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Ginger Billie

@gingerbillie.bsky.social
627 followers 744 following 10 posts
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Reposted by Ginger Billie
Billy Hanlon @bhanlon15.bsky.social · 03/10/2026
Dec. 2020, NYT: 'Covid Survivors With Long-Term Symptoms Need Urgent Attention, Experts Say' 'In a two-day meeting sponsored by the N.I.H., officials acknowledged an insufficient understanding of the issues and warned of a growing public health problem.' www.nytimes.com/2020/12/04/h...
nytimes.com
Covid Survivors With Long-Term Symptoms Need Urgent Attention, Experts Say (Published 2020)
In a two-day meeting sponsored by the N.I.H., officials acknowledged an insufficient understanding of the issues and warned of a growing public health problem.
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Ginger Billie @gingerbillie.bsky.social · 02/10/2026
I really do not think clinicians fully grasp how devastating two day CPETs can be for folks with #mecfs. Like I know we’re lacking objective testing, but I’d like to see long term follow ups on baselines post 2 day CPETS bc it sometimes appears cavalier with how docs talk about this.
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Ginger Billie @gingerbillie.bsky.social · 02/10/2026
I hate #mcas flares. Had to switch from cetirizine to levocetirizine bc of bad GI issues, but levo doesn’t control mcas as well. Hot, flushed, sweaty, hands/feet swollen, heart palps, no sleep. I haaaaate it. #longcovid #mecfs
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Reposted by Ginger Billie
David Tuller @davetuller1.bsky.social · 01/10/2026
Here's my interview with Guardian columnist @georgemonbiot.bsky.social about his recent column on the awful treatment of people with ME/CFS: virology.ws/2026/10/01/t...
virology.ws
Trial By Error: Interview with George Monbiot on Recent Guardian Column | Virology Blog
By David Tuller, DrPH As I mentioned last week, George Monbiot, the British investigative journalist and longtime contributor to The Guardian, published a c ...
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Ginger Billie @gingerbillie.bsky.social · 01/10/2026
And it’s only $400 for them to do a mobile draw :/ They said the money covers the draw itself. I’m not a fan of these start ups bc I’ve found, in general, tech folks severely underestimate what is needed from research -> trials (look at AlphaFold) I could be proven wrong, but I’ll just wait here.
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Ginger Billie @gingerbillie.bsky.social · 01/10/2026
David M Tuller doing god’s work for #mecfs and #longcovid like always. Interview with @georgemonbiot.bsky.social youtu.be/MaaeQ7crLz4?...
youtu.be
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
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Ginger Billie @gingerbillie.bsky.social · 29/09/2026
I am just thankful for all the people who talk and share about #longcovid and #mecfs.
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Ginger Billie @gingerbillie.bsky.social · 29/09/2026
Does anyone have recommendations for #mecfs #longcovid muscle pain? Since the last crash my biceps/quads cramp/burn/tingle with pretty much any light use. The pain is awful and I can’t use Tylenol long term.
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