iiinova — where your digital self keeps evolving

Duncan Edmonstone @edmonstone.net · 01/08/2026

It’s World Lung Cancer Day 2026. It’s also exactly 7 years since I had surgery to remove a metastatic tumour from my brain caused by my own lung cancer. I got this rather fetching scar! 1/n

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Duncan Edmonstone @edmonstone.net · 19/06/2026

Every time someone says anything along the lines of "it's a beautiful day in...", I have to resist the temptation to say "and you are a horrible goose."

The horrible goose from the video game "Untitled Goose Game" holding a bell.

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Duncan Edmonstone @edmonstone.net · 05/06/2026

I’m not really one for bucket lists, but if I was, seeing the godfathers of electronic music, Kraftwerk at the Royal Albert Hall would have been right up there. Absolutely amazing show. Can I go again please?

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Duncan Edmonstone @edmonstone.net · 27/05/2026

@herring1967.bsky.social spotted as part of an exhibition of Andy Hollingworth photos of comedians in Birmingham

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Duncan Edmonstone @edmonstone.net · 13/05/2026

Won an award at the Greater Manchester Cancer Alliance Awards - this was the Patient's Choice award for the work I do as a patient advocate for the alliance. I don't care too much about recognition, but it is nice to know you are making a difference, however small. #GMCancerAwards26

Photograph of me (Duncan Edmonstone) accepting the Patient Choice award at the GM Cancer Alliance Awards 2026. Also in the photograph are two members of the Alliance's User Involvement team and the events host, comedian John Thomson

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Duncan Edmonstone @edmonstone.net · 16/04/2026

You want bulls? I gotta tha bulls. How many bulls you wanting? (Photograph taken last week at Chania Archeological Museum, Crete)

A large collection of bull figures from archeological digs on Crete in a display case

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Duncan Edmonstone @edmonstone.net · 19/01/2026

Spent Friday attending @gmcanceracademy.bsky.social Genomics Education Event. Spoke on a patient panel, and presented a patient’s view of liquid biopsies. Very informative!

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Duncan Edmonstone @edmonstone.net · 06/01/2026

lol - there aren’t many 50-something men that use loads of this - I get through about 2-3 bottles a year!

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Duncan Edmonstone @edmonstone.net · 17/10/2025

Sigh... suspended from Facebook by their dumb AI algorithm No big deal right? For me, it cuts me off from all of my cancer support groups, hosted on the platform. Can't contact anyone directly at Meta to appeal... "services" to help you get your account back are scammers... not my first rodeo!

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Duncan Edmonstone @edmonstone.net · 02/07/2025

Today is 6 years since a Dr in A&E (ER for those in US) told me “you have 2 legions in your lungs, and 1 in your head that caused the seizure - we won’t know until more tests are done, but it looks like lung cancer”. This photo was taken 4 days later after I got out of hospital. 1/2

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Duncan Edmonstone @edmonstone.net · 30/06/2025

Well, I’m in Facebook jail. Of course I haven’t done what I am accused of (breaking Meta’s cybersecurity guidelines), but it doesn’t seem to matter… 1/n

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Duncan Edmonstone @edmonstone.net · 23/04/2025

Well everyone else is doing it, so... how I arrived on BlueSky

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Duncan Edmonstone @edmonstone.net · 22/04/2025

Interesting review of the current state of liquid biopsies in treating cancer. Both current use-cases and potential future ones. The language is bit heavy for a layman, but you can still get the gist: www.journalofliquidbiopsy.com/article/S295...

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Duncan Edmonstone @edmonstone.net · 03/04/2025

I'm 55 in May and as someone with a high likelihood of a much reduced lifespan (thanks cancer), I was planning to start taking a little out of my pension. Might put that off a little longer now (thanks President Cheetos)

Graph of the last 5 days of the S&P 500 showing a drop of nearly 5% today

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Duncan Edmonstone @edmonstone.net · 28/02/2025

It's #RareDiseaseDay 2025 What is a rare disease? One that affects < 1 in 2000 My cancer is rare enough that its prevalence isn't tracked nationally. From research I have done with a charity, we think there are less than 200 people diagnosed annually and less than 2000 patients across the UK.

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Duncan Edmonstone @edmonstone.net · 08/02/2025

Spent a bit of time this week updating my estimate of the # of ALK+ patients on a TKI in the NHS in England. A summary graph is attached. More details and my original numbers on this from a year ago are available here: drive.google.com/file/d/1r8JH...

Graph showing an estimate of ALK+ NSCLC patients in NHS England on a TKI. April 2019 - November 2024

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Duncan Edmonstone @edmonstone.net · 05/01/2025

Well my kidnappers are screwed, but I suspect I am as well.

Cast of TV show “What we do in the shadows”

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Duncan Edmonstone @edmonstone.net · 01/01/2025

Our cats partied too hard on NYE - all day snooze required.

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Duncan Edmonstone @edmonstone.net · 05/12/2024

Evening palette cleanser. One of our cats considering if he should start his own podcast series

Black cat sat on a desktop PC tower with a microphone in the background

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Duncan Edmonstone @edmonstone.net · 03/12/2024

- patient - 5 years with stage 4 non-small-cell lung cancer (ALK+) - anything with chocolate - chairing the England & Wales National Lung Cancer Audit Patient & Public Involvement Forum - ensuring lung cancer treatment data is reported in a patient-friendly manner

infographic of lung cancer statistics for England & Wales

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Duncan Edmonstone @edmonstone.net · 02/12/2024

Presenting at Greater Manchester Cancer Alliance PPI Forum on my experience as part of the Early Diagnosis of Symptomatic Lung Cancer working group and the LungAware chatbot - lungaware.co.uk

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Duncan Edmonstone @edmonstone.net · 28/11/2024

Can't believe I hadn't seen this before. Thank you to @thankscancer.bsky.social for sharing. I wasn't just scratching my head, my head was spinning!

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