HDClarity @hdclaritystudy.bsky.social · 18/05/2026Recruitment update! 🧪 As of April this year, 134 HDClarity sampling visits have taken place. That’s around 2.68L of CSF collected! How many more visits do you think will happen before the end of the year? 000
HDClarity @hdclaritystudy.bsky.social · 09/01/2026Happy New Year from HDClarity team! 🎊 2025 was a fantastic year with 386 successful sampling visits—thank you to everyone who made it possible. Here’s to even more progress in 2026! 000
HDClarity @hdclaritystudy.bsky.social · 17/12/2025Great connecting with fellow investigators at the HDClarity Investigator Meeting during the Clinical Research Congress in Nashville 🎶🧠 Insightful discussions, valuable collaboration, and exciting progress ahead! 📊 Presentations from the meeting are now available on the HDClarity.net website. 001
HDClarity @hdclaritystudy.bsky.social · 26/11/2025Big congratulations to Ramón y Cajal University Hospital in Madrid for completing their first successful sampling visit! 🎉 Want to learn more or take part in the HDClarity study? Head over to the HDClarity website for more details. 000
HDClarity @hdclaritystudy.bsky.social · 15/10/2025Different ways that HDClarity samples can be used in HD research: 000
HDClarity @hdclaritystudy.bsky.social · 25/09/2025A major milestone was reached yesterday in neurodegenerative medicine, advancing hope for those affected by Huntington’s disease🧵eur01.safelinks.protection.outlook.comHuntington's disease successfully treated for first timeOne of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC. 252
HDClarity @hdclaritystudy.bsky.social · 12/09/2025HDClarity samples: storage, distribution and utility 🧵 100
HDClarity @hdclaritystudy.bsky.social · 28/08/2025Meet the team and recruitment success- HDClarity North York General Hospital site 🧵 Left to right: Clare Gibbons – Research Manager, Dr. Phillippe Rizek – Neurologist and PI, Rebecca Searles – Research Coordinator 110
HDClarity @hdclaritystudy.bsky.social · 19/08/2025Meet the team- HDClarity Hospital de la Santa Creu i Sant Pau site 🧵 110
HDClarity @hdclaritystudy.bsky.social · 06/08/2025CSF quality – what is it, why does it matter, how do we ensure it, and how it is checked? 🧵 #Huntingtonsdisease #HDClarity 110
HDClarity @hdclaritystudy.bsky.social · 30/07/2025Repeat Sampling – what is it, when is it done, and why is it useful 🧵 #HDClarity #Huntingtonsdisease 110
HDClarity @hdclaritystudy.bsky.social · 23/07/2025Upcoming Huntington’s Disease meetings🧵 #Huntingtonsdisease In mid-October 2025, the next HDClinical Research Congress will take place, in Nashville USA. The Congress will be being hosted jointly by CHDI and the Huntington Study Group (HSG). 100
HDClarity @hdclaritystudy.bsky.social · 16/07/2025Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease 100
HDClarity @hdclaritystudy.bsky.social · 09/07/2025Clinical trials in HD 🧵 There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity 110
HDClarity @hdclaritystudy.bsky.social · 02/07/2025Publications & Presentations powered by HDClarity 🧵 #Huntingtonsdisease #HDClarity Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease. 110
HDClarity @hdclaritystudy.bsky.social · 25/06/2025How to participate in HDClarity?🧵 To take part, individuals must first already be enrolled in, or be recruited into, the Enroll-HD study. This study collects natural history data in HD individuals and controls, and this data is linked with the biosamples collected during HDClarity participation. 110
HDClarity @hdclaritystudy.bsky.social · 18/06/2025What are common side effects of having a lumbar puncture and how we reduce the chances of these occurring in the HDClarity study? 🧵 #Huntingtonsdisease #HDClarity 110
HDClarity @hdclaritystudy.bsky.social · 11/06/2025How does HDClarity work - and what is a lumbar puncture? 🧵 #Huntingtonsdisease #HDClarity 111
HDClarity @hdclaritystudy.bsky.social · 04/06/2025Exciting news regarding new study sites for the HDClarity study 🧵 #HuntingtonsDisease 111
HDClarity @hdclaritystudy.bsky.social · 22/05/2025What is cerebrospinal fluid (CSF) and why is it so valuable for #HuntingtonsDisease research? 🧵 100
HDClarity @hdclaritystudy.bsky.social · 15/05/2025Exciting updates for the HDClarity study 🧵 We have some exciting updates on the progression of the HDClarity study #HuntingtonsDisease #HDClarityStudy 110
HDClarity @hdclaritystudy.bsky.social · 07/05/2025What is HDClarity?🧵 HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease 131
HDClarity @hdclaritystudy.bsky.social · 07/05/2025What is HDClarity?🧵 HDClarity is a longitudinal open-ended observational study. The main objective of the study is to collect high-quality cerebrospinal fluid samples for longitudinal evaluation of biomarkers and pathways which will enable the development of novel treatments for #HuntingtonsDisease 100
HDClarity @hdclaritystudy.bsky.social · 09/04/2025Welcome to the new HDClarity Blue Sky account! We will be posting weekly updates and further information about our study #HuntingtonsDisease #HDClaritystudy 000
