Sign in

Hannah May Scott

@hannahmayscott.bsky.social
259 followers 273 following 27 posts

Research assistant at QMUL in childhood-onset hyperkinetic movement disorders and Multiple Sclerosis | PhD candidate at KCL (NIHR ARC South London) in Paediatric Palliative Care

PostsRepliesMedia
Hannah May Scott @hannahmayscott.bsky.social · 28/02/2026
Are you a #HCPC registered professional working with #children in the UK? Have you completed formal Cognitive Orientation to daily Occupational Performance Approach training? Sign up to take in our implementation workshops here: tinyurl.com/coopimplementation
000
Hannah May Scott @hannahmayscott.bsky.social · 20/02/2026
I’m really excited to be able to share the early access version of our new review: A rapid evaluation of the reporting and publishing practices of #PPIE in health research within a UK university institute. Published #OpenAccess in Research Involvement and Engagement rdcu.be/e4VAX
rdcu.be
A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute
110
Reposted by Hannah May Scott
Louca-Mai Brady @louca-mai.bsky.social · 19/01/2026
📣 @nihrarcs.bsky.social #PPI webinar: Evaluating #PublicInvolvement with children & young people 🌟17/2/26 Presenters incl me, @helenabnett.bsky.social & @hertsypag.bsky.social + hosted by @skourkos.bsky.social & @elspethma.bsky.social Info & booking: www.eventbrite.co.uk/e/involving-...
Flyer.
Importance of Public Involvement Research Webinar Series. Webinar 4.
This webinar will share findings from two evaluations of young people’s advisory groups (YPAGs), both co-produced with young group members. It will highlight lessons for meaningful and inclusive Patient and Public Involvement and Engagement (PPIE) with children and young people (CYP) and explore practical implications for PPIE professionals, researchers and CYP involved in research.
Chaired by Dr Stan Papoulias, PPIE research theme lead at NIHR ARC South London. Facilitated by Dr Elspeth Mathie, Inclusive Involvement in Research theme lead at NIHR ARC East of England.
Speakers: Dr Louca-Mai Brady, Reader in Youth Involvement and Health; Dr Helen Abnett and Lauren Denyer, Research Fellows, UH; and
young members of the Herts YPAG.
Who should attend? Anyone who is interested or involved in CYP’s involvement in research, including young people.
Tuesday 17th February, 12:00-13:30. Register now!
21312
Hannah May Scott @hannahmayscott.bsky.social · 14/01/2026
We’re still recruiting to our #Dystonia study! We really want to hear from more families with children with #genetic & #idiopathic diagnoses. Register your interest: tinyurl.com/DystoniaIMPACT or dystoniaimpact@qmul.ac.uk @dystoniauk.bsky.social @geneticallianceuk.bsky.social @cdauke.bsky.social
010
Hannah May Scott @hannahmayscott.bsky.social · 31/07/2025
I had an absolutely wonderful day today graduating with my PhD in Palliative Care from @kingscollegelondon.bsky.social Thank you so much to my supervisors and all my collegues and friends at the Cicley Saunders Insitute and wider @kingsnmpc.bsky.social for their support throughout the journey!
131
Hannah May Scott @hannahmayscott.bsky.social · 15/07/2025
The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them. Register your interest: tinyurl.com/DystoniaIMPACT Or contact the team at dystoniaimpact@qmul.ac.uk
121
Hannah May Scott @hannahmayscott.bsky.social · 26/06/2025
📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children & #YoungPeople with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our Dystonia IMPACT survey: ➡️ tinyurl.com/532rxb9c
000
Hannah May Scott @hannahmayscott.bsky.social · 26/06/2025
Excited to be presenting our poster from our work as part of the Dystonia IMPACT study on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at #EACD2025 #IAACD2025 at 9:40am CEST at poster screen 7
130
Hannah May Scott @hannahmayscott.bsky.social · 19/04/2025
I’m excited to share the third and final paper from my #PhD: Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care. #pedpc Published in @palliativemedj.bsky.social journals.sagepub.com/doi/10.1177/... 1/8🧵
journals.sagepub.com
Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care - Hannah May Scott, Inez Gaczkowska, Debbie Braybrook...
Background: To achieve benefits of person-centred outcome measures within routine children’s palliative care, implementation plans and the intended pathways to ...
162
Reposted by Hannah May Scott
Digesting Science @digestingscience.bsky.social · 06/01/2025
Have you taken part in a Digesting Science event as a family? 🧠🫶⚡️ We are looking for families who have come along to a Digesting Science event so we can talk to you to find out the lasting impact of coming along! For more info, get in touch by sending us a DM or email hannah.scott@qmul.ac.uk 🥳
011
Hannah May Scott @hannahmayscott.bsky.social · 23/03/2025
Excited to be with @digestingscience.bsky.social at the @mstrustuk.bsky.social conference and looking forward to presenting my poster on families experiences of attending a Digesting Science event to learn about #MultipleSclerosis later in the speed dating session #MS
031
Hannah May Scott @hannahmayscott.bsky.social · 12/02/2025
If you didn’t get chance to join the webinar today but want to find out more about the development of the implementation plan for C-POS:UK, my systematic review and qualitative data analysis papers are published open access: Review: doi.org/10.1186/s129... Qual paper: doi.org/10.1177/0269...
021
Hannah May Scott @hannahmayscott.bsky.social · 12/02/2025
Really excited to be presenting at today’s @pcrscommittee.bsky.social webinar on the work from my @arc-southlondon.bsky.social funded PhD!
040
Hannah May Scott @hannahmayscott.bsky.social · 04/02/2025
As my result has now been officially ratified I’m excited to share that last month I successfully defended my thesis and passed my viva with no corrections! #PhDSky @kingsnmpc.bsky.social
140
Hannah May Scott @hannahmayscott.bsky.social · 30/01/2025
Really excited to be presenting the work from my PhD in the next @pcrscommittee.bsky.social webinar!
000
Reposted by Hannah May Scott
Anne Finucane @annefinucane.bsky.social · 16/12/2024
Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...
01118