greenapplebees.bsky.social @greenapplebees.bsky.social · 01/01/2026Hopefully we will see more repeat trials soon 010 1
greenapplebees.bsky.social @greenapplebees.bsky.social · 02/10/2025I don't know any clinical trialists personally, but you might want to get into contact with Jarred Younger. He is doing some remote clinical trials. 000 0
greenapplebees.bsky.social @greenapplebees.bsky.social · 28/06/2025fyi, I think your twitter/x account may have been hacked. It's retweeting cryptocurrency stuff 100 1
greenapplebees.bsky.social @greenapplebees.bsky.social · 25/05/2025I'm curious what/any differences there were in patients that completed different aftercare treatments 010 1
greenapplebees.bsky.social @greenapplebees.bsky.social · 27/03/2025There is also this current controversy between the Cochrane Collaboration and one of it's founders Hilda Bastian tasked with providing an updated review of treatments for ME/CFS bsky.app/profile/hild.... It is receiving very little coverage, but millions with ME/CFS and long covid are impacted. 001 1
greenapplebees.bsky.social @greenapplebees.bsky.social · 31/01/2025I really hope he takes Long Covid seriously. Research for Long Covid by the NIH has not been great so far, to say the least. 000 0
Reposted by @greenapplebees.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 29/01/2025This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵 20464174 464
greenapplebees.bsky.social @greenapplebees.bsky.social · 19/01/2025Thanks so much! A lot has changed in the 3 years since the video, but there’s still no effective treatment for either condition. @georgemonbiot.bsky.social called ME/CFS treatment 'the greatest medical scandal of the 21st century'—a powerful read if you have time: www.theguardian.com/commentisfre...theguardian.com‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal | George MonbiotThe notion that this illness is psychosomatic is having devastating effects, says Guardian columnist George Monbiot 020 2
greenapplebees.bsky.social @greenapplebees.bsky.social · 19/01/2025Hey @hankgreen.bsky.social, could you do a video on Long COVID and ME/CFS? People don't want to talk about them because they are complicated but millions are struggling with these conditions, and your platform could help raise awareness and understanding 🙏 #LongCovid #MECFS #MedEd 2212 21
greenapplebees.bsky.social @greenapplebees.bsky.social · 03/12/2024Are you able to use this data to test any association between exercise and crashes/changes in hr/hrv? I would especially be curious about repeated exercise and crashes. That's such a large group that I wonder if a few of them tried GET and you could do some analysis if that lowered their baseline 130 3
greenapplebees.bsky.social @greenapplebees.bsky.social · 29/11/2024I think it would have been best to include the no difference in Fatigue, Physical Function, and Cognitive function in the abstract as well, as it just talks about the positive effects. Those 3 seem so central to LC that it makes me question the "recovery/improvement" 030 3
greenapplebees.bsky.social @greenapplebees.bsky.social · 29/11/2024"Our findings suggest that offering patients with long covid a ... programme of physical and mental health rehabilitation will probably improve symptoms." Fatigue, Physical Function, and Cognitive function look to have not improved. This seems misleading no? 110 1
