA W...

Keratoconus Group @keratoconusgroup.org · 04/07/2025

Happy 4th of July!

Keratoconus Group @keratoconusgroup.org · 01/07/2025

In this blog post we will answer 25 of the most googled questions about #keratoconus www.keratoconusgroup.org/2023/09/most...

keratoconusgroup.org

25 Most Googled Questions about Keratoconus

The 25 keratoconus questions everyone is Googling—answered

Reposted by Keratoconus Group

Keratomania @keratomania.com · 03/06/2025

Some see the world in HD, I see it in Monet. 🎨

Reposted by Keratoconus Group

Keratomania @keratomania.com · 28/05/2025

Here is a helpful vision simulation we made back in 2012. You can share this image with your friends to let them know how #keratoconus affects your vision. ©️ CC BY-NC-SA 🔗 flic.kr/p/dswuYh #timessquarenyc #timessquare #newyork #newyorkcity #manhattan #nyc

Keratoconus Group @keratoconusgroup.org · 18/04/2025

Ready to discover why you should become a part of our #keratoconus community? Here are the top 10 reasons to click that "join" button today: www.keratoconusgroup.org/2025/04/top-...

keratoconusgroup.org

Top 10 Reasons to Join Our Keratoconus Community

Ready to discover why you should become a part of our family? Here are the top 10 reasons to click that "join" button today:

Keratoconus Group @keratoconusgroup.org · 01/04/2025

Our Reddit community has reached 20,000 members! Join us at Reddit.com/r/Keratoconus to share your story with millions of Redditors worldwide, ask all your questions, and connect with people who understand keratoconus. #keratoconus #ophthalmology #optometry #reddit

Keratoconus Group @keratoconusgroup.org · 10/03/2025

Honest insights on living with keratoconus. A must-read for anyone affected. www.keratoconusgroup.org/2019/10/a-ve...

keratoconusgroup.org

A Very Honest Talk About Keratoconus

You can't fight keratoconus, you just have to accept it and deal with it.

Reposted by Keratoconus Group

Keratoconus Group @keratoconusgroup.org · 23/11/2024

Keratoconus... the ultimate resolution killer. #pcgaming #pcgames #pcgamer

Reposted by Keratoconus Group

Infinite 8 @eternal.blacksky.app · 24/02/2025

Oh my God. So I have Keratoconus in my left eye and it's developing in my right eye as well. Took part of a study last August because I needed surgery. My left is 20/60 and my right eye bounces from 20/15 to 20/30

Reposted by Keratoconus Group

Kyrie @therosegoldkyrie.bsky.social · 25/02/2025

I miss reading physical books 😭 #keratoconus

Reposted by Keratoconus Group

Norah @norah.xyz · 07/03/2025

Looking into goggles for my eyes while I sleep.. the world of keratoconus is super fun

Reposted by Keratoconus Group

Cornea: The Journal of Cornea and External Disease @corneajournal.bsky.social · 09/03/2025

ICYMI: Sterile Keratolysis Following Porcine Collagen Implant in Advanced Keratoconus: No abstract available #Cornea #Ophthalmology #Ophthotwitter

Sterile Keratolysis Following Porcine Collagen Implant in Advanced Keratoconus

No abstract available

Keratoconus Group @keratoconusgroup.org · 28/11/2024

I'm grateful for our wonderful community, for the knowledge we share and the support we give one another. Challenges are faced more easily when we have each other for support. I'm thankful that I don't have to face #keratoconus alone. Happy Thanksgiving, everyone!

Keratoconus Group @keratoconusgroup.org · 23/11/2024

Keratoconus... the ultimate resolution killer. #pcgaming #pcgames #pcgamer

Keratoconus Group @keratoconusgroup.org · 10/11/2024

This World Keratoconus Day, let's make some noise and raise awareness together. Visit our website to download wallpapers and posters to share with your friends and family: www.keratoconusgroup.org/2024/10/worl...

keratoconusgroup.org

World Keratoconus Day: Wallpapers and Posters

Celebrate World Keratoconus Day with our unique wallpapers and posters. Let’s stand together in support of the keratoconus community!

Keratoconus Group @keratoconusgroup.org · 10/11/2024

Today is World Keratoconus Day! Every year on November 10 we join together to raise awareness about the impact #keratoconus has on the lives of those affected. Visit our website to learn how you can get involved and help to spread the word: keratoconusgroup.org/WorldKCDay

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Keratoconus Group @keratoconusgroup.org · 09/11/2024

Tomorrow is World Keratoconus Day! Every year on November 10 we come together to raise awareness about the impact #keratoconus has on the lives of those affected, and their family and friends. Visit our website to learn how you can participate: www.keratoconusgroup.org/WorldKCDay

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Keratoconus Group @keratoconusgroup.org · 01/11/2024

Get ready to spread awareness! World #Keratoconus Day is coming up on November 10th. Let's make some noise and raise awareness together. Visit our website to download stunning wallpapers and posters to share on your social media and show your support: www.keratoconusgroup.org/2024/10/worl...

keratoconusgroup.org

World Keratoconus Day: Wallpapers and Posters

Celebrate World Keratoconus Day with our unique wallpapers and posters. Let’s stand together in support of the keratoconus community!

Keratoconus Group @keratoconusgroup.org · 30/10/2024

Don’t let an eye infection be the scariest part of your #Halloween . All contact lenses must be prescribed by a doctor, including decorative lenses. Any contact lenses that are not prescribed by a doctor are illegal and could cause you harm. www.keratoconusgroup.org/2024/10/keep...

keratoconusgroup.org

Keep Your Eyes Safe on Halloween 🎃

Don’t let an eye infection be the scariest part of your Halloween.

Keratoconus Group @keratoconusgroup.org · 20/10/2024

Our Facebook group has reached 30,000 members! We want to take a moment to thank each and every one of you for being a part of this amazing community. We couldn't have done it without you! www.keratoconusgroup.org/2024/10/face...

keratoconusgroup.org

Our Facebook Group Has Hit 30K Members!

Keratoconus Group's private Facebook group for keratoconus patients and eye care professionals now has more than 30,000 members!

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Keratoconus Group @keratoconusgroup.org · 19/10/2024

We're excited to share that our private Facebook group has reached a new milestone – over 30,000 members! Join the conversation today: Facebook.com/groups/KeratoconusGroup

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Keratoconus Group @keratoconusgroup.org · 15/10/2024

Don’t let an eye infection be the scariest part of your #Halloween. All contact lenses must be prescribed by a doctor, including decorative lenses. Any contact lenses that are not prescribed by a doctor are illegal and could cause you harm. www.keratoconusgroup.org/2024/10/keep...

keratoconusgroup.org

Keep Your Eyes Safe on Halloween 🎃

Don’t let an eye infection be the scariest part of your Halloween.

Keratoconus Group @keratoconusgroup.org · 13/10/2024

Hey everyone! Today I want to share something that has been a part of my life for the past five years: keratoconus. www.keratoconusgroup.org/2023/09/livi...

keratoconusgroup.org

Living with Keratoconus: What I Wish I Could See!

I want to share my experience of living with keratoconus, a rare eye condition that distorts my vision. Here’s how I cope with it.

Keratoconus Group @keratoconusgroup.org · 12/10/2024

If you have #keratoconus or know someone who does, this post may help you understand more about this condition and how to cope with it. www.keratoconusgroup.org/2023/03/kera...

keratoconusgroup.org

Keratoconus FAQs: Common Questions and Answers

All About Keratoconus: Frequently Asked Questions and More

Keratoconus Group @keratoconusgroup.org · 11/10/2024

Helpful update for people who are visually impaired or have trouble seeing small text ❤️ Who else is using the largest font size? #keratoconus

Keratoconus Group @keratoconusgroup.org · 11/10/2024

Eye rubbing is a common habit that many people do without thinking, but it can have harmful consequences for your eyes. It can damage the structure of your eye, create cosmetic issues, increase the risk of infections and worsen existing eye conditions. www.keratoconusgroup.org/2023/04/eye-...

keratoconusgroup.org

Eye Rubbing: A Common but Risky Habit

Eye rubbing may seem like a harmless and soothing thing to do, but it can actually cause a lot of problems for your eyes.

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Keratoconus Group @keratoconusgroup.org · 10/10/2024

Are you ready to spread awareness about keratoconus? #WorldKCDay is just one month away! www.keratoconusgroup.org/2024/10/worl...

keratoconusgroup.org

World Keratoconus Day #WorldKCDay

World Keratoconus Day, on November 10, raises global awareness about keratoconus and ectatic corneal disorders. #WorldKCDay

Keratoconus Group @keratoconusgroup.org · 08/10/2024

As we approach #WorldSightDay on October 10, it's time to shine a spotlight on the importance of child eye health. This year's theme, “Children, Love Your Eyes,” emphasizes the need for early eye care and the profound impact it can have on a child's life. www.keratoconusgroup.org/2024/10/worl...

keratoconusgroup.org

World Sight Day 2024: Children, Love Your Eyes

On World Sight Day, let’s make a pledge to protect the eyes of children, for good eyesight now and tomorrow.

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Keratoconus Group @keratoconusgroup.org · 04/10/2024

Living with keratoconus is a journey filled with ups and downs. It's not about winning or losing, but about finding ways to carry the weight and continue moving forward. www.keratoconusgroup.org/2024/10/kera...

keratoconusgroup.org

Keratoconus Is a Journey, Not a Battle

Keratoconus is not a battle to be won, it's a weight to carry forever

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Keratoconus Group @keratoconusgroup.org · 03/10/2024

When I am not wearing my contact lens... #MeanGirlsDay

Keratoconus Group @keratoconusgroup.org · 02/10/2024

Corneal Crosslinking FAQs: Common Questions and Answers www.keratoconusgroup.org/2023/11/corn...

keratoconusgroup.org

Corneal Crosslinking FAQs: Common Questions and Answers

Corneal crosslinking (CXL) is a minimally invasive procedure that has been used to prevent the progression of corneal ectasia

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