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the Foundation for Peripheral Neuropathy

@foundationforpn.bsky.social
107 followers 100 following 217 posts

Through research funding, patient education and advocacy, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerate the development of treatments, and one day, cures linktr.ee/tffpn

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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 29/09/2026
Our eNewsletter, Neuropathy News: September Edition, is out today at 5PM CT! Sign up here to receive the latest in Neuropathy News: f.mtr.cool/2kljm7v2tb
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 24/09/2026
Funding opportunities through the FPN Emerging Investigators Program are now open. Deadlines: @ABFbrain: Oct. 8 @PNSociety1: Dec. 4 - Apply today!
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 22/09/2026
Why do some people with diabetic neuropathy experience pain while others don't? Researchers still don't know. Learn more from Dr. Brian Callaghan: f.mtr.cool/f173aujm0c
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Reposted by the Foundation for Peripheral Neuropathy
American Brain Foundation @abfbrain.bsky.social · 13/08/2026
Meet 2026 Next Gen. Researcher Ariel Zhang, PhD. She is running experiments to see if reducing a specific protein called ATF2 could prevent #PeripheralNeuropathy in chemotherapy patients. Funded with @foundationforpn.bsky.social. 🧠 Learn more about Dr. Zhang's research 💡➡️ buff.ly/tvHFy3v
Researcher Feature: Ariel Zhang, PhD. Dr. Zhang is a 2026 Next Generation Researcher studying peripheral neuropathy. Her research  will explore the role of a protein called ATF2 in chemotherapy-induced peripheral neuropathy (CIPN) and investigate if reducing the protein can protect against this condition. If so, this could pave the way for the development of safer cancer treatments. This research is funded by The Foundation for Peripheral Neuropathy.
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 22/07/2026
Millions live with #PeripheralNeuropathy. Progress starts w/ research. We're funding 2 #ResearchScholarships. Your gift will be matched 1:1 toward better treatments. Donate:  f.mtr.cool/cpxsehxxqs
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 08/07/2026
The Clinical Research Training Scholarship, in partnership with @abfbrain.bsky.social is accepting applications until October 1, 2026:  f.mtr.cool/ynsugmcvvg
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 18/06/2026
🚨 Double Your Impact for Neuropathy Research 🚨 This year, we're doubling our investment in next gen neuropathy researchers. Every gift will be matched $-for-$ up to $100,000. Give today, help fund research in PN. Donate Today: sbrew.link/BJNvptxo #PeripheralNeuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 11/06/2026
📣 Applications are now open for the Clinical Research Training Scholarship (CRTS)! Applications close October 1, 2026 Learn more: sbrew.link/vZGVNUJm #NeuropathyResearch #ClinicalResearch #EarlyCareerResearcher #AcademicMedicine
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 18/05/2026
University of Colorado to host Neuropathy Awareness Tour May 26, 2026: www.eventbrite.com/e/university-of-… #NeuropathyAwareness #Neuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 15/05/2026
FY26 Peer Reviewed Medical Research Program funding opportunities are now available! Get the details: www.foundationforpn.org/2026-periph… #Neuropathy #NeuropathyResearch #FundMoreResearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 09/05/2026
From the archives: Tammy’s journey with PN is a powerful reminder that connection heals. After years of uncertainty, she found hope, purpose, and joy by helping others. Sometimes, helping others helps us most. www.foundationforpn.org/tammys-stor… #neuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 09/05/2026
Research helps find better treatments and cures for PN Help support awareness + research through the Foundation Donate today: www.foundationforpn.org/donate/?utm… #NeuropathyAwareness #neuropathy #peripheralneuropathy #fundresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 09/05/2026
2026 Clinical Research Training Scholarship recipient, Christopher Cashman, MD, PhD, is studying how mitochondrial dysfunction may drive peripheral neuropathy. Watch now: www.foundationforpn.org/chris-cashm… #NeuropathyAwareness #fundresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 09/05/2026
We want to hear from you! We're always looking for inspiring peripheral neuropathy stories to share with our community. Tell us yours: www.foundationforpn.org/share-your-… #neuropathy #NeuropathyAwareness #neuropathy #peripheralneuropathy #foundationforpn
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 08/05/2026
Peer‑reviewed. Patient‑driven. Real impact. Explore scientific publications made possible through our Peripheral Neuropathy Research Registry. www.foundationforpn.org/pnrr-public… #NeuropathyAwareness #neuropathy #peripheralneuropathy #neuropathyresearch #fundresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 08/05/2026
From the archives After Vietnam, Lt. Col. Eugene Richardson endured decades of symptoms doctors dismissed. Over 30 years later, neuropathy linked to Agent Orange was confirmed. www.foundationforpn.org/eugene-rich…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 08/05/2026
Peripheral Neuropathy Awareness Week 💜 Help raise awareness of this often invisible condition and the need for more research, better treatments, and cures. #NeuropathyAwareness #PeripheralNeuropathy #FoundationForPN
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 08/05/2026
Our advocacy work is driving change. Read our call to action for peripheral neuropathy research: www.foundationforpn.org/call-to-act… #neuropathy #neuropathyresearch #NeuropathyAwareness #neuropathy #peripheralneuropathy #foundationforpn
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 07/05/2026
Living with peripheral neuropathy? You’re not alone Hear firsthand from patients what’s helped them manage symptoms, adjust their lifestyles and stay grounded. 🎥 PN Unplugged recording: www.youtube.com/watch?v=of79lzeeuDA #PeripheralNeuropathy #NeuropathyAwareness #LivingWithNeuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 07/05/2026
From the archives: Patrick spent 13 years, 9 neurologists, and 4 diagnoses before answers came. He shares how acceptance, self‑advocacy, and adaptation helped him live fully—and even win national cycling titles with neuropathy. www.foundationforpn.org/patrick-boh…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 07/05/2026
Curious where our biobank's research stands today? Explore current studies using our biobank, and how they’re advancing diagnosis, care, and treatments for people with PN. www.foundationforpn.org/current-res… #NeuropathyAwareness #neuropathy #neuropathyresearch #fundresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 07/05/2026
Author Will Schwalbe updates us on living with small fiber neuropathy, the power of friendship and lessons learned along the way. Watch now 💜 www.foundationforpn.org/video-inter… #livingwithneuropathy #neuropathy #NeuropathyAwareness
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 06/05/2026
Big win for #PN awareness 🎉 Stacey secured the Huntington, NY Proclamation, and Brooke was there to support! Together, we’re building momentum for Peripheral Neuropathy Awareness 💜 Learn more: www.foundationforpn.org/peripheral-… #NeuropathyAwareness #Neuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 06/05/2026
Our advocacy makes an impact. Advocacy consultant Mark Vieth shares how our work boosted federal PN research funding, raised awareness in Congress, and helped guide NIH focus www.foundationforpn.org/advocating-…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 06/05/2026
WATCH NOW Awareness Week webinar on idiopathic peripheral neuropathy Learn why answers are hard to find, how research is evolving With Shanna Patterson, MD, MS, FAAN Sponsored by Lilly www.youtube.com/watch?v=H2RzsnmNHNY… #NeuropathyAwareness #PeripheralNeuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 06/05/2026
TOMORROW Awareness Week Webinar: PN Unplugged A session for patients, by patients—stories, tips, support for living with PN event.on24.com/wcc/r/5315590/EBE670… #livingwithneuropathy #NeuropathyAwareness
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 06/05/2026
From the archives: Susan’s 2020 story shows the power of education. After years of symptoms and delayed answers, learning about PN helped her advocate for herself and find ways to cope. A powerful reminder that patient voices matter www.foundationforpn.org/faces-of-pn…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 05/05/2026
Rare neuropathies need research We’re funding a $525K international study for people with IgM peripheral neuropathy—advancing prediction, personalized care, and better treatments www.foundationforpn.org/a-powerful-… #NeuropathyAwareness
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 05/05/2026
We're celebrating Peripheral Neuropathy Awareness Week! Are you wearing purple? We want to see it! Post a pic and tags us! Want to support the Foundation and promote more awareness? Check out our Bonfire shop for neuropathy-themed items: www.bonfire.com/store/fpn #NeuropathyAwareness
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 05/05/2026
Diagnosed with idiopathic small fiber neuropathy at 23, Kelsey Waffle’s symptoms began years earlier. Hear her story—and her mother Debbie’s—in this interview 💜 www.foundationforpn.org/video-inter…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 04/05/2026
Meet our 2026 Clinical Research Training Scholarship recipient Ariel Zhang, PhD Zhang is studying chemotherapy-induced peripheral neuropathy: www.foundationforpn.org/ariel-zhang… #fundresearch #neuropathyresearch #neuropathy #NeuropathyAwareness
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 04/05/2026
We took neuropathy advocacy straight to lawmakers. This March, Foundation reps met with congressional aides to urge increased research funding: www.foundationforpn.org/neuropathy-… #neuropathy #peripheralneuropathy #foundationforpn
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 04/05/2026
Thanks to our dedicated supporter, Jayne Schack, Jonesboro proclaims it Peripheral Neuropathy Awareness Week 💜 www.kjnbtv.com/news/health/jonesbor… #NeuropathyAwareness #Neuropathy
kjnbtv.com
Jonesboro proclaims Peripheral Neuropathy Awareness Week
Jonesboro Mayor Harold Copenhaver proclaims the week of May 3 as Peripheral Neuropathy Awareness Week. Local resident Ja
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 04/05/2026
Tomorrow: Awareness Week webinar on idiopathic peripheral neuropathy Learn why answers are hard to find, how research is evolving With Shanna Patterson, MD, MS, FAAN Sponsored by Lilly event.on24.com/wcc/r/5305746/EEE3CE… #NeuropathyAwareness #PeripheralNeuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 03/05/2026
From the archives: Cynthia’s A Day Like Any Other—a quiet, powerful reflection on living with idiopathic peripheral neuropathy and adapting to life one mindful moment at a time. www.foundationforpn.org/cynthia-cho…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 03/05/2026
It’s Peripheral Neuropathy Awareness Week! Share your story and help raise awareness of this often invisible, debilitating condition. More research is needed for better treatments—and cures. #NeuropathyAwareness #PeripheralNeuropathy #FoundationForPN
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 28/04/2026
Awareness Week Webinar: PN Unplugged A session for patients, by patients—sharing stories, tips, and support for living with PN. Connect with others who understand. event.on24.com/wcc/r/5315590/EBE670…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 22/04/2026
Living with small & large fiber demyelinating polyneuropathy linked to Hypermobile Ehlers‑Danlos syndrome, Becca’s breaking isolation by sharing her story: www.foundationforpn.org/breaking-is… #neuropathy #HypermobileEhlersDanlosSyndrome
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 21/04/2026
FPN staff meeting up with our research scholarship recipients and attending presentations at @aanmember.bsky.social 2026 Annual Meeting in Chicago. #fundresearch #neuropathy #AANAM #neuropathyresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 20/04/2026
Shout out to Chase Burton for picking us as his cause for the Texas A&M Maroon & White game! Thanks for your support 💜#peripheralneuropathy
12thman.com
College Station, TX - April 16, 2026 - Chase Burton with his cleats for My Cause My Cleats. Photo By Jack Coil/Texas A&M Athletics - Photo Galleries
College Station, TX - April 16, 2026 - Chase Burton with his cleats for My Cause My Cleats. Photo By Jack Coil/Texas A&M Athletics, Aggies for a Cause
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 14/04/2026
Up to 27% of neuropathy cases are idiopathic. Join our Lilly‑sponsored webinar on research & causes, plus live Q&A with Dr. Shanna Patterson: event.on24.com/wcc/r/5305746/EEE3CE…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 11/04/2026
Peripheral Neuropathy Awareness Week is coming up! 🗓 May 3–9, 2026 Help us spread awareness — and show your support — with our brand-new Foundation swag 💜 Shop now in our Bonfire store: 👉 www.bonfire.com/store/fpn #PeripheralNeuropathy #NeuropathyAwareness #AwarenessWeek
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 07/04/2026
Kelsey, diagnosed with idiopathic small fiber neuropathy at 23, had symptoms years earlier. Her mom Debbie shares Kelsey’s journey, grief and legacy—and how Kelsey’s dog, Brody, became a therapy dog after her passing. www.foundationforpn.org/video-inter…
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 01/04/2026
TOMORROW! Join us for a webinar about recent tax law changes and how they may affect your charitable giving. Register: event.on24.com/wcc/r/5243529/CC4809… #fundmoreresearch #FoundationForPN #giving
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 31/03/2026
Your experience with PN matters. Turn it into action – ask your hometown to recognize PN Awareness Week (May 3-9, 2026). Get the proclamation template: 🔗 www.foundationforpn.org/wp-content/… #peripheralneuropathyawareness #pnawareness #neuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 28/03/2026
We’re excited to share our 2025 impact report. We know our mission matters to you. See how we're using our mission to drive progress for the PN community: heyzine.com/flip-book/45cc472b17.ht… #neuropathy #FoundationForPN #fundmoreresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 25/03/2026
This powerful new study aims to predict and prevent anti-MAG neuropathy: www.foundationforpn.org/a-powerful-… #neuropathy #neuropathyresearch #fundmoreresearch
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 19/03/2026
A new look—same strong commitment Our updated logo reflects who we are today while staying true to our mission for the neuropathy community. www.foundationforpn.org/why-were-up… Designed with EPIC Creative
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 19/03/2026
At our second annual Neuropathy Advocacy Day, patients and advocates met with lawmakers to push for critical research funding—and shared powerful stories that put a face to this disease. www.foundationforpn.org/neuropathy-… #NeuropathyAdvocacyDay #PeripheralNeuropathy
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the Foundation for Peripheral Neuropathy @foundationforpn.bsky.social · 11/03/2026
It's Neuropathy Advocacy Day! We're in DC, meeting with congressional aids about the importance PN research. We're honored to represent the estimated 30M PN patients in the US to push for more research, better treatments and one day cures. #neuropathy #fundmoreresearch
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