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The European Federation of Neurological Associations (EFNA)

@efna.net
131 followers 79 following 108 posts

The European Federation of Neurological Associations [EFNA] is a non-governmental organisation (NGO) that brings together 21 pan-European neurology patient groups. Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an association.

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The European Federation of Neurological Associations (EFNA) @efna.net · 08/09/2026
Today, at the European Parliament in Brussels, EFNA is holding a roundtable discussion on 'Health Technology Assessment in Rare Neurological Conditions: From European Coordination to National Implementation.' Thank you to MEP Tomislav Sokol (EPP, Croatia) for kindly hosting this important event.
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The European Federation of Neurological Associations (EFNA) @efna.net · 31/08/2026
The EFNA Conference takes place September 25-26 in Dublin. It will be attended by #neurology patients and #advocacy groups, EU policymakers & regulators, leading clinicians and academic researchers, as well as pharmaceutical and #medtech innovators. efna-conference.net/registration #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 28/08/2026
The latest episode of the #BrainHealthMatters podcast - ‘What Will the European Neurological Health Strategy Deliver?’ - is available now! Listen at www.efna.net/podcast-what-will-the-… or wherever you get your podcasts. #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 24/08/2026
Dr Holm Graessner is Coordinator of ERN-RND. Speaking on the Brain Health Matters podcast he called for the full inclusion of rare neurological conditions in the European Neurological Health Strategy: www.efna.net/podcast-what-will-the-…
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The European Federation of Neurological Associations (EFNA) @efna.net · 21/08/2026
On Monday, 14 September at 15:00 CET, EFNA will host a special webinar: “Towards a European Neurological Health Strategy.” Read more and register to attend: www.efna.net/register-now-efna-webi… #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 21/08/2026
Prof. Anna Jansen, President of European Paediatric Neurology Society (EPNS), on why EPNS want to see a dedicated section on children in the planned European Neurological Health Strategy: www.efna.net/podcast-what-will-the-… 
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The European Federation of Neurological Associations (EFNA) @efna.net · 19/08/2026
We were honoured to have Kailash Bhatia, President, European Academy of Neurology, contribute to our podcast - 'What Will the European Neurological Health Strategy Deliver?’ Listen now at www.efna.net/podcast-what-will-the-… #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 18/08/2026
What Will the European Neurological Health Strategy Deliver? The latest episode of EFNA's podcast, featuring Hugo Hermantin, Policy Coordinator of European Brain Council (EBC) is available now: www.efna.net/podcast-what-will-the-…  #neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 13/08/2026
We are delighted to welcome Arlene Wilkie, Director General of the Stroke Alliance for Europe (SAFE), as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Learn more about the EFNA Conference and register to attend: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 11/08/2026
On Monday, 14 September at 15:00 CET, EFNA will host a special webinar: “Towards a European Neurological Health Strategy.” Read more and register to attend: www.efna.net/register-now-efna-webi… #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 11/08/2026
We are delighted to welcome Brigid McKenna, Stroke survivor and MS family carer as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Learn more about the EFNA Conference and register to attend: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 06/08/2026
We are delighted to welcome Esther Tomkins, Headache/Migraine Nurse Specialist at Beaumont Hospital, Dublin, Ireland, as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Register: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 04/08/2026
On Monday, 14 September at 15:00 CET, EFNA will host a special webinar will host a special webinar: “Towards a European Neurological Health Strategy.” Read more and register to attend: www.efna.net/register-now-efna-webi… #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 03/08/2026
We are delighted to welcome Dr Martin Ruttledge, Consultant Neurologist & Headache Specialist at Beaumont Hospital, Dublin, Ireland, as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Learn more and register here: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 28/07/2026
We are delighted to welcome Elisabeth Kasilingam, Chief Executive Officer of the European Multiple Sclerosis Platform (EMSP), as a speaker at our EFNA Conference Dublin 25-26 September. Register: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 22/07/2026
🧠❣️We are delighted to announce another winner of EFNA Conference #BrainTalks competition - on Friday, September 25th you will have the opportunity to hear Natalie Busari speak on the topic ""Understanding Is Power: How AI Can Give Patients Back Control". #EFNA2026 #Neurology #WorldBrainDay
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The European Federation of Neurological Associations (EFNA) @efna.net · 22/07/2026
Ireland's Minister for Health, Jennifer Carroll MacNeill, delivers the keynote address at today's event, 'Neurology at the Forefront of Innovation in Knowledge Based Healthcare and Research Across Europe' as part of Ireland's programme of Associated Presidency Events. #Ireland2026EU #WorldBrainDay
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The European Federation of Neurological Associations (EFNA) @efna.net · 22/07/2026
🧠❣️We are delighted to announce another winner of EFNA Conference #BrainTalks competition - on Saturday, 26/9 you will have the opportunity to hear Eamon McPartlin speak on the topic "When Common Doesn't Mean Equal: The Fight for FND Care". #EFNA2026 #Neurology #WorldBrainDay
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The European Federation of Neurological Associations (EFNA) @efna.net · 22/07/2026
🧠Today, on #WorldBrainDay, we are pleased to announce the winners of EFNA Conference #BrainTalks competition❣️ 💡On Saturday, 26/9 you will have the opportunity to hear Anastasia Pekarskaya speak on the topic "The Hidden Power of the Human Voice". Register : ow.ly/AoZp50Zrg2r #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 21/07/2026
🇪🇺 Our sincere gratitude to MEP Angelika Winzig (Austria, EPP) who has pledged her support to the MEP Interest Group on Brain Health & Neurological Conditions. Learn more about the Group's activities here: www.efna.net/bhnc #MEP #EUHealthcare #HealthPolicy #neurology #EUhealth
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The European Federation of Neurological Associations (EFNA) @efna.net · 13/07/2026
We are delighted to welcome Nina Hovén, President of ADHD Europe, as a speaker at our EFNA Conference taking place in Dublin 25-26 September, joining the panel discussion on the topic of "Paths to Diagnosis: Navigating the Neurology Journey". Register: efna-conference.net #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 10/07/2026
We are delighted to welcome Carmel Geoghegan, Founder of Dementia Ireland Empowering Communities, as a panelist on the topic of "Redefining Recovery Through Neurorehabilitation" at our EFNA Conference (Dublin 25-26 September). Register: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 07/07/2026
We are delighted to welcome Dr. Laura Brady, CEO at the Irish Platform for Patient Organisations, Science & Industry (IPPOSI), as a speaker at our EFNA Conference for a panel "Common Goals in Action: Embedding PPI in Neurological Innovation". Register: efna-conference.net #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 02/07/2026
We are delighted to welcome Lorraine Duffy, Senior Postdoctoral Researcher, Royal College of Surgeons in Ireland (RCSI), as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Learn more and register here: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 27/06/2026
Join us tomorrow, 28/6 1-2 pm CET for EFNA TV Studio Session at EAN Congress where John Gerbild, Board Director of Euro-Ataxia and Board Director Eurordis, joins discussion on "Epidemiology,diagnosis and trials for rare neurology" Join here ow.ly/JzrE50ZhU5B #neurology #EAN2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 26/06/2026
Join us on Sunday, 28/6 1-2 pm CET for EFNA TV Studio Session at the EAN Congress where EFNA's Vice-President and President of EAMDA Arabela Acalinei, will be chairing the session titled "Epidemiology, diagnosis and trials for rare neurology". Learn more and join here: ow.ly/7CIm50Zht7j
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The European Federation of Neurological Associations (EFNA) @efna.net · 24/06/2026
We are delighted to welcome Dr. Sebastian F. Winter, M.D. Ph.D. (Executive Director, NeuroTech Hub at Charité Berlin, Former Consultant to WHO), as a speaker at our EFNA Conference taking place in Dublin 25-26 September. Learn more and register: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 19/06/2026
We are delighted to welcome Nadia Malliou, President of Pain, Alliance Europe as a speaker at our EFNA Conference in Dublin 25-26 September Learn more about the EFNA Conference and register to attend: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 17/06/2026
We are delighted to welcome Jean Georges, Executive Director of Alzheimer Europe, as a speaker at our EFNA Conference in Dublin 25-26 September Leran more about the EFNA Conference and register to attend: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 15/06/2026
We are delighted to welcome Arabela Acălinei (President, European Alliance of Neuromuscular Disorder Associations (EAMDA)) as a speaker at our EFNA Conference in Dublin 25-26 September Leran more about the EFNA Conference and register to attend: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 10/06/2026
We are thrilled to announce Jana Hlaváčová, Head of the Health Technology Assessment Unit at the Ministry of Health of the Czech Republic, as a speaker at the EFNA Conference in Dublin in September. Learn more and register to attend, here: efna-conference.net #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 09/06/2026
We are delighted to announce that Hélène Nicora (Director General, Parkinson's Europe) will be speaking at our Conference in Dublin in September in a panel on 'Neurotechnologies: Shaping the Future of Brain Health.' Learn more&register here: ow.ly/zH0H50Z9l0f #EFNA2026 #Neurology
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The European Federation of Neurological Associations (EFNA) @efna.net · 05/06/2026
At the recent Milan Longevity Summit, our Executive Director Dr. Orla Galvin spoke on the topic "From Tokenism to Co-Design: Neurology Patients as System Shapers”. Read the article below👇: ow.ly/HTut50Z7TI6
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The European Federation of Neurological Associations (EFNA) @efna.net · 04/06/2026
The European Federation of Neurological Associations (EFNA) is pleased to announce the addition of two new member organisations: Alzheimer Europe and the Epilepsy Plus Alliance. Learn more: www.efna.net/efna-welcomes-two-new-… #neurology
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Reposted by The European Federation of Neurological Associations (EFNA)
Alzheimer Europe @alzheimereurope.bsky.social · 04/06/2026
Alzheimer Europe is delighted to become a full member of the European Federation of Neurological Associations @efna.net. EFNA’s Board unanimously voted to accept us at its meeting today and we look forward to working with EFNA! Read more: www.alzheimer-europe.org/news/alzheim...
alzheimer-europe.org
Alzheimer Europe is delighted to become a full member of the European Federation of Neurological Associations (EFNA)
On 4 June 2026, Alzheimer Europe officially became a full member of the European Federation of Neurological Associations (EFNA), a non-governmental or
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The European Federation of Neurological Associations (EFNA) @efna.net · 04/06/2026
Recent European Parliament Magazine’s Rare Diseases Forum brought together policymakers, patient advocates, researchers, healthcare professionals and industry representatives to discuss future of rare disease policy in Europe Read more 👇 ow.ly/uI6q50Z7rWT #neurology #raredisease #patients
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The European Federation of Neurological Associations (EFNA) @efna.net · 21/05/2026
We are pleased to announce that Derek Readman, European Huntington Association Board Member, will speak at the upcoming European Federation of Neurological Associations Conference, taking place in Dublin in September. Learn more: lnkd.in/dbJrU2ht #EFNA2026 #neurology #HuntingtonsDisease
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The European Federation of Neurological Associations (EFNA) @efna.net · 19/05/2026
The European Federation of Neurological Associations (EFNA) Statement from the 79th World Health Assembly (#WHA79): www.efna.net/wha79 #neurology #patientadvocacy #NCDs #health WHO
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The European Federation of Neurological Associations (EFNA) @efna.net · 19/05/2026
Stigma and discrimination are now recognised as major, but often overlooked, parts of the burden of #migraine. EFNA is pleased to announce that EMHA Executive Director, Elena Ruiz de la Torre, will participate in a panel on this topic at the EFNA Conference: efna-conference.net
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The European Federation of Neurological Associations (EFNA) @efna.net · 19/05/2026
We are delighted to announce that John Coleman (RDCat Fellow & SpR Clinical #Genetics) will be speaking at the EFNA Conference in Dublin, where he will participate in a panel on 'Paths to Diagnosis: Navigating the #Neurology Journey.' Learn more: efna-conference.net #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 18/05/2026
We are pleased to announce that Claire Behan will be speaking at the EFNA Conference in Dublin this September. She will contribute to the panel discussion, “Beyond the Brain: A Holistic Approach to #Neurology and #MentalHealth.” Find out more here: efna-conference.net #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 18/05/2026
Calling all #Neurology Advocates Enter EFNA's BrainTalks #Competition for an opportunity to speak at the EFNA Conference 2026, taking place 25–26 September in Dublin, Ireland. Winners will receive flights, accomodation and access to both days of the conference: www.efna.net/braintalks2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 15/05/2026
We are pleased to announce that Robert Joyce (#MS advocate and Embedded Patient Researcher) will be among the speakers at the upcoming European Federation of Neurological Associations (EFNA) Conference, taking place in Dublin in September. Learn more: efna-conference.net #MultipleSclerosis
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The European Federation of Neurological Associations (EFNA) @efna.net · 14/05/2026
Jagdeep Singh Aujla (#Parkinsons advocate, Founder of Dopamine Warriors) will be speaking at the The European Federation of Neurological Associations (EFNA) Conference in September, where he will share his insights on 'Aging Well with Neurological Conditions' Learn more: efna-conference.net
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The European Federation of Neurological Associations (EFNA) @efna.net · 14/05/2026
Calling all #Neurology Advocates! Enter EFNA's BrainTalks #Competition for an opportunity to speak at the EFNA Conference 2026, taking place 25–26 September in Dublin, Ireland. Winners will receive flights, accomodation and access to both days of the conference: www.efna.net/braintalks2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 12/05/2026
We are pleased to announce that Chris Lynch (Acting CEO at Alzheimers Disease International), will be speaking at The European Federation of Neurological Associations (EFNA) Conference in Dublin in September. Learn more: efna-conference.net #EFNA2026 #Alzheimers
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The European Federation of Neurological Associations (EFNA) @efna.net · 06/05/2026
The inaugural European Federation of Neurological Associations (EFNA) Conference takes place September 25-26 in Dublin, coinciding with Ireland’s Presidency of the Council of the European Union 🇪🇺 Register now at efna-conference.net #neurology #EUheath #EUPresidency #EFNA2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 05/05/2026
Calling all #Neurology Advocates! Enter EFNA's BrainTalks #Competition for an opportunity to speak at the EFNA Conference 2026, taking place 25–26 September in Dublin, Ireland. Winners will receive flights, accomodation and access to both days of the conference: www.efna.net/braintalks2026
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The European Federation of Neurological Associations (EFNA) @efna.net · 01/05/2026
Migraine is a neurological condition affecting 1 in 7 Europeans. Many of them are active workers. Despite its prevalence, it remains largely invisible and insufficiently addressed in workplace environments. #InternationalWorkersDay2026 #neurology #MigraineFriendlyWorkplace #1MayWorkBetter
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The European Federation of Neurological Associations (EFNA) @efna.net · 23/04/2026
At the recent Rare Disease Forum 2026 organised by The Parliament, our Executive-Director Dr. Orla Galvin signed the pledge aiming to transform the landscape of rare diseases in Europe. You can sign the pledge on below link:👇 tally.so/r/GxB1qQ #PMRareDiseases
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