iiinova — where your digital self keeps evolving

John @jrh2385.bsky.social · 09/10/2026

I’ve heard many times that drilling out the gun barrels on miniatures is boring. It bloody isn’t! I stabbed my thumb in the process last night! 🤦‍♂️

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John @jrh2385.bsky.social · 02/10/2026

I didn’t even get to 2 weeks before today’s #seizure. It wasn’t too bad, but it happened not long after getting off the exercise bike and a very quick shower. Meg had a vets appointment so I was in a panic to get ready, & I think that is what caused it. I’m pretty sure it was self inflicted.

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John @jrh2385.bsky.social · 28/09/2026

Ive just had my 1st session of #AndysManClub. I was really nervous going in, but it helps to talk. I feel I didn't have much to say, especially with it being my first time. I am still doing the #epilepsy online support groups, but I may alternate. Anything like these and just speaking aways helps.

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John @jrh2385.bsky.social · 25/09/2026

this is something I have been nervous for a while. She was shocked about my 'journey' during my last seizure, and saw videos of the one previously when I was on the exercise bike, but says that it happens with some people people; the brain is on auto drive, and I am not in control.

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John @jrh2385.bsky.social · 25/09/2026

I had another appointment with my #epilepsy nurse today. My #VNS power has gone up 1 more click, and am planning on gradually taking the Cemobamate earlier to see if it helps with the fatigue, and possibly increasing it again. She suggested spending a week, observed for a week connected to an EEG.

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John @jrh2385.bsky.social · 20/09/2026

I was very confused when I came to, I knew I had to order a taxi from the app, but mentally had no idea what the word for a taxi was, never mind finding the app. I was also confused with there I was. So glad it has a locator though, and they were able to find me.

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John @jrh2385.bsky.social · 20/09/2026

I made it to 3 weeks without a #seizure today, about 20 minutes after leaving a local #epilepsy support group. Yesterday was exhausting, and I overslept, so I am putting them as the trigger. Last thing I remember is going up hill towards one of the shops in Newcastle, and coming to at monument.

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John @jrh2385.bsky.social · 17/09/2026

I’ve just got back from seeing my favourite toy advert, #TheTransformersTheMovie, on the big screen! It was amazing, although that scene still hurts a little. I did not expect there to be a post credit mini film, wow! #TilAllAreOne #RIPPeterCullen

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John @jrh2385.bsky.social · 30/08/2026

I watched it back earlier with one of the houses blink cameras, and the gibberish I was coming out with sounded like the Sherif of Rottinghams theme tune 😂 youtu.be/dPXBMnXxGow?...

youtu.be

Robin Hood Men In Tights - Rottingham's Arrival

YouTube video by Top Clips

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John @jrh2385.bsky.social · 30/08/2026

Looking back, there wasn’t a long decline to this seizure, like the one mentioned above, I think that was 3 weeks? I have been told that I walked into the house, pushed back past my parents, went back to the bike to turn the tv off, I have no recollection of this, or switching the timer off. 😂

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John @jrh2385.bsky.social · 30/08/2026

I’ve been drained for a few days, mentally and physically. Although still tired, I felt better today and tried going on the exercise bike for the 30 minutes, unfortunately I had a #seizure, but was able to safely get off it. Not as good as my 2nd last, but 5 1/2 weeks is a good gap. #epilepsy

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John @jrh2385.bsky.social · 25/08/2026

I’ve made progress with my Ice Planet Lieutenant, and realised something horrifying. It doesn’t have a purity seal! Is it an Alpha Legion spy..?

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John @jrh2385.bsky.social · 15/08/2026

The toilet flusher in the bathroom has started to look sad, ever since the coating started to come off ☹️

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John @jrh2385.bsky.social · 22/07/2026

I’m blaming my last #seizure on not switching off and playing a game to keep me off my feet, so I’m using it as an excuse to start up #FFXII #FF12 . It still has one of my all time favourite intro cinematic.

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John @jrh2385.bsky.social · 22/07/2026

Bugger, the #epilepsy strikes again just over 2 days later. I think I have been pushing myself when I should be resting? No warning, my head was still in #seizure recovery

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John @jrh2385.bsky.social · 21/07/2026

I’m not sure how common it is but my senes go through varying levels of sensitivity as my brain puts it self back to normal after a #seizure. The smell from plucking a tomato from the vine earlier today was amazing. If only it had been raining,the petrichor would have been more beautiful than normal

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John @jrh2385.bsky.social · 21/07/2026

As happy as I am that I lasted to 6 weeks with yesterdays #seizure, I’m kinda shocked because roughly half of this time was spent in the decline that I get, which usually takes a few days. Has this been the longest it has taken? So much of this time has been in mental exhaustion, waiting… #epilepsy

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John @jrh2385.bsky.social · 20/07/2026

6 weeks to the day since my last #seizure I had just got into the Taxi after the Gym when it happened, thankfully I got home safe. I have been dreading for 2 weeks (cancelling several things that I should have attended). I’m also at the start of the next med change, just increased dosage #FunTimes

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John @jrh2385.bsky.social · 06/07/2026

You will be the guest of honour at my wedding (if I ever get married). 😀

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John @jrh2385.bsky.social · 06/07/2026

I’d like to say I’m surprised at what the orange man did, overturning the red card, but at this stage, I’m really not. Regardless of who wins the #WorldCup, I have a feeling he will claim it as his own, like he did with Chelsea last year.

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John @jrh2385.bsky.social · 29/06/2026

Realisation over the weekend that my depression, struggles & urgent need to change everything over the past few months could be the start of a #MidlifeCrisis? Do I continue with what I have been doing over the last 15 years, & getting nowhere to prove myself wrong, or do I take a leap? #Epilepsy

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John @jrh2385.bsky.social · 20/06/2026

I had another checkup with the #epilepsy nurse yesterday, and reviewed how myself, & how the year so far has been. The #VNS' power has been increased, and I can't tell the difference. there is a followup appointment getting ready in a few months to check the power. One of my meds is also increasing.

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Reposted by John

A. D. Delgado 💙🪷🌊 🚫DM #CaliforniaLove @fiitchicknation.bsky.social · 14/06/2026

Remember tomorrow is President Obama appreciation Day. We will never recognize Trump birthday !!

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John @jrh2385.bsky.social · 08/06/2026

I made it to just over 3 weeks since my last #seizure which isn’t the best. It happened not long after coming out of the gym, and I felt fine up until it happened. It was instant. The last thing I remember is searching for my bus pass outside of the bus. I still don’t know where it is… #epilepsy

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John @jrh2385.bsky.social · 05/06/2026

I had an amazing sleep last night! I woke up feeling brilliant, and then I did wake up and it was 3am and realised it was a dream…

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John @jrh2385.bsky.social · 01/06/2026

Following my #epilepsy nurses advice I have finally started going to a gym, seeing a personal trainer that is cool with my seizures. Hopefully, my fitness improves and I will be able to tolerate higher doses of my epilepsy meds as a result. next session in a weeks time (head permitting) #FleshIsWeak

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John @jrh2385.bsky.social · 16/05/2026

I made it to 30 days earlier, which is good. I have been waiting for this #seizure to happen for a long time, unfortunately, there was no warning and I was cooking, so I’m glad that my parents were around to avoid a fire. I have been told it was a small non convulsive, and I came out of it quickly.

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Reposted by John

Rach @dontrachquit.bsky.social · 13/05/2026

This Friday, we are... 🌻 STREAMING FOR HOPE 🌻 Join me for a special stream, 12pm-5pm BST, campaigning for mental health education and proactive suicide prevention with @HopeForTheDay This Mental Health Week, let's champion this great cause together. @Loadscreengg #HFTD #Ad

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John @jrh2385.bsky.social · 07/05/2026

I’ve just done to Jonny, what he tried to do to Lisa. Get him framed. #TheRoom

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John @jrh2385.bsky.social · 06/05/2026

I booted up my old IPad at the weekend, and completely forgot about the #BrianBlessed alarm clock! It has been off the App Store for a long time. Very random app that worked so well. (There is a load more quotes by the legend, but they are all played in random order)

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John @jrh2385.bsky.social · 02/05/2026

I had an amazing night watching #TheRoom at the Tyneside Cinema last night. I had seen it before, but I didn’t think it would be pantomime on the big screen. Sitting close to the front and didn’t expect the spoon throwing, you could say it went over my head… Cool meeting Greg Sestero too, nice guy.

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John @jrh2385.bsky.social · 17/04/2026

In the restaurant made my head go funny, and I had to leave. There was another small warning at the starting of the week, when I couldn’t finish the fitness boxing (as shown at the heart rate). I should have seen it coming, but there was no direct warning/time to swipe the magnet just before.

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John @jrh2385.bsky.social · 17/04/2026

Yesterday was #seizure reset day. I didn’t quite get to a month, but close enough. It happened when at the Doctors waiting room, but I was out of it before the appointment, and was just confused when I saw the Doctor. There was a warning last week when going somewhere with family, the temperature -

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John @jrh2385.bsky.social · 15/04/2026

#RandomThought in the bathroom earlier today when I glanced up and saw a spider on the ceiling. Do many spiders sleep when on the ceiling? Do some weave hammocks out of their webbing to reduce the chance of falling?

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John @jrh2385.bsky.social · 07/04/2026

First time doing fitness boxing for almost 2 years earlier today. Absolutely destroyed me, but I kept going til the end. I had to stop doing it because the Cenobamate really drained me last year, I was always tired after Tuesdays volunteering shoots, or it was fully booked. I will feel it tomorrow!

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John @jrh2385.bsky.social · 30/03/2026

I’ve always enjoyed #vegan / #Vegetarian fish alternatives, despite how uncommon they can be in the shops. I can’t help but wonder why I’ve never seen any called ‘’artiFISHal”. It feels like a missed opportunity for a product name.

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John @jrh2385.bsky.social · 20/03/2026

7 days after my last post, the #seizure that I was longing for has happened. I was starting to wonder if the ‘decline’ that I felt was the aftermath of a nocturnal seizure, but I know better. 5 weeks is brilliant! Thankfully I had a few hours sleep afterwards, which I don’t usually get. #epilepsy

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John @jrh2385.bsky.social · 13/03/2026

Is it bad that I am longing for my next #seizure? I have been on a decline for about 5 days, feeling mentally exhausted. This sometimes happens for a few days before, and once the fit is done, it is wiping a slate clean, and I am fine after a few days. Yesterday was 28 days, so I am past my average.

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John @jrh2385.bsky.social · 12/03/2026

Ive recently finished an #EpilepsyAction support group, which led to me vaguely describing the plot of the first terminator film for 10+ minutes, to my mum, who was needing the toilet, and looking at me confused. TBF, I have been a bit off in the head for a few days, and on #seizure watch #Funtimes.

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John @jrh2385.bsky.social · 21/02/2026

A few awkward moments, as I got there on time today and discovered there was a warm up lap… in the past I was a little late and was told to follow the people in front for 3 laps. I also got distracted by a dog, took a wrong turn at the end of the 3rd lap, saw the finish line & had to turn around 😅

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John @jrh2385.bsky.social · 21/02/2026

3rd #parkrun done. Not my best time, but not my worst either. I was flagging a bit, so it was more of a brisk walk at times, rather than a run. Hopefully they will be more than once a month in the future?

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John @jrh2385.bsky.social · 12/02/2026

3 1/2 weeks isn’t the best but I’m accepting it as the new average between #seizures. I’ve been told that it was a non convulsive, but I briefly went ridged once it started, as if I was going to #convulse. There was no warning, and no decline. I have had a few bad nights sleep, so could that be why?

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John @jrh2385.bsky.social · 19/01/2026

Although I had a positive result today, MANY things have been accidentally broken or made worse in the past while recovering, as my head isn’t always in tune & I make clumsy mistakes. Replays of final fantasy games, or Minecraft/subnautica always helped to keep my Zombiefied mind distracted 😅

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John @jrh2385.bsky.social · 19/01/2026

I have a habit of doing stupid things when I am recovering from a #seizure. Today I found myself dismantling a heavily jammed up vacuum where the filter had disappeared. Thankfully it now works, and the battery was depleted before. This is why I play games, to keep me from causing trouble 😅

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John @jrh2385.bsky.social · 18/01/2026

My first #seizure of the year happened earlier today, and 37 days is quite impressive! This is something that has certainly been building for a while. I had a decline just over a week ago (daily headaches & mistakes) & my #VNS stopped it, I was also a bit scared doing #parkrun yesterday. #epilepsy

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John @jrh2385.bsky.social · 17/01/2026

Not sure how to change it? I started the workout timer a little early, as I was doing the warmup walk on my way to the park

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John @jrh2385.bsky.social · 17/01/2026

Il keep that in mind! 😂Thanks

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John @jrh2385.bsky.social · 17/01/2026

2nd #ParkRun done. I haven’t been feeling 100% and almost quit a few times before completing the 1st lap. So glad I continued. 7 minutes better than last time. Reminder! don’t do it wearing thick jacket, unless it is snowing…

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