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International Myeloma Foundation

@imfmyeloma.bsky.social
834 followers 568 following 803 posts

Let’s face multiple myeloma together. We’re here with support, resources, and community.  #myeloma #mmsm myeloma.org

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International Myeloma Foundation @imfmyeloma.bsky.social · 05/10/2026
Las Voces de Mieloma (Spanish/Virtual) Support Group – 11/17 Invitada Especial: Stefania Mancia, APRN Regístrese en lasvoces.support.myeloma.org Para cualquier pregunta, envíe un correo electrónico a lasvoces@imfsupport.org
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International Myeloma Foundation @imfmyeloma.bsky.social · 04/10/2026
Join us in #Phoenix on November 14 for a FREE IMF myeloma workshop. Ask experts your questions, learn about myeloma care, and connect with others in your community. Register today: mmsm.link/4wwEpms
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International Myeloma Foundation @imfmyeloma.bsky.social · 01/10/2026
Las Voces de Mieloma (Spanish/Virtual) Support Group – 10/20 Orador invitado: Dr. Mauricio Villegas Fortuny Regístrese en lasvoces.support.myeloma.org Para cualquier pregunta, envíe un correo electrónico a lasvoces@imfsupport.org
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International Myeloma Foundation @imfmyeloma.bsky.social · 01/10/2026
Join us in #SanDiego on October 24 for a FREE myeloma workshop. Ask experts your questions, learn about myeloma care, and connect with others in your community. Register today at mmsm.link/4tbRFKj
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International Myeloma Foundation @imfmyeloma.bsky.social · 01/10/2026
Blood Cancer Awareness Month is a wrap! Thank you for sharing your myeloma stories online to raise awareness. This disease is now more well known, thanks to you. ❤️ #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 30/09/2026
September is #BloodCancerAwarenessMonth. Myeloma is a blood cancer, but it's not one most people know. The more it's understood, the more lives can be saved. Protect yourself from delayed diagnosis. Learn more at knowmyeloma.org #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 30/09/2026
Health equity starts with access. African Americans make up about 20% of myeloma patients, but only 8% of clinical trial participants. Let’s close this gap together. Find a clinical trial tailored to you at myeloma.org/sparkcures #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 29/09/2026
Not all blood cancers look alike. #Leukemia and #myeloma can have different signs and symptoms. Knowing what to look for can help you know when to talk with your doctor. Learn more at knowmyeloma.org. #KnowMyeloma Thank you to GSK for helping us share the differences.
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International Myeloma Foundation @imfmyeloma.bsky.social · 29/09/2026
We're LIVE today at 7pm ET with myeloma specialist Dr. Douglas Sborov! Get ready to ask him all your myeloma questions as we close out #BloodCancerAwarenessMonth. Click "Going" on Facebook & turn on notifications to RSVP: www.facebook.com/events/13887781232… #KnowMyeloma #mmsm
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International Myeloma Foundation @imfmyeloma.bsky.social · 28/09/2026
Myeloma is a blood cancer, but it’s not one most people are aware of. Knowing the signs can help reduce delays in diagnosis and alert people to talk with their doctor. Learn more at knowmyeloma.org. #KnowMyeloma Thank you to The Binding Site for helping us share the facts.
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International Myeloma Foundation @imfmyeloma.bsky.social · 28/09/2026
Join us Tuesday! Dr. Douglas Sborov joins the IMF live on Sept. 29 at 4pm PT/7pm ET for a #KnowMyeloma Q&A on treatment advances & navigating myeloma. Bring your questions! Click "Going" on Facebook and turn on notifications to RSVP: www.facebook.com/events/13887781232…
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International Myeloma Foundation @imfmyeloma.bsky.social · 27/09/2026
September is #BloodCancerAwarenessMonth! Myeloma is highly treatable, and research keeps opening new doors. The sooner it's caught, the more options you have. Protect yourself — know the signs. Visit knowmyeloma.org to learn more. #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 26/09/2026
Behind every number on this chart is a person, a story, a diagnosis day they remember clearly. If myeloma has touched your life, share how old you were when you found out. Your story matters as much as the stats. #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 25/09/2026
“Every story matters,” shared myeloma patient Valarie Traynham. “If sharing mine helps even one person feel seen, supported, or empowered to speak up, that’s why I keep going.” #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 25/09/2026
Routine blood work can catch a lot, but myeloma needs a closer look. If you're dealing with bone pain, fatigue, or frequent infections that won't let up, talk to your doctor. It could be nothing, or it could be myeloma. Isn't it worth knowing? knowmyeloma.org #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 24/09/2026
Today is KnowMyeloma Day. Every day, thousands of families face multiple myeloma and other blood cancers. Earlier detection, better treatments, and stronger support start with awareness. #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 24/09/2026
Today is KnowMyeloma Day. On the last Thursday of Blood Cancer Awareness Month, we shine a spotlight on myeloma. Tell us: What does knowing myeloma mean to you? #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 23/09/2026
Everyone’s path to knowing myeloma looks different. A diagnosis, a doctor’s appointment with someone else, an article you stumbled on. How did myeloma first show up for you? #KnowMyeloma Thank you to Bristol Myers Squibb for supporting myeloma awareness during #BloodCancerAwarenessMonth.
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International Myeloma Foundation @imfmyeloma.bsky.social · 23/09/2026
Mark your calendars! Dr. Douglas Sborov joins the IMF live on Tues., Sept. 29 at 4pm PT/7pm ET for a #KnowMyeloma Q&A on treatment advances & navigating myeloma. Bring your questions! Click "Going" on Facebook and turn on notifications to RSVP: www.facebook.com/events/13887781232…
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International Myeloma Foundation @imfmyeloma.bsky.social · 23/09/2026
Every 15 minutes, someone in the U.S. hears the words “you have myeloma” for the first time. No one should face that moment alone. Find free support near you or online at support.myeloma.org It's #BloodCancerAwarenessMonth #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 22/09/2026
How can older myeloma patients decide what treatment is still worth pursuing? IMF NLB member Sam Shenoy answers and points to the IMF's free Decision-Making Tool at myeloma.org. #AsktheIMF #KnowMyeloma #mmsm
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International Myeloma Foundation @imfmyeloma.bsky.social · 22/09/2026
Terry, a myeloma patient, is holding on to hope — and the progress backs her up. #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 22/09/2026
Back pain that lingers. Fatigue that doesn't add up. These don’t always mean “just getting older” — they could be signs of myeloma. If something feels off, bring up myeloma to your doctor. #KnowMyeloma. Visit knowmyeloma.org
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International Myeloma Foundation @imfmyeloma.bsky.social · 21/09/2026
Mark your calendars! Dr. Douglas Sborov joins the IMF live on Tues., Sept. 29 at 4pm PT/7pm ET for a #KnowMyeloma Q&A on treatment advances & navigating myeloma. Bring your questions! Click "Going" on Facebook and turn on notifications to RSVP: www.facebook.com/events/13887781232…
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International Myeloma Foundation @imfmyeloma.bsky.social · 21/09/2026
Myeloma can be hard to navigate. Who helps you get through it? Everyone deserves care and community while managing this disease. To find support near you or online, visit support.myeloma.org #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 21/09/2026
Health equity matters. Myeloma is one of the most disparate cancers, with African Americans often facing delayed diagnosis. Find out how the IMF works toward equity in care at mpower.myeloma.org #KnowMyeloma #IMFMPOWER
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International Myeloma Foundation @imfmyeloma.bsky.social · 21/09/2026
Myeloma research changes fast. New studies reveal breakthroughs we’ve never seen before. Help fund myeloma research now at fundraise.myeloma.org/campaign/7608… #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 20/09/2026
It’s #BloodCancerAwarenessMonth. Help more people know myeloma. Tell us: How did you learn about this disease? #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 20/09/2026
36,000 people. That's how many will hear “you have myeloma” this year — and many for the first time, with no idea what it is. Awareness changes that. Get the facts at knowmyeloma.org
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International Myeloma Foundation @imfmyeloma.bsky.social · 19/09/2026
#SanDiego, will we see you on October 24? Join the IMF for a FREE workshop featuring expert insights, community connection, and helpful resources. Reserve your spot today: mmsm.link/4tbRFKj
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International Myeloma Foundation @imfmyeloma.bsky.social · 19/09/2026
As a care partner of 17 years, Sally knows cancer affects the whole family. ❓ Has your family experienced this impact as well? We'd love to hear your story. 👇 #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 18/09/2026
As a care partner of 17 years, Sally knows cancer affects the whole family. #KnowMyeloma Have you felt the impact on your family too?
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International Myeloma Foundation @imfmyeloma.bsky.social · 18/09/2026
Mark your calendars! Dr. Douglas Sborov joins IMF live on Tues., Sept. 29 at 4pm PT/7pm ET for a #KnowMyeloma Q&A on treatment advances & navigating myeloma. Bring your questions! Click "Going" on Facebook and turn on notifications to RSVP: www.facebook.com/events/13887781232…
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International Myeloma Foundation @imfmyeloma.bsky.social · 17/09/2026
Hip-hop meets health equity: you won't want to miss this free event on 9/19 in #Atlanta! Come for live conversations with patients, care partners, & myeloma experts, plus a live DJ, food, vendors, and connections with the community. healthhopehiphop.org/mic-check-myel… #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 17/09/2026
Delays in diagnosis. Fewer specialist referrals. Less access to clinical trials. These are the realities many Black myeloma patients face. Learn how IMF combats health disparities at mpower.myeloma.org #KnowMyeloma #IMFMPOWER
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International Myeloma Foundation @imfmyeloma.bsky.social · 17/09/2026
Join the IMF in Short Hills, NJ, on Oct. 2-3 for our Patient & Family Seminar. Connect with leading myeloma experts, get your questions answered, and build community with others who understand. Free to attend, but seats are limited. Register today: mmsm.link/42DTvsi
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International Myeloma Foundation @imfmyeloma.bsky.social · 16/09/2026
By 2034, 1 in 4 people diagnosed with myeloma will be African American. Knowing the early signs can be the key to timely diagnosis. Learn the symptoms to look for at knowmyeloma.org #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 16/09/2026
It's #BloodCancerAwarenessMonth! No one piece of evidence can uncover myeloma. Doctors look at abnormal blood tests, lab numbers, imaging scans, and other specialty tests to diagnose it. Tell us: How did you or your team figure out you had myeloma? #KnowMyeloma #mmsm
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International Myeloma Foundation @imfmyeloma.bsky.social · 16/09/2026
You may already know myeloma. Help your loved ones know it, too. Myeloma is the second most common blood cancer. Do you remember when you first heard of it? Thank you to Bristol Myers Squibb for helping the world #KnowMyeloma.
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International Myeloma Foundation @imfmyeloma.bsky.social · 15/09/2026
The IMF submitted a statement for the record supporting H.R. 4101, the Cancer Drug Parity Act, for today's House Oversight Subcommittee hearing on the cost of oral cancer treatments. More than a decade of advocacy led to this moment. Thank you, IMF advocates. #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 15/09/2026
By 2034, 1 in 4 people diagnosed with myeloma will be African American. Knowing the early signs can be the key to timely diagnosis. Learn the symptoms to look for at knowmyeloma.org #BloodCancerAwarenessMonth #mmsm #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 15/09/2026
Jonathan Gluck was once told he might have 18 months to live. Instead, he was there to watch his kids graduate college. Myeloma research helped make that possible. Help people like Jon have more time. Support myeloma research today: mmsm.link/4y1pZun #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 14/09/2026
#BloodCancerAwarenessMonth is halfway through, and we need you to keep sharing to help more people #KnowMyeloma. What aspect of myeloma has impacted you most? #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 14/09/2026
MGUS typically has no symptoms, but it can progress to myeloma. If you have MGUS, regular monitoring matters. So does knowing the signs of active myeloma. Learn what to look for at knowmyeloma.org. #KnowMyeloma Thanks to The Binding Site for helping us share the signs.
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International Myeloma Foundation @imfmyeloma.bsky.social · 14/09/2026
In Iceland, we tested our limits—and found each other. Together, riders and supporters raised $1.5M for research to help prevent and cure myeloma. We started with a shared purpose and finished with a shared vision: a world without myeloma. #MyelomaIceland
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International Myeloma Foundation @imfmyeloma.bsky.social · 14/09/2026
Delays in diagnosis. Fewer specialist referrals. Less access to clinical trials. These are the realities many Black myeloma patients face. Learn how IMF combats health disparities at mpower.myeloma.org #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 14/09/2026
How did you discover you have myeloma? Were there early warning signs that were missed along the way? Share with us to help someone else get answers. #KnowMyeloma Thank you to Adaptive Biotechnologies for helping us spread the word about myeloma.
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International Myeloma Foundation @imfmyeloma.bsky.social · 12/09/2026
It's #BloodCancerAwarenessMonth! Many don't know myeloma, but for hundreds of thousands of people, it changes everything. How has myeloma impacted your life? #KnowMyeloma
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International Myeloma Foundation @imfmyeloma.bsky.social · 12/09/2026
Blood cancer changes more than just your health. It can change how you see everything. How have you changed since your diagnosis? We want to hear your story. #KnowMyeloma #BloodCancerAwarenessMonth
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International Myeloma Foundation @imfmyeloma.bsky.social · 11/09/2026
Join us live on Tues., Sept. 29 at 4pm PT/7pm ET for a #KnowMyeloma Q&A with myeloma expert Dr. Douglas Sborov of Huntsman Cancer Institute. He'll cover treatment advances, patient care, & more. Bring your questions! RSVP & turn on notifications at www.facebook.com/events/13887781232…
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