iiinova — where your digital self keeps evolving

very inconvenient to get a rare disease and sub problems from steriods that mean I have to call doctors and end up going in same day to make sure nothing progresses 😅

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veebee👻 @earthyangel67.bsky.social · 07/10/2026

im so frustratedddd with my mobility todayyy

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veebee👻 @earthyangel67.bsky.social · 06/10/2026

first fat quarter scrap underway

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veebee👻 @earthyangel67.bsky.social · 05/10/2026

my body is so mad at me now lmaoo

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veebee👻 @earthyangel67.bsky.social · 01/10/2026

ik its been a while but heres a lil reminder (for me and anyone else) USE THE RIGHT AID DAMMIT stop trying to use lesser ones ans losing your energy and hurting urself !! Dont be silly

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veebee👻 @earthyangel67.bsky.social · 29/09/2026

ahhhhhhh!!!!!🧡🖤✨️😭

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veebee👻 @earthyangel67.bsky.social · 29/09/2026

sometimes I think im doing good cause its not as much weakness or numbness or other sensations but then pain hits me like a truckk

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veebee👻 @earthyangel67.bsky.social · 27/09/2026

had the best day today and my brain is all discontent today and idk why and I hate it sm !!

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veebee👻 @earthyangel67.bsky.social · 26/09/2026

hey dont read your wheelchair letter of medical necessity unless u wanna be humbled and qUICKLY at that 🙂😂

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veebee👻 @earthyangel67.bsky.social · 25/09/2026

my love ordered me a drink to be delivered, and called me to chat for almost an hour while she was working in office and it was quiet🥹🖤

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veebee👻 @earthyangel67.bsky.social · 24/09/2026

I was a day off!!! TODAYS MY YEAR MARK!!! WE MADE IT BABIES!!! 🥹🤍

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veebee👻 @earthyangel67.bsky.social · 23/09/2026

ik it might be silly but im fckn celebrating it, 1 whole year I wasnt sure if my body would give me without being admitted again. 1 whole year of relearning my body, 1 whole year of treatments, and medications, and sooo much more but thankfully all outpatient 😭🩷

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veebee👻 @earthyangel67.bsky.social · 23/09/2026

1.5 days till my 1 whole year out of hospital😭

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veebee👻 @earthyangel67.bsky.social · 23/09/2026

feeling like i have to shove everything into the small amount of energy window time I have is NOT a learning curve ive figured out yet 💀

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Reposted by veebee👻

beatrice ☾ .⁺⋆ @beawiitch.bsky.social · 22/09/2026

🍂🎃👻🕸️🤎🦇💀🌰🖤🍁🧡💀🧶 🍄‍🟫🍂 happy 1st day of autumn! 🎃👻 🕸️🤎🦇 💀🌰🖤🍁🧡💀🧶🍄‍🟫🍂🎃

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veebee👻 @earthyangel67.bsky.social · 21/09/2026

ITS OFFICIALLLL im SCREAMING my custom wheelchair is moving forward in trying to get authorization!!!!!

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veebee👻 @earthyangel67.bsky.social · 18/09/2026

someone's familiar stopped by🖤

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veebee👻 @earthyangel67.bsky.social · 18/09/2026

allll these hospital pictures in my memories from last year, i really cant believe it 🥺

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veebee👻 @earthyangel67.bsky.social · 17/09/2026

When you know you need to eat but you dont wanna eat cause you dont wanna be nauseous

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veebee👻 @earthyangel67.bsky.social · 16/09/2026

need to think up ideas for decorating and bags and outfits that work sitting down

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veebee👻 @earthyangel67.bsky.social · 16/09/2026

ANYWAYS im so thankful and excited for the ability to have the potential of a wheelchair in the future cause ik the symptoms are gonna continue to get worse (lol🤪) and the potential of having it as a relief tool is HUGE to me

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veebee👻 @earthyangel67.bsky.social · 16/09/2026

im not emotionally stable enough for the shelter videos on my fyp

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veebee👻 @earthyangel67.bsky.social · 15/09/2026

can i celebrate im finding acceptance in my limitations?

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veebee👻 @earthyangel67.bsky.social · 15/09/2026

can I celebrate that im 10 days away from 1 whole year out of the hospital and I think im gonna make it?

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veebee👻 @earthyangel67.bsky.social · 15/09/2026

can I celebrate the fact i think im moving forward with getting a customized wheelchair that will work in my house and outdoors that I can propel?

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veebee👻 @earthyangel67.bsky.social · 15/09/2026

also !!! CHEERING SO LOUD CAUSE WE MADE IT THROUGH MY APPT WITHOUT HOSPITAL ADMISSION!!!!!!!

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veebee👻 @earthyangel67.bsky.social · 15/09/2026

I- i might get a wheelchair? I- AHHHHHHHHHHHGGGGHHH

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veebee👻 @earthyangel67.bsky.social · 10/09/2026

my favorite thing about quilting is it looks absolutely crazy or messy while in the process then something so pretty comes out despite any mistakes or tweaks needed

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veebee👻 @earthyangel67.bsky.social · 10/09/2026

do u guys want another sneak peak

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veebee👻 @earthyangel67.bsky.social · 10/09/2026

oh, oh my joint pains are making sewing harder? I really hope this is just part of tapering from prednisone😭

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veebee👻 @earthyangel67.bsky.social · 10/09/2026

oooooh spoons are so low but I wanna get more quilt stuff done so off we gooo

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Reposted by veebee👻

Cookies (Rosie) 🧚🌙| Cozy and Gaming 🧸 @rosiebunx.bsky.social · 10/09/2026

It’s a low spoons low energy day it’s time to play tears of the kingdom on my switch in bed 💤

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veebee👻 @earthyangel67.bsky.social · 10/09/2026

are you KIDDING me, she's out there cleaning off my bird feeders for me so i can charge my video feeder 😭🩷

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veebee👻 @earthyangel67.bsky.social · 09/09/2026

watching docs and sewing today !!

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veebee👻 @earthyangel67.bsky.social · 09/09/2026

me just casually thinking about changing my last name to my loves since shes basically my wife anyways 🤭🤭

static.klipy.com

Illit Yunah (아일릿 윤아) Shy Smile

ALT: Illit Yunah (아일릿 윤아) Shy Smile

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veebee👻 @earthyangel67.bsky.social · 09/09/2026

I still struggle with an uptick of anxiety when my symptoms are funky or worse or something just feels weird and im working on allowing that space to exist alongside everything else

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veebee👻 @earthyangel67.bsky.social · 04/09/2026

why are people so serious about dogs genders - like boy? girl? no actually its babushka

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veebee👻 @earthyangel67.bsky.social · 04/09/2026

a bird just hit our window but thankfully it kept flying after !!

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veebee👻 @earthyangel67.bsky.social · 03/09/2026

sometimes my loves at work and I wanna hang out with her SOOO bad like ugh

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veebee👻 @earthyangel67.bsky.social · 02/09/2026

I want you all to know that ive been stressed and overthinking this entire thing only for it to be 5 minutes and him to tell me my usual neuro is right which YAY for confirmation of diagnosis but BOO for stressing!!!😭

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