iiinova — where your digital self keeps evolving

HD Reach @hdreach.bsky.social · 10/10/2026

REMINDER NEXT WEEK: Our quarterly AVL meetup is back. Erika will be ready to greet you and will be bringing pumpkins and paint 🎃 So we hope to see you there! If you can, please RSVP via Heylo and get all the updates there. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope

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HD Reach @hdreach.bsky.social · 08/10/2026

Today is DAF Day! If you have a DAF, consider recommending a grant to HD Reach today. Your support helps us provide programs, resources, education, and connections to individuals and families affected by Huntington’s disease.

fidelitycharitable.org

What is a Donor-Advised Fund?

Learn about the power of donor-advised funds and how they can help you make a lasting impact on the causes you care about. Get expert guidance on setting up a donor-advised fund with Fidelity…

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HD Reach @hdreach.bsky.social · 08/10/2026

REMINDER NEXT WEEK: We are providing Pumpkins and Paint 🎃 Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope

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HD Reach @hdreach.bsky.social · 08/10/2026

October is here and we have a month full of gaming planned! Are you 18+ and impacted in some way by Huntington's disease? This is the group for you! If you are not directly impacted by Huntington's disease (or just like livestreams), catch our livestreams every week! linktr.ee/hdreachgameo...

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HD Reach @hdreach.bsky.social · 07/10/2026

Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬 Doxy.me/HDgenetics #HDreach

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HD Reach @hdreach.bsky.social · 07/10/2026

WS is TONIGHT- 1 week earlier than usual! We will be bringing pumpkins and paint 🎃 So we hope to see you there. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! Sign up here: www.hdreach.org/community/ev... 💙💜

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HD Reach @hdreach.bsky.social · 06/10/2026

TONIGHT Join our Book Club! This group is open to anyone impacted by Huntington's disease (personally or professionally) and 18+ due to the content and conversations. Sign up today! www.hdreach.org/community/ev... (or linktree in bio)

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HD Reach @hdreach.bsky.social · 05/10/2026

💙 Today’s the day! As we gather for the Cindy Canning Memorial Drive Hope Home Golf Tournament, we’re taking a moment to honor the people who inspire everything we do. Every swing, every putt, and every dollar raised today is for you. Thank you for giving us a reason to Drive Hope Home. 💙⛳️

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HD Reach @hdreach.bsky.social · 04/10/2026

Economy Exterminators has been part of the HD Reach family from the beginning, and we’re incredibly grateful to continue partnering together in memory of Cindy. See you tomorrow at The Club at 12 Oaks! ⛳️

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HD Reach @hdreach.bsky.social · 03/10/2026

⛳️ Only 2 days to go! A huge thank you to our Gold Sponsor, Angels of the Abbey, for supporting the Cindy Canning Memorial Drive Hope Home Golf Tournament! 💙 Thank you for helping us Drive Hope Home! See you October 5! 🏌️‍♀️ #HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

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HD Reach @hdreach.bsky.social · 02/10/2026

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HD Reach @hdreach.bsky.social · 02/10/2026

⛳️ Just 3 days until the Cindy Canning Memorial Drive Hope Home Golf Tournament! #HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

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HD Reach @hdreach.bsky.social · 01/10/2026

*REMINDER next week is Winston Salem meetup, a week earlier than usual! Join us for our in person events and virtual events for the month of October. We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope

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HD Reach @hdreach.bsky.social · 30/09/2026

A huge thank you to our Silver Sponsors for supporting this year’s tournament and helping HD Reach continue providing support, resources, and hope to families affected by Huntington’s disease. 💙 #HDReach #DriveHopeHome #HuntingtonsDisease #GolfTournament #HDHeroes

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HD Reach @hdreach.bsky.social · 29/09/2026

RESEARCH UPDATE! Positive results from the AMT-130 Uniqure trial. Safe to read when you are able to. We remain cautiously hopeful as always and hope throughout any research news- you remember to take care of you. We are here as an organization to support and education so please know you can DM us.

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HD Reach @hdreach.bsky.social · 28/09/2026

⛳️ Just 7 days until the Cindy Canning Memorial Drive Hope Home Golf Tournament! A big thank you to our Bronze Sponsors and Community Care Sponsors for supporting this year’s tournament and helping HD Reach continue providing support, resources, and hope to families affected by Huntington’s disease.

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HD Reach @hdreach.bsky.social · 25/09/2026

Brandi is in Houston for the HSG conference! Always great to connect with others in the HD community, learn what's happening in research and care, and bring new ideas back. 💙 #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

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HD Reach @hdreach.bsky.social · 25/09/2026

What exactly is HD Reach Game Over HD? This program came out of the love of two things: Video Games and the #huntingtonsdisease community. Join our program, check out our streams, and follow us on socials! linktr.ee/hdreachgameo... #FYP #stream #hdreachgameoverhd #viral

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HD Reach @hdreach.bsky.social · 25/09/2026

HEYLO- Did you know, you can get connected with us for both our in person and virtual events on Heylo? Download the app today and search for HD REACH. Once we receive your request to join, we will get you added! Apple: apps.apple.com/us/app/heylo... Google Play: play.google.com/store/apps/d...

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HD Reach @hdreach.bsky.social · 25/09/2026

A special thank you to our 2026 specialty sponsors! ⛳️💙 Thank you to our Closest to the Pin, Longest Drive, 19th Hole, and Drink Cart Sponsors for helping make the Cindy Canning Memorial Drive Hope Home Golf Tournament such a fun day for our golfers! #HDReach #DriveHopeHome #HuntingtonsDisease

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HD Reach @hdreach.bsky.social · 24/09/2026

Genetic Testing for #huntingtonsdisease is a YOU decision. Author Erin Paterson joined our StoryTime Stream and shared some wonderful insight. Feel free to reach out to us and we can work on the best support for your journey. #StoryTimeStream #hdreachgameoverhd #stream #FYP

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HD Reach @hdreach.bsky.social · 24/09/2026

Genetic Testing for #huntingtonsdisease is a YOU decision. Author Erin Paterson joined our StoryTime Stream and shared some wonderful insight. Know you can always reach out to us for support on your journey. #StoryTimeStream #hdreachgameoverhd #stream #FYP

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HD Reach @hdreach.bsky.social · 24/09/2026

OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today! (Link in bio) Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win! drive-hope-home-golf-tournament.perfectgolfevent.com/registration... #HDReach #ReachForHope 💙

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HD Reach @hdreach.bsky.social · 23/09/2026

Durham Meetup is cancelled tonight! We will see you October 28th!

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HD Reach @hdreach.bsky.social · 23/09/2026

The countdown is on! Our Cindy Canning Memorial Drive Hope Home Golf Tournament is just around the corner on October 5! A big thank you to all of our amazing sponsors, including our hole sponsors, for helping make this tournament possible and supporting families affected by Huntington’s disease. 💙

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HD Reach @hdreach.bsky.social · 23/09/2026

RDU: See y'all at the Boot Room tonight! Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease

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HD Reach @hdreach.bsky.social · 22/09/2026

Join our Book Club! This group is open to anyone impacted by Huntington's disease (personally or professionally) and 18+ due to the content and conversations. Sign up today! www.hdreach.org/community/ev... (or linktree in bio)

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HD Reach @hdreach.bsky.social · 18/09/2026

TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group. The first hour will feature a speaker and will be followed by a breakout of two support groups: one is a casual catchup and the other is focused on the later stages of caregiving. www.hdreach.org/community/ev...

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HD Reach @hdreach.bsky.social · 17/09/2026

OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today and use code BEACH20 at checkout for 20% off your tickets! drive-hope-home-golf-tournament.perfectgolfevent.com/registration... You do NOT need to be present to win!

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HD Reach @hdreach.bsky.social · 16/09/2026

New SKY-0515 Clinical Trial Results! Skyhawk Therapeutics recently shared encouraging 15-month results from its Phase 1/2 clinical trial of SKY-0515, an investigational oral treatment for Huntington’s disease. Read More: www.skyhawktx.com/skyhawk-ther...

skyhawktx.com

Skyhawk Therapeutics Announces Final Fifteen-Month Results from Phase 1/2 Clinical Trial of SKY-0515 in Huntington’s Disease Patients

Our mission is to revolutionize disease treatment for patients worldwide with small molecule therapeutics that modify RNA expression

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HD Reach @hdreach.bsky.social · 16/09/2026

Tonight at 7pm ET is our second meeting of our #CraftingCorner group! You don't have to be a professional crafter to join. Feel free to bring your coloring, your crocheting, your puzzle, your painting, whatever you have! If interested in joining, click here: www.hdreach.org/community/vi...

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HD Reach @hdreach.bsky.social · 15/09/2026

LAST CALL! We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row! Register and learn more here: www.hdreachgolf.com #HDReach #DriveHopeHome #CindyCanningMemorial #goldforHD 💙

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HD Reach @hdreach.bsky.social · 10/09/2026

OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today and use code BEACH20 at checkout for 20% off your tickets! Get your tickets: Link in bio drive-hope-home-golf-tournament.perfectgolfevent.com/registration... Winner will be drawn on 10/5 at ourTournament. You do NOT need to be present to win!

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HD Reach @hdreach.bsky.social · 09/09/2026

WS & CLT: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! Sign up here: www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope

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HD Reach @hdreach.bsky.social · 08/09/2026

WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd

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HD Reach @hdreach.bsky.social · 06/09/2026

Meetup Reminders for THIS WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. UPDATES ARE SENT VIA HEYLO! #HDreach #ReachForHope

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HD Reach @hdreach.bsky.social · 04/09/2026

*REMINDER next week is WLM, WS, CLT! Join us for our in person events and virtual events for the month of September. We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd

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HD Reach @hdreach.bsky.social · 03/09/2026

Record Fantasy Football season this year with 36 players! Thank you all for joining us, donating, and the fun smack talk already happening! What is even better, though, is that these individuals have helped raise $900 for our organization to continue serving the #huntingtonsdisease community.

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HD Reach @hdreach.bsky.social · 03/09/2026

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HD Reach @hdreach.bsky.social · 02/09/2026

Help Shape the Future of Rare Disease Support in North Carolina North Carolina made history as the first state to establish a Rare Disease Advisory Council (RDAC), giving the rare disease community a voice in state government. Learn more and apply: www.dph.ncdhhs.gov/about-us/nor...

dph.ncdhhs.gov

North Carolina Advisory Council on Rare Diseases | Division of Public Health

State Government websites value user privacy. To learn more, view our full privacy policy.

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HD Reach @hdreach.bsky.social · 02/09/2026

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HD Reach @hdreach.bsky.social · 01/09/2026

REGISTRATION IS OPEN!! 💙⛳ We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row! Register and learn more here: www.hdreachgolf.com #HDReach #ReachForHope #DriveHopeHome 💙

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HD Reach @hdreach.bsky.social · 01/09/2026

See you tonight! This book is about vampires, Huntington's disease, and a fascinating story. Read it today! www.amazon.com/dp/196981865... Join our Book Club! Sign up today! www.hdreach.org/community/ev... (or linktree in bio)

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HD Reach @hdreach.bsky.social · 31/08/2026

LAST DAY TO SIGN UP!!!! Join our Fantasy Football League and raise funds for HD! Sign up by entering your name, email, and paying a $25 entry fee! www.hdreach.org/community/fa... #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

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HD Reach @hdreach.bsky.social · 27/08/2026

OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today! (Link in bio) drive-hope-home-golf-tournament.perfectgolfevent.com/registration... Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win! #HDReach #ReachForHope

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HD Reach @hdreach.bsky.social · 26/08/2026

Attending the 2026 Advanced Institute and speaking to legal professionals about #huntingtonsdisease. Jeff Marsocci presented Planning for Progressive Incapacity and asked Erika to talk about HD. M and E were also invited to the Bulls and got a pic in our HD Reach shirts in front of the Stanley Cup!

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HD Reach @hdreach.bsky.social · 26/08/2026

RDU: See y'all at the Boot Room tonight! Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease

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HD Reach @hdreach.bsky.social · 24/08/2026

Melissa and Lauren were nominated by HD Reach for this year's The Triangle Nonprofit & Volunteer Leadership Center awards. We are grateful for their energy and dedication. #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

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HD Reach @hdreach.bsky.social · 20/08/2026

Check out what Book Club is currently reading! This book is about vampires, Huntington's disease, and a fascinating story. Read it today! www.amazon.com/dp/196981865... Join our Book Club! www.hdreach.org/community/ev...

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