Sign in

Emma

@epickirbz.bsky.social
268 followers 886 following 79 posts

Supporting people with 🔵 ME/CFS, 🟣 Fibromyalgia & 🟢🩶 Long Covid |✊ Unapologetically Socialist | ⚖️ Benefits Wizardry in action | ♿ Disabled & Proud | 🧠 SpLD + ADHD | ⚡ Endometriosis | 🌀 Hypermobile | 🐈 Ginger cat sidekick |📍 Sheffield based | ❤️ Leeds made

PostsRepliesMedia
Emma @epickirbz.bsky.social · 29/06/2025
They say we can’t afford to support disabled people. But they’ve found £73 billion to hand to private landlords between 2024 and 2029. They claim they need to make £5 billion in “savings”, so they take it from disabled people instead of introducing rent caps or building council homes. #TakingthePIP
071
Emma @epickirbz.bsky.social · 26/06/2025
My Hot Take: We don’t need to thank MPs for signing an amendment that stops disabled people being pushed further into poverty. That’s not allyship, that’s doing the bare minimum of their job. If it takes public pressure for you to defend our rights, you're part of the problem.
010
Emma @epickirbz.bsky.social · 20/06/2025
If passed, this Bill will push many disabled people out of the benefit system, not because their needs have changed, but because the law has. The Bill: share.google/yjmeSVJKrQ6L... #DisabilityRights #UniversalCredit #PIP #WelfareReform #TakingThePIP
share.google
Universal Credit and Personal Independence Payment Bill - Parliamentary Bills - UK Parliament
Current version of Universal Credit and Personal Independence Payment Bill with latest news, sponsors, and progress through Houses
010
Emma @epickirbz.bsky.social · 20/06/2025
This Bill narrows eligibility and freezes key support rates. It does not improve assessments, increase diagnostic access, or provide additional help. It simply lowers the threshold for entitlement and reduces real-term income for disabled people.
100
Emma @epickirbz.bsky.social · 20/06/2025
There is some transitional protection, but it is very limited. Existing PIP claimants will retain their award until reassessment. If they fail only due to the 4-point rule, they’ll keep their award for 13 weeks. After that, the support ends.
100
Emma @epickirbz.bsky.social · 20/06/2025
Under current rules, someone scoring 2 points in 4 different activities qualifies for standard rate. Scoring 2 in 6 different activities qualities for enhanced rate. Under the new rules, they would get nothing.
100
Emma @epickirbz.bsky.social · 20/06/2025
PIP rules are changing too. To qualify for the daily living component, claimants will need to: Score at least 8 points in total Score at least 4 points in a single activity This is a major shift from the current system.
100
Emma @epickirbz.bsky.social · 20/06/2025
Disability additions in ESA and UC, including the support component, work-related activity component, and severe and enhanced disability premiums—will be frozen from 2026 to 2030. This means they will lose value year on year due to inflation.
100
Emma @epickirbz.bsky.social · 20/06/2025
To get the higher LCWRA rate as a “severe conditions” claimant, you’ll need: A descriptor that constantly applies for life An NHS diagnosis No consideration of private diagnosis or cumulative functional impact
100
Emma @epickirbz.bsky.social · 20/06/2025
The LCWRA rates from April 2026: Pre-2026 claimants: £423.27 per month Terminally ill: £423.27 “Severe conditions” claimants: £423.27 Everyone else: £217.26 Most new claimants will fall into the lower category unless they meet strict criteria.
100
Emma @epickirbz.bsky.social · 20/06/2025
Right now, all claimants with Limited Capability for Work and Work-Related Activity get the same rate. From April 2026, most new claimants will get less than half the current amount.
100
Emma @epickirbz.bsky.social · 20/06/2025
From 2026 to 2030, the Universal Credit standard allowance will increase each year by CPI plus a fixed uplift (e.g. 2.3 percent in 2026–27). But the government has suspended its legal duty to review whether these rates are actually enough to meet people’s needs.
100
Emma @epickirbz.bsky.social · 20/06/2025
Thread: The Universal Credit and Personal Independence Payment Bill. Here’s a breakdown of what it does.
110
Emma @epickirbz.bsky.social · 20/06/2025
In April I submitted an FOI request to DWP asking how disabled people can access forms and communication by email. They missed the deadline. Then ignored the internal review request. It’s now with the ICO. #DisabilityRights #FOI #AccessToWork #PIP #DWP #ReasonableAdjustments #EqualityAct
130
Emma @epickirbz.bsky.social · 20/06/2025
DWP has released internal PIP & WCA training docs on Fibromyalgia & Long Covid after an FOI request. They’ve redacted parts under Section 31 (crime prevention). www.whatdotheyknow.com/request/free... #DisabilityRights #FOI #PIP #WCA #LongCovid #Fibromyalgia #WelfareReform #DWP
whatdotheyknow.com
Freedom of Information Request: PIP Core Training and Guidance (TAG) Materials on Fibromyalgia and Long Covid - a Freedom of Information request to Department for Work and Pensions
Dear Department for Work and Pensions, I am making a request under the Freedom of Information Act 2000. Please provide the following information: A copy of the most recent PIP Core Training and Gui...
021
Emma @epickirbz.bsky.social · 16/06/2025
Access to Work have refused my reconsideration, again by post, despite requesting email. I sent medical evidence. I work for a DPO. Their own assessor backed support. Still refused. This scheme is failing disabled people. I’m exhausted. And I know I’m not the only one. #AccessToWork #AtW
020
Emma @epickirbz.bsky.social · 11/06/2025
This is not a coherent anti-poverty strategy. It is crisis management. Calling it “resilience” suggests the problem is people not coping, rather than a broken system pushing people into poverty in the first place. This is not resilience. It is survival. www.bigissue.com/news/social-...
bigissue.com
Labour reveals £1bn plan to replace household support fund for poorest families
Labour laid out plans to spend £1bn a year replacing the household support fund with a new crisis and resilience fund at the spending review.
030
Emma @epickirbz.bsky.social · 08/06/2025
Can we talk about the fact the gov wants to scrap a benefit that’s existed for over 100 years? New Style ESA & JSA are based on NI contributions. They're being replaced by short-term insurance. Not if, just how short. A quiet attack on workers' rights. #WelfareNotWarfare #WorkersRights
010
Emma @epickirbz.bsky.social · 03/06/2025
Missing the March, Not the Movement. Join the online protest on 7 June 2025 at 12pm if you can’t attend in London. Post about disability rights and welfare cuts using #WelfareNotWarfare #TakingThePIP #StopTheCuts #TaxTheRich #DisabilityRebellion
Digital protest poster with a soft pastel gradient background blending light blue, lavender, and pink. On the left-hand side is a large 3D-style purple and silver megaphone, with a coiled, shiny ribbon emerging from it on the right. The text is  in black. The layout is split into clear sections.

Headline (top left):
“Missing the March, Not the Movement.” (Bold black text)

Main event info (centre-right):
“12pm on Saturday 7th June 2025” (Bold black text)
“If you can’t join the People’s Assembly protest in London on 7 June at 12pm, take part in the online protest from wherever you are.” (Smaller black text)

Body text (bottom centre):
“You can make a difference by amplifying your voice on social media, sharing banners, art, stories, and data, while championing disability rights and welfare changes. Don’t forget these hash tags:”

Hashtags (in bold black text):
#WelfareNotWarfare | #TakingThePIP | #StopTheCuts | #TaxTheRich | #DisabilityRebellion
030
Emma @epickirbz.bsky.social · 21/05/2025
DWP released new PIP assessor training on ME/CFS—but redacted over 40 pages on due to possible benefit fraud. Review requested. No updated training for Fibro or Long Covid either. Transparency matters. FOI: www.whatdotheyknow.com/request/3023... #ME #CFS #DWP #PIP #HAAS #training
whatdotheyknow.com
000
Emma @epickirbz.bsky.social · 20/05/2025
Apathy isn’t harmless. It gives permission for injustice to carry on unchecked. Sign the petitions, email your MP, join the Mass Lobby. bit.ly/m/Stop-the-c...
White background with the text: 

Apathy Is Not Neutral – It’s Part of the Problem

We’re facing devastating cuts to disability benefits. This will push hundreds of thousands into poverty, stripping away support that keeps people afloat.

If you’re not disabled, but you know someone who is – a friend, a colleague, a family member – this affects them. And if you stay silent, it affects you too.

Apathy isn’t harmless. It gives permission for injustice to carry on unchecked.

Please don’t look away. Take 5 minutes to:

Sign a petition

Email your MP (we’ve made it easy)

Join the campaign

Everything you need is here:
https://bit.ly/m/Stop-the-cuts

Silence helps no one. Solidarity changes everything.
000
Reposted by Emma
Emma @epickirbz.bsky.social · 01/05/2025
This is not just another petition. It's an official UK Government petition — at 10,000 signatures they must respond, at 100,000 it must be considered for debate. Let's speak out, together. #DisabilityRights #NothingAboutUsWithoutUs
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
112
Emma @epickirbz.bsky.social · 08/05/2025
Resharing to encourage more to sign!
030
Reposted by Emma
Emma @epickirbz.bsky.social · 01/05/2025
The DWP’s ‘Pathways to Work’ Green Paper proposes devastating cuts to disability benefits. This isn’t support — it’s coercion. We need a system built with disabled people, not imposed on them. Sign the official petition today #ScrapTheGreenPaper
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
142
Emma @epickirbz.bsky.social · 08/05/2025
Join us at Sheffield ME & Fibro Group’s AGM with guest speaker Dr Michelle Bull (Physios for ME), sharing insights incl. Norway’s ME/Long Covid conference. 🕒 2:15pm start (Zoom opens 2:05pm) Register: bit.ly/SMEFG-AGM-2025 #MEcfs #LongCovid #Physiotherapy
Promotional graphic for an online event by Sheffield ME & Fibromyalgia Group featuring Dr Michelle Bull from Physios for ME as the guest speaker. The event is scheduled for May 20, 2025, from 2:15 PM to 3:15 PM, following the group's Annual General Meeting. The banner includes a photo of Dr Bull, who is described as a Chartered Physiotherapist and NHS Transformation Manager. The talk will focus on improving local services using national and international best practices, with a special mention of physiotherapy. The image includes registration details (bit.ly/SMEFG-AGM-2025) and logos for Physios for ME, Sheffield ME & Fibromyalgia Group, and ME Local Groups Network UK. A summary highlights Dr Bull’s extensive experience with ME and Long Covid, her co-authorship of a physiotherapy guide, and her leadership in the Frailty Academy at Royal Surrey NHS Foundation Trust. Website: www.sheffieldmegroup.co.uk.
020
Emma @epickirbz.bsky.social · 08/05/2025
Join us at Sheffield ME & Fibro Group’s AGM with guest speaker Dr Michelle Bull (Physios for ME), sharing insights incl. Norway’s ME/Long Covid conference. 🕒 2:15pm start (Zoom opens 2:05pm) Register: bit.ly/SMEFG-AGM-2025 #MEcfs #LongCovid #Physiotherapy
000
Emma @epickirbz.bsky.social · 08/05/2025
If Access to Work is cut, small charities lose staff. Communities lose vital services. 📊 26% of charity workers are disabled 💸 34% of small charities have no reserves 🌍 £20bn+ social value at risk It’s not saving — it’s sacrifice. #AccessToWork #SmallCharities #Inclusion #AtW #VoluntarySector
disabilitynewsservice.com
Second wave of cuts could lead to ‘decimation’ of Access to Work scheme, but DWP refuses to comment
The Labour government has launched a new cost-cutting drive aimed at Access to Work, which insiders fear could destroy the scheme and lead to disabled people being forced to quit their jobs. Leaked…
020
Emma @epickirbz.bsky.social · 07/05/2025
The very thing the government claims to want — pushing more disabled people into employment — is undermined by their own actions. #AccessToWork #DWP #Disability www.thecanary.co/uk/analysis/...
thecanary.co
The DWP has tried to hide major changes to a grant scheme for disabled people
A whistleblower has exposed DWP plans for changes to the Access to Work scheme - ones that it hasn't made public yet
031
Emma @epickirbz.bsky.social · 01/05/2025
The Green Paper ignores lived experience, data, and rights. It's time for change. A National Disability Strategy must be co-produced, cross-government, and rights-based. Join the call #NationalDisabilityStrategy #HumanRights
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
000
Emma @epickirbz.bsky.social · 01/05/2025
A benefits system should offer security, dignity, and choice — not threats and sanctions. Disabled people deserve better. Demand a system shaped with us, not against us. Sign and share: #InclusionMatters #StopBenefitCuts
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
100
Emma @epickirbz.bsky.social · 01/05/2025
The petition calls for: 1. Withdrawal of the Green Paper 2. A National Disability Strategy 3. Protection of disabled people’s income 4. Real co-production with Deaf and Disabled People’s Organisations #CoProduction #StandWithDisabledPeople
111
Emma @epickirbz.bsky.social · 01/05/2025
This is not just another petition. It's an official UK Government petition — at 10,000 signatures they must respond, at 100,000 it must be considered for debate. Let's speak out, together. #DisabilityRights #NothingAboutUsWithoutUs
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
112
Emma @epickirbz.bsky.social · 01/05/2025
The DWP’s ‘Pathways to Work’ Green Paper proposes devastating cuts to disability benefits. This isn’t support — it’s coercion. We need a system built with disabled people, not imposed on them. Sign the official petition today #ScrapTheGreenPaper
petition.parliament.uk
Petition: Abandon DWP Pathways to Work Green Paper & create National Disability Strategy
The DWP Green Paper Pathways to Work proposes what we think are devastating cuts to disability benefits. We think the Government must drop these proposals and instead begin a process of co-production ...
142
Emma @epickirbz.bsky.social · 19/04/2025
18 weeks waiting for an Access to Work reconsideration. I also submitted a complaint about delays and poor communication—exhausted in Jan and escalated to ICE in Feb. Still no update. These delays are putting my job at risk. Ombudsman next. #AccessToWork #DisabilityRights #DWP #DisabilitySupport
020
Emma @epickirbz.bsky.social · 13/04/2025
A real alternative to Labour in the local #Doncaster Elections in May. For trade unionists, anti-cuts campaigners, community activists, socialists and anyone seeking a working-class alternative to establishment parties. www.tusc.org.uk/21300/18-12-...
A pink banner with the words: no cuts, closures or privatisation. Strike, organise, resist. TUSC Against Cuts. Join the fight against Tory & Labour austerity. www.tusc.org.uk. vote for Trade Unionist and Socialist Coalition.
082
Emma @epickirbz.bsky.social · 12/04/2025
We shouldn’t have to worry about enjoying ourselves too much or being seen having fun. #DisabilityJustice #InvisibleDisability #DisabilityRights #Ableism #StopTheStigma #ChronicallyIll #BenefitJustice
021
Emma @epickirbz.bsky.social · 12/04/2025
No one should live in fear of being harassed, accused of faking, or reported for benefit fraud simply because they don’t match someone’s narrow idea of what disability "looks like." Disabled people deserve to live safely and freely—without judgment, without fear
141
Emma @epickirbz.bsky.social · 12/04/2025
Disabled people who can walk short distances shouldn’t be afraid to park in a disabled space and walk into a store. Wheelchair users shouldn’t fear standing up or moving their legs. Disabled people shouldn’t feel anxious about using a cane only on their bad days.
362
Emma @epickirbz.bsky.social · 11/04/2025
125 days since I submitted my request for a reconsideration on my Access to Work claim. #accesstowork #dwp #delays #Atw
031
Emma @epickirbz.bsky.social · 11/04/2025
I was clutching my pearls for a while there! Legal firms incl. Leigh Day, PLP & Bhatt Murphy are exploring action against £4.5bn PIP cuts + more. Some measures won’t even be consulted on – just rammed through (4 points rule). I’ve been hoping this would happen. #StopTheCuts #BenefitCuts #CutsKill
052
Emma @epickirbz.bsky.social · 11/04/2025
Opposing all disability benefit cuts www.change.org/p/stop-the-disability-benefit-cuts #DisabilityRights #PIP #AccessToWork #DWP #SocialJustice #BenefitsJustice #DisabledPeopleDeserveBetter #StopTheCuts #TribunalSupport #WelfareRights #EqualityMatters #InclusionNow #DisabilityAdvocacy #NoCruelCuts
000
Emma @epickirbz.bsky.social · 11/04/2025
Campaigning against cruel benefit cuts www.act.38degrees.org.uk/act/no-cruel-cuts-to-benefits Reforming recent changes to disability benefits www.change.org/p/reform-the-recent-changes-to-disability-benefits Stopping the new 4-point PIP rule www.change.org/p/stop-the-new-4-point-pip-rule
110
Emma @epickirbz.bsky.social · 11/04/2025
Reviewing PIP criteria and basing awards on medical diagnosis www.petition.parliament.uk/petitions/721692 Protecting disabled people from benefit cuts www.petition.parliament.uk/petitions/721547 Reviewing the Access to Work scheme www.petition.parliament.uk/petitions/701711
100
Emma @epickirbz.bsky.social · 11/04/2025
Ending repeat PIP assessments www.petition.parliament.uk/petitions/703827 Improving Access to Work waiting times www.petition.parliament.uk/petitions/716527 Informing claimants of the 69% tribunal success rate for PIP appeals www.petition.parliament.uk/petitions/700658
100
Emma @epickirbz.bsky.social · 11/04/2025
In light Green Paper and "Welfare reform" and the increasing barriers to accessing support, there are a number of petitions that may be of interest. To prevent diluting our voices I urge you to sign all of them. These petitions call for urgent reforms and protections, including:
111
Emma @epickirbz.bsky.social · 09/04/2025
These reforms don’t support disabled people. They isolate us. Punish us. And they’ll cost more in the long run. #DisabilityRights #DWPReform #SocialJustice
032
Emma @epickirbz.bsky.social · 09/04/2025
Growing disability discrimination in recruitment NHS and GPs overwhelmed as people forced to work get more unwell Mental health services under pressure as financial insecurity deepens More people pushed out of work completely — losing autonomy and connection
121
Emma @epickirbz.bsky.social · 09/04/2025
More disabled people unable to pay for care Local authorities footing the bill — despite already overspending & making cuts Increased employment tribunals as employers face legal challenges More redundancies or job losses as businesses cut back to avoid risk
100
Emma @epickirbz.bsky.social · 09/04/2025
The proposed changes to #PIP and #AccessToWork won’t "get more disabled people into work." They’ll do the opposite — and cause a cascade of problems across public services and society. Here’s what that really leads to:
100
Emma @epickirbz.bsky.social · 09/04/2025
some people can’t work, and they deserve financial support that protects their independence and dignity. #PIP is a broken system. It’s stressful, unfair, and 69% of appeals are successful at tribunal. That tells you everything. #AccessToWork is no better.
100