iiinova — where your digital self keeps evolving

Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 9h

New job klaxon. Sort of. We don’t actually have a klaxon. But we DO need a brilliant Operations Manager. Small charity. Big ambitions. Lovely team. Loads happening. Plenty of freedom to make things better. £37,500 | FT | Permanent | Remote Come and work with us? www.charityjob.co.uk/jobs/inflamm...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 29/09/2026

Hospital parking. Travel. Equipment. Changes around the home. The extra costs of living with GBS, CIDP, MMN or another Inflammatory Neuropathy can add up. Our Personal Grants may be able to help 🩷 🔗 www.inflammatoryneuropathies.uk/finance

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 26/09/2026

One week to go 🩷 Our AGM & Big Get Together is happening next Saturday, 3 October, in Bristol and online. Meet others in the community, hear from the team and our Medical Advisory Board, and help shape what comes next. 🔗 www.inflammatoryneuropathies.uk/agm-big-get-...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 25/09/2026

Lucy is doing a skydive tomorrow for IN UK 🪂 Both her mum & brother have been impacted by inflammatory neuropathies, making this a very personal challenge. She’s already smashed her fundraising target, but there’s still time to help push the total even higher! 🔗 www.justgiving.com/page/lucy-kn...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 24/09/2026

Our online CIDP Get Together is at 2pm today 🩷 Chat, ask questions, share experiences or just listen. 🔗 Join us here: us06web.zoom.us/j/9729393014...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 16/09/2026

Joshua is running the Loch Ness Marathon in memory of his mum, Shân, who passed away from GBS earlier this year. 🩷 He’s raising money to support our work with people impacted by Inflammatory Neuropathies, like GBS. www.justgiving.com/page/joshua-...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 08/09/2026

Tonight at 7pm🩷 Our online MMN Get Together is happening this evening on Zoom. Come along for a relaxed chat with others who understand. You’re welcome to join in, ask questions or simply listen. Join us here: us06web.zoom.us/j/8987749790...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 03/09/2026

Fancy taking on a half marathon in Glasgow for Inflammatory Neuropathies UK? 🏃 You’ll be helping us raise funds and awareness for people impacted by GBS, CIDP, MMN and other Inflammatory Neuropathies. 🩷 Interested? Email hello@inflammatoryneuropathies.uk

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 01/09/2026

Two years ago, Daniel was 17 and struggling to walk up a single step at Sixth Form. After several trips to A&E and his GP, he was eventually diagnosed with GBS. Now he’s taking on the Great North Run for us. 🩷 🩷 Support Daniel: www.justgiving.com/page/daniel-...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 28/08/2026

£10 can help us provide advice and information to someone trying to make sense of an unfamiliar diagnosis. It can mean clearer answers, support and a path forward. 🩷 Donate here: inflammatoryneuropathies.enthuse.com/cp/4fcea/fun...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 26/08/2026

Our Essex Get Together is back on Saturday 5th September. 🩷 Living with GBS, CIDP, MMN or another Inflammatory Neuropathy? Come along and meet people who understand. 📍 Christ Church Hall, Perry Street, Billericay, CM12 0NX 🕚 11:00 to 12:30 Please share with anyone nearby who might find it useful.

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 25/08/2026

For £20 a year, join our 200 Club and get a number in 12 monthly draws, with three cash prizes each month plus an annual Super Draw. 👀 Your membership also helps us support people impacted by Inflammatory Neuropathies. 🩷 Join: inflammatoryneuropathiesuk.beaconforms.com/form/9f7de0ae 18+. GB only.

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 22/08/2026

Fundraiser Spotlight 🩷 Inspired by his wife Helen and everything they’ve been through together, Barry is taking on the Great North Run and raising money for us. Support his fundraiser here: www.justgiving.com/page/barry-d...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 18/08/2026

If you’re living with #GBS, #CIDP, #MMN or another inflammatory neuropathy, or supporting someone who is, you don’t have to figure everything out on your own. Our team is here for information, support, or simply a friendly listening ear when you need one 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 17/08/2026

Our next online #GBS Get Together is this week on Thursday 20th August at 2pm. Join us on Zoom for a relaxed chat with others who understand. You can talk, ask questions or simply listen. Everyone is welcome 🩷 🔗 Find the Zoom link here: www.inflammatoryneuropathies.uk/get-togethers

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 17/08/2026

A little reminder for anyone who needs it today: you don’t have to figure everything out at once. And when you do need some help, information or someone who understands, we’re here. 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 15/08/2026

Wear your support for INUK 🩷 Our shop has badges, T-shirts and sports tops, with every purchase helping us support people impacted by inflammatory neuropathies. www.inflammatoryneuropathies.uk/shop

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 14/08/2026

Seven people joined our latest local Get Together, despite the heat! ☀️ For one new attendee, whose husband is currently in hospital with CIDP, connecting with others who understand offered some much-needed reassurance. 🩷 We hope to see the group together again soon 🥰

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 13/08/2026

IN community member Jane Anastasiades, who lives with CIDP, has written Whispered Recipes from Jane’s Larder, a collection of treasured recipes, memories and stories, with contributions from Sir Brian May and Peter Freestone. 💗 50% of sales support INUK. shorturl.at/vHxT0 Thank you, Jane! 🥰

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

Last chance: the PPTA Plasma Survey closes 14th August. If you use plasma-derived medicines, support someone who does, or work in healthcare, your input matters. Findings shared in International Plasma Awareness Week this October: t.e2ma.net/click/kaqsnl... 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

Got a question about GBS, CIDP or MMN? We're here to help, see our contact page for all the ways to get in touch: www.inflammatoryneuropathies.uk/contact-us 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

Not sure where to find specialist support for GBS, CIDP or MMN? Our Specialist Consultants map can help: www.inflammatoryneuropathies.uk/specialist-c... 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

Health Haven is a new all-in-one platform for GBS, CIDP and MMN patients - community, vetted neuro-physios, symptom tracking and resources. Founded by someone impacted by MMN. 🩷 healthhavenapp.com

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

Reminder: if you're living with CIDP and haven't completed the Neuroquali survey yet, there's still time! A few minutes of your input helps shape a clearer picture of how CIDP impacts daily life: neuroquali.sanoia.com?lang=en 🩷 #CIDP

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 12/08/2026

🏃 We have 4 places available for the Great Scottish Run Half Marathon in Glasgow on 4 October! Run 13.1 miles for #TeamINUK and help support people affected by inflammatory neuropathies. 💗 Interested? Email hello@inflammatoryneuropathies.uk #GreatScottishRun

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 11/08/2026

Tonight at 7pm 💗 Our online #MMN Get Together is happening on Zoom. Join us for a relaxed chat with others who understand. Talk, ask questions or simply listen. Join here: www.inflammatoryneuropathies.uk/get-togethers

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 10/08/2026

New here? 👋 We’re Inflammatory Neuropathies UK, supporting people impacted by #GBS, #CIDP, #MMN and other inflammatory neuropathies. Information, emotional support, grants, community, research and more. Whatever brought you here, welcome. 💗 Swipe through to meet us 👇

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 07/08/2026

Our next online MMN Get Together is on Tuesday 11 August at 7pm. Join us for a relaxed chat with others who understand. Talk, ask questions or simply listen. Zoom link: www.inflammatoryneuropathies.uk/get-togethers

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 03/08/2026

A new European white paper is putting Inflammatory Neuropathies in the spotlight: earlier diagnosis, better rehab, fairer treatment access, and listening to patients. We've been saying this for years. Our Chief Exec's take: inflammatoryneuropathies.uk/blogs 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 03/08/2026

🩷 Recovery from #GBS looks different for everyone. This blog explores some of the realities people don't always see. 📖 inflammatoryneuropathies.uk/post/living-with-guillain-barr%C3%A9-syndrome-gbs

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 03/08/2026

☕ Join us in Leeds for our Yorkshire Get Together next Saturday (8th August). Meet at Holy Trinity Community Hall, from 1-3pm. Come along for coffee, conversation and community. 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 31/07/2026

📢 Better neurological care starts with all of us. Support the Neuro Letter campaign. 🔗 campaigns.mssociety.org.uk/page/194554/...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 30/07/2026

Unexpected costs happen. Our Personal Grants programme offers practical support for eligible members. 🔗 www.inflammatoryneuropathies.uk/finance

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 29/07/2026

🧠 Myth: CIDP only affects muscle strength. ✅ Fact: It can also affect fatigue, pain, sensation and balance. 🔗 inflammatoryneuropathies.uk/cidp

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 28/07/2026

Appointments don't have to feel overwhelming. Advoca helps keep your symptoms, medications and questions together. Free app, available at advocahealth.com

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 27/07/2026

Small badge. Big impact. 🩷 Help raise awareness of Inflammatory Neuropathies wherever you go. 🔗 inflammatoryneuropathies.uk/product-page/inflammatory-neuropathies-uk-badge

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 27/07/2026

New blog 📖 We've looked at the interim findings from the Government's welfare review and what they may mean for our community. 🔗 www.inflammatoryneuropathies.uk/blogs

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 24/07/2026

Good luck Dan! 🩷 Taking on Yorkshire Tough Mudder on Saturday for Inflammatory Neuropathies UK

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 24/07/2026

The Kiltwalk is back! 🥾 Registration is now open. Walk for Inflammatory Neuropathies UK 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 23/07/2026

CIDP Get Together this afternoon. 🩷 Come along for a friendly chat with others who understand.

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 22/07/2026

Huge thanks to Ali Stoneham for fundraising for Hope for POEMS 🩷 Please support if you can: www.justgiving.com/page/alison-...

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 21/07/2026

Missed Saturday's newsletter? Sign up here and never miss another edition 🩷 inflammatoryneuropathiesuk.beaconforms.com/form/87ba6f8d

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 20/07/2026

Living with CIDP doesn't have to mean facing it alone. 🩷 Join our online CIDP Get Together this Thursday and meet others who understand. #CIDP

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 20/07/2026

Tired of negative headlines? Our latest blog is all about the power of community and why connection matters. Take a read today: inflammatoryneuropathies.uk/blogs 🩷

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 20/07/2026

Every online shop could help support Inflammatory Neuropathies UK 🩷 We've already raised £47.91 through easyfundraising this month. Sign up today and help us raise even more - at no extra cost to you.

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 20/07/2026

The July edition of IN Brief is out now! 🩷 Read about our spotlight on fatigue, updates from our Chief Executive, our Christmas Card Competition and the latest news from Inflammatory Neuropathies UK. Read it here: inflammatoryneuropathies.uk/newsletters

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 17/07/2026

IN Conversation starts today at 12pm! Join us as we discuss Immunoglobulin (Ig) therapy, including IVIg and SCI - sharing experiences, discussing treatment and exploring the issues that matter to our community. 🩷 Join here: www.facebook.com/groups/72740... #IVIg #SCIg #InflammatoryNeuropathies

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 15/07/2026

A huge thank you to Bobby for fundraising for Inflammatory Neuropathies UK. Read more about Bobby's story here: www.justgiving.com/page/bobs-vs-poems #Fundraising #CommunitySupport #POEMS

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Inflammatory Neuropathies UK @inflamneurouk.bsky.social · 14/07/2026

📢 Reminder! Our MMN Get Together starts tonight at 7pm. Come and connect with others who understand life with MMN. Head to www.inflammatoryneuropathies.uk/get-togethers and click the third pink link to join us!

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