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Immune Deficiency Foundation

@immunedeficiency.bsky.social
149 followers 2 following 31 posts

The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.

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Immune Deficiency Foundation @immunedeficiency.bsky.social · 18/09/2026
People who are immunocompromised deserve to be able to move within their communities, including going to work and attending public school, without fear of infection. . Read our full statement: bit.ly/3UPrDRG
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 15/09/2026
Thank you to Rep. John Joyce for opening the Immunocompromised Collaborative's briefing today and supporting H.R.8425 to strengthen access to childhood vaccines. High vaccination rates protect the 1 in 5 Americans who are immunocompromised, like panelist Bridget Collins.
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 14/09/2026
September is Newborn Screening Awareness Month! #Newbornscreening is an essential #publichealth service that screens babies for serious but treatable medical conditions. #2026NBS
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 03/09/2026
Check out CDC's health advisory about the risk of severe neurological disease and death from arboviruses in people being treated with B cell-targeted therapies: bit.ly/4zIoenq. #WestNileVirus #CART #BloodCancer #Autoimmune
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 27/08/2026
Our 2025 Annual Report is here. 34,034 patients served. 227 legislative meetings. 600 active volunteers — a community that showed up again and again for people living with PI. The full story (& the people behind the numbers) → bit.ly/4zB0y4i
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 23/07/2026
⏰ Sept 14 deadline: the Immune Deficiency Foundation's 2026 #ResearchGrant is open. We're awarding $25K–$50K to support primary immunodeficiency research. Open to U.S.-based academic researchers. Med/grad students welcome with mentor support. Apply and learn more → bit.ly/4ylolEV
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 30/06/2026
The Immune Deficiency Foundation's 2026 National Conference is a wrap! Is it 2028, yet?
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 28/06/2026
San Antonio, thank you. 🤠💙 Mosaic 2026 is a wrap—and every piece added strength. We'll see you at the next one. 👀
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 26/06/2026
Educational sessions at Moasic 2026 reflect the complexity of primary immunodeficiency—covering SCIG/IVIG, GI health, CVID genetics, insurance navigation, and care transitions, led by top clinicians. Proud to meet our community where they are. #Mosaic2026 #PrimaryImmunodeficiency
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 26/06/2026
The 2026 Immune Deficiency Foundation National Conference officially kicked off in San Antonio, TX. Our community came together for the Welcome Reception this evening. We're proud to be surrounded by patients, caregivers, clinicians, and advocates who make this community strong. #ImmuneDeficiency 💪
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 24/06/2026
We're in San Antonio for the 2026 National Conference and will be out of the office Thursday, June 25, and Friday, June 26! We'll return on Monday, June 29th!
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 08/05/2026
In an op-ed for Real Clear Health, medical director Dr. Maria Paula Henao wrote about the serious consequences of vaccine policy disruption for immunocompromised Americans. Read it here: bit.ly/4ndReh4
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 01/05/2026
Advocacy Day was a smashing success! Thank you to Representatives Moore, Massie, Hernández, Carter, and Knott for taking the time to meet our advocates personally.
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 30/04/2026
Just a few highlights from the 110+ meetings we had today. Thank you to all our advocates and all of the offices we met with! If you haven't done it yet, you can still add your voice by sending an Action Alert: bit.ly/4ef3D1U.
Jessica and 4-year-old Luca in front of the Capitol dome.President and CEO Jorey Berry and Medical Director Paula Henao pose with Ironmouse!A young member of the PI community shares her story with a staffer from Sen. Bill Cassidy's office.PI community members discuss the importance of widespread vaccination with a staffer from Sen. Warnock's office.
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Immune Deficiency Foundation @immunedeficiency.bsky.social · 30/04/2026
We’re on Capitol Hill today representing the #PICommunity! Help us advocate for vaccine access and H.R. 8538, the PI Post Acute Care Act: www.votervoice.net/IDF/Campaign...
Volunteers pose in front of the U.S. Capitol.
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