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International Children's Palliative Care Network

@icpcn.bsky.social
23 followers 54 following 70 posts

The International Children’s Palliative Care Network (ICPCN) is a global organisation working to improve access to palliative care for the more than 21 million children worldwide who need it.

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International Children's Palliative Care Network @icpcn.bsky.social · 01/10/2026
Research is stronger when we work together. 🔬 Looking for a mentor, collaborator or research expertise? Discover researchers and research groups working across children's palliative care through the ICPCN Research Hub. Explore: research.icpcn.org #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 01/10/2026
🎩 8 DAYS TO GO until #HatsOn4CPC! Get your hat ready and join us at home, work, school or in your community. 🎩 Find your hat 📸 Share your photo/video 👟 Join #MilesforMillions 📣 Help #CloseTheGap4CPC 📅 Friday 9 October — what hat will you wear? icpcn.org/hatson4cpc #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 29/09/2026
🎩 Let’s pass the hat around the world! 🌍 Join our global #HatsOn4CPC community in ‘Pass the Hat’! Film yourself passing a hat out of frame, then challenge someone to catch it and pass it on. One hat. One global movement. Who will you pass it to? 🎩
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International Children's Palliative Care Network @icpcn.bsky.social · 24/09/2026
🎩 Behind every hat is a story! 🔸Behind a nurse’s hat is someone who believes every child deserves comfort & dignity. 🔸Behind a parent’s hat is someone who knows how important support is. What’s behind your hat? Download the toolkit: icpcn.org/resources/hatson4cpc-reso… #HatsOn4CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 23/09/2026
It takes a community to build a hub.💚🌍 Thank you to our Design Committee, Advisory Group, TRENDS, Phillip Snook EXPD and everyone who shared their expertise, time and ideas. This hub belongs to the CPC research community. 🔗 research.icpcn.org #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 23/09/2026
🌍 Today we launch the ICPCN Research Hub! 🎉 A new global space for connection, collaboration & innovation in children’s palliative care research. 🎤 Join our first Research Hub webinar: 📅 13 October | 🕠 17:30–19:00 GMT Register: bit.ly/4r8Dp5H #ICPCN #ResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 23/09/2026
🎉 THE ICPCN RESEARCH HUB IS LIVE! Find research, researchers, publications and practical resources. Watch expert talks and connect with the research community. Explore the Hub: research.icpcn.org #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 22/09/2026
Tomorrow. 🔬🌍 The ICPCN Research Hub launches. A new global space to find the research, the researchers, and the way forward. 23 September | 12:00pm GMT See you tomorrow! #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 21/09/2026
Just 2 days to go! 👀🔬 The ICPCN Research Hub brings together research, researchers, resources and opportunities to connect and collaborate in children's palliative care. 23 September | 12:00pm GMT #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 18/09/2026
💚 Making transition the norm, not the exception. At the Hospice UK Transition Conference in Manchester, we explored how to make better transitions, from children’s to adult palliative care, possible. Read more: bit.ly/46nDdWF #ChildrensPalliativeCare #Transition #ICPCN
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Making transition the norm, not the exception - ICPCN Website
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International Children's Palliative Care Network @icpcn.bsky.social · 18/09/2026
🎩 Could your workplace take on #HatsOn4CPC? You could: 🎩 Host a hat day 📸 Take a team photo 🎨 Run a decorate-a-hat competition ☕ Organise a fundraising coffee morning 👟 Take on a #MilesforMillions team challenge 📱 Create your own #HatsOn4CPC Reel. ow.ly/lsh450ZNcYF
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International Children's Palliative Care Network @icpcn.bsky.social · 17/09/2026
Who is the Research Hub for? 🌍🔬 Researchers, clinicians, students, educators, organisations — and anyone interested in children's palliative care. Building the evidence base requires all of us. 23 September | 12:00pm GMT — 6 days to go! #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 16/09/2026
💬 Our latest article explores the important topic of communication and the upgrade to our course, helping professionals strengthen their communication knowledge and skills. 👉 bit.ly/4yEDe4r 👉Explore the upgrade course: bit.ly/4y3OFD4 #ChildrensPalliativeCare #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 16/09/2026
🌍 What does your hat stand for? This October, #HatsOn4CPC joins the call to #ClosetheGap: Palliative Care for Children, Everywhere. 🎩 Stand with children & families worldwide. What hat will you wear? icpcn.org/close-the-gap #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 15/09/2026
8 days to go! 👀 Improving children's palliative care globally means asking questions, generating evidence and learning from one another. The ICPCN Research Hub brings research, researchers and resources together. 23 September | 12:00pm GMT #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 14/09/2026
👟🎩 This October, don’t just wear a hat — go the distance! As part of #HatsOn4CPC, you can take part in #MilesforMillions and turn your miles into action for #Children’sPalliativeCare! Every mile helps transform lives. So grab your hat, choose your challenge & get moving. miles.icpcn.org
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International Children's Palliative Care Network @icpcn.bsky.social · 14/09/2026
📣 There’s still time to join us for our September webinar! The Empty Chair: The conversations we avoid, the words we don’t say. 📅 Thursday 17 September ⏰ 4:00pm UTC 👉 Don’t miss this important conversation — register today: bit.ly/3UE6yJM #ICPCN #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 11/09/2026
ICPCN’s Education Manager, Alex Daniels, is in Pretoria attending the Hamba Nawe Paediatric Palliative Care Conference, where she’ll be speaking across both days. Will you be joining her? More information can be found here: www.up.ac.za/cf-hambanawe-paedpalca… #ICPCN #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 11/09/2026
📑 Millions of children could benefit from palliative care, yet access remains unequal. Research helps us understand gaps, identify what works and develop solutions for different contexts. What if finding that research was easier? 📣23 September | 12:00pm GMT #ICPCNResearchHub
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International Children's Palliative Care Network @icpcn.bsky.social · 09/09/2026
We’re here at the first ever Hospice UK transition conference in Manchester. We’re looking forward to meeting colleagues from across children’s and adult hospices, and focussing on how we can make high-quality transition a reality for more young people. #Hospicetransition #ICPCN #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 08/09/2026
🎩 Everything you need to get involved in #HatsOn4CPC is here! Plan a hat day, organise an activity or fundraise. Our 2026 toolkit has everything you need to get started! Get ready for Friday 9 October! icpcn.org/hatson4cpc #ICPCN #ClosetheGap #ChildrensPalliativeCare
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International Children's Palliative Care Network @icpcn.bsky.social · 07/09/2026
📣 Join our September webinar: “The Empty Chair: The conversations we avoid, the words we don’t say.” 🗣️ Dr Maria Adelaide Cordoba-Nunez & 🗣️Gaby Garcia Duran 📅 17 Sept ⏰ 4pm UTC 👉 Register: bit.ly/3UE6yJM #Webinar #ICPCN #ChildrensPalliativeCare
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International Children's Palliative Care Network @icpcn.bsky.social · 04/09/2026
Something’s coming to the world of #ChildrensPalliativeCare research! 👀🔬🌍 📍 A place to find research 📍 A place to connect with researchers 📍 A place to learn & collaborate The ICPCN Research Hub launches Wed 23 Sept at 12:00pm GMT. Save the date! #ICPCNResearchHub #Research
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International Children's Palliative Care Network @icpcn.bsky.social · 03/09/2026
🎩 Why wear hats every October? Every second Friday of October, people worldwide put on their favorite hats for #HatsOn4CPC to raise awareness and help #ClosetheGap for children needing palliative care. Join the global movement on Fri 9 Oct! Get info & resources: icpcn.org/hatson4cpc
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International Children's Palliative Care Network @icpcn.bsky.social · 02/09/2026
Dr Maria Liza Naranjo closed the morning session, bringing together reflections on home-based palliative care and setting the scene for an afternoon focused on building the workforce and systems needed to deliver care where life happens. #PalliativeCare #ClosetheGap
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International Children's Palliative Care Network @icpcn.bsky.social · 02/09/2026
Great to be in Manila for a workshop on “Care Where Life Happens.” We’re exploring home-based palliative care, the realities of care in the Philippines, and how we can #ClosetheGap so every child can access palliative care, wherever they live.💚 #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 31/08/2026
🎩 #HatsOn4CPC 2026 is live! This October, help us #ClosetheGap and ensure every child can access palliative care. Choose your hat, raise your voice & join us! 🌍🧡 Get the toolkit: icpcn.org/hatson4cpc #ChildrensPalliativeCare #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 27/08/2026
📢Pleased to share the 1st International Online Conference on Children’s Health (IOCCH 2026) is now open for abstracts. Online, 17–19 Nov 2026. 📅 Deadline: 6 Sept Submit abstract: auth.mdpi.com/login Register here: sciforum.net/event/IOCCH2026/regist… #IOCCH2026
sciforum.net
Registration
Make registration easy and fast.
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International Children's Palliative Care Network @icpcn.bsky.social · 24/08/2026
More than 21 million children worldwide need palliative care, but millions are left without pain relief or support. It’s time to #ClosetheGap 🧡 Learn how we are fighting for global health equity: 👉 icpcn.org/close-the-gap #ChildrensPalliativeCare #GlobalHealth
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International Children's Palliative Care Network @icpcn.bsky.social · 20/08/2026
📣🔧 Important notice: Our Education & Membership Hub will be offline for scheduled maintenance on Friday 21 August, 4am–1pm BST. We’re making improvements to provide a smoother learning experience. Thanks for your patience — we’ll be back soon!
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International Children's Palliative Care Network @icpcn.bsky.social · 18/08/2026
📣 Don’t miss our August webinar: Community-Based Models of Palliative Care! 📅 20 Aug | ⏰ 1 PM BST Hear from experts in India & Uganda. 👉 Register: bit.ly/4hxa41O #ICPCN #PalliativeCare #Webinar
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International Children's Palliative Care Network @icpcn.bsky.social · 06/08/2026
💻August Webinar: Community Based Paediatric Palliative Care Services Hear insights from speakers Prof. Gayatri Palat (India) & Roselight Katusabe (Uganda) 🌍 📅 20 Aug 2026 | 1:00 PM BST 👉 Register today: bit.ly/4hxa41O #PaediatricPalliativeCare #ICPCN #Webinar
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International Children's Palliative Care Network @icpcn.bsky.social · 05/08/2026
⏳ LAST CALL! We have 3 charity places left for the Vitality London 10,000 on 27 Sept! 👑 Run the iconic route, finish at Buckingham Palace & raise £250+ for global children’s palliative care 🌍 Have your own place? Log miles on our app! 📩 Email fundraising@icpcn.org to join!
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International Children's Palliative Care Network @icpcn.bsky.social · 03/08/2026
How can collaboration strengthen CPC in West Africa? Read how education, partnerships & local leadership are building sustainable CPC services across the region. Read more: bit.ly/4pVDIQG #chilpalghana #ChildrensPalliativeCare #WestAfrica #ICPCN #WorldChildCancer
icpcn.org
Strengthening CPC in West Africa: A Collaborative Journey - ICPCN Website
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International Children's Palliative Care Network @icpcn.bsky.social · 31/07/2026
🐾 Our Chief Executive, Professor Julia Downing, has been enjoying the colourful #ScottiesInTheCity trail in Glasgow, created by Wild In Art (Charlie Langhorne) in support of Maggies. We're also grateful to Wild in Art for their ongoing support of ICPCN. #ScottiesInTheCity #WildInArt #CPC #ICPCN
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International Children's Palliative Care Network @icpcn.bsky.social · 27/07/2026
📢 Save the Date: The first Hamba Nawe Paediatric Palliative Care Conference The Hamba Nawe Initiative, in partnership with the University of Pretoria, presents its 1st PPC conference. 📅 11 & 21 September 2026 More details: www.up.ac.za/cf-hambanawe-paedpalca… #PaediatricPalliativeCare
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Reposted by International Children's Palliative Care Network
Rick Bauer (he/him/él) @nvrflycoach.bsky.social · 13/07/2026
@icpcn.bsky.social held its 4th international conference in Manila, Philippines in partnership with The Ruth Foundation. The conference, 'Milestones & Horizons,' marked ICPCN's 20th anniversary and convened 419 delegates from 49 countries. pubmed.ncbi.nlm.nih.gov/42428823/
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International Children's Palliative Care Network @icpcn.bsky.social · 24/07/2026
🌍 Joint Statement on WHO Global Status Report on Cancer 2026 ICN, ISNCC & ICPCN welcome report's message: investing in & protecting the nursing & health workforce is essential to improve cancer care. Read more: bit.ly/4bamjgY #PalliativeCare #CancerCare #HealthWorkforce
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International Children's Palliative Care Network @icpcn.bsky.social · 21/07/2026
🌍 If you haven't yet explored Compassion in Action: Transforming the Lives of Children & Families, registration is now open for our free two-part learning programme. Part 1: www.elearnicpcn.org/course/view.php… Part 2: www.elearnicpcn.org/course/view.php… #ICPCN #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 17/07/2026
🌍 Stay connected with the latest news from the ICPCN network! Discover stories, updates, resources and achievements from our global community. Read the latest news: icpcn.org/news #ICPCN #ChildrensPalliativeCare #PalliativeCare
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International Children's Palliative Care Network @icpcn.bsky.social · 14/07/2026
🌍 #ClosetheGap: Palliative Care for Children, Everywhere has launched! The campaign calls for urgent action to ensure every child who needs palliative care can access it. Read more: bit.ly/4ybR3Yz #CPC #ICPCN #WHO #StJude
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International Children's Palliative Care Network @icpcn.bsky.social · 13/07/2026
📢 Save the Date! 36th EPEC-Pediatrics Europe Trainer Conference in Rome (24–27 October 2026), alongside the 7th Maruzza International Congress on PPC. Learn more: www.childrenpalliativecarecongress.… #EPECPediatrics #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 10/07/2026
📢 Now live! Compassion in Action: Transforming the Lives of Children and Families is a free two-part online learning programme from ICPCN. Enrol today: Part 1: www.elearnicpcn.org/course/view.php… Part 2: www.elearnicpcn.org/course/view.php… #ICPCN #CPC
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International Children's Palliative Care Network @icpcn.bsky.social · 08/07/2026
Two stories from ICPCN's Heart Strings, are featured in the latest WHO publication, The Global Status Report on Cancer 2026. It highlights progress & gaps across cancer care. Read more: bit.ly/3RpH1CH Heart Strings: bit.ly/3SH2w2n #ICPCN #HeartStrings #ChildrensPalliativeCare #WHO
who.int
Global status report on cancer 2026: the future we choose together
The Global status report on cancer 2026 provides a comprehensive assessment of the global burden of cancer, progress in cancer prevention and control, and the systemic challenges that continue to limit equitable outcomes.
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International Children's Palliative Care Network @icpcn.bsky.social · 03/07/2026
⏰ Have you completed our Strategy Consultation Survey yet? This is your opportunity to help shape ICPCN's priorities for the next five years. Every response matters! 🔗 Take the survey here: bit.ly/4xX92C1 Thank you! #ICPCN #CPC #HaveYourSay
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International Children's Palliative Care Network @icpcn.bsky.social · 30/06/2026
🌍 Missed our #ClosetheGap: Palliative Care for Children Everywhere campaign launch? The recording is now available to watch on our website! Together, we can help #ClosetheGap. 🎥 Watch the webinar recording here: icpcn.org/close-the-gap #ClosetheGap #CPC #ICPCN #WHO #StJudes
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International Children's Palliative Care Network @icpcn.bsky.social · 23/06/2026
Here Two Worlds Cancer Collaboration share an article on the St. Jude Global Comfort Promise, helping reduce needle pain & anxiety in children with cancer. Featuring ICPCN Trustee Dr Michael McNeil, Director of the Global Palliative Care Program at St. Jude. Read more: bit.ly/3QiGtyd
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International Children's Palliative Care Network @icpcn.bsky.social · 18/06/2026
🌍 Today we launch #CloseTheGap: Palliative Care for Children Everywhere. Together, we can help ensure every child and family has access to the palliative care they need. #CloseTheGap #ChildrensPalliativeCare #GlobalHealth #ICPCN #WHO #StJudes
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International Children's Palliative Care Network @icpcn.bsky.social · 17/06/2026
#ICPCN are attending the 4th Annual Palliative Care Symposium at LUTH, Lagos. Delighted that Julia Downing, will be speaking at the event, themed: "Palliative Care in Practice: Communication, Spirituality & Teaching for Sustainable Care in Nigeria." #PalliativeCareSymposium2026
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International Children's Palliative Care Network @icpcn.bsky.social · 15/06/2026
📍 In Lagos! C-POS training is underway at LUTH 💙 Julia Downing shared the C-POS history and impact, while Callie Daniels-Howell co-facilitates with Dr Eve Namisango of APCA. Prof Tonua Onyeka highlighted the role of outcome measures in CPC 📊✨ #CPC #CPOS #Nigeria #LUTH
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