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Epilepsy Scotland

@epilepsyscotland.bsky.social
203 followers 91 following 114 posts

Providing information, support, and services to people living with epilepsy and their families in Scotland. Freephone helpline 0808 800 2200. Find out more at www.epilepsyscotland.org.uk

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Epilepsy Scotland @epilepsyscotland.bsky.social · 11/06/2025
💬 Join Epilepsy Scotland’s next Online Support Group. It’s a safe space to share, ask questions, and connect with others living with epilepsy. To register, email: contact@epilepsyscotland.org.uk Date: 25 June 2025 Time: 11am – 12 noon #EpilepsySupport #CommunityCare
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Epilepsy Scotland @epilepsyscotland.bsky.social · 02/06/2025
💜 Thank you to the Student Loans Company team who raised £835 in memory of their colleague Emma. The walk at Chatelherault Park included mindfulness & wildflower planting — a true celebration of Emma’s spirit. #WalkInMemory #EpilepsyScotland
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Epilepsy Scotland @epilepsyscotland.bsky.social · 26/05/2025
This #NationalEpilepsyWeek, Epilepsy Scotland is raising awareness of sudden unexpected death in epilepsy (SUDEP). This is especially important given figures of number of people in Scotland with epilepsy could be 40% higher. Coverage of Epilepsy Scotland: www.scotsman.com/news/spike-i...
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Epilepsy Scotland @epilepsyscotland.bsky.social · 22/05/2025
Wishing luck to the team from Spiers Gumley & James Gibb climbing Buachaille Etive Mòr tomorrow for Epilepsy Scotland! Emma, diagnosed with epilepsy last year, shares her powerful story on our podcast 🎧 spoti.fi/3XYZtalk #TalkEpilepsy #Fundraiser
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Epilepsy Scotland @epilepsyscotland.bsky.social · 22/05/2025
💬 Join Epilepsy Scotland’s next Online Support Group. It’s a safe space to share, ask questions, and connect with others living with epilepsy. 📧 To register, email: contact@epilepsyscotland.org.uk #EpilepsySupport #CommunityCare
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Epilepsy Scotland @epilepsyscotland.bsky.social · 22/05/2025
Our Glasgow Kiltwalkers raised an incredible £18,839.19! We still have another 3 Kiltwalks this summer in Aberdeen, Dundee, and Edinburgh. If you would like to sign up for the challenge, we would love to hear from you at fundraising@epilepsyscotland.org.uk or call 01414274911.
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Epilepsy Scotland @epilepsyscotland.bsky.social · 04/05/2025
Each person's experience with epilepsy is unique, and assuming otherwise can be incredibly frustrating for those living with the condition. Learn more about how to be a better ally to someone with epilepsy by visiting our website: buff.ly/UtPtQs9 #Epilepsy #SeizuresTriggers #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 02/05/2025
Some days are harder than others. Some days it feels like an uphill battle. But remember. You are stronger than you think. Epilepsy doesn't define you—it's just one part of you. #TalkEpilepsy #Epilepsy #EpilepsyAwareness #EpilepsyWarriors #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 30/04/2025
🚨 Would you know what to do if someone had a seizure right in front of you? 🚨 Tonic-clonic seizures can be scary, but you can make a difference! 💪 Be a seizure superhero! 🦸‍♀️🦸‍♂️ Share this potentially life-saving info! Learn more via our website: buff.ly/QNvst65 #SeizureFirstAid #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 29/04/2025
Over the next few weeks, our team will be breaking down the biggest misconceptions about epilepsy. ➡️ Learn about the different types of seizures on our website: buff.ly/AIlXGUW #EpilepsyAwareness #KnowTheFacts #BreakingTheStigma #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 28/04/2025
Today, 28 April 2025, would have been Hayley's 30th birthday. 10 years ago, Alana's daughter was taken too soon by Sudden Unexplained Death in Epilepsy (SUDEP). You can read her story via our website: buff.ly/yysZ2ko #SUDEP #EpilepsyAwareness #Epilepsy #RememberingHayley
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Epilepsy Scotland @epilepsyscotland.bsky.social · 27/04/2025
Whether you or someone you love is affected by epilepsy, learning about different seizure types is an important step. Want to learn more? Check out our factsheet via the following link: buff.ly/AIlXGUW #Seizures #SeizureAwareness #Epilepsy #EpilepsyAwareness #TalkEpilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 25/04/2025
Did you know? Not all seizures require hospitalisation. In most cases, the person simply needs time to rest and recover afterward. Find out when you should call an ambulance via our website: buff.ly/QNvst65 #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #TalkEpilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 24/04/2025
Derek was diagnosed with epilepsy when he was a young boy. He shares the challenges he has faced whilst living with epilepsy and what he would say to others who have been recently diagnosed. 📖 Read his story via our website: buff.ly/IhAmaGj #TalkEpilepsy #Epilepsy #EpilepsyAwareness #Memory
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Epilepsy Scotland @epilepsyscotland.bsky.social · 23/04/2025
This month is #StressAwarenessMonth. It is not always easy to tell if you are stressed. Others might notice it before you do. Want to understand the connection between stress and epilepsy better? We've created a comprehensive factsheet just for you: buff.ly/VITL0KJ #Stress #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 21/04/2025
What does epilepsy feel like to you? #TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 20/04/2025
Living with epilepsy isn't easy. What would you add to this list? If you've been newly diagnosed and are looking for information and support, visit our website to find resources specifically designed to help you navigate this journey: buff.ly/uNqKQ0h #EpilepsyAwareness #Epilepsy #EpilepsySupport
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Epilepsy Scotland @epilepsyscotland.bsky.social · 20/04/2025
Happy Easter from everyone at Epilepsy Scotland! 🐇 🥚 #HappyEaster #Easter #EasterEggs #EasterBunny
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Epilepsy Scotland @epilepsyscotland.bsky.social · 18/04/2025
Our free Epilepsy and Memory Guide offers practical strategies and valuable info to help improve your memory and regain confidence in your daily activities. Get your copy today: ✅ Download directly: buff.ly/BFp7Tu4 ✅ Email us: contact@epilepsyscotland.org.uk #Epilepsy #Memory #MoreThanSeizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 17/04/2025
Nicole’s husband David was diagnosed with epilepsy after having a seizure while driving in 2017. David lost his license, independence, and eventually his job. Nicole shares her story and the impact epilepsy has had on both of their lives: buff.ly/TKnWJPH #Epilepsy #TalkEpilepsy #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 16/04/2025
Our amazing Purple Pandas Youth Group has created something special - an A-Z guide of epilepsy-related words to help spread awareness about the condition! What would your A-Z of epilepsy include? Share your ideas in the comments below! 👇 #PurplePandas #EpilepsyAwareness #Epilepsy #Support
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Epilepsy Scotland @epilepsyscotland.bsky.social · 14/04/2025
Epilepsy isn't just seizures and flashing lights. There's so much about living with epilepsy that remains unseen and misunderstood. Learn more about epilepsy via our website at: buff.ly/W9P6wwa #Epilepsy #EpilepsyAwareness #MoreThanSeizures #TalkEpilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 13/04/2025
Seizures aren't always the dramatic convulsions you see in movies. There are actually over 40 different types of seizures - many so subtle that only close friends and family notice them happening. Learn more on our website: buff.ly/AlwOjYN #Seizures #SeizureAwareness #Epilepsy #EpilepsyAware
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Epilepsy Scotland @epilepsyscotland.bsky.social · 11/04/2025
From cognitive challenges and emotional impacts to sleep deprivation and medication side effects - the complete picture of epilepsy extends far beyond what most people understand. To discover the hidden aspects of epilepsy visit our website: buff.ly/xicy4Jm  #Epilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 10/04/2025
Diagnosed at just three years old, Marina opens up about her lifelong journey with epilepsy - from childhood to motherhood. Read her full story and discover how she found reassurance despite the challenges faced: buff.ly/nmbk9rz #Epilepsy #EpilepsyAwareness #TalkEpilepsy #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 09/04/2025
People can't see what it's like navigating seizures, medication side effects, and the uncertainty of when the next seizure might occur. Learn more about epilepsy and how it affects someone by going to our website: buff.ly/wXKW7L8 #Epilepsy #InvisibleDisabilities #TalkEpilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 08/04/2025
Three years ago, James's life changed forever when he collapsed at work and was diagnosed with epilepsy. Today, he's training for the Edinburgh Half Marathon 2025 to support Epilepsy Scotland! 🏃‍♂️💜 Read his inspiring story via our website: buff.ly/XjQ1ikO #TalkEpilepsy #Epilepsy #EMF
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Epilepsy Scotland @epilepsyscotland.bsky.social · 07/04/2025
We've all been there - wanting to support someone but accidentally saying something that might hurt rather than help. Learn more about epilepsy and how to be a supportive friend, family member, or colleague by visiting our website: buff.ly/yktIj2b #Epilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 06/04/2025
For just £10 a month—less than a streaming subscription—you can empower young people across Scotland to find their voices through our Youth Service. 🔄 Set up a monthly donation to create lasting change. 📱 Scan the QR code or donate via our website: buff.ly/alclnCT #MakeADifference #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 03/04/2025
Did you know? Sleep seizures can happen any time you're sleeping. 💤 How do you know if you've had a seizure while sleeping? Watch for the signs below. Want to learn more about sleep seizures read our factsheet: buff.ly/24iCf9e #SleepSeizures #Seizures #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 02/04/2025
How much has epilepsy impacted your memory? How do you overcome this? For valuable tips and insights on how to improve your memory, be sure to check out our epilepsy and memory guide: buff.ly/xUK6Wdt #Memory #Epilepsy #TalkEpilepsy #Support #MemoryGuide
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Epilepsy Scotland @epilepsyscotland.bsky.social · 01/04/2025
Did you know these epilepsy facts? Understanding epilepsy helps create a more inclusive society for the over 80,000 people living with epilepsy in Scotland. Share this post to spread awareness! Find out more about the condition via our website: buff.ly/YO2g6Ca
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Epilepsy Scotland @epilepsyscotland.bsky.social · 31/03/2025
Have you ever seen someone suddenly "zone out" mid-conversation? It might look like daydreaming, but it could be an absence seizure. The good news? These seizures are typically easy to support, with minimal risk of injury. Simply follow the steps below. #AbsenceSeizures #Epilepsy #SeizureFirstAid
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Epilepsy Scotland @epilepsyscotland.bsky.social · 28/03/2025
There are over 40 different types of seizures – and many don't look like what you see in movies. Learn more about how seizures affect people: buff.ly/IrY299e #EpilepsyAwareness #SeizureAwareness #Epilepsy #SeizureEducation
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Epilepsy Scotland @epilepsyscotland.bsky.social · 28/03/2025
A massive thank you to all the incredible buildings and landmarks that shone bright purple yesterday for Purple Day! You can continue making a difference for those living with epilepsy in Scotland. 🔗 Donate today via our website: buff.ly/DOxblOI #PurpleDay #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 26/03/2025
Imagine struggling to find the right words, feeling confused, and battling emotional instability – all while trying to maintain a sense of normalcy. These are the invisible challenges Joe has gone through. Read his story here: buff.ly/AOslVMd #PurpleDay #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 26/03/2025
Heather was just 11, when she was diagnosed with Juvenile Myoclonic Epilepsy, but she's refused to let her condition define her. She has helped raise awareness at her College by sharing her story: buff.ly/esTNmIh #PurpleDay #PurpleDay2025 #Epilepsy #EpilepsyAwareness #TalkEpilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 26/03/2025
Inspired by all our great fundraisers, today, our team braved the chilly weather to walk 2.6km along the River Clyde, from the SEC and back to our Govan Road offices - all to support epilepsy awareness! What are you doing to support #PurpleDay? Drop a comment below. #PurpleDay2025 #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 25/03/2025
🟣 Scotland turns purple tomorrow! 45 landmarks light up for #PurpleDay! 🟣 Let us know your #PurpleDay plans! Whether you're wearing purple, fundraising, or simply spreading awareness, we want to hear about it! 📧 Email us at: communications@epilepsyscotland.org.uk #PurpleDay2025 #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 24/03/2025
Did you know that TV and Radio Presenter Edith Bowman had epilepsy as a small child? Today, she's using her platform and public voice to help raise awareness about this often misunderstood condition affecting millions worldwide. #TalkEpilepsy #Epilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 21/03/2025
The challenges people living with epilepsy face — from unpredictable seizures to medication side effects, from explaining their condition to navigating daily life — require a quiet strength that often goes unnoticed. #TalkEpilepsy #Epilepsy #EpilepsyAwareness #NeurologicalConditions
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Epilepsy Scotland @epilepsyscotland.bsky.social · 20/03/2025
Diagnosed with epilepsy as a teenager, Claire later faced her greatest challenge—watching her baby son Jack develop the same condition. You can read Claire's story via our website: buff.ly/1itThwC #TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizuresAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 18/03/2025
Living with epilepsy means facing unique challenges every day that many people don't see or understand. From medication management to unpredictable seizures, these challenges shape daily life in profound ways. What daily challenges do you face while living with epilepsy? #Epilepsy #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 17/03/2025
What happens during a tonic seizure? More than you might think! . Want to understand more about different types of seizures and how to help? Go to our website: buff.ly/9V001Sy #TonicSeizures #Seizures #SeizureAwareness #Epilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 13/03/2025
At age 20, Lauren was diagnosed with epilepsy after experiencing multiple seizures that led to a medically induced coma in September 2022. Read her powerful story of acceptance and awareness via our website: buff.ly/jKezkrI #TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 11/03/2025
Not every person that 'looks drunk' is drunk, they could be having a seizure. Don't let ignorance or prejudice get in the way of you helping someone in need. Learn more about the different types of seizures and how you can help on our website: buff.ly/ruMsuEf #TalkEpilepsy #Epilepsy #Seizures
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Epilepsy Scotland @epilepsyscotland.bsky.social · 10/03/2025
This #BrainAwarenessWeek help us call for greater investment into research into neurological conditions by sharing our content throughout the week. @@neuroalscotland.bsky.social #InvestInNeuroResearch #Research #Epilepsy #EpilepsyAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 09/03/2025
Imagine not knowing when your next seizures comes. This is the reality that people living with epilepsy have to live with each day. #EpilepsyReality #Epilepsy #Seizure #SeizureAwareness
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Epilepsy Scotland @epilepsyscotland.bsky.social · 07/03/2025
If someone is having a focal aware seizure (previously known as a simple partial seizure) follow the simple steps below to help keep the person safe. For more information, please go to our website: buff.ly/Y2PQpnK #SeizureFirstAid #FocalAwareSeizures #Seizures #FirstAid #Epilepsy
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Epilepsy Scotland @epilepsyscotland.bsky.social · 05/03/2025
It is not a case of get up and go after having a seizure. Every person's recovery from a seizure is different and will also depend on the type of seizures experienced. What helps you recover after a seizure? #BeyondSeizure #Epilepsy #EpilepsyAwareness #SeizureRecovery
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