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@juliamordaunt.com
1.3K followers 35 following 78 posts

Future ghost.

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👻 @juliamordaunt.com · 16/05/2026
I hope you understand how literal that statement is and how grateful I am. $5, $10, $20 - it's all impactful. Please share this with anyone who may be interested and consider donating to our walk, which is tomorrow → fundraise.cff.org/BUF2026/kell...
fundraise.cff.org
Kelly's Fundraising Page at Buffalo Great Strides 2026
Julia was born in February of 1981. I was too young to remember her birth - we are only a year and a half apart! To me, we have always co-existed. In 1981, the life expectancy of someone with cystic f...
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👻 @juliamordaunt.com · 16/05/2026
but also funds important advocacy work on the federal + state level, ensuring that everyone with CF has access to high-quality specialized care. We’re so close to our goal this year. Won’t you help? You’re literally changing lives. You've added years to my life.
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👻 @juliamordaunt.com · 16/05/2026
Your gift to the Cystic Fibrosis Foundation not only helps fund critical drug therapies + research (science!!), especially alternatives to antibiotics for CF patients (like the modulator therapies) who battle recurrent infections + develop resistance (which could very well benefit us all)…
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👻 @juliamordaunt.com · 16/05/2026
While the advancements are astounding, the painful truth is that CF still regularly takes the lives of young people. There is still no cure. We hope you will join in to help change this! Each May my selfless family walks + raises money. Some of you have been donating for 10+ years!
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👻 @juliamordaunt.com · 16/05/2026
I turned 45 this year. In Sept last year, I began taking ALYFTREK, the latest CF modulator therapy (this is now my third step up). Because of the incredible work of the Cystic Fibrosis Foundation, the median age of survival for someone with CF, born in 1981, has climbed to over 50.
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👻 @juliamordaunt.com · 16/05/2026
A longish thread. Please read and share 🌸 On the outside, I live a pretty sweet life. When I was born with cystic fibrosis, the median age of survival was 18. When I was a teenager, I wondered if I would make it to my 30's and if I would be able to live the life I wanted to live…
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👻 @juliamordaunt.com · 03/05/2026
night nine. fin. that’s a wrap on sphere.
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👻 @juliamordaunt.com · 02/05/2026
night eight. fin. we’re almost there.
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👻 @juliamordaunt.com · 02/05/2026
Which night ?
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👻 @juliamordaunt.com · 01/05/2026
night seven. fin.
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👻 @juliamordaunt.com · 26/04/2026
night six. fin.
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👻 @juliamordaunt.com · 24/04/2026
Night four. Fin.
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👻 @juliamordaunt.com · 18/04/2026
Night Two. Fin.
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👻 @juliamordaunt.com · 13/04/2026
Undisputed champs
youtu.be
SUPERTRAMP - GOODBYE STRANGER Live at Paris 1979
YouTube video by JuandiRome
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👻 @juliamordaunt.com · 12/04/2026
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👻 @juliamordaunt.com · 07/04/2026
Satellite launch
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👻 @juliamordaunt.com · 20/02/2026
Author of today’s NYT Wordle must have seen the MSG announcement video
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👻 @juliamordaunt.com · 18/02/2026
How many Easter eggs did you find?
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👻 @juliamordaunt.com · 06/01/2026
Why doesn’t anyone use turn signals anymore when driving ? Seriously. Anyone notice that NOOOO ONNNEE uses them anymore? Infuriating.
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👻 @juliamordaunt.com · 04/01/2026
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👻 @juliamordaunt.com · 03/01/2026
✈️❄️☁️
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👻 @juliamordaunt.com · 20/12/2025
Need a holiday playlist for the next few days?? Merry Merry + all the rest 🕊️🎶 and PEACE open.spotify.com/playlist/5nI...
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👻 @juliamordaunt.com · 12/11/2025
I get asked “who’s your favorite band?” a lot. It’s this guy. Happy 80th Birthday, Neil Young. My #1 forever. 📷 Henry Diltz
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👻 @juliamordaunt.com · 26/10/2025
Treehouse of Horror fest tonight.
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👻 @juliamordaunt.com · 07/08/2025
Being afraid of science is so dangerous and will alter the lives of so many. Everything is a conspiracy theory when you don’t understand how anything works.
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👻 @juliamordaunt.com · 02/08/2025
Get outside.
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👻 @juliamordaunt.com · 19/05/2025
Thanks to everyone who donated this year! We took home first prize in fundraising again!! And broke our record. $23,137 raised by Fer Jules for this year’s Great Strides walk for Cystic Fibrosis Foundation, thanks to all of you. Amazing!! ✌🏼👟
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Reposted by 👻
Drew but 9/18/99 Boogie On @drewphish.bsky.social · 16/05/2025
Will 10 people match my $25 donation to support @juliamordaunt.com 's walk tomorrow to raise funds for the Cystic Fibrosis Foundation? If you're a #phish fan then you have experienced her brilliance whether you realize it or not. She is the Creative Director of Phish and a major part of what...
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👻 @juliamordaunt.com · 16/05/2025
Any amount counts - $5, $10, $15. Anything. I thank you so much. Donate via our Team Leader, and my sister Kelly at: fundraise.cff.org/Buffalo2025/...
fundraise.cff.org
Kelly's Fundraising Page at Buffalo Great Strides
Julia was born in February of 1981. I was too young to remember her birth as I had just been born a year and half earlier. To me, we have always co-existed. In 1981, the life expectancy of someone ...
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👻 @juliamordaunt.com · 16/05/2025
Do you know someone with CF? Did you learn about CF from me or my family? Did you ever google “Cystic Fibrosis” after reading any of my posts? If so, our advocacy and raising awareness is working. Let’s keep it going. I would be honored if you could make another donation today.
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👻 @juliamordaunt.com · 16/05/2025
The medical advancements in the last 14 years alone are, quite simply put, changing our entire lives. And now the Government is cutting NIH funding left and right - something the CFF benefits from annually. We need you more than ever.
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👻 @juliamordaunt.com · 16/05/2025
I am on life-saving and life-changing meds, which were developed directly because of your donations. I am a part of a generation of CFers who are living into adulthood for the first time. I was born in 1981, when few with CF lived beyond 20 years old. I am now 44.
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👻 @juliamordaunt.com · 16/05/2025
Our team, Fer Jules, has raised over $145k for the foundation so far. It’s time again. We’re in the last few days before the walk. Many of you graciously donate each year. Year after year after year. These donations have directly benefited my own life and the lives of everyone with CF in some way.
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👻 @juliamordaunt.com · 16/05/2025
Please read thread + share with anyone who can help! We walk tomorrow!! My family and I have been active fundraisers for Cystic Fibrosis Foundation - Western New York Chapter, most notably via their Great Strides walk every year.
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👻 @juliamordaunt.com · 07/05/2025
👯 @robertwalter.com @mike-gordon.com New Orleans
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👻 @juliamordaunt.com · 03/05/2025
Happy Birthday @robertwalter.com 🥳💕✨
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👻 @juliamordaunt.com · 28/04/2025
Walk-In, Setbreak + Walk-Out Tunes. Updated through Hollywood Bowl. Note that Part I has hit its limit, so had to create a Part II, starting from 2024-present. That will be the one that gets updated. Part I holds 2009-2023. PART II: spoti.fi/3YSh8Me PART I: spoti.fi/44eWtWu
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👻 @juliamordaunt.com · 16/04/2025
Donnie Darko themed Easter cakes at Whole Foods #MadWorld
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👻 @juliamordaunt.com · 04/04/2025
Happy Birthday Adam Scott! This pic is from Phish at the Hollywood Bowl in 2013. He was bummed about his blocked view 😂 See you back there in two weeks? You da best.
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👻 @juliamordaunt.com · 03/04/2025
What life looks like to a creative director every day before a tour starts #design #pantone
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👻 @juliamordaunt.com · 18/03/2025
Welcome to the family, Marge! Original hand-painted and used in production animation cel from The Simpsons. “The War Or The Simpsons” Season 2 Ep 20. The Simpsons
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👻 @juliamordaunt.com · 14/03/2025
Yes.
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NPR @npr.org · 22/02/2025
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
npr.org
NIH funding freeze stalls applications on $1.5 billion in medical research funds
The National Institutes of Health had to stop considering new grant applications, delaying funding for research into diseases ranging from heart disease and cancer to Alzheimer's and allergies.
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👻 @juliamordaunt.com · 22/02/2025
Know anyone affected by the Eaton Fires and in need of a fresh lunch? Yeastie Boys x @wck.org at Pasadena USPS on Lincoln until 3PM today. Our last day at this location 😟 #worldcentralkitchen #volunteer #eatonfire
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👻 @juliamordaunt.com · 21/02/2025
Coming soon 🪺
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👻 @juliamordaunt.com · 21/02/2025
Paul Simon tickets secured!! Wooohoo! 💅🏼
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👻 @juliamordaunt.com · 21/02/2025
Thank you for taking care of so many!
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👻 @juliamordaunt.com · 21/02/2025
I am alive and healthy today because of NIH funded Cystic Fibrosis research. I am on life saving medication funded by NIH. Eff Tr*mp and his weenie brigade #cysticfibrosis #nih
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👻 @juliamordaunt.com · 19/02/2025
Winking should be illegal.
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👻 @juliamordaunt.com · 15/02/2025
Another volunteer shift with @wck.org + @yeastieboys.bsky.social at Pasadena USPS Post Office today. Know someone who may be displaced by the Eaton Fires and in need of a fresh free meal? Here til 3pm.
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