iiinova — where your digital self keeps evolving

I Am Charlene @iamcharleneyoung.bsky.social · 02/10/2026

Last week I had the privilege of delivering a patient-led PPIE workshop to 12 international PhD students for the EDICT Doctoral Network at the University of Galway 🇮🇪

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I Am Charlene @iamcharleneyoung.bsky.social · 19/08/2026

Even the poster deserves a summer break!☀️🤷🏾‍♀️ After kicking off the #PosterOnTour in Galway, my award-winning poster is officially out of office for the rest of the summer! ⛔️ Currently enjoying a little beach time before the journey continues…🏖️

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I Am Charlene @iamcharleneyoung.bsky.social · 14/08/2026

📍 Galway, Ireland 👀 You Might Be Surprised…I almost talked myself out of this tour — and I would’ve missed out on something really special! ❤️ Thank you to everyone who made the first stop unforgettable. What a way to kick off my #PosterOnTour! 🎉

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I Am Charlene @iamcharleneyoung.bsky.social · 12/08/2026

This week I had the privilege of sharing my cancer journey and patient involvement work at The Royal Marsden. Being able to share my story with staff who genuinely listened, engaged and valued what I had to say was incredibly meaningful. One of the best sessions I've had so far...❤️

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I Am Charlene @iamcharleneyoung.bsky.social · 28/07/2026

📍Galway, Ireland 📸 Making new connections, one snapshot at a time! Thank you Geraldine Sheils for joining the #PosterOnTour ❤️

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I Am Charlene @iamcharleneyoung.bsky.social · 24/07/2026

📍Galway, Ireland 💛 Gratitude Moment... Sinéad made a quick stop to support and be part of the #PosterOnTour photo album - she wasn't going to miss this one - Thank you Sinéad for everything!

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I Am Charlene @iamcharleneyoung.bsky.social · 14/07/2026

📍Galway, Ireland ⚡ Quick Insight... Hannah asked me what my key learning was from creating this workshop❓️

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I Am Charlene @iamcharleneyoung.bsky.social · 10/07/2026

This week I attended a 3 day NIHR (National Institute for Health and Care Research) 17th Doctoral Training Camp. As a Public Contributor, I supported a lovely team of PhD Researchers and within 24 hours the team developed a grant application - totally fictional but a very good one I must say!

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I Am Charlene @iamcharleneyoung.bsky.social · 06/07/2026

📍Galway, Ireland It's only right the #PosterOnTour kicks off in Galway, where my workshop was brought to life! ✨ Quick Fact... Qiuxia Li attended my workshop at the University of Galway. It was great to reconnect and have the opportunity to meet again! 📸: Qiuxia Li ❤️

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I Am Charlene @iamcharleneyoung.bsky.social · 07/04/2026

🌍 World Health Day 2026 Let’s stand together to support science, fight misinformation, and ensure that everyone, everywhere has access to the care they deserve. 💙 #WorldHealthDay #WorldHealthDay2026 #StandWithScience #ThePeoplesReview #IAmCharlene

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I Am Charlene @iamcharleneyoung.bsky.social · 27/03/2026

It's Floating Friday!🛁✨ Hitting the reset button after a long month of meetings, deadlines, abstracts and everything else in between! ⭐️No noise. ⭐️No distractions. ⭐️No gravity. ⭐️Just me, my thoughts, and a deep, weightless calm...

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Rare Disease Clinical Trial Network @rarediseasectn.bsky.social · 19/03/2026

Huge congratulations to our friend and collaborator, I Am Charlene, for winning Best PPIE Poster! Her work isn't only about research, it’s about making sure every voice is heard and valued. This award is a well-deserved testament to the powerful impact Charlene is making!

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I Am Charlene @iamcharleneyoung.bsky.social · 09/03/2026

⭐️ I Won Best PPIE Poster ⭐️ I had the opportunity to present my poster at the King's Health Partners Rare Disease Network PPIE Event last Friday and I'm excited to announce that I won Best PPIE Poster!

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Rare Disease Clinical Trial Network @rarediseasectn.bsky.social · 05/03/2026

Save the Date! Join us for Optimising Recruitment & Retention in Clinical Trials. We've teamed up with UCD CRC, @hrb-tmrn.bsky.social, ICC CTN , and ID-CTNI for an essential day of learning and networking. 🗓️ May 26 🕘 9 am – 4 pm 📍 O'Reilly Hall, UCD 🔗 Register: www.eventbrite.ie/e/optimising...

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I Am Charlene @iamcharleneyoung.bsky.social · 23/09/2025

🗣 Join me on Thursday at YOU GOT THIS!—an intimate gathering for women creating success on our own terms. Come and connect, recharge & be celebrated!🥳 📅 Date: Thur 25th Sept 2025 ⏰️ Time: 10am - 3pm 📍Location: 65-69 East Road, London, N1 6AH 🔗 tinyurl.com/3n28j9p2

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I Am Charlene @iamcharleneyoung.bsky.social · 26/08/2025

🗣️ Join me as I'm hosting an EDI Table Talk at the South East London Cancer Research Panel (SELCRP) Patient Involvement Event! A space for open, honest conversations about Equity, Diversity, and Inclusion (EDI) in healthcare and research.

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I Am Charlene @iamcharleneyoung.bsky.social · 31/07/2025

Although it's the last day of Sarcoma Awareness Month I continue to advocate for myself, those still fighting, for those we’ve lost, and for those who might not know what signs to look for. Early detection can save lives. Advocacy can change outcomes and awareness matters. 🧡

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The People's Review @thepeoplesreview.ie · 09/06/2025

👋 Meet The People’s Review Steering Group! Our steering group is made up of people like you and me from around the world. 🌍 They’ve been part of this journey since the very beginning - way back in November 2022. Time flies when you're having fun 😉

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I Am Charlene @iamcharleneyoung.bsky.social · 02/06/2025

✨ Declutter - Clear out your space, delete old files. ✨ Reconnect - With friends, family, or even to yourself. ✨ Set New Intentions - List your top three priorities for the next few months. How will you reset this month❓️

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I Am Charlene @iamcharleneyoung.bsky.social · 02/06/2025

🌿 June Reset: A Mid-Year Fresh Start 🌿 June marks the halfway point of the year — a perfect time to pause, reflect, and realign your goals. Here’s how you can reset: ✨ Reflect - Take a look back at the past six months.

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I Am Charlene @iamcharleneyoung.bsky.social · 30/05/2025

⭐️Thank You for the Feedback⭐️ I’m incredibly thankful for the amazing feedback shared and knowing that the workshop made a real impact is the best reward of all..😇 📆 If you're interested in bringing this workshop to your Organisation or Patient Involvement Event, I’d love to hear from you!

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I Am Charlene @iamcharleneyoung.bsky.social · 29/05/2025

The NIHR guidance payment rates for involvement activities often comes up at @Diverse_PPI and other meetings. Discussions around 'the rates not matching up' to the level of involvement, sharing lived experiences/re-living trauma after these meetings have taken place... The list goes on...

nihr.ac.uk

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I Am Charlene @iamcharleneyoung.bsky.social · 28/05/2025

📣Calling all Chinese Family Carers in the UK and Ireland📣 Share your experiences to help shape better support services 👥 📧: Contact Wenji Tang - wenji.tang@ul.ie ‼️Please share to your networks‼️

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I Am Charlene @iamcharleneyoung.bsky.social · 28/05/2025

Living with multiple long-term conditions isn't the easiest when nagivating a NHS system that has no co-ordinated clinical care, plus more... I shared my lived experience with The Kings Fund 🗣 🔗Read here to find out how patient care can be improved 👉🏾 www.kingsfund.org.uk/insight-and-...

kingsfund.org.uk

Improving Clinical Coordination Of Multiple Long-Term Conditions | The King's Fund

More people have multiple long-term conditions, but care pathways focus on single conditions. What do clinicians and commissioners need to improve the experiences of those with multiple long-term cond...

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I Am Charlene @iamcharleneyoung.bsky.social · 27/05/2025

✅️ Personalised Plan: A plan will be created to support your needs. This includes activities, groups and services. ✅️ Ongoing Support: You will receive continued support to work towards your goals.

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I Am Charlene @iamcharleneyoung.bsky.social · 27/05/2025

How to access your local social prescriber❓️ ✅️ Talk to your GP: Discuss your situation and how they are impacting your health or wellbeing. ✅️ Referral: Ask to be referred to a social prescribing link worker. ✅️ Initial Meeting: You meet with a link worker to discuss your needs and goals

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I Am Charlene @iamcharleneyoung.bsky.social · 27/05/2025

🌿 Who Are Social Prescribers? 🌿 Social prescribers are connectors, listeners, and supporters 💬💙 They help people find non-medical support to improve their health and well-being, from community groups and exercise classes to housing advice and mental health support.

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The People's Review @thepeoplesreview.ie · 24/05/2025

The list of 21 questions that made it through to this stage are... 🔗 Cast your vote here: buff.ly/E87QLDx

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Bone Cancer Research Trust @bcrt-uk.bsky.social · 23/05/2025

Yesterday, we were honoured to view the Children with Cancer Garden at the Chelsea Flower Show 🌺 The space is a beautiful tribute to children and families affected by cancer, and we were proud to stand alongside our friends at @skcuk.bsky.social and Alice's Arc. #UntilTheresACure

Will and Zoe from the Bone Cancer Research Trust stand in a garden with David and Sara from Alice's Arc and Gail from Solving Kids Cancer.

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I Am Charlene @iamcharleneyoung.bsky.social · 21/05/2025

📢Stage 2 is now open...💃🏾💃🏾 It's not too late to get involved...🏃🏾‍♀️ #ThePeoplesReview

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I Am Charlene @iamcharleneyoung.bsky.social · 20/05/2025

This year, let’s all commit to raising our efforts for equity in research.. 👥 Inclusive trials for all...🫱🏻‍🫲🏾 📷: Me visiting the lab at Glasgow University #ClinicalTrialsDay #InclusiveResearch #DiversityInTrials #EDI #HealthEquity #MedicalResearch #PatientAdvocacy #IAmCharlene

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I Am Charlene @iamcharleneyoung.bsky.social · 20/05/2025

💡Questions for clinicians to consider: ❓️How are you recruiting under-represented groups? ❓️Is your recruitment strategy sensitively tailored for under-represented groups? ❓️How are you evaluating these practices and how often? ❓️Are you actively consulting with patients for all of the above?

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I Am Charlene @iamcharleneyoung.bsky.social · 20/05/2025

🔬 Today is International Clinical Trials Day! We celebrate the incredible progress made through clinical research and recognise the patients, researchers, and healthcare teams who make it possible. This year's theme is 'Rethinking Clinical Trials: Inclusivity in Practice'.

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I Am Charlene @iamcharleneyoung.bsky.social · 20/05/2025

Congrats on the nomination Saran...❤️🙌🏾🙌🏾🙌🏾

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I Am Charlene @iamcharleneyoung.bsky.social · 16/05/2025

📝Today I'm sharing my Weekly Mental Health Checklist routine, which has a balanced mix of emotional, physical and creative activities. Feel free to download and share. #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #MentalHealthMatters #WellnessCoach #EndTheStigma #IAmCharlene

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I Am Charlene @iamcharleneyoung.bsky.social · 15/05/2025

There are many activities that can help reduce stress, depression and anxiety and to promote overall well-being. Some of my personal go-to activities are: ✅️ Meditation ✅️ Journalling ✅️ Spa days ✅️ Floating ✅️ Setting personal goals. #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025

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I Am Charlene @iamcharleneyoung.bsky.social · 12/05/2025

🧠 It's Mental Health Awareness Week! This year's theme is all about "Community", so let's come together to start conversations and reduce the stigma around mental health. There is power in community...💪🏾 #MentalHealthAwarenessWeek #MentalHealthAwarenessWeek2025 #EndTheStigma #IAmCharlene

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The People's Review @thepeoplesreview.ie · 09/05/2025

🤗 A massive thank you to everyone who has signed-up and engaged with #ThePeoplesReview so far! Stage 1️⃣ : Suggest a Question is now closed, but Stage 2️⃣ : Choose the Question will open very soon... where YOU the public decide what the People's favourite question will be!

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