iiinova — where your digital self keeps evolving

ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 12/10/2026

📢 Get ready for our next Webinar coming up in November Topic: 𝐍𝐞𝐩𝐡𝐫𝐨𝐩𝐚𝐭𝐡𝐢𝐜 𝐂𝐲𝐬𝐭𝐢𝐧𝐨𝐬𝐢𝐬 🗓️ Date: Tuesday, 03 November 🕓 Time: 4 - 5 PM CET 🗣️ Speaker: Katharina Hohenfellner (Germany) 🖥️ Moderator: tbd 👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: tinyurl.com/yt82pmfd 🖥️ All upcoming webinars: tinyurl.com/283hsevm

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 08/10/2026

𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐨𝐩𝐭𝐢𝐨𝐧𝐬 𝐚𝐫𝐞 𝐥𝐢𝐯𝐞 🔎 beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: 𝐆𝐥𝐲𝐜𝐨𝐬𝐲𝐥𝐚𝐭𝐢𝐨𝐧 𝐚𝐧𝐝 𝐃𝐞𝐧𝐭’𝐬 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐭𝐲𝐩𝐞 1. 🔗 Check our website for how to get involved: tinyurl.com/2kt3cr6

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 25/09/2026

📬 The September 𝐄𝐑𝐊𝐍𝐞𝐭 𝐍𝐞𝐰𝐬𝐥𝐞𝐭𝐭𝐞𝐫 is out now! 𝐒𝐮𝐛𝐬𝐜𝐫𝐢𝐛𝐞 𝐡𝐞𝐫𝐞: www.erknet.org

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 24/09/2026

📝 𝐒𝐮𝐫𝐯𝐞𝐲 𝐇𝐢𝐠𝐡𝐥𝐢𝐠𝐡𝐭 - Shared decision making in the prenatal diagnosis of CAKUT We would like to highlight this running survey from Jeremy Power. 🔗 Find the survey here: tinyurl.com/yf9p4x7c 💻 More info on this survey, and all running surveys: www.erknet.org/research/erknet-surv…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 24/09/2026

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 21/09/2026

📢 Next fall webinar coming up soon! Topic: 𝐏𝐚𝐭𝐡𝐨𝐥𝐨𝐠𝐲 𝐨𝐟 𝐓𝐌𝐀 🗓️ Date: Tuesday, 06 October 🕓 Time: 4 - 5 PM CET 🗣️ Speaker: Jan Becker (Germany) 💡Moderator: tbd 👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰 tinyurl.com/49ddsuyh See all webinars here: tinyurl.com/yzwad3ue

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 17/09/2026

🇪🇪 PICKED in Tallinn! The PICKED community is getting together in Tallinn to share research, exchange ideas and look at how we can turn scientific discoveries into real-world impact. 🧬💡 🔗More info: www.projectpicked.eu Wishing everyone a great final day!

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 07/09/2026

🇭🇺 Three days of 𝐀𝐥𝐩𝐨𝐫𝐭 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 in Budapest! What an honor for ERKNet to be part of the 10th International Workshop on Alport Syndrome. We supported logistically and on-site and were also happy to see that many members of our network presented posters, talks or both 💙

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 02/09/2026

🎓 The 7th 𝐄𝐑𝐊𝐍𝐞𝐭 𝐏𝐨𝐬𝐭𝐠𝐫𝐚𝐝𝐮𝐚𝐭𝐞 𝐂𝐮𝐫𝐫𝐢𝐜𝐮𝐥𝐮𝐦 is starting again soon! ERKNet members only - Want to become a 𝐄𝐮𝐫𝐨𝐩𝐞𝐚𝐧 𝐒𝐩𝐞𝐜𝐢𝐚𝐥𝐢𝐬𝐭 𝐢𝐧 𝐑𝐚𝐫𝐞 𝐊𝐢𝐝𝐧𝐞𝐲 𝐃𝐢𝐬𝐞𝐚𝐬𝐞𝐬 and learn alongside colleagues from across Europe? 🩺🌍 📅 𝐀𝐩𝐩𝐥𝐲 𝐛𝐲 31 October 2026 🔗 More info & registration: tinyurl.com/yctt4ctz

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 31/08/2026

📢 Dont miss our next 𝐖𝐞𝐛𝐢𝐧𝐚𝐫 Topic: 𝐓𝐡𝐞 𝐄𝐮𝐫𝐨𝐩𝐞𝐚𝐧 𝐝𝐢𝐬𝐭𝐚𝐥 𝐫𝐞𝐧𝐚𝐥 𝐭𝐮𝐛𝐮𝐥𝐚𝐫 𝐚𝐜𝐢𝐝𝐨𝐬𝐢𝐬 𝐫𝐞𝐠𝐢𝐬𝐭𝐫𝐲: 𝐚 𝐟𝐢𝐯𝐞 𝐲𝐞𝐚𝐫 𝐚𝐧𝐚𝐥𝐲𝐬𝐢𝐬 🗓️ Date: Tuesday, 01 Sep 🕓 Time: 4 - 5 PM CET 🗣️ Speaker: Marta Giaccari (Italy) 💡Mod: Francesco Trepiccione 👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰 register.gotowebinar.com/register/7…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 25/08/2026

𝐄𝐑𝐊𝐍𝐞𝐭 𝐌𝐞𝐦𝐛𝐞𝐫𝐬 𝐎𝐧𝐥𝐲! It's the 2nd call for the ERKNet 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐅𝐞𝐥𝐥𝐨𝐰𝐬𝐡𝐢𝐩 𝐏𝐫𝐨𝐠𝐫𝐚𝐦𝐦𝐞 and we invite junior clinicians and researchers to apply for one of two selected research projects 🏥 💡Check out the slides/our website for more info and application tinyurl.com/2s4cfbf5

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 19/08/2026

𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇮🇹 At the 𝐀𝐳𝐢𝐞𝐧𝐝𝐚 𝐎𝐬𝐩𝐞𝐝𝐚𝐥𝐢𝐞𝐫𝐚 𝐝𝐢 𝐏𝐚𝐝𝐨𝐯𝐚, Franzi spent a week supporting ERKReg data entry and exchanging ideas to improve the registry. Padova... lavorare con voi è fantastico. Grazie! 💚🤍♥️📊

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 06/08/2026

𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇮🇹 At the 𝐀𝐒𝐒𝐓 𝐒𝐩𝐞𝐝𝐚𝐥𝐢 𝐂𝐢𝐯𝐢𝐥𝐢 𝐁𝐫𝐞𝐬𝐜𝐢𝐚, Franzi spent two days supporting ERKReg data entry and exchanging ideas to improve the registry. Grazie per tutto ai nostri colleghi di Brescia 💚🤍♥️📊

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 04/08/2026

🌟Meet Mathias Häberle - Web Developer and System Administrator 🌟 Mathias has been with us for a very long time, working behind the scenes for ERKNet and ERDERA. Read up on his interests, next projects and what his co-workers have to say about him 💻

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 30/06/2026

📣 Help us shape the 𝐟𝐮𝐭𝐮𝐫𝐞 𝐨𝐟 𝐭𝐫𝐚𝐧𝐬𝐢𝐭𝐢𝐨𝐧 𝐜𝐚𝐫𝐞! We are launching the ERKNet 𝐘𝐨𝐮𝐭𝐡 𝐏𝐚𝐧𝐞𝐥, a new initiative that gives young people living with rare kidney diseases the opportunity to actively contribute to improving the transition from pediatric to adult care 🔗 Learn more & apply: contact@erknet.org

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 29/06/2026

📬 The June 𝐄𝐑𝐊𝐍𝐞𝐭 𝐍𝐞𝐰𝐬𝐥𝐞𝐭𝐭𝐞𝐫 is out now! We won't spoil all the details here — you'll have to read the newsletter yourself to discover what's ahead! 𝐒𝐮𝐛𝐬𝐜𝐫𝐢𝐛𝐞 𝐡𝐞𝐫𝐞: www.erknet.org

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 26/06/2026

💻 “𝐅𝐫𝐨𝐦 𝐂𝐚𝐫𝐞 𝐭𝐨 𝐂𝐮𝐫𝐞: An EU-wide Network advancing rare kidney disease healthcare and research” EKHA and ERKNet brought together multiple stakeholders for a webinar. One message stood out: Europe already has strong expertise, networks, and tools in place. The next step is turning them into action

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 24/06/2026

💬 Recap from our 𝐛𝐢-𝐚𝐧𝐧𝐮𝐚𝐥 𝐄𝐒𝐂𝐀𝐏𝐄 𝐍𝐞𝐭𝐰𝐨𝐫𝐤 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 Over 2 days, colleagues from across Europe came together to share progress and updates from ongoing projects and trials 📊 Thanks to everyone who contributed, we look forward to seeing you again for our fall meeting from 26.-27.11.26 in Heidelberg

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 23/06/2026

Inter-ERN Consensus Meeting | 𝐁𝐞𝐥𝐳𝐮𝐭𝐢𝐟𝐚𝐧 𝐢𝐧 𝐯𝐨𝐧-𝐇𝐢𝐩𝐩𝐞𝐥-𝐋𝐢𝐧𝐝𝐚𝐮-𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 Last week, intl. experts met in Heidelberg to develop consensus recommendations on the use of belzutifan in von Hippel–Lindau (VHL) disease 📖 𝐑𝐞𝐚𝐝 𝐦𝐨𝐫𝐞: www.erknet.org/news/inter-ern-conse…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 11/06/2026

𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇮🇹 At the 𝐑𝐨𝐦𝐞 𝐆𝐞𝐦𝐞𝐥𝐥𝐢 𝐇𝐨𝐬𝐩𝐢𝐭𝐚𝐥, Franzi spent four days supporting ERKReg data entry and exchanging ideas to improve the registry. Grazie per tutto ai nostri colleghi di Roma 💚🤍♥️📊

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 09/06/2026

📢 Dont miss our next 𝐖𝐞𝐛𝐢𝐧𝐚𝐫 in July Topic: 𝐁𝐌𝐓-𝐚𝐬𝐬𝐨𝐜𝐢𝐚𝐭𝐞𝐝 𝐓𝐌𝐀 🗓️ Date: Tuesday, 07 July 🕓 Time: 4 - 5 PM CET 🗣️ Speaker: Marina Vivarelli (Italy) 👉 𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫 𝐧𝐨𝐰: register.gotowebinar.com/register/1… 🖥️ All upcoming webinars: tinyurl.com/283hsevm

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 08/06/2026

ERKNet was pleased to be represented at #ECRD2026 in Prague 🇪🇺 Key discussions highlighted the need for an 𝐄𝐔 𝐀𝐜𝐭𝐢𝐨𝐧 𝐏𝐥𝐚𝐧 𝐨𝐧 𝐑𝐚𝐫𝐞 𝐃𝐢𝐬𝐞𝐚𝐬𝐞𝐬, improved access to diagnosis and specialised care, stronger patient involvement, and better integration of research, data and innovation.

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 02/06/2026

💙 A Recap of our 𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 in Lyon 🇫🇷 From inspiring sessions and engaging discussions to shared meals, team moments, and our now traditional journey together, this reel captures a little of what makes our Annual Meeting so special.

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 01/06/2026

𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐨𝐩𝐭𝐢𝐨𝐧𝐬 𝐚𝐫𝐞 𝐥𝐢𝐯𝐞 🔎 beyond our funded fellowships, we’re sharing extra self-funded projects you can still join. Today’s spotlight: 𝐅𝐮𝐥𝐥 𝐇𝐨𝐮𝐬𝐞 𝐍𝐞𝐩𝐡𝐫𝐨𝐩𝐚𝐭𝐡𝐲. Check our website for how to get involved. 🔗https://tinyurl.com/49cvsr87 #ERKNet #RareKidneyDiseases #Research #Collaboration #FHN

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 29/05/2026

📬 Our latest ERKNet Newsletter is out now! What's inside? 🖥️ Registry updates 🌍 Developments from across the network 🤝 Our open call to become an 𝐀𝐟𝐟𝐢𝐥𝐢𝐚𝐭𝐞𝐝 𝐏𝐚𝐫𝐭𝐧𝐞𝐫 📚 Educational updates 🚀 Exciting events that are coming up this year 𝐒𝐮𝐛𝐬𝐜𝐫𝐢𝐛𝐞 𝐡𝐞𝐫𝐞: www.erknet.org

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 27/05/2026

The 2026 𝐈𝐧𝐭𝐞𝐫𝐧𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐨𝐧 𝐀𝐥𝐩𝐨𝐫𝐭 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 is coming to Budapest from 05.-07.09.26 🇭🇺 We will explore research across kidney health, hearing, vision and genetics as well as clinical trials, new treatments, and the importance of early diagnosis 🔗 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐚𝐭𝐢𝐨𝐧: www.alportsyndromealliance.org

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 13/05/2026

𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 2026 🇫🇷 Our 10th Annual Meeting concluded one week ago today. We could not be happier with the feedback, the results and the follow-up ideas and projects. Thank you so much to everyone that joined, we can't wait to see everyone again in 2027 in Heidelberg 💙

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 05/05/2026

𝐃𝐚𝐲 2 𝐨𝐟 𝐨𝐮𝐫 𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 in Lyon 🇫🇷 The momentum continues! We started the day with our Network Board meeting, followed by a session on JARDIN, which led into a session on ERKNet registry activities. We wrapped up the first half of the day with our session on ATMPs in Nephrology.

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 04/05/2026

10th 𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 - Day 1 in Lyon🇫🇷 We started off with our ERKReg Board and ExCom meetings, followed by a warm welcome from our coordinator & ePAG chairs It’s great to see everyone from across the network in person again, a bit like meeting old friends where no time seems to have passed💙

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 01/05/2026

Annual Meeting WG Session III - 𝐓𝐮𝐛𝐮𝐥𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting. Our third and final WG session will take place on Wednesday, May 6th from 08:00 - 10:00 CET, which includes the 𝐓𝐮𝐛𝐮𝐥𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 WG

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 30/04/2026

Annual Meeting - 𝐁𝐞𝐬𝐭 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐀𝐛𝐬𝐭𝐫𝐚𝐜𝐭 𝐒𝐞𝐬𝐬𝐢𝐨𝐧 After numerous submissions, we are also very excited to announce our best research abstract presenters. This session will be on Tue., May 5th from 17:00 - 18:30 CET 📝 You can also 𝐟𝐨𝐥𝐥𝐨𝐰 𝐚𝐥𝐨𝐧𝐠 𝐯𝐢𝐫𝐭𝐮𝐚𝐥𝐥𝐲 🔗 tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 29/04/2026

Annual Meeting Session VI - 𝐂𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐓𝐫𝐢𝐚𝐥 𝐑𝐞𝐚𝐝𝐢𝐧𝐞𝐬𝐬 𝐢𝐧 𝐍𝐞𝐩𝐡𝐫𝐨𝐥𝐨𝐠𝐲 We wrap up our Annual Meeting with the last plenary session on Wed., May 6th from 10:30-13:00 CET, moderated by Olivia Boyer. It's definitely one you don't want to miss💡 Want to 𝐟𝐨𝐥𝐥𝐨𝐰 𝐚𝐥𝐨𝐧𝐠 𝐯𝐢𝐫𝐭𝐮𝐚𝐥𝐥𝐲? 🔗https://tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 28/04/2026

Annual Meeting WG Session III - 𝐂𝐀𝐊𝐔𝐓 & 𝐂𝐢𝐥𝐢𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting. 🔗 Check out more info here: www.erknet.org/our-experts/expert-w…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 27/04/2026

Annual Meeting Session V - 𝐓𝐚𝐬𝐤 𝐅𝐨𝐫𝐜𝐞 𝐔𝐩𝐝𝐚𝐭𝐞𝐬 It's our last plenary session on Tuesday, May 5th from 16:40 - 17:00 CET, and we're hearing some important input from two of our Task Forces 💡 You can also 𝐟𝐨𝐥𝐥𝐨𝐰 𝐚𝐥𝐨𝐧𝐠 𝐯𝐢𝐫𝐭𝐮𝐚𝐥𝐥𝐲 during our Annual Meeting? Register here: 🔗 tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 24/04/2026

Annual Meeting WG Session II-𝐀𝐃 𝐒𝐭𝐫𝐮𝐜𝐭𝐮𝐫𝐚𝐥 𝐊𝐢𝐝𝐧𝐞𝐲 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting. Our 2nd session will take place on Tu., May 5th, 14:15-16:15 CET, including the 𝐀𝐮𝐭𝐨𝐬𝐨𝐦𝐚𝐥 𝐝𝐨𝐦𝐢𝐧𝐚𝐧𝐭 𝐬𝐭𝐫𝐮𝐜𝐭𝐮𝐫𝐚𝐥 𝐤𝐢𝐝𝐧𝐞𝐲 𝐝𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 WG

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 23/04/2026

Annual Meeting Session IV - 𝐀𝐓𝐌𝐏𝐬 𝐢𝐧 𝐍𝐞𝐩𝐡𝐫𝐨𝐥𝐨𝐠𝐲 - 𝐏𝐭. 2 Our session on Tuesday, May 5th from 11:30-13:15 CET, continues to give a closer look into groundbreaking new opportunities for the treatment of diseases 💡 Want to 𝐟𝐨𝐥𝐥𝐨𝐰 𝐚𝐥𝐨𝐧𝐠 𝐯𝐢𝐫𝐭𝐮𝐚𝐥𝐥𝐲? 🔗https://tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 22/04/2026

Annual Meeting WG Session II - 𝐈𝐦𝐦𝐮𝐧𝐞 𝐆𝐏 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting. Our second WG session will take place on Tuesday, May 5th from 14:15 - 16:15 CET, which includes the 𝐈𝐦𝐦𝐮𝐧𝐞 𝐆𝐥𝐨𝐦𝐞𝐫𝐮𝐥𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 WG

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 21/04/2026

Annual Meeting Session IV - 𝐀𝐓𝐌𝐏𝐬 𝐢𝐧 𝐍𝐞𝐩𝐡𝐫𝐨𝐥𝐨𝐠𝐲 - 𝐏𝐭. 1 Our next session on Tuesday, May 5th from 11:30 - 13:15 CET, gives a closer look into groundbreaking new opportunities for the treatment of diseases. Want to 𝐟𝐨𝐥𝐥𝐨𝐰 𝐚𝐥𝐨𝐧𝐠 𝐯𝐢𝐫𝐭𝐮𝐚𝐥𝐥𝐲? Register here: 🔗 tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 20/04/2026

Annual Meeting WG Session II - 𝐓𝐌𝐀 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting 💡 Our second WG session will take place on Tuesday, May 5th from 14:15 - 16:15 CET, which includes the 𝐓𝐡𝐫𝐨𝐦𝐛𝐨𝐭𝐢𝐜 𝐌𝐢𝐜𝐫𝐨𝐚𝐧𝐠𝐢𝐨𝐩𝐚𝐭𝐡𝐢𝐞𝐬 WG

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 15/04/2026

Annual Meeting WG Session I - 𝐏𝐞𝐝𝐢𝐚𝐭𝐫𝐢𝐜 𝐂𝐊𝐃 & 𝐃𝐢𝐚𝐥𝐲𝐬𝐢𝐬 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting 👥 Check out more info here www.erknet.org/our-experts/expert-w…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 14/04/2026

Annual Meeting WG Session I - 𝐌𝐞𝐭𝐚𝐛𝐨𝐥𝐢𝐜 𝐍𝐏 + 𝐒𝐭𝐨𝐧𝐞 𝐃𝐢𝐬𝐨𝐫𝐝𝐞𝐫𝐬 As every year, we take the opportunity to hold our working group sessions on site during the annual meeting 👥 Check out more info here www.erknet.org/our-experts/expert-w… 💡

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 13/04/2026

Annual Meeting Session III - 𝐄𝐑𝐊𝐑𝐞𝐠 𝐎𝐮𝐭𝐩𝐮𝐭𝐬: 𝐂𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐯𝐞 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐏𝐫𝐨𝐣𝐞𝐜𝐭, 𝐄𝐱𝐜𝐡𝐚𝐧𝐠𝐞𝐬 The second part of our registry activities block on Tuesday, May 5th from 10:00 - 11:00 CET, moderated by Franz Schaefer, and it's packed with interesting talks 🗣️ Register here: tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 13/04/2026

Annual Meeting WG Session I - 𝐇𝐞𝐫𝐞𝐝𝐢𝐭𝐚𝐫𝐲 𝐆𝐏 As every year, we take the opportunity to hold our working group sessions on site. Our first WG session will take place on Mon., May 4th from 16:30 - 18:30 CET, which includes the 𝐇𝐞𝐫𝐞𝐝𝐢𝐭𝐚𝐫𝐲 𝐆𝐏 WG Check out the highlights from the last session 💡

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 08/04/2026

Annual Meeting Session III - 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐲 𝐀𝐜𝐭𝐢𝐯𝐢𝐭𝐢𝐞𝐬: 𝐎𝐯𝐞𝐫𝐯𝐢𝐞𝐰 𝐚𝐧𝐝 𝐔𝐩𝐝𝐚𝐭𝐞𝐬 Our next session on Tue., May 5th from 09:35-10:00 CET leads into our registry activities block. Don't miss this session to get a first look at ERKReg 2.0 and our subregistries 👀 Register here: 🔗 tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 07/04/2026

Annual Meeting Session II - 𝐉𝐀𝐑𝐃𝐈𝐍 𝐎𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐚𝐧𝐝 𝐈𝐦𝐩𝐥𝐞𝐦𝐞𝐧𝐭𝐚𝐭𝐢𝐨𝐧 𝐢𝐧𝐭𝐨 𝐍𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐇𝐞𝐚𝐥𝐭𝐡 𝐒𝐲𝐬𝐭𝐞𝐦 Here we showcase how collaborative EU efforts are shaping measurable outcomes, structured care pathways, and scalable integration strategies for rare kidney diseases Virtual Reg🔗 tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 02/04/2026

Annual Meeting Session I - 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐭𝐢𝐜𝐬 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐟𝐨𝐫 𝐔𝐧𝐬𝐨𝐥𝐯𝐞𝐝 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬 We're starting out strong with our first session on Tuesday, May 4th from 15:35-16:00 CET. A discussion on how we can improve diagnosis for patients who remain without answers 👥 Virtual registration: tinyurl.com/2tmenbey

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 31/03/2026

🇫🇷 A postcard from Lyon just arrived… Only 5 weeks to go until our ERKNet Annual Meeting! In Lyon, we’ll be welcoming around 150 participants from 60 centres across 18 countries. Virtual attendance will be available. Expect a few more postcards from us with what’s waiting for you in Lyon 💙

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 24/03/2026

𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇷🇴 At the Bucharest Fundeni Clinical Institute, Franzi spent five days supporting ERKReg data entry and exchanging ideas to improve the registry. Vă mulțumim mult pentru ospitalitate 💙💛❤️📊

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 16/03/2026

📢 We have some 𝐧𝐞𝐰 𝐖𝐞𝐛𝐢𝐧𝐚𝐫𝐬 coming your way! Topic: 𝐂𝐢𝐧𝐚𝐜𝐚𝐥𝐜𝐞𝐭 𝐢𝐧 𝐝𝐢𝐚𝐥𝐲𝐬𝐢𝐬 𝐚𝐧𝐝 𝐛𝐞𝐥𝐨𝐰 3 𝐲𝐞𝐚𝐫𝐬 𝐨𝐟 𝐚𝐠𝐞 𝐚𝐧𝐝 𝐚𝐟𝐭𝐞𝐫 𝐓𝐱 🗓️ Date: 14 April 🕓 Time: 4 - 5 PM CET 🗣️ Speakers: Julie Bernador (France) Together with ESPN 🔗 Register here: register.gotowebinar.com/register/8…

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ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social · 05/03/2026

𝐎𝐧 𝐭𝐡𝐞 𝐑𝐨𝐚𝐝 𝐰𝐢𝐭𝐡 𝐄𝐑𝐊𝐑𝐞𝐠 🚙🇳🇱 At the 𝐀𝐦𝐬𝐭𝐞𝐫𝐝𝐚𝐦 𝐀𝐜𝐚𝐝𝐞𝐦𝐢𝐜 𝐔𝐧𝐢𝐯𝐞𝐫𝐬𝐢𝐭𝐲 𝐌𝐞𝐝𝐢𝐜𝐚𝐥 𝐂𝐞𝐧𝐭𝐞𝐫 (𝐀𝐔𝐌𝐂), Franzi spent a couple of days supporting ERKReg data entry and exchanging ideas to improve the registry. Hartelijk dank voor de fijne tijd ❤️🤍💙📊

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