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Infusion Access Foundation

@infusionaccessfoundation.org
65 followers 58 following 229 posts

We fight for patients' access to provider-administered therapies so you can get back to enjoying your life. ⭐ Learn more: infusionaccessfoundation.org

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Infusion Access Foundation @infusionaccessfoundation.org · 30/09/2026
FINAL CALL 🚨 Applications for Champions Weekend close TONIGHT! If you're on an infused or injected therapy, claim your spot in the room before the deadline hits. Apply now! 👇 [zurl.co/QpPyz
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Infusion Access Foundation @infusionaccessfoundation.org · 30/09/2026
2 DAYS LEFT. ⏳ The deadline for Champions Weekend is 48 hours away. Learn policy, practice storytelling, and build your national advocate network. Submit your app before time runs out! 👇 zurl.co/nGt4S ✨ Find Your Voice. Become a Champion. #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 29/09/2026
3 DAYS LEFT. 🚨 10 spots. Zero travel stress. Unlimited legislative impact. If you're on an infused or injected therapy, do NOT let this deadline pass you by. Apps close in 72 hours! Apply now 👇 zurl.co/djxdv ✨ Find Your Voice. Become a Champion. #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 27/09/2026
"Here, I don't have to explain myself." No small talk about symptoms nobody can see. No convincing anyone your pain is real. Just a room full of people who already get it. Applications close on the 30th. 💬 Apply here: zurl.co/m0H1k #InvisibleIllness #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 23/09/2026
"Together we can push for powerful change." Champions Weekend brings 10 patients on infused/injected therapies together to master policy advocacy and drive legislative change. Apps are LIVE zurl.co/RxE4v ✨ Find Your Voice. Become a Champion.
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Infusion Access Foundation @infusionaccessfoundation.org · 22/09/2026
For Julie, sitting down to tell her story wasn't easy — but it was celebratory. Champions Weekend makes space for the chance to say the hard, honest, real parts out loud — and have people actually understand. 💬 zurl.co/SglCB #PatientAdvocate #IAFChampion
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Infusion Access Foundation @infusionaccessfoundation.org · 22/09/2026
The newest edition of The Policy Infusion is hitting your inbox today! This month we've done a deep dive into why voting matters to patient communities! Read the full post here: zurl.co/Hp4DJ If you'd like to get The Policy Infusion sent right to your inbox you can sign up here: zurl.co/7sZxe
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Infusion Access Foundation @infusionaccessfoundation.org · 22/09/2026
Did we mention there are cows? Apply today! zurl.co/jrEZM
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Infusion Access Foundation @infusionaccessfoundation.org · 21/09/2026
Applications for our next Champions Weekend are closing in just a few weeks! If you’ve been on the fence about applying, you might be asking yourself if you’re the “right fit.” We want to clear up a few common myths. Applications are open until Sept 30th! Apply today: zurl.co/lNMAR
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Infusion Access Foundation @infusionaccessfoundation.org · 21/09/2026
"I've found my community." Champions Weekend brings together 10 patient leaders to learn policy, build lifelong connections, and drive real legislative change. Apps are LIVE through Sept 30! 👇 zurl.co/0w3NL ✨ Find Your Voice. Become a Champion.
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Infusion Access Foundation @infusionaccessfoundation.org · 20/09/2026
"I'm a bit reserved and shy." Coming to something like Champions Weekend feels intimidating at first but you don't have to feel ready to apply. You just have to be willing to show up. Apps on the 30th. Apply today zurl.co/cBThH #PatientAdvocate #ChronicIllnessCommunity #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 16/09/2026
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Infusion Access Foundation @infusionaccessfoundation.org · 16/09/2026
On paper, Jawan and the other Champions were all living with different conditions. In person? They found out just how much they actually have in common. Applications for Champions Weekend close on the 30th. 💬 Apply here: zurl.co/v33kN
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Infusion Access Foundation @infusionaccessfoundation.org · 16/09/2026
Your lived experience is the exact tool lawmakers need to fix a broken healthcare system. Champions Weekend teaches patients on infused & injected therapies to turn their story into legislative impact. Apply👉 zurl.co/0lDr1 ✨ Find Your Voice. Become a Champion.
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Infusion Access Foundation @infusionaccessfoundation.org · 08/09/2026
Why apply for Champions Weekend? 💡 Learn policy & legislative processes 🎥 Get professionally filmed 🤝 Join a 10-person national cohort ✈️ Travel, hotel, and meals covered 📣 Future Hill Days & speaking gigs Apply before Sept 30: zurl.co/zRQ8a
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Infusion Access Foundation @infusionaccessfoundation.org · 01/09/2026
Applications for Champions Weekend are officially LIVE! ⚡️ What's waiting for you: - Professional video storytelling - Legislative advocacy training - 10-person peer cohort ⏰ Deadline: September 30th. Submit your application now! 👉 zurl.co/wxeLk ✨ Find Your Voice. Become a Champion.
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Infusion Access Foundation @infusionaccessfoundation.org · 29/08/2026
Take it from our alumni: do NOT sleep on this. 🚨 Cohort sizes are strictly limited for maximum impact. If you're on an infused or injected therapy, be ready. Apps open Sept 1! 🗓️ ✨ Find Your Voice. Become a Champion.
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Infusion Access Foundation @infusionaccessfoundation.org · 28/08/2026
State reforms like Virginia’s protect some patients from harmful step therapy, but millions in federally regulated plans are left behind. Lupus advocate Racquel Dozier shares why we need the #SafeStepAct to protect ALL patients: zurl.co/F4v1l
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Infusion Access Foundation @infusionaccessfoundation.org · 27/08/2026
Good news for California patients: AB 539 and SB 964 have passed the Legislature! The bills would reduce repeated prior authorization requirements and give providers more flexibility to adjust treatment for patients with serious chronic conditions.
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Infusion Access Foundation @infusionaccessfoundation.org · 19/08/2026
A little throwback to when our Champions took Capitol Hill by storm! 🏛️✨ It’s been a couple of months, but the impact of those meetings is still felt today as health bills move forward. #InfusionAccessFoundation #HillDay #PatientAdvocacy #HealthPolicy
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Infusion Access Foundation @infusionaccessfoundation.org · 17/08/2026
There's still time to meet with your members of Congress before they return to Washington. Help make sure patient voices are part of the conversation by sharing your story. Learn more: zurl.co/YDfwD
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Infusion Access Foundation @infusionaccessfoundation.org · 12/08/2026
Patients shouldn’t face unnecessary financial barriers or red tape to get the care they need. CA bills SB 1199, SB 964 & AB 539 just cleared a major legislative hurdle, advancing protections around copay assistance and prior authorization. A win for patient access!
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Infusion Access Foundation @infusionaccessfoundation.org · 11/08/2026
Great healthcare policy starts with understanding the barriers patients face. IAF Board member Marissa Shackleton and Dr. Joshua Katz welcomed staff from Sen. Elizabeth Warren’s office to shine a light on access to infusion care. Ready to take action this summer? Start here: zurl.co/hv7bg
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Infusion Access Foundation @infusionaccessfoundation.org · 11/08/2026
Your story can help lawmakers understand what it's really like to navigate chronic illness and insurance barriers. There's still time to meet with your members of Congress while they're home for the summer. Start here: zurl.co/5Yak7
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Infusion Access Foundation @infusionaccessfoundation.org · 07/08/2026
This week, we joined more than 130 organizations at @Amgen's annual Advocacy Summit for meaningful conversations about the evolving advocacy landscape and how organizations can continue strengthening their impact. Thank you to Amgen for another successful Summit!
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Infusion Access Foundation @infusionaccessfoundation.org · 07/08/2026
A win for patients in Massachusetts: The House voted 158-0 to advance legislation that would protect patients from copay accumulator programs and help ensure copay assistance actually reduces their out-of-pocket costs. IAF urges lawmakers to keep these protections in the final bill!
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Infusion Access Foundation @infusionaccessfoundation.org · 03/08/2026
In the coming weeks, members of Congress will return home to meet with constituents—and your story can help shape healthcare policy. The Infusion Access Foundation's new Advocacy Summer Toolkit makes it easy to connect with your lawmakers: zurl.co/tlqa0
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Infusion Access Foundation @infusionaccessfoundation.org · 30/07/2026
Our latest Policy Infusion is LIVE! 🏛️✨ Get the quick breakdown on Congress's recent moves on prior auth, PBM oversight & price transparency. Plus, grab the our Congressional Advocacy Summer Toolkit to speak up in your home district 👉 zurl.co/rJeqS Get on the list 👉 zurl.co/qauTf
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Infusion Access Foundation @infusionaccessfoundation.org · 24/07/2026
We had an absolute blast at Toast in Vegas—and now we’re bringing the fun home to YOU! ✈️🎰 Our Post-Toast "Buy Now" Silent Auction is LIVE through next Tuesday! Grab trips, jewelry, sports gear & patient items while supporting the Infusion Access Foundation: zurl.co/d5Aax
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Infusion Access Foundation @infusionaccessfoundation.org · 22/07/2026
We’ve got some big news! 🎉 We are beyond honored to share that Infusion Access Foundation is a finalist for the Social Health Awards in the Best Team Category! Thank to the @Social Health Network!
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Infusion Access Foundation @infusionaccessfoundation.org · 01/07/2026
Last week, 8 Infusion Access Foundation patient Champions visited Capitol Hill to meet with their members of Congress and share a powerful message: streamline prior authorization, ban copay accumulators, fix step therapy, and rein in PBMs. Thank you, Champions!
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Infusion Access Foundation @infusionaccessfoundation.org · 30/06/2026
Great momentum for patient access! The same day Infusion Access Foundation advocates traveled to Capitol Hill to support the Improving Seniors' Timely Access to Care Act, the bill advanced out of subcommittee. Help keep it moving by joining our grassroots campaign! zurl.co/DompZ
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Infusion Access Foundation @infusionaccessfoundation.org · 25/06/2026
Diagnosed with lupus at 12, Nya beat insurance step therapy and severe systemic neglect. For Champions Weekend, she's sharing her journey to a major milestone: graduating med school to become a pediatric rheumatologist! 🩺 Watch: zurl.co/BvnZc #Lupus #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 24/06/2026
Our 2026 Champions are arriving in Washington, D.C. today, and we are so excited for Hill Day tomorrow! Together, we’ll share patient stories and advocate for policies that protect access to provider-administered treatments. #SafeStepAct #PBMAct #HELPCopaysAct #PAReform
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Infusion Access Foundation @infusionaccessfoundation.org · 23/06/2026
Dismissed by doctors because her tests were seronegative, Betty nearly died from a Myasthenic Crisis. Now stabilized on IVIG, she’s sharing her journey for Champions Weekend to fight for policy reform. Watch her story: zurl.co/hQnJB #MyastheniaGravis #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 22/06/2026
Misdiagnosed for decades due to the myth that gout only affects older men, Amy suffered permanent joint damage. Now, insurance paperwork delays leave her without her RA meds for weeks. Watch her run through the real cost of corporate step therapy: zurl.co/cbcLD #Gout #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 18/06/2026
For 32 years, doctors told Mahsa her severe pain was "just stress" because her bloodwork looked normal. It took relentless self-advocacy and demanding her own biopsy to finally diagnose her rare IgG4-Related Disease. Watch her powerful story: zurl.co/npgyk #RareDisease #PatientVoices
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Infusion Access Foundation @infusionaccessfoundation.org · 16/06/2026
Former ballet dancer Sarah went from running stairs to paralyzed weeks after her #MS diagnosis. 🧡 Now she’s an author & advocate fighting the step therapy delays that cause relapses. Watch her story: zurl.co/h260f #MSWarrior #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 15/06/2026
Thyroid Eye Disease has a strict, active window before vision loss becomes permanent. Yet Julie's insurer forced a 7 month delay in treatment, risking her eyesight. 🚫👁️ Watch her video on why medical decisions belong in the clinic: zurl.co/4MMYb #TEDAwareness #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 11/06/2026
Stasha waited 20 years for an RA diagnosis, losing her science career to insurance delays and forced "non-medical switching." 🚫💔 Watch her story on why we must give medical control back to doctors: zurl.co/h6bWE #ArthritisAwareness #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 09/06/2026
Sheldon's insurer called her IVIG treatment "not medically necessary," forcing her family to pay $60k out-of-pocket to keep her limbs from feeling "on fire." 🚫🔥 Watch her powerful video and help us fight prior auth abuse: zurl.co/f97Ug #InfusionAccessFoundation #Neuropathy
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Infusion Access Foundation @infusionaccessfoundation.org · 08/06/2026
It’s #VisionRehabilitationWeek, June 8-14. Spread the word with zurl.co/CrVL6 about life-changing programs for those living with blindness & low vision. Learn more zurl.co/fi90T. #blindness #lowVision @visionservea
Image of a child using specialized teaching tools. Text that reads ‘Vision Rehabilitation Week June 8-14, Vision Rehabilitation programs increase safety, confidence, & independence for people living with blindness and low vision!’ VisionServeAlliance.org/VRW
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Infusion Access Foundation @infusionaccessfoundation.org · 03/06/2026
We are beaming with pride to share our 2026 Champion videos! Hear the incredible, resilient stories of patient advocates fighting for access. Watch here: 🌐 On our website: zurl.co/pBAV7 🎥 On our YouTube Channel: zurl.co/8dpwf #PatientVoice #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 02/06/2026
After 9 years of misdiagnosis, D'Andre was diagnosed with HS alongside Crohn's. 💜 For #HSAwarenessWeek (June 1-7), she’s sharing her fight against predatory copay accumulators. 🏛️🚫 No one should choose between health & financial survival. #InfusionAccessFoundation #iafchampion zurl.co/EHPdd
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Infusion Access Foundation @infusionaccessfoundation.org · 01/06/2026
HS is a painful, heavily stigmatized condition. For #HSAwarenessWeek (June 1-7), watch Jawan’s video on his battle to get his biologic infusions approved. No one should have to fight their insurer for the care their doctor prescribed. zurl.co/RTcpc
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Infusion Access Foundation @infusionaccessfoundation.org · 30/05/2026
Sarah was a ballet dancer whose world stopped when #MS took her ability to walk. 🧡 Now she’s an author & advocate fighting the step therapy delays that cause relapses. 🏛️💪 Wellness isn't perfection; it’s presence. #WorldMSDay #InfusionAccessFoundation #iafchampion
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Infusion Access Foundation @infusionaccessfoundation.org · 26/05/2026
Lizzie went from sudden paralysis to swimming 2.7 miles across an alpine lake. 🏊‍♀️🏔️ Her #CIDP journey included insurance battles & vision loss from forced steroids. 🚫 Watch her "Mountain Goat" story & find our Guide to IVIG! 🏛️💪 #InfusionAccessFoundation #RareDisease #CIDPAwareness
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Infusion Access Foundation @infusionaccessfoundation.org · 26/05/2026
D'Andre spent 25 years navigating Crohn’s & HS. 💜 From losing 50lbs at age 12 to fighting predatory Copay Accumulators as a mom, she’s a warrior for access. 🏛️💪 #iafchampion #WorldIBDDay #InfusionAccessFoundation
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Infusion Access Foundation @infusionaccessfoundation.org · 26/05/2026
Stasha spent 20 years waiting for a diagnosis. By the time she got her Rheumatoid Arthritis answer, the insurance "fail-first" game had already cost her a career in science. Medicine works—but only if you can access it. #AiArthritisDay #iafchampion #ArthritisAwareness
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Infusion Access Foundation @infusionaccessfoundation.org · 26/05/2026
"Gout saved my life." Amy’s diagnosis led to catching her cancer early, but misdiagnosis cost her decades of pain. Now she’s an advocate fighting insurance hurdles like step therapy to keep patients in the chair. 🏛️💪 #GoutAwarenessDay #InfusionAccessFoundation #iafchampion
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