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JessNeedstoRest

@hospmom.bsky.social
71 followers 46 following 23 posts

Artist & CHD mom, traversing the universe with ME/CFS

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Reposted by JessNeedstoRest
The Lincoln Project @lincolnproject.us · 15/12/2025
Rob Reiner was an American Icon who, through his art and activism, held a mirror up to American culture. His talent, humor, activism, and patriotism will be missed. Our heart breaks at the senseless loss of our friend.
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Sekou Bermiss @sekoubermiss.bsky.social · 15/12/2025
Somehow @sepinwall.bsky.social published a beautiful eulogy for Rob Reiner overnight. I woke up saddened by the news of his passing, and this piece—celebrating his life and work—was exactly what I needed to read. www.whatsalanwatching.com/rob-reiner-w...
whatsalanwatching.com
Rob Reiner was a master who didn't care if you noticed
A tribute to the late, great 'All in the Family' star and director of movie classics like 'This Is Spinal Tap' and 'The Princess Bride'
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#MEAction Network @meactnet.bsky.social · 23/10/2025
Sometimes we all need a reminder that we are kicking ass! www.bonfire.com/store/meacti... Maybe we do not feel very kickass when we are just trying to survive but we know that takes unimaginable strength. Thank you to @hospmom.bsky.social for this design! #pwME #MECFS #Spoonie
Photo of Jess (white woman with long hair wearing a black tee that says "Kicking Ass Taking Naps" and a black skirt stands with a cane beside a mobility scooter looking badass. Text: kicking Ass taking naps. #MEAction We all need to remember our power! Check out all the great items with this new design! Order now!
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Solve M.E. @solveme.bsky.social · 14/05/2025
🌟 Your Voice Can Save ME/CFS Research! 💙 The CDC Chronic Fatigue Syndrome Program—the only federal effort dedicated to ME/CFS research and public health—is at risk of being cut. Losing it would be a devastating setback for millions of Americans living with ME/CFS.
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#MEAction Network @meactnet.bsky.social · 28/04/2025
You are invited to join us for #MIllionsMissing #DisabilitySOS on May 12th - two weeks from today! Join us in DC and online! All you need to know can be found here: www.meactions.org/millionsmiss... #MEAction will be sounding a Disability SOS at the nation’s capitol and across social media. #PwME
Cartoon protest art with detailed, dark lines depicting the Statue of Liberty sinking to her crown in bright red liquid. She holds her torch high above an ocean of red next to the words "#Millions Missing SOS". Text in the image reads "May 12, 2025 protest in Washington D.C. and from home."
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Caring Across Generations @caringacross.org · 08/04/2025
Want to join an event in-person instead? Join us in D.C. THIS THURSDAY! That’s right, we’re taking our fight to #ProtectMedicaid right to the steps of the Capitol! go.caringacross.org/a/protect-me...
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#MEAction Network @meactnet.bsky.social · 03/04/2025
Announcing #MillionsMissing 2025 on May 12th! #MEAction is organizing a community-wide protest to send out an SOS to our elected officials: Save our Support Systems. Save our Science. Save Our Society. Learn more here: www.meaction.net/2025/04/02/m... #pwME #MECFS #LongCovid #disability
meaction.net
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
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Jesspooka Kant 🎃 @jessdkant.bsky.social · 10/04/2025
I don't have words for the fear these images conjure up, only that when I look at these images I know what I am looking at — and it is the most direct route to hell that humanity is capable of taking.
CECOT prison photo showing hundreds of prisoners named except shorts, forced head down, cross leggedPrisoners are stripped and marched through CECOT, hands behind their backs. A sign says "celdas"CECOT images of people stacked in triple decker cagesCECOT overhead image of men forced to kneel with their head in the small of the back of the prisoner in front of them
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Jesspooka Kant 🎃 @jessdkant.bsky.social · 08/04/2025
The death of due process is the most egregious assault on human rights protections in any democracy. Without it, democracy simply does not exist. Call your senators, call your reps. Call the governor, call your HOA for all I care, but please make noise for the people they're trying to disappear.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 08/04/2025
"When print outlets bury one of the largest nationwide protests in recent memory, they’re not being neutral arbiters. They’re making a political choice about what deserves attention and what doesn’t." Print Media to Mass Protests: “Please Turn to Page 18” newrepublic.com/article/1936...
newrepublic.com
Print Media to Mass Protests: “Please Turn to Page 18”
Here’s how newspapers across America minimized one of the largest demonstrations since Trump’s return to power.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 28/03/2025
Oh, wow. Humbled doesn't cover it. #MECFS www.youtube.com/shorts/aeN-a...
youtube.com
Jessica shares about Jaime Seltzer for Women's History Month!
YouTube video by The ME Action Network
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 28/03/2025
And, there it is: www.cbsnews.com/news/rfk-jr-...
cbsnews.com
RFK Jr. to gut vaccine promotion and HIV prevention office, sources say
Much of the federal government's efforts to buoy lagging childhood vaccination rates have been run through the Office of Infectious Disease and HIV/AIDS Policy.
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Feral Women's Society of America @fwsa.bsky.social · 25/03/2025
US Senator Dave McCormick of Pennsylvania, who doesn't live in Pennsylvania, is on a book tour, and this is his email address. Why don't we all reach out and say hello. 😀 whobelievedinyou@gmail.com
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#MEAction Network @meactnet.bsky.social · 28/03/2025
We invite you to join in by sharing women that you see power in in our community and/or what is powerful about our community together. Mentioned above @hospmom.bsky.social and @exceedhergrasp1.bsky.social #MECFS #MyalgicEncephalomyelitis #MECFS #LongCovid
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#MEAction Network @meactnet.bsky.social · 28/03/2025
@hospmom.bsky.social shared her amazing sketch and about why she chose to focus on Jaime Seltzer, our Scientific Director. youtube.com/shorts/aeN-a...
youtube.com
Jessica shares about Jaime Seltzer for Women's History Month!
YouTube video by The ME Action Network
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JessNeedstoRest @hospmom.bsky.social · 23/03/2025
I got a head nod and an approving half smile from a goth teenager last night. Feels like I could take over the world. #nosmallfeat #goth4ever #lovegenz #thelittlethings
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JessNeedstoRest @hospmom.bsky.social · 22/03/2025
The ultimate goal is to remove special needs children and poor people from educational spaces. We need to occupy spaces. #education #disabilityrights www.npr.org/2025/03/21/n...
npr.org
Trump says Education Department will no longer oversee student loans, 'special needs'
The president said federal student loans would move to the Small Business Administration, and hinted that the Department of Health and Human Services would take over special education oversight.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 20/03/2025
Starting now, folks!
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Alt National Park Service @altnps.bsky.social · 20/03/2025
Trump signed an executive order that he said would “begin eliminating the federal Department of Education once and for all,” although the agency cannot be closed without the approval of Congress.
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Dawg PNW @dawgsky67.bsky.social · 15/03/2025
We should stop filing our taxes…
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Leeleeb50 @leeleeb50.bsky.social · 28/02/2025
Don't forget that tomorrow is the economic blackout!
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Being Liberal ®🗽🏳️‍🌈 @beingliberal.bsky.social · 28/02/2025
No shopping, no gas, no fast food. Will you join today’s economic blackout?
newsletter.samuel-warde.com
Companies Who Abandoned Their DEI Programs
Which Companies Are Retreating on Inclusion?
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Olúfẹ́mi O. Táíwò @olufemiotaiwo.bsky.social · 28/02/2025
if you don't believe this run a search for "the sin of empathy"
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#MEAction Network @meactnet.bsky.social · 28/02/2025
While myalgic encephalomyelitis (ME/CFS) is not a rare disease by the numbers, some of us have a co-morbidity that is a rare disease & we want to support our fellow disease/ disability community. A disease is rare when it affects fewer than 1 in 2000 people. #RareDiseaseDay
Colorful graphic with watercolor type background. Text: "300 millions people worldwide living with a rare disease" is in the center. In the top corners are the Rare Disease Day logo and the date Feb. 28, 2025. At the bottom is the website raredisease.org and the hashtag #RareDiseaseDay.
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Sarah Kendzior @sarahkendzior.bsky.social · 27/02/2025
"We're better than we seem and hurting more than we show." sarahkendzior.substack.com/p/your-quest...
sarahkendzior.substack.com
Your Questions Answered: We're Already in the Aftermath
On Trump and Russia, defeating the mafia state, and more.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/02/2025
Umberto Eco put together a now-famous list of 14 attributes of fascistic states. I'm going to discuss each of them in hopes this helps ppl understand that fascism is not just a buzzword. We're going to go through these by theme, so strap in. 🧵
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Brian Tyler Cohen @briantylercohen.bsky.social · 16/02/2025
“VOTING FOR THE MAYOR WHO PROMISED TO BLOW UP THE CITY DOESN’T MEAN I APPROVE OF THE MAYOR BLOWING UP THE CITY” A masterclass from @mikedrucker.bsky.social
mcsweeneys.net
Voting for the Mayor Who Promised to Blow Up the City Doesn’t Mean I Approve of the Mayor Blowing Up the City
It’s so easy to label people these days. From the way folks have been talking, you’d think everyone falls into two buckets: those who voted against...
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AAPD - The American Association of People with Disabilities @aapd.com · 06/02/2025
Alert 🚨 Congress is considering proposals that would reduce Medicaid funding! Medicaid is a critical lifeline for disabled Americans. Our friends @nhelp.bsky.social are hosting a day of action: Call Congress via the Protect Medicaid hotline at 866-426-2631 and tell them to protect Medicaid. No cuts!
 Graphic with a dark blue background titled “Protect Medicaid from cuts”, showing photos of the U.S. Capitol and a small blackboard with “Medicaid” written on it. The text reads, “Proposals to cut Medicaid funding would jeopardize care for millions and shift financial risks to states.”
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Acyn @acyn.bsky.social · 04/02/2025
Jeffries: The constitution requires the president has the responsibility to take care that the laws are faithfully executed. Spending agreements passed through the appropriations process are law. When those laws are violated, the constitution has been violated.
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Dr. Lucky Tran @luckytran.com · 04/02/2025
RFK Jr's nomination to HHS head has advanced to a full Senate vote (date TBA). It's crunch time. Please call your Senators and tell them to vote NO. Call your Senators regardless of what position you anticipate they will take. Use this tool: www.usa.gov/elected-officials
usa.gov
Find and contact elected officials | USAGov
Use USAGov’s Contact Your Elected Officials tool to get contact information for your members of Congress, the president, and state and local officials.
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Anna Merlan @annamerlan.bsky.social · 04/02/2025
Elsewhere, a worker at an intelligence agency says that unidentified outside staffers arrived to sweep the office of anything they felt was related to DEI. That included a plaque, confiscated from a supervisor’s desk, which read, “Be kind to everyone.”
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Joyce White Vance @joycewhitevance.bsky.social · 04/02/2025
If you’ve taken the oath to serve, today would be a good day to honor it.
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Pork Belly Don @atxdj.bsky.social · 04/02/2025
Please share this to every Democratic rep you follow youtube.com/shorts/zBYoY...
youtube.com
What The F***?!
YouTube video by PoliticsGirl
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KittyKatGirl😻🙏💞🐞 @mary1kathy.bsky.social · 04/02/2025
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Rachel Maddow @maddow.bsky.social · 02/02/2025
Today from Timothy Snyder, author of On Tyranny: snyder.substack.com/p/the-logic-...
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WIRED @wired.com · 04/02/2025
NEW: Elon Musk’s attack on USAID has cut HIV/AIDS workers off from medicine and money. The Trump Administration claims it is allowing “lifesaving” foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives. Read our scoop here:
wrd.cm
Elon Musk's DOGE Is Still Blocking HIV/AIDS Relief Exempted From Foreign Aid Cuts
The Trump Administration claims it is allowing "lifesaving" foreign aid to continue, but in reality, DOGE is preventing vital work on HIV and AIDS from saving lives.
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WIRED @wired.com · 02/02/2025
If you’ve been wondering what Elon Musk and his lackeys are up to since taking control of the US government, look no further. Our latest story names six 19- to 24-year-olds working with his DOGE organization, which now has access to sensitive federal systems. wrd.cm/4jzpiSN
wrd.cm
The Young, Inexperienced Engineers Aiding Elon Musk's Government Takeover
Engineers between 19 and 24, most linked to Musk’s companies, are playing a key role as he seizes control of federal infrastructure.
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Friendly Neighborhood Mouse @missmouse.bsky.social · 03/02/2025
Hi all! I’ll be back down at OPM today (Feb 3) from 5pm-Probably Midnight, peaceably protesting the douchecanoe frat boys currently stealing federal employees’ personal data and accessing 6 trillion dollars in OUR Social Security/Medicare funds. Feel free to join me and spread the word!
A citizen flipping the double bird at the Office of Personnel Management, reported epicenter of Elon Musk’s coup. Address for Office of Personnel Management: 

1900 E St, NW
Washington, DC 20415
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KellyK🌺 @azkellyk.bsky.social · 03/02/2025
Please share! Rep. McGovern: "Maybe before coming after USAID, Republican should look at the billions and billions of dollars of tax breaks and subsidies they give to oligarchs like Elon Musk. You want to save some money? Let's start there." Right!?
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JessNeedstoRest @hospmom.bsky.social · 03/02/2025
I was told there would be checks and balances
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JessNeedstoRest @hospmom.bsky.social · 02/02/2025
Way too many of my friends died in 2024. I envy them.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 27/01/2025
Congressionally Directed Medical Research Programs (CDMRP) a funder of biomedical research particularly as it applies to military readiness, appears to be entirely gone. cdmrp.health.mil
A screenshot of CDMRP (Congressionally Directed Medical Research Programs) on a search engine.  It says, "CDMRP is a DoD program that funds biomedical research in response to the needs of the public, the military, and Congress.  It supports various research programs and funding opportunities in..." Then it lists several pages, including Funding Opportunities, Consumers, Research Programs, Alcohol and Substance Abuse, Search Awards, Amyotrophic Lateral Sclerosis, About Us, Arthritis, Home current, Autism...has the URL for CDMRP (cdmrp.health.mil)

Says Not Found

HTTP Error 303: The requested resource is not found.
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Sarah Kendzior @sarahkendzior.bsky.social · 24/01/2025
"Trump is the deep state he pretends to fight." sarahkendzior.substack.com/p/fearing-th...
sarahkendzior.substack.com
Fearing the Reapers
Trump, Biden, and careers of evil
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Katie Mack @astrokatie.com · 23/01/2025
The price of eggs in the US is spiking, mostly due to #H5N1 bird flu. Solving the problem requires urgent, important communications from the CDC & FDA* and rapid development of research by the NIH** * Currently paused by Executive Order ** Grant reviews now all canceled www.kcur.org/news/2025-01...
kcur.org
Egg prices are soaring again. Here’s why and what to expect
Bird flu has killed millions of hens in recent weeks, shrinking the supply of eggs and hiking up prices at grocery stores.
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Imani Barbarin @imanibarbarin.bsky.social · 22/01/2025
people keep tagging me in fuck around and find out content like I haven’t been talking about how pandemics lead to fascism since 2020. The “find out” portion isn’t just for everyone who doesn’t consider themself a liberal—it’s for them too. Haven’t masked in 4 years? FAAFO.
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It's ME(Jaime) @exceedhergrasp1.bsky.social · 10/01/2025
How to help people affected by the California fires! Our usual advocacy tag: #DoSomething
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Sarah Kendzior @sarahkendzior.bsky.social · 10/01/2025
New article! I wrote about the California fires, American pop culture, and climate catastrophe grief: sarahkendzior.substack.com/p/fantasy-on...
sarahkendzior.substack.com
Fantasy on Fire
Middle American grief for California dreams.
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