iiinova — where your digital self keeps evolving

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Action for ME @actionforme.bsky.social · 12/05/2026

Around 25% of people with ME are severely or very severely affected. Too often, the most severely affected are denied the care and support they desperately need, and in some cases severe ME can be life-threatening.

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Action for ME @actionforme.bsky.social · 12/05/2026

Consequences are significant: - delayed diagnoses; - harmful or inappropriate treatments; - repeated experiences of stigma and disbelief; - patients not warned of the risks of Post-Exertional Malaise (PEM). -a suicide risk six times higher in people with ME

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Action for ME @actionforme.bsky.social · 12/05/2026

📢 Today is #WorldMEDay ME is a seriously disabling condition impacting at least 67 million people worldwide. Medical education is lacking in most countries and patients are regularly denied the care they deserve.

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Action for ME @actionforme.bsky.social · 27/04/2026

2/2 🎥 Watch our BBC Lifeline video to learn more and donate for change: www.bbc.co.uk/programmes/m... #BBCLifeline #MyalgicE

Graphic with text: “An estimated 1.35 million people in the UK have ME or ME symptoms, yet there is still no cure, diagnostic test or effective treatments.”

Graphic with text: “ME research has reached a turning point, with scientists identifying genetic differences in people with ME.”

Image of a bed with text: “People with ME need your help. Support our work to fund biomedical research, specialised healthcare and vital support.”

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Action for ME @actionforme.bsky.social · 27/04/2026

1/2 🚨 People with ME need your help. ME is a devastating and misunderstood disease, with its symptoms affecting an estimated 1.35 million people in the UK. For many, it means not only losing their health, but also their independence and the life they once knew. #pwME #MECFS ⬇️

Image of bed with rumpled sheets in low light with text: “5 things everyone should know about ME.”

Graphic with text “ME can affect anybody, at any time. Most people with ME had very full, healthy lives before getting sick.”

Alt text: Graphic with text: “ME steals lives. It is profoundly disabling and has one of the worst qualities of life of any disease.”

Graphic with text: “1 in 4 people with ME are severely affected, unable to leave the house or their bed.”

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Action for ME @actionforme.bsky.social · 18/12/2025

✨ Thank you for being part of our 2025 ✨ This year, thousands of people engaged with our content about the reality of ME - from lived experience stories to the DecodeME results and vital policy work. Thank you for supporting us and helping make ME visible 🧡

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Jameskn @jameskn.bsky.social · 04/10/2025

4 hour Virtual Race of Remembrance 2025 🚗 Mission Motorsport - The Forces’ Motorsport Charity 🏁 Find out more: www.missionmotorsport.org #RaceRetrainRecover Watch: www.twitch.tv/rafesports Donate: www.justgiving.com/team/vror

missionmotorsport.org

MISSION MOTORSPORT

The Forces' Motorsport Charity. Supporting wounded, injured and sick serving and veteran soldiers.

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Jameskn @jameskn.bsky.social · 30/09/2025

Nix Racing League - Paul Ricard Wet Race (Hopefully) www.twitch.tv/Jameskn

twitch.tv

Jameskn - Twitch

Nix Racing League - Paul Ricard Wet Race !Discord

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Cammie Racing @cammieracing.bsky.social · 01/05/2025

Canada being awesome. For my American LGBT+ friends xoxo

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Action for ME @actionforme.bsky.social · 10/12/2024

And that's a wrap! 🎁 Our 2024 #BigGive #ChristmasChallenge has come to a close and what a campaign it's been... Thanks to YOUR incredible support, we've raised £211,772 online to support #pwME! 🎉 You have helped us continue to provide help for today & hope for tomorrow 🧡 THANK YOU! #MECFS

Text reads: 'Our 2024 Big Give Christmas Challenge campaign has come to a close! Swipe to find out how much YOU helped raise to support people with ME...' with a small Santa illustration in the top-right corner and orange arrows at the bottom-right.

Text reads: 'Accelerate ME research, Train future ME researchers, Educate healthcare professionals, Support thousands of pwME through our services, Fund healthcare bursaries,' each accompanied by corresponding icons like a microscope, scientist, stethoscope, heart, and currency notes.

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DecodeME @decodemestudy.bsky.social · 13/12/2024

We’d like to say a HUGE thank you to everyone for helping us achieve so much this year. You have helped us create the largest cohort of ME/CFS in the world & we're now deep into analysing the data! We anticipate the DNA analysis to be complete by the middle of next year. #DecodeME #MECFS #pwME

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