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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

But guidelines on how to handle late disclosure should be provided to parents in need. There is a website in Swedish on donor-conception that includes info on late disclosure kunskapsguiden.se/omraden-och-... I know that the Donor Conception Network has material on Later telling in English. #ESHREjc

kunskapsguiden.se

Prata med tonåringar och unga vuxna om genetiskt ursprung

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

It is good to emphasize the child's right to know and that it's always better if the parents (preferably both) are the ones who disclose the donor-conception. And that it is never too late! But parents need to be prepared that their child can have negative feelings they did not tell earlier #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

That is most likely true. Many studies show DCPs take their parents feelings into consideration regarding exploring donor-info. But for some it could be that good family relationships make the donor less interesting, i.e. they have their family and maybe are not that interested in genetics. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

This is a very important point: We asked teenage DCPs about their interest in requesting donor-info. DCP interest will probably vary during life and can both increase/decrease as they grow older and maybe feel more confident in what they want to do regarding donor-info/contacting the donor. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

It's a tricky question! A difference is the donor volunteered to donate, DCPs are not in the same position. Any system that facilitates info on same-donor peers needs to take all parties into consideration, as some want contact with same-donor peers and others seem to not be interested. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

It is not an easy question to answer. The current system is dependent on the parents disclosing. Many do, but some choose not to tell the child. One possibility would be to add information on the donor-conception to the DCPs own medical records to ensure access to this information. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 26/09/2026

I absolutely agree, best to start the disclosure process very early. But I would also like to add that it is never too late for parents that for some reason haven't disclosed to the child. It is always better if the information comes from the parents rather than by accident (ex. DNA test) #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

We are not quite sure. Some clinics provide the donor with information about the number of offspring. We do not know if this information is being provided to the DCPs if requested. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

Easy access to DNA testing has made full anonymity practically impossible, but of course it would be beneficial if there was a move away from anonymous donation in all of Europe. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

We believe that there is a need for more European and international regulation to safeguard the rights of DCPS and regarding the maximum number of offspring from one donor. Claudia & Henrik #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

Our study did not show any differences regarding interest in donor-information between DCPs from lesbian-couple and heterosexual-couple families. Of note is that most DCPs had known from early age also inte heterosexual-couple families. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

We fully agree with your comments! Claudia & Henrik #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

Sry, we are in the middle of analysis so you will have to wait for the results :) We hope to publish in the spring. #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

We believe it necessary for same-donor peers to have consented to being identifiable to other DCPs. In Sweden a DCP can choose to add their own name and contact-information in the donors medical record at the clinic if they are open to being identified by same-donor peers. Claudia & Henrik #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

We are currently analysing data from an interview study with DCPs following egg donation. We see that these teenage DCPs vary considerably in their view of how important the egg donation is for their identity. Research on adoptees has shown a similar picture Claudia & Henrik #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

Studies show that many DCPs want access to information about their donor to better understand themselves (e.g. learning about shared traits, family history). However not all DCPs find this important. Claudia & Henrik #ESHREjc

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hgroundstroem.bsky.social @hgroundstroem.bsky.social · 25/09/2026

In Sweden the right to donor-information (identity and non-id info) lies solely with the DCP and they can access it when they have reached 18 years. We can see the benefits of the DCP having access to non-identifiable information about their donor some years earlier. Claudia & Henrik #ESHREjc

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