iiinova — where your digital self keeps evolving

Trying to stay hopeful that it's not too many new lesions growths & that it maybe opens up eligibility for DMTs for slowing the progression but also means side effects etc so it is not the letter I was hoping or expecting 😔

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I haven't been given my MRI results. This means I most likely have new brain lesions and am currently in active MS and disease progression. This is a really shit place to be in tbh. All my healthcare practioners were hoping for no progression for years or decades and it's happening already

I had my MRI checkup a month ago and was expecting a letter with my results. My neuro has booked me in to see him in November. He said he would only do that if there was disease progression shown on the checkup MRI. I am not mentally doing well with this information

I am siiiiick over how gorgeous this is 😭🩷

Elfy🎨🖌️ @elfypedia.bsky.social · 29/09/2026

Oh man yeah they're not the nicest 😭 idk why they make the solution THAT painful like I've never had any injection have such burny liquid 😂😭

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Elfy🎨🖌️ @elfypedia.bsky.social · 29/09/2026

I think that my body is deliberately choosing to be a menace on days when I have other painful things to experience. It was b12 injection day and my arm HURTS and my insides HURT from the gift of periods, which by itself is DISGUSTING because I don't even want, nor ever have wanted kids. Plz yeet 😭

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Elfy🎨🖌️ @elfypedia.bsky.social · 28/09/2026

42 hours progress..... I haven't even STARTED the main ruffle/headpiece and the headpiece of the little staff and the beads....I fear I am now in the phase of making art where a short sketch is anything under 20 hours 😂

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It wasn't the nicest haha. The fact I'm still struggling with breathing days later I think shows how bad it got 🥲

Props to the paramedics for being legends & explaining everything clearly and calmly & stayed with me til I could breathe again instead of gasping 😂 also helping with heat packs & positioning to help ease the hug attack when it moved to my back.Id very much like to breathe normally again soon tho 😂

I'm VERY well adjusted to the panic/anxiety attacks I usually have and for this one to trigger based off a physical response I had no control over or realisation of, was a pretty gnarly thing. It's been days and I'm still struggling with my breathing and there's nothing I can do about it 🤷🏼‍♀️

After 4 hours of this and inability to breathe correctly,the "hug" shifted to my side then back,where I was able to take full breaths again and the panic attack stopped. The hug lasted several more hours. Anyway, out of all the things I knew MS could and will do to me, this was not one I thought of.

- an asthma attack (would have been the first in over 15 years), was actually an anxiety attack response to a particularly bad MS hug attack. The banding around my chest and back caused my body to go into a panic and hyperventilating because of the muscle spasms not allowing me a full breath of air-

Elfy🎨🖌️ @elfypedia.bsky.social · 25/09/2026

So now I've kind of recovered from the initial shock of everything - on Wednesday night I was having some trouble breathing and called 111 who called an ambulance. Then spent 2 and a half hours with the paramedics trying to chill my beans in bed. AS IT TURNS OUT what I had initially thought was -

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QRP your spooky art! (I HAVE SO MANY WTF... I simply couldn't choose just one I'm sorry 😂)

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Elfy🎨🖌️ @elfypedia.bsky.social · 25/09/2026

The left side of this embroidery part has taken me 2 DAYS wtf 😂🥲

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Elfy🎨🖌️ @elfypedia.bsky.social · 23/09/2026

I am SCREAMING INTO THE VOID because I decided to fucking paint the gold embroidery and this part alone has taken me HOURSSSS. And I've so much left to do 😭😭😭😭😭

Quick photo of an iPad screen with a painting in progress on the screen. The artist is currently painting golden embroidery and is showing that off

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Elfy🎨🖌️ @elfypedia.bsky.social · 21/09/2026

Dat window glare tho I'm off back home... Waiting for ye olde IPad + pencil to charge more 🥲

Quick photo on a train carriage showing an iPad on a desk and a wheelchair in the background

Elfy🎨🖌️ @elfypedia.bsky.social · 17/09/2026

Yeah you are 😎 haha thank you!

Elfy🎨🖌️ @elfypedia.bsky.social · 17/09/2026

Show us how you paint stars!! Here's my contribution ✨✨✨

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Elfy🎨🖌️ @elfypedia.bsky.social · 17/09/2026

Nearly missing my train because the accessibility team didn't fucking show up and then fighting with an American over lift priority - was not on my bingo card for today

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Elfy🎨🖌️ @elfypedia.bsky.social · 16/09/2026

The big attack lasted 8 hours with about 3 hours of "aftershocks".... I had the worst fuckin day yesterday 😂😭

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Elfy🎨🖌️ @elfypedia.bsky.social · 15/09/2026

I have had my 3rd day in a row of extreme fatigue and 2 days of ms hug attacks and I am DONEEEE IIIIIN 😭 today's one has lasted 3 and a half hours so far. Fucking end me.

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Elfy🎨🖌️ @elfypedia.bsky.social · 15/09/2026

It's just not worth the cost of actually making the book unfortunately! I could BARELY justify the nearly £60 cost for ONE book and even that isn't all that full

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Elfy🎨🖌️ @elfypedia.bsky.social · 13/09/2026

I am making slow progress on this! The filigree is taking SO LONG and it's not even the detailing level I'm just putting down some slightly more intermediate blocking😂

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Elfy🎨🖌️ @elfypedia.bsky.social · 13/09/2026

If you don't know what I'm talking about; every year I print a book for myself of all the paintings I've done that year, since I can't keep a traditional sketchbook. And I don't have enough work for a book this year and I'm MAD/SAD about it

A photo of 2 books that contain paintings made by elfy, from the years they were created

Elfy🎨🖌️ @elfypedia.bsky.social · 13/09/2026

I haven't made enough paintings this year to put a book together and I'm mad at myself about that....but also I am SUPER DUPER disabled/chronically ill so I have spent a lot of time resting instead... So next year I may have to do a 2 year sketchbook book instead

Elfy🎨🖌️ @elfypedia.bsky.social · 06/09/2026

I settled on this Harlequin as my 2026 Halloween painting... I'm gunnah add some more creepy elements to it later on down the painting road 😂 #wip #workinprogress

Photo of an iPad screen showing a painting in the first stages of completion. It depicts a harlequin in gold, white, and black

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Yeah it's looking more likely to have to be something boney or generally very kitsch. The year I painted my colourful witch I had no issues but anything darker in tone has been my downfall 😂 I hate that I can't paint the bloody horror without being smacked by the app gods

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I've considered a pumpkin + black cat combo - but considering I'm mostly a portrait painter, I'm not sure how well that would go down 😂

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So plz give me some ideas! I've done 2 vampires, a witch, and a ghosty woman.... Im not sure what direction to go into this year at all 😭

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FRIENDS It is time to start the Halloween painting. But I'm unsure what to paint this year! I've had a couple of paintings land me in a STRICT shadowban on socials due to "glorifying gore and violence" and I feel like I need to do something less.... Scary 😂 in order to get around the algorithms...

🩷🫶🏼 (side note, MS is truly kicking my ass these days 😂🫠 hope you're faring better haha!)

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Hellew I also have MS and would like to be included! 🩷

Elfy🎨🖌️ @elfypedia.bsky.social · 02/09/2026

Having firemen in my house tonight (for the report that a disabled person lives here, no fires I promise haha), was dangerous for a chronically single woman 😂😂😂🥵

Elfy🎨🖌️ @elfypedia.bsky.social · 31/08/2026

I am QUITE excited!!! Thank you!