iiinova — where your digital self keeps evolving

Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Yeah I actually had this recently on another platform and I was literally talking about how taking away funding and early intervention is going to be terrible for children and it breaks me to think of another generation going without support like I did. Autism mum came in full attack mode. 🤦‍♀️🤷‍♀️

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

I would say taught to *appear less intense, etc. We weren't taught to BE those things, just to try to appear to be them

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

❤️ thank you for sharing. I cycle through burn out too, horrendous. I do okay (?) now but still struggle significantly and the battery runs out quickly. 🪫 hardest part of late diagnosis is finally having some answers...as parents age out of being able to support us the way we needed as kids.

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Ah yes, uneasy. That's why it took over an hour to get through to lifeline the evening this was announced, all those uneasy NDIS participants!

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Uneasy!? People are angry, fearful, anxious, depressed and suicidal . Imagine telling a minority who is more likely to suicide that their funding may be taken away at any moment and there's no fallback. These articles could at least virtue signal, chuck in the lifeline number! Ffs. Uneasy!

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

The real headline should be; "Before the NDIS, we were blind to just how many Australians were living with significant disabilities. The NDIS has allowed us to begin repairing the historical ignorance to those who deserved better."

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Instead it's "oops, wish we'd never done this, hope you guys stay quiet while we push you back 50 years heh, institutions were fine!"

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Anyone else trying not to be alarmist but also a bit scared that all this #NDIS talk could be leading to some of the euthanasia laws being discussed as seen in other places allowing disabled people/carers to EOL rather than offer support?

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

The other issue with requiring the FCA so often for people whose condition and needs haven't changed is that it makes the waiting extend for the participants who NEED an FCA to increase funding as their needs increase (often as they age). 🤦‍♀️ Its all a mess. Listen to those of us with experience ffs.

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Very well said. People who were previously invisible in struggling accessed a scheme set up with the supports they needed. Now the invisible are visible and society and the government are regretting giving us that chance wishing we had just continued to suffer in silence.

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

Essentially, the govt had no idea how many disabled people were living without supports up until the NDIS, no idea how inaccessible the country was/ is. That's worth pointing out. So many people were invisible before the NDIS and now the government is villainising those people for becoming visible.

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Anonymously.autistic @emmarose90.bsky.social · 25/04/2026

I just don't get his point - was this supposed to be him trying to relate to people or something? Nah mate, you don't get empathy points for something that doesn't even affect a living relative...

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Anonymously.autistic @emmarose90.bsky.social · 07/05/2025

Any favorite autism books? Have you read Girl Unmasked? That's my favorite.

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Anonymously.autistic @emmarose90.bsky.social · 07/05/2025

I devoured books as a kid! As a teenager struggled more with the concentration and energy side of it and have never been able to really re-engage the hobby and grieved it honestly - until last year when I finally got put on ADHD meds! Now I'm reading again and it's amazing!!

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Anonymously.autistic @emmarose90.bsky.social · 10/03/2025

I detest that when I struggle with burn out, depression etc everyone else's goal for me seems to be "how can we get you back to work". Like can I find a way to actually want to be alive before we talk about work or is that all my life is worth 🤷‍♀️

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Anonymously.autistic @emmarose90.bsky.social · 10/03/2025

I feel you! If I was able to work more than I can and have financial security I would. I had to reduce to a shift a week. If people don't think we'd prefer to be well and able to support ourselves and even thrive, they are truly ignorant. Little me had aspirations I'll never get close to 😔

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

When I actually allowed myself to feel anger towards that source instead of just myself, I realized I made room within myself for some respect, not gonna say love yet but just for something other than the loathing and disgust I've been living with for myself.

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

when people do me wrong. I guess it's a trauma thing. I always hold people up high, even when they hurt me, I've directed it all inwards and done myself so damage that I nearly OD'd last week. But it's okay to be mad at the people who hurt you. It's got to be healthier than self hatred.

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

It's been my default to blame myself whenever something goes wrong. I people please, apologize and pretend I was the one at fault and grovel. Today I realized how sad it is that it's easier for me to be angry at myself than someone who did the wrong thing and hurt me. That I can actually be mad 2/

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

Today I learned a new form of self compassion; holding other people accountable. I've been blaming myself for something for weeks, loathing myself and spiralling into depression. I wanted to believe the other side didn't do anything wrong and as usual it was my fault 1/

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

Yeah as of yet none of the pills they've tried me on have helped (and have made it worse!) so feels like they're just throwing mud and hoping something eventually sticks 😭

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

😔 unfortunately. I hate that I'm basically just told to accept it. When it gives you those thoughts for a week or so every month it feels terminal honestly. Just waiting for the month that beats me 🤷‍♀️

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

Hope you're as safe as you can be matt.

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

Ugh very true, the photo op is all that matters to so many.

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Anonymously.autistic @emmarose90.bsky.social · 07/03/2025

Oh yes. I have PMDD and was told it was quite normal for women to feel suicidal during PMS every month 🙃 until I was over 30 and someone was finally like every month? No that's NOT normal PMS. Women's health has come a ways but still a long way to go!

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

This is why I get so frustrated with the teachers who are like well they should have written plans (IEP etc). So many kids go undiagnosed with health conditions. I wasn't diagnosed autistic/ADHD until my 30s. Traumatized by school because our voices don't matter if we don't have the documents 🤷‍♀️

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

Isn't it sad how little we're taught about our own bodies?

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

Everything I read this week. Thought I'd share for #worldbookday

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

I don't understand why people say things they don't mean. But it hurts and it just feels cruel.

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

Damn so true. Pre-diagnosis I used to think the reason I was so much more tired than everyone else was because I lived two lives, the intense rehearsal and the intense real thing that never went to plan anyway 🙃

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Louise Ting @neuro-observant.bsky.social · 05/03/2025

The autistic experience of overapologising because you’ve been taught to feel guilt and shame for having feelings, needs and behaviours that neurotypical people don’t understand #AuDHD #autism #disability

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Anonymously.autistic @emmarose90.bsky.social · 06/03/2025

Terrifying numbers there. UK-specific stats? Though I'm sure it's very similar here in Oz.

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Anonymously.autistic @emmarose90.bsky.social · 05/03/2025

I think it's so sad because there are people who still struggle to talk about any digestive struggles and don't get diagnosed or not until it's very serious. So expecting that if a child has a health issue they'll be diagnosed and have the paperwork is just incredibly ignorant right!?

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Anonymously.autistic @emmarose90.bsky.social · 05/03/2025

This is what I always say too. Teachers on reddit are vicious. Some children won't even know they have any digestive issues so how can they disclose 🤷‍♀️ How is allowing kids to go to the bathroom up for debate? It's just completely mind-blowing.

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Anonymously.autistic @emmarose90.bsky.social · 05/03/2025

System is broken honestly when that's the way it works. End of the day, it's the individual who pays with their whole quality of life, side effects of medications we never needed so physical and mental health and financial costs for the systems inability to diagnose autism earlier. Change is needed.

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Anonymously.autistic @emmarose90.bsky.social · 05/03/2025

Other side to this is I've been in the mental health system since I was 13, over 20 years. My folks spent 10s of thousands for me to get misdiagnosed and wrongly treated repeatedly. It's kinda fucked that people are then expected to shell out even more money to correct the mistakes made by others.

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Anonymously.autistic @emmarose90.bsky.social · 05/03/2025

Totally agree. I was extremely lucky to get access to a free assessment by pure chance. The people in my mental health team happened to know a team that it seems very few get access to. I never begrudge anyone who self ids. Also your name is ace 😂😂

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Anonymously.autistic @emmarose90.bsky.social · 03/03/2025

Yeah I had something similar and my problem was the novelty wore off quickly and now it just sits there unused like so many things 😕

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

Well he'd prefer them dead than autistic 🤷‍♀️

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

Also when people say that online interactions aren't real. Unless specifically talking about bots, it actually is because plenty of people saying terrible things are real. Yes, echo chambers exist but I hate when people dismiss that the stuff people say online isn't real so "don't worry about it"!

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

This already feels like a losing fight and the worst is yet to come. I can't connect, I can't trust. The only "resources" don't help. I find out again how little "# mental health matters" actually means to some people. I don't know how many times I can fight the same fight with no hope. That's it.

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

I’m close to my parents, yes, but do you know how hard it is to tell the people who bought you into the world that you wish they never had? And as we all get older, every time I have these episodes I think about when they’re gone – I will truly have nobody and no options. 3/

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

Which take hours/days to call back people who are actively suicidal, go figure then act you’re rattling off a shopping list not suicidal thoughts mhm, mhm, ok, ok. Absolutely no compassion and it only makes me feel MORE alone. 2/

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

trauma dump incoming; the worst thing for me about being late diagnosed autistic, being traumatised repeatedly by the medical system is that when I'm suicidal I have nowhere to go. I will not retraumatise myself going to hospital again. I can't trust professionals or helplines or crisis teams 1/

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Emily Katy @itsemilykaty.bsky.social · 28/02/2025

I am so tired of seeing how both the education and healthcare system fails neurodivergent people over and over again.

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

Supermarket here in Oz finally went from having one hour a week of quiet hour (low music, low lighting) to an hour every week day. I've been saying it in every survey they send out for the last year so I was pleased to see that at least - even if it's still at a shitty time that doesn't suit me lol.

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Anonymously.autistic @emmarose90.bsky.social · 02/03/2025

It's definitely a combination for me but agree, focussing on only one aspect ignores other aspects. Society can for sure make changes that would help but it would not erase my disability.

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